Raise Awareness

Caring for the Mind: 12 Parkinson’s Mental Wellness Resources

Older woman staring out of the window in despair

At times, living with Parkinson’s disease (PD) can feel overwhelming. Managing symptoms, navigating physical and mental changes and making lifestyle adjustments can all take an emotional toll. As you find your path forward, it’s essential to acknowledge and take steps to care for your mental health.  

Up to half of all people with Parkinson's will experience depression at some point, while 40% will experience anxiety. Nearly half of people with PD can also experience apathy, a loss of interest in life. These changes can be related to PD, due to a loss of dopamine and other chemical messengers the body makes to keep the brain healthy.  

Whether you live with PD or you are a care partner to someone who does, it can be challenging to know where to begin. Explore our top resources that address mental wellness and PD: 

1. Create space for all your emotions, even those of grief and loss. 

Grief is a natural part of the Parkinson’s journey, especially following a diagnosis. Holding onto grief impacts your mind and body. Read 6 Questions for Exploring Your Parkinson’s-Related Grief to find healthy ways to honor and process feelings of loss. 

2. Explore our e-book  Mood: A Mind Guide to Parkinson's Disease

Parkinson’s-related mood changes are commonly undertreated. There are screening tools and therapies available. Learn what to watch for and how to discuss treatment options with your doctor.  

3. Cultivate a state of calm with Mindfulness Mondays, a series of guided relaxations. 

Stress can worsen PD symptoms. Mindfulness, focusing on one thing at a time and blocking out distractions, promotes resiliency and reduces stress. Read Top Takeaways About Complementary Therapies and PD to explore more mind-body wellness practices. 

4. Listen to our podcast How to Talk About Impulse Control Disorders

Up to 14% of people receiving dopamine-replacement therapy can develop compulsive behaviors known as impulse control disorders. It is believed people perform these harmful behaviors (such as hypersexuality, hoarding or compulsive gambling) to relieve anxiety and tension.  

5. Learn how Parkinson’s disease cognition – the mental skills we use to focus, solve problems, plan, follow instructions and more.  

Thinking changes can influence mental health. Addressing Thinking Changes in Parkinson's identifies coping strategies and therapies for cognitive change. 

6. Break a sweat with our free, on-demand Fitness Friday workouts.  

Exercise is medicine. Regular exercise can ease depression, anxiety and other non-movement symptoms of PD, as well as improve mobility and flexibility. Aim for at least 2.5 hours a week.  

7. Build your mental health team

Mental health support helps you prioritize your emotional well-being and work through your feelings. To know what to look for in a mental health counselor, read 7 Helpful Tips for Finding Your Ideal Mental Health Counselor

8. Improve shut-eye with Sleep: A Mind Guide to Parkinson's Disease

Restorative sleep helps repair the brain and body and enhances mental wellness – critical for people with Parkinson’s and care partners. Expert Tips on How to Get Good Sleep with Parkinson's also offers strategies to build a healthy sleep routine. 

9. Read How to Harness Food as Medicine for Parkinson’s.  

Gut and brain health are intertwined. A nutrient-rich diet – including colorful fruits and vegetables, beans, whole grains, poultry, nuts, seeds, fatty fish, olive oil and other healthy fats – can offer neuroprotective benefits and boost the number of good bacteria in the body. 

10. Get social and connect with your PD community online or in person. 

Loneliness can affect physical and mental health. Find your nearest Moving Day, A Walk for Parkinson’s to meet others living with PD or access wellness classes and other resources near you through the Parkinson's Foundation local Chapter network

11. Don’t fear hard conversations. You are not alone. 

People with Parkinson’s are at an increased risk of suicide. If you are struggling with thoughts of despair, opening up to someone you trust is the first step toward getting the help you need. How to Openly Discuss Suicide and Parkinson’s can help you talk about difficult feelings. The National Suicide Prevention Lifeline is available 24 hours a day at 1-800-273-8255. 

12. Get inspired. Learn how others are navigating life with Parkinson’s. 

My PD Story is a place for where people share how they are raising awareness of PD and overcoming its challenges. Learn what keeps others hopeful and consider sharing your own story.  

For more mental health resources: 

We’re here for you. Contact our Helpline more information on mental health, referrals to professionals and resources in your area. Call 1-800-4PD-INFO (1-800-473-4636) or email Helpline@Parkinson.org. 

Raise Awareness

Our Top Parkinson’s Awareness Month Videos

Hi! I'm Pam!

This April, you met PAM, our guide to Parkinson’s Awareness Month. Each week, PAM shared essential tips and resources to give people helpful information about Parkinson’s disease (PD). 

Check out PAM’s top videos below:  

1. 10 early signs of Parkinson’s  

Learn more about the early signs of Parkinson's.  

2. PD Symptoms 101 & Managing Them 

Learn more about the movement and non-movement symptoms of Parkinson's.  

3. Stages of Parkinson's 

Learn more about the stages of Parkinson's.  

4. Parkinson's Research

Explore Parkinson’s research studies on the Foundation's Join a Study page. 

The Parkinson’s Foundation mission to help people live better with Parkinson’s continues strong year-round. Here are some ways you can help us raise PD awareness right now:  

Fact Sheets

All About PD: Mental Health

Mental health symptoms are common in Parkinson’s disease (PD). Learn the causes, signs and what to do. You are not alone.

Up to 50% of people with PD experience depression or anxiety.

Understand the Causes

The same brain chemicals that affect movement in PD can also impact emotions and behavior. Stress, isolation, life’s ups and downs and coping with PD also play a role.

Know the Signs

Feeling sad, anxious or unmotivated from time to time is normal. If these feelings last or interfere with daily life, reach out for help.

Depression, anxiety and apathy, if not managed, can worsen movement symptoms and impact quality of life.

Depression: Ongoing sadness, low energy, loss of pleasure, hopelessness.

Anxiety: Excessive worry, fear or stress, restlessness, irritability.

Apathy: Lack of motivation, disinterest in activities once enjoyed.

Call or text 988 if you’re in crisis.

What You Can Do

Talk to your doctor
Mental wellness care often includes lifestyle strategies, talk therapy and other forms of support. Sometimes, medications are needed too.

Keep moving
Even just 30 minutes of moderate activity, like walking or yoga, boosts brain chemicals that help reduce stress, anxiety and depression.

Seek support
Reach out to friends, family, counselors, support groups and other resources. For guidance, contact our Helpline at 1-800-4PD-INFO (1-800-473-4636).

Stay engaged
Schedule time to connect with others and look for ways to get involved. Even when you don’t feel like it, staying active can improve your mood over time.

For more tips to support your mental health, visit Parkinson.org/MentalHealth.

Podcasts

Episode 177: The Role of Caregivers in Parkinson’s Dementia

Thinking and memory changes, also known as cognitive changes, may become more noticeable as Parkinson’s disease (PD) progresses. If these symptoms begin to interfere with everyday tasks, it may be a sign of dementia. Understanding the signs of dementia in Parkinson’s, along with its different names and variations, is essential for tailoring treatment options to your specific symptoms. 

The early signs of dementia may be hard to notice at first. Often, it is the care partner or family member who witnesses the gradual decline in thinking abilities. Care partners play a crucial role in providing the best quality of life and support for their loved ones with Parkinson’s.

In this episode, Jori Fleisher, MD, MSCE and Claire Pensyl talk about Parkinson’s dementia. Dr. Fleisher is a movement disorders neurologist and co-director of the Parkinson’s Foundation Center of Excellence at Rush University in Chicago, where her research focuses on designing and implementing novel models of care and support for people living with neurodegenerative disorders. She is the Principal Investigator of the PERSEVERE trial, an entirely virtual, national trial to educate and empower care partners whose loved ones have Parkinson's or Lewy Body Dementia (LBD). 

Claire, on the other hand, was the care partner for her husband, Ira, who had PD and LBD. She shares her experience witnessing Ira’s cognitive challenges as they became more apparent and describes how she became motivated to learn more about the signs of dementia as the disease progressed.

Released: March 25, 2025

Raise Awareness

Nourishing Wellness: How to Harness Food as Medicine for Parkinson’s

Man sitting at a table holding an apple

Nutrition can be a powerful tool in managing Parkinson's disease (PD). Whole, nutrient-dense foods provide your body with the best building blocks for peak function, maintenance and repair. Every positive food choice is a step towards optimizing health. 

The following article is based on a Parkinson’s Foundation Expert Briefing about the connection between nutrition and Parkinson’s, hosted by functional nutritionist and health coach Carolee Horner, MS, NBC-HWC. 

The Relationship Between Food and PD 

Food is more than just fuel for the body; it can act as medicine. Your body breaks down everything you eat — proteins into amino acids, carbohydrates into sugars and fats into fatty acids — then reassembles these components into whatever it needs, whether new cell membranes, neurotransmitters or energy. The better your fuel, the better you will feel. 

Gut and brain health are strongly connected. Diet helps shape the gut microbiome — the trillions of bacteria living in the digestive system. These bacteria produce neurotransmitters, influence inflammation and affect medication absorption. Good gut health relies on a diet of whole and fermented foods, colorful vegetables and fruits, healthy fats and herbs and spices. These foods are also rich in antioxidants, substances that protect the body. 

The standard American diet is centered on processed foods, refined sugars and unhealthy fats. These foods are linked to: 

  • Chronic disease, such as diabetes, heart disease and obesity, along with neurodegeneration and cognitive decline. 

  • Inflammation, which is the body’s response to harm. This response is crucial for healing. However, chronic, systemic inflammation can potentially damage healthy tissue. 

  • Oxidative stress, which leads to cell damage. 

Inflammation and oxidative stress play significant roles in the progression of Parkinson’s disease.  

Targeted Nutrition and Parkinson’s  

Nourishing foods and hydration can help ease symptoms of PD, such as digestive challenges, and may influence cognitive function, mood and sleep quality. Balanced meals and snacks can help stabilize blood sugar and energy levels. Different “everyday” dietary approaches, those designed for long-term, sustainable health improvements, have shown promise for people with Parkinson's, including the: 

  • Mediterranean diet: emphasizes colorful fruits and vegetables, beans, whole grains, poultry, nuts, seeds, fatty fish, olive oil and other healthy fats.  

  • Med-DASH diet: incorporates Mediterranean-style eating habits and dietary approaches to stop hypertension. This limits salt, sugar and meats, dairy and oils high in saturated fat. 

  • MIND diet: Mediterranean-DASH intervention for neurodegenerative delay or targets brain health through a combination of Med-DASH principles while emphasizing leafy greens and dark berries. 

All three diets limit processed foods, red meat, high-fat dairy, sweets, fried foods and butter.  

The Complementary & Alternative Medicine Care in Parkinson’s Disease study links the Mediterranean and MIND diets to slower PD progression and better quality of life.  

A 2022 study update showed the MIND diet had twice the symptom-reducing power of the Mediterranean diet. Both diets are rich in polyphenols and flavonoids, which combat oxidative stress in the brain. Observational studies show the Mediterranean diet may delay PD onset by up to 17 years in women and seven years in men. The MIND diet is linked to slower cognitive decline and a reduced risk of Alzheimer’s disease.  

Vegetarian and pescatarian diets are also high in fiber and antioxidants. Both focus on plant-based foods, boost gut bacteria diversity and may reduce the risk of diabetes, obesity and other chronic diseases. Vegetarians do not eat animals, but may eat their products, such as honey, dairy or eggs. Pescatarians follow these same principles, along with eating fish. 

Therapeutic Diets 

Often intended as short-term resets rather than permanent solutions, therapeutic diets can be restrictive. They may be difficult to sustain long-term and require careful planning to ensure adequate nutrition. Discuss any changes in your dietary patterns with your healthcare team. 

Examples of therapeutic diets include the: 

  • Vegan Diet: excludes animal products and centers on fruits, vegetables, legumes, nuts, seeds and whole grains. This diet emphasizes whole, plant-based foods while minimizing reliance on pasta, soy-based substitutes and processed convenience products. Those following a plant-based diet or who have absorption issues, which is common in Parkinson's, may find that a B12 supplement is necessary.   

    • High in fiber and antioxidants, a vegan diet promotes diverse gut bacteria and can help reduce oxidative stress and inflammation — factors in Parkinson’s progression. 

    • Plant-based eating can also lower risk for chronic diseases, such as cardiovascular disease and diabetes, which can be common in people with PD. 

  • Ketogenic (keto) Diet: a high-fat, moderate protein, low-carbohydrate approach designed to induce ketosis — a metabolic state where your body uses fat for fuel instead of glucose. This diet focuses on high-quality fats like avocado oil and nuts. If not managed carefully, this diet can cause constipation, high cholesterol levels or nutrition imbalances. Low intake of fruits and vegetables may reduce dietary fiber and antioxidants. This diet may also require regular monitoring of kidney and liver function. 

    • PD-specific ketogenic studies are limited, but suggest potential motor symptom benefits due to reduced oxidative stress. 

    • Evidence from Alzheimer’s research shows a keto diet may offer neuroprotective effects by decreasing inflammation and enhancing the production of brain energy. 

  • Paleo Diet: emphasizes whole, nutrient-dense foods, including colorful fruits and vegetables, lean meats and fish, while eliminating grains, legumes, dairy and sometimes, nightshade vegetables (a family of plants some believe can trigger inflammation). 

    • Research suggests the paleo diet may reduce inflammation and boost gut health.  

    • Rich in antioxidants and omega-3s, the diet may also offer some neuroprotective benefits. 

    • The paleo diet can act as an elimination diet — removing and reintroducing common trigger foods can help identify specific food sensitivities or intolerances. 

Therapeutic diets can be restrictive. They’re often intended as short-term resets rather than permanent solutions. Keeping a symptom and food diary can help identify patterns and distinguish between PD symptoms and nutrition-related issues. A nutrition expert, such as a registered dietician, can tailor your approach. Pay attention to how your body responds and be open to adjusting or transitioning to a more sustainable approach if needed. 

A Personalized Approach 

Though there is no one-size-fits-all diet for managing PD, diets that show potential to ease PD symptoms — including delayed gastric emptying, small intestinal bacterial overgrowth and constipation, which affects up to 80% of PD patients — all share certain elements, including a focus on: 

  • Whole, nutrient-dense, fiber-rich foods 

  • Vegetables  

  • Healthy fats, such as those in olive oil, nuts, seeds and avocados 

  • Hydration: dehydration or electrolyte imbalances can worsen muscle stiffness 

These diets also emphasize reducing the consumption of processed, fried or sugary foods.  

Eating the rainbow brings phytonutrients into the body, minimizing inflammation and protecting the brain from neurodegeneration. Minerals like magnesium, zinc and iron also play important roles in brain health and can be found in diets rich in colorful plants and whole foods. For example: 

  • Red tomatoes and watermelon contain lycopene. 

  • Orange and yellow food, such as carrots and squash, have beta-carotene. 

  • Leafy green vegetables hold phytosterols. 

  • Blue and purple berries offer anthocyanins. 

  • Citrus fruits, berries, nuts, and seeds contain antioxidants like vitamins C and E. 

  • Herbs and spices are nutrition powerhouses. Basil, oregano, or a squeeze of lemon can add zest to dishes.   

  • B vitamins, especially B12, are crucial for neurological health. Natural sources of B12 include meat, fish, and eggs. Whole grains, legumes, nuts, seeds and some vegetables contain other B vitamins.  

  • Vitamin D: People with PD are also commonly deficient in Vitamin D. It can be obtained from sunlight.  

Tips To Help You Tackle Nutrition Challenges 

  • If protein-rich foods impact the absorption and effectiveness of levodopa, talk to your PD doctor about taking medication 30 minutes before or 60 minutes after eating protein.  

  • Pay attention to how meals interact with your medication schedule and symptoms. Smaller, more frequent meals may be beneficial. 

  • If you experience dysphagia or difficulty swallowing, a speech-language pathologist specializing in PD can help. Softer foods and thickened liquids may be easier to manage. Sitting upright and taking smaller bites can also help. 

  • Maintaining weight can be difficult for some people with Parkinson’s. Consider making high-calorie shakes or smoothies that incorporate protein powders. Try to avoid dyes, preservatives and other additives. Look for words you recognize from the garden, versus words from a chemistry textbook.   

  • Limited availability or resources might make incorporating fresh fruits and vegetables difficult. Consider frozen or home-canned options.  

Talk to your doctor about the right dietary approach for you. 

Learn More 

Explore our resources about diet in Parkinson’s: 

My PD Story

John Rosiak rock climbing
People with PD

John Rosiak

When I was diagnosed with Parkinson’s disease (PD) in the fall of 2023, my response was to go on a crash course to learn as much as I could about this “progressive” disease and see what action I could take.  

I was familiar with the disease, trying to help support my brother’s journey with PD the last 10 years of his life. I saw his classic symptoms of slowness, falling, freezing, swallowing and speech problems, and more. Yet, he never really had tremors, and his mind was sharp until the end. I didn’t understand just how different PD can be in different people. 

A few years ago, I was constantly fatigued and losing confidence in my balance. I went to my primary care physician (PCP), who sent me to different doctors to find the underlying problem. These referrals included a neurologist, who ordered an MRI, and did the standard “clinical assessment.” She said I didn’t have PD.  

The cardiologist, sleep study, endocrinologist, and ear, nose and throat (ENT) specialists, all found no answers to my symptoms. So, back to the PCP, who told me to avoid the heat, and referred me to another neurologist, which took months to get an appointment. 

This neurologist made the clinical diagnosis of Parkinsonism. To learn more, she offered me a choice of a skin biopsy to see if there was alpha synuclein abnormality, or a DaTScan, to see if there was any dopamine deficit. I chose the former. When the synuclein skin biopsy test came back abnormal, that “supporting information” warranted the diagnosis of PD in December of 2023, even though symptoms were mild. 

I immediately went to clinicaltrials.gov to see what studies I should sign up for, thinking I could learn more about my new situation, and how to get a handle on it. I am fortunate to live in the Washington, DC area, with its abundant biomedical centers and institutions. I applied to the Parkinson’s Progression Markers Initiative (PPMI) study, which included a DaTScan at Johns Hopkins Parkinson's Disease and Movement Disorders Center, which is also a Parkinson’s Foundation Center of Excellence

My neurologist later read that DaTScan, which showed an overall loss of dopamine in my brain, and a more significant loss of dopamine in the right brain hemisphere. This scan helped explain why I had less coordination and strength on the left side of my body. The positive DaTScan result provided further “supporting” information for the diagnosis of PD. 

I signed up for the National Institute of Health’s (NIH) Phenotype/Genotype Correlations in Movement Disorders, run out of their Parkinson’s Clinic. My wife and I spent a day there meeting with neurologists who tried to understand my case, given the mild symptoms. They also drew blood to test the full genome to check for PD-related genes.  

I also signed up for the PD GENEration: Mapping the Future of Parkinson’s disease genetic testing study, which collected my genes by a buccal (cheek) swab. The results were back in one month; they were negative for any of the seven genes related to PD. That testing came with excellent genetic counseling to understand what the results meant for my family and me. Likewise, NIH’s genetic testing “did not detect disease-causing variants.” I was interested to know if there was a genetic connection because I figured that might tell me something about possible disease progression, and preferred treatments.  

There was one more study I signed up for right away. In December of 2023 I contacted Marymount University in VA, about participating in their study about the effects of rock climbing on PD. I signed up for data collection in January, which involved 10 baseline measures that assessed agility, balance, grip strength and general well-being. Then I had to rock climb 24 times in 12 weeks.  

I finished all 24 climbs by March. I then repeated the 10 tests I took in January, before climbing. I didn't see the comparison results (it's a study, so it was “blind”), but I really feel that I did as well on the posttests, or even better, after all those climbs, than on the pretests back in January.  

I never did rock climbing before, but did many other physical activities over the years. I knew that exercise was so important for PD, as well as for general health. In January I told my wife, "I hope I like rock climbing because I just signed up to do 24 climbing sessions in 3 months!" After climbing for several months for the study I have to say I don't like rock climbing — I love it!  

Exercise in the form of climbing has changed my life. After every session my body feels tired and sore (which, frankly, I feel all of the time with PD). But I liken that feeling to those good, tough workouts from playing sports for years. Walking out of the climbing gym I feel better. That natural dopamine my brain is short of might be kicking in because of the climbing. I walk with greater confidence. My attitude toward life is positive and focused. I forget about the PD. 

I continued to climb the rest of the year (in fact, I now work at the gym instructing others). In addition to climbing twice a week with my peers with PD in the UpENDing Parkinson’s program I try to help support UEP’s growth so more climbers in more gyms can participate in this remarkable exercise therapy.  

In addition, I completed the Parkinson’s Foundation Ambassador training, and was also trained as a Research Advocate.  I continue to look for, and participate in a variety of studies, many of them online, run by various universities or institutions trying to understand various issues related to PD. 

I believe research is so important to help people better understand the disease and, more importantly, what we might be able to do about it. 

My goal is to be as active as I can physically and mentally. Having the diagnosis has also prompted more reflection about life. While not sure what the future will bring, I am grateful to have found a “power through weakness.” Because of this experience, I have a new perspective, and hope for the future. There are so many resources to help those living with PD. 

Explore how you can get involved in Parkinson’s research today. Visit our Join A Study page and learn more about our Research Advocate program.   

Science News

Study Shows Multiple Sleep Problems Are Common in Early Parkinson's

Parkinson's Foundation Science News blogs

More than 75% of people with Parkinson’s disease (PD) report sleep-related symptoms. The presence of sleep disorders can significantly impact quality of life for the person with Parkinson’s and their care partner, contributing to fatigue, cognitive impairment and mood disorders. 

Man laying in bed having trouble sleeping

Sleep disorders can manifest in various ways, including insomnia (difficulty falling asleep or staying asleep), Rapid eye movement (REM) sleep behavior disorder (acting out dreams), restless leg syndrome, excessive daytime sleepiness and sleep apnea.  

Research shows that sleep problems are common in early Parkinson’s stages and can get worse as the disease progresses. It’s likely that these issues stem from a combination of factors including the disease's impact on brain regions regulating sleep-wake cycles. Research also shows that sleep issues are worsened due to coexisting PD conditions like depression and anxiety, medication side effects and movement symptoms.  

However, it remains unclear if people with PD usually suffer from one single type of sleep problem, or from multiple sleep problems at the same time. In addition, researchers are still learning how sleep issues relate to other aspects of PD. A new study published in npj Parkinson's Disease systematically evaluated sleep issues in people with early-stage Parkinson's.  

Study Results 

To learn more about sleep disorders, the study examined sleep issues in 162 people with early-stage Parkinson's and 58 people without the disease. The research team used interviews, overnight sleep studies (polysomnography) and various tests to understand the participants' sleep, motor skills, thinking abilities and other health factors.  

They found that a large majority (71%) of those with early-stage Parkinson's had at least one sleep disorder. Importantly, about half of those with sleep problems experienced multiple issues at the same time. They also observed that the longer someone had Parkinson's and the more problems they had with involuntary bodily functions (like blood pressure or digestion), the more sleep disorders they tended to have. 

This new study data shows that most common sleep issues associated with Parkinson’s were insomnia (41% of participants), followed by REM sleep behavior disorder and excessive daytime sleepiness (both 25% of participants), and restless legs syndrome (16% of participants). Rates of sleep-disordered breathing, such as sleep apnea, were consistent between those with and without the disease. 

The researchers looked for trends between sleep disorders, demographics, and common PD symptoms. They found that insomnia, especially trouble staying asleep, was more common in women and those with restless legs syndrome but wasn't linked to movement problems or mood issues. REM sleep behavior disorder seemed to be connected to problems with involuntary bodily functions (like blood pressure or digestion) and older age, but not movement or thinking difficulties. Excessive daytime sleepiness was related to mood symptoms, movement problems and the use of certain Parkinson's medications, but not other sleep disorders. 

Overall, the study found that sleep problems are very common even in early-stage Parkinson's and that people with PD often suffer from multiple sleep issues at the same time. The results suggest that these sleep issues are more likely to be tied to physical changes in the body rather than psychological factors, like anxiety or depression. 

Highlights 

  • The study enrolled 162 people with early-stage Parkinson's and 58 people without the disease. 

  • The study found that sleep problems are very common in early Parkinson's and that many PD patients have multiple sleep disturbances. 

  • The most common sleep problems impacting people with Parkinson’s were insomnia (41% of participants), REM sleep behavior disorder (25% of participants), excessive daytime sleepiness (25% of participants), and restless legs syndrome (16% of participants). 

  • Sleep issues are more likely tied to physical changes in the body rather than psychological factors, like anxiety or depression. 

What does this mean? 

Sleep disorders are a common non-movement symptom in Parkinson’s disease, and are typically caused by changes in the body, rather than by anxiety or depression. Importantly, this study shows that people with PD frequently experience multiple sleep disorders at once. This increases the difficulty of properly treating sleep disorders and likely increases the burden of sleep issues on the daily lives of those with PD. 

Additionally, this study reflects that many people in the early stages of PD — even before the development of severe motor impairment — experience sleep issues. Thrashing around in bed or acting out dreams when deeply asleep may be an early sign of Parkinson's

What do these findings mean to the people with PD right now? 

There are many tips you can try at home to naturally address sleep issues. There are also treatments your care team can recommend addressing sleep disorders. This is a topic everyone with PD should bring up to their doctor and care team, who may refer you to a sleep specialist. A specialist can evaluate and identify sleep issues, which can customize treatment options.   

Sleep is particularly essential to people with PD as recent research studies have shown that sleep helps clear waste products from the brain. This has significant implications for people with PD as abnormal proteins build up in the brain.   

Learn More 

The Parkinson’s Foundation believes in empowering the Parkinson’s community through education. Learn more about PD and sleep in our below resources, or by calling our free Helpline at 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s questions. 

My PD Story

Kathy Blake sitting on a chair posing for a picture
People with PD

Kathleen Blake

“My commitment to raising Parkinson’s disease (PD) awareness is not just because I have the disease; it’s because of the growing number of people living with PD. We have to get this on people’s radar and reverse that upward trend,” said Kathleen (Kathy) Blake, MD, MPH, a retired physician who serves as vice chair of the Parkinson's Foundation People with Parkinson's Advisory Council. One way she helps raise PD awareness is by telling her story.   

Like many people, Kathy’s diagnosis was delayed. When she began noticing pain and reduced swinging of her left arm, she attributed these early symptoms to arthritis and aging. She experienced symptoms for five years before she received her diagnosis, seven years ago. 

Kathy’s diagnosis story begins when an astute newly minted physical therapist referred her to the movement disorders specialist who diagnosed her with Parkinson’s. After her neurologist said, “You have Parkinson's,” Kathy’s first question was, “How sure are you that it’s Parkinson's?” After reading everything she could about PD, Kathy was convinced that the diagnosis was correct.  

An initial course of physical therapy and a regular program of exercise changed everything. “If I exercise today, I will feel better tomorrow,” Kathy said. “If I don’t exercise, the stiffness is worse the next day. Another benefit of exercise has been the chance to meet so many other people who are dealing with Parkinson's and their caregivers, a huge boost for my spirits and my husband’s.” Five years ago, Kathy began PD medication because she needed more than exercise to help manage her symptoms.  

Her expanded support and care team is now comprised of family members, physicians, physical therapists, personal trainers, Pilates instructors and the Parkinson’s Foundation. She credits her team with keeping her moving, engaged and optimistic. 

Path to PD Research  

It took four years before Kathy was ready to publicly share her diagnosis. Today, she realizes that one consequence of hiding the disease is that most people only associate PD with its advanced stages. “People with Parkinson’s can have full and rewarding professional and personal lives, with and despite PD. Many of us are working alongside people with Parkinson’s, living next door to them, seeing them at the store, or volunteering with them. I want people’s impression of PD to be less restricted and more accurate.”  

Reflecting on her experience, Kathy wishes she had participated in PD research sooner. With new PD therapies always on the horizon, many pharmaceutical companies and researchers recruit participants who are in the early stages of PD. “I missed that chance. Because I didn’t talk about my PD for years, I lost that window of opportunity,” she said. 

Eventually, Kathy found her way to the Parkinson’s Foundation. She participates in the Foundation’s genetics study, PD GENEration: Mapping the Future of Parkinson’s. Kathy is one of the more than 20,000 people enrolled in the study thus far who have received a genetic test and counseling session at no cost, to learn whether she has a genetic tie to PD. 

Advice for People with Parkinson’s 

The Foundation’s website Parkinson.org consistently delivers a trove of reliable information to Kathy and her family. It is her go-to recommended resource for anyone new to Parkinson’s. “The website is full of information, not just for the person living with Parkinson's, but also for their families, scientists and physicians. Once you discover all this information, it’s easy to feel overwhelmed. It’s important to know that you don’t have to consume and incorporate all of it into your life right away. You have time,” Kathy said. In her case, once she found the website, Kathy focused on exercise and medication.  

Kathy’s advice for people who have been living with PD for many years, like herself, is to be adaptable.  “Expect that how you take care of yourself will change over time. When that happens, don’t assume there isn’t something new that can help you, because increasingly, there is.” 

Kathy’s medical background gives her a unique point of view for helping people with PD communicate with their care team.  

“As a doctor, when you stand up and prepare to leave the exam room, that’s often when your patient asks their most important question, the one they’ve been afraid to ask. To overcome this, write down your top three concerns before your appointment,  whatever keeps you up at night, because they are what needs to be addressed.” – Kathy  

From her many years of practicing medicine, Kathy knows that many people are dissatisfied with the medical system. “People and doctors feel they don’t have the time they need with each other. This makes it even more important to prioritize your questions — and ideally have a family member or caregiver with you as a second set of ears to hear the answers.” 

Resist Isolating 

“Resist the impulse to isolate,” is what Kathy tells those who are learning how to manage PD symptoms. “Hopefully, once you come out of your shell, you can get involved in things like the Parkinson’s Foundation, Moving Day or Parkinson’s Revolution; Volunteering puts wind in your sails. Energy is generated by connectedness.” 

Volunteering has opened a new world to Kathy. “Parkinson’s is a club, that given the choice, we would not belong to it. That said, having PD has introduced me to an amazing cohort of people,” she said of her many volunteer engagements. 

“I applied to serve on the advisory council because a former member told me, ‘The Foundation staff and leadership really wants to hear from you; they listen, modify, and improve their programs based on what you say.’ I thought, I can help now; maybe five or 10 years from now I won't have the capacity. This is what I care about, and I’m doing it now,” Kathy said. 

There are many ways you can help us spread Parkinson’s Awareness right now. Visit our Parkinson’s Awareness Month page to find what works for you! 

My PD Story

Craig Meurlin headshot
People with PD

Craig Meurlin

My father was diagnosed with Parkinson’s disease (PD) in the mid-to-late 90s and he lived with PD until his passing in 2012. I was diagnosed with PD in 2019, and I was quickly frustrated that I was being given the same drug for PD my father had used 30 years ago.  

It seemed an inordinately long time to not have progressed more with treatments and drugs. Certainly, there were some advances to treat Parkinson’s symptoms, like deep brain stimulation (DBS), but it all seemed to circle back to the primary PD drug carbidopa-levodopa

As I navigated this reality, and my Parkinson’s symptoms, I eventually connected with the Parkinson’s Foundation. I appreciated that the Foundation’s resources made clear that Parkinson’s is not just a movement disorder. Some neurologists I have dealt with don’t seem to care as much about the non-movement symptoms, and I have those in spades (and had them for a number of years before my actual PD diagnosis).  

Learning about how PD impacts so many systems in my body and how common these non-movement symptoms are through the Foundation has been helpful and is just one part of the personalized approach the Foundation does so wonderfully. That personalized approach is why I began to financially support the Foundation. 

What meaningfully differentiated the Parkinson’s Foundation from the other PD charities in my mind was when I learned about the Foundation’s Parkinson’s Virtual Biotech initiative. I truly became excited as it seemed to me to be an optimal approach to accelerate research on developing new treatment options as well as finding the cause of PD. The usual institutional approach has not seemed, to me at least, to have made the kind of progress needed, particularly considering the significant increase in the number of people being diagnosed with PD.  

Real, original research and development often occurs through the efforts of individuals who do not accept the status quo and believe enough in their own work to take the risks (and those risks are significant) of stepping out on their own to accelerate the development of their ideas. Things can get caught up in the bureaucracy of larger institutions (and, in some institutions, perhaps “group think”) that dampens both the creativity and speed of innovation needed for truly breakthrough developments.  

I was looking for something to support that was nimbler and led by people with real passion and belief in their own work, and I found it in the Parkinson’s Virtual Biotech initiative. The initiative’s combination of science and private entrepreneurialism is an excellent way to accelerate advances in applied research and development. Through this initiative, the Foundation makes venture capital investments in early-stage companies focused on PD research and development.   

Additionally, the Parkinson’s Virtual Biotech uses an investment model I am familiar with and have seen work successfully a number of times throughout my 40-year career as a corporate lawyer with a particular focus in securities law.  

I know the various stages of the venture capital process, the need to do significant technical due diligence and to properly evaluate a company’s management team to be comfortable with their ability to develop and follow through on a business plan to achieve the scientific and commercial objectives of the project.   

I like the fact that Parkinson’s Virtual Biotech investments in a company are made in stages based on the company’s achievement of certain milestones. The Parkinson’s Foundation and Parkinson’s UK have the resources to do that due diligence and keep the focus on Parkinson’s disease. They also mentor the management teams when necessary to assist in their success.  

I believe that through the Parkinson’s Virtual Biotech, the Parkinson’s Foundation can make a real difference in efforts to advance treatment options and ultimately cure Parkinson’s disease. Where else can you find the expertise (both in PD and in venture capital investments) found in the Parkinson’s Foundation and Parkinson’s UK, the access to many investment opportunities that are brought to this initiative and the management mentoring to move these projects forward?  I am unaware of other PD focused organizations doing this and it is something that I am very passionate about supporting it. 

I believe this model has the best chance to work for Parkinson’s and to make leaps of progress that are important if we hope to slow disease progression, eventually stop other people from getting it and finally learn what causes Parkinson’s disease. I would encourage anyone to join me in supporting the Parkinson’s Virtual Biotech initiative. 

Learn more about Parkinson’s Virtual Biotech and make a gift to support this exciting work. 

My PD Story

Ron and Amy McConnell posing for a selfie
Family Members

Ron & Amy McConnell

Our names are Ron and Amy, and we were first impacted by Parkinson’s disease upon Ron’s diagnosis in 2017. As a couple, we have truly walked through the “highs and lows” of this disease and understand the significant role it can play in daily life.  

Ron McConnell in hospital bed holding a sign with Amy McConnell next to him

Ron began to develop symptoms after a tragic accident at work and was misdiagnosed for years — it took several failed attempts by medical professionals to determine the true cause behind the tremors, falling, and pounding headaches.  

After numerous doctors visits, Ron was finally referred to a movement disorders specialist, who conducted a comprehensive clinical evaluation. Ultimately, a DaTscan revealed a severe dopamine deficiency, confirming his Parkinson’s diagnosis. 

Following Ron’s diagnosis, he was prescribed Parkinson’s medications and our lives improved dramatically. In the years that followed, it was a relief to see symptoms subside through proper treatment and medication management. Amy is a “super caretaker” who helps us both navigate life with Parkinson’s disease. We are truly a team! 

Unfortunately, we experienced an unthinkable hospital stay in 2023 after Ron developed a severe case of Covid-19. Prior to Ron’s emergency visit, we armed ourselves with his medications and Parkinson’s Foundation resources.  

When we arrived, we requested that these be scanned into his electronic chart, knowing that it was essential that the medical team understood Ron’s diagnosis and the importance of administering his Parkinson’s medications in a timely manner. Despite being assured that Ron’s chart had been updated, we learned later that this had not been the case —– the medical team was unaware of his Parkinson’s. 

As a result, Ron developed aspiration pneumonia and was even placed on a ventilator. He continued not to receive any PD medications. Despite Amy’s pleading, the medical team refused, and for the first time, Ron began to experience dyskinesia, a Parkinson’s symptom that culminated in a bad fall at the hospital. After days without medication, his condition worsened, leading to respiratory failure. It was truly a life-or-death situation. 

Finally, a new doctor saw Ron and took the time to listen to Amy. He agreed to administer Parkinson’s medications and stuck close for several days throughout the recovery period. In the end, the doctor declared that we had made him an even better doctor, as he read through the resources Amy provided (like the Parkinson’s Foundation Hospital Safety Guide).  

While we would never choose to relive this distressing experience, we are now passionate advocates for hospital safety in people with Parkinson’s and care tremendously about educating others.  

What We Want People with PD and Care Partners to Know

Our experience has reinforced that knowledge is power. Patients and caregivers must be proactive and persistent in advocating for their needs. The Parkinson’s Foundation’s Hospital Safety Guide was instrumental in helping us navigate this crisis, and it has become a core part of our advocacy efforts. 

Another crucial takeaway is the importance of the care partner. Amy’s advocacy made a profound difference in ensuring Ron’s needs were eventually met. In addition, we learned how critical it is to ensure accurate patient records, as errors and omissions in Ron’s medical records significantly impacted his care and delayed proper treatment. 

As Parkinson’s Foundation Ambassadors, we have shared our story with hospital administration teams, and we’re proud that our advocacy has already led to positive changes in hospital policies and protocols. 

We are honored to share our journey and hope that our experiences help others navigate similar challenges. 

Our biggest piece of advice is to prepare yourself prior to a hospital stay. Do not be afraid to share information and resources from the Parkinson’s Foundation with the medical team. Keep positive, and never lose hope! 

Advocate for your best care with the Hospital Safety Guide. Learn more and download the guide now

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