Raise Awareness

Celebrating 12 Milestones that Defined 2025

🧠 What will you learn in this article?

This article highlights the ways the Parkinson’s Foundation helped people living with Parkinson’s and the Parkinson’s community in 2025. It highlights:

  • How we advanced research through funding grants and evolving our genetics study. 
  • Funded local community programs.
  • Launched new policy effort to improve care and research through advocacy.
  • Spread Parkinson’s awareness through programs, campaigns and resources.

2025 was a remarkable year for the Parkinson’s Foundation. Over the course of 365 days, we advanced Parkinson’s disease (PD) research while working hard to represent the one million people in the U.S. living with this neurodegenerative disease. We strengthened our connections among care partners and everyone serving the PD community.  

With your support, we launched new initiatives and vital PD resources, stayed fast in our commitment to improving PD care and research, and empowering the community through education and new resources.  

accomplishments

Thanks to YOU, here are the top 12 ways we made a difference this year:

1. Awarded more than $4.3 million in high-risk, high-reward research.

In a year when federal funding for disease research sharply declined, we significantly increased our investment in Parkinson’s research. We awarded more than $4.3 million across 44 grants. We are proud to fund scientists pursuing innovative studies across diverse areas of PD — driving the development of new therapies, treatments and ultimately a cure for the 10 million people worldwide living with this neurological disease.

Explore our ongoing research

Meet Jeff Kim, PhD

2025 Parkinson’s Foundation Postdoctural Fellow

Dr. Kim is leveraging AI (artificial intelligence) to advance genetics research. His research seeks to understand how overlapping PD mutations may influence the risk of developing PD. 

Jeff Kim at lab

2. Reached 30,000+ participants in our genetics study.

PD gene

In 2025, PD GENEration: Powered by the Parkinson’s Foundation reached unprecedented numbers including: 

  • Providing genetic testing and counseling to 30,000+ people with Parkinson’s, at no cost.

  • Finding that approximately 12-13% of participants carry a genetic link to PD.

  • Expanded study to a total of 77 testing sites worldwide and counting — adding sites in Mexico, Colombia, Chile, Peru and El Salvador.

We also launched an exciting new pilot program, PD Trial Navigator, to help advance PD GENEration’s goal of accelerating genetic-focused clinical trials. This program helps inform PD GENEration participants about Parkinson’s genetic trials they may qualify for based on their genetic results.

Enroll Now in PD GENEration

3. Launched new policy effort to accelerate PD treatments and care.

Andi Lipstein Fristedt

In 2025, we launched new policy initiatives aiming to empower the PD community through advocacy. Highlights include:

Sign up for our emails to keep up to date with advocacy efforts

4. Funded local Parkinson’s programs in 38 states.

parkinsons exercise program

We awarded more than $1 million in community grants for programs that help people living with PD across 38 states. Our 2025 grants fund local programs that provide exercise and educational support for people with PD and their care partners and address mental health needs. Since 2011, the Foundation has devoted more than $12.7 million in community-based programs, reaching a combined 81,000 people with PD and care partners.

 Pictured: Parkinson’s Foundation Community Grantee, Parkinson's Exercise Program For You, in Dana Point, CA, offers PD-tailored exercise programs. 

To find your nearest exercise or wellness class, visit your local chapter’s webpage or call our Helpline at 1-800-4PD-INFO (1-800-473-4636).

5. Appointed our first-ever Chief Medical Officer.

Headshot of Sneha Mantri, MD, MS

This year, we welcomed Sneha Mantri, MD, MS, as Chief Medical Officer of the Parkinson’s Foundation. A nationally recognized movement disorders specialist and educator, Dr. Mantri believes in getting to know her patients and personalizing their treatments. “I'm excited to bring that philosophy of care to this role and address the needs of people with Parkinson’s on a national scale,” she said.

Look out for virtual events featuring Dr. Mantri in 2026.

Learn more about Dr. Mantri here

6. Moved two Parkinson’s Virtual Biotech drugs into trials.

Parkinson’s Virtual Biotech is a research-driven investment fund we support alongside Parkinson’s UK. In 2025 we shared two exciting advances:

  • Project ASPro-PD became the first Parkinson’s Virtual Biotech project to enter a large phase 3 trial, assessing whether ambroxol (a common cough medicine ingredient) can slow the progression of Parkinson’s. This trial is the closest to delivering a new treatment.

  • A new drug from NRG Therapeutics, designed to repair the mitochondria that power brain cells, is advancing to clinical trials for Parkinson’s and ALS (amyotrophic lateral sclerosis). This progress was made possible through early investment from the Parkinson’s Virtual Biotech, proving how our venture philanthropy model fuels innovation — turning bold ideas into real possibilities for people living with Parkinson’s and making investments less risky for future funders.

Learn more about the Parkinson’s Virtual Biotech

7. Launched new resources to help people optimize their PD care.

We know that healthcare appointments for Parkinson’s can feel overwhelming. Which is why we published new content and tips dedicated to help people with PD and care partners advocate for their best care. Use our Steps to Prepare for a Parkinson’s Appointment worksheet for a step-by-step guide to choosing your top three appointment topics. 

Learn how to optimize your Parkinson’s care

8. Raised $263,000 on Parkinson’s Foundation Day of Giving.

day of giving

Our incredible community came together and made our third annual Day of Giving the most successful so far, raising double the amount raised in 2024. Our steadfast supporters made this special day a success, raising awareness and funds to support our mission to make life better for people with Parkinson’s disease.

Give today

9. Facilitated 3,949 community service hours through Parkinson’s Ambassadors.

Etana Soloman and her mother

Volunteers are essential to our mission and help us localize our reach. This year, we trained 239 new Parkinson’s Foundation Ambassadors and brought all our volunteers together at our national Volunteer Leadership Summit.

Etana Soloman joined our People with Parkinson’s Advisory Council to add her voice and help represent young caregivers and people like her mother who are in the later stages of PD. “Being able to care for my mom is truly an honor”  Read her story.

Find a volunteer opportunity near you

10. Reached 8.6 million visits to Parkinson.org and expanded Spanish-language engagement.

Parkinson.org reached a record of 8.6 million visits, including 1.3 million visits to our Spanish content. Every page visit represents an opportunity to connect people with life-changing resources, digital events and actionable ways to help make life better for people with Parkinson’s.

Hispanic and Latino members of the PD community face distinct barriers to living well with Parkinson’s. In 2025, we published new Spanish pages on dementia, caregiving, vertigo, depression, hospital safety and more (explore these pages in English, too: dementia, caregiving, vertigo, depression, hospital safety).

Explore our Spanish pages

Visit Parkinson.org now

11. 20,000 participants raised more than $8.3 million through community fundraising events.

Brooke Ramsey and family

Parkinson’s Foundation community fundraisers raised an impressive $8.3 million to advance PD research, access to care and life-changing resources in 2025. Together, every person who participates in Moving Day, A Walk for Parkinson’s, Parkinson’s Champion and Parkinson’s Revolution bring us closer to a cure.

Two years after his diagnosis, Brooke Ramsey found Moving Day Columbus. For the last 14 years his family has raised more than $117,000 to help make life better for people with Parkinson’s. Read his story.

Find a Moving Day near you

Become a Parkinson’s Champions

Join us for Parkinson’s Revolution

12. Engaged with our audience through two awareness campaigns.

In April, we introduced the world to PAM, your guide to Parkinson’s Awareness Month. To raise PD awareness, PAM shared essential information, tips and resources about PD on our social media channels and website.

Hi! I'm Pam!

In April we: 

  • Posted 5 new videos highlighting PD facts everyone should know.
  • Reached 2+ million visits to Parkinson.org — our most page views in a single month!
  • Earned 914,000 impressions across our social media posts

Follow us on social media to help spread Parkinson’s awareness

In November, for National Family Caregivers Month, we amplified the diverse experiences of caregiving through our Real Care. Anywhere. campaign. We provided tailored resources for three types of caregivers including those caring for someone living with Parkinson’s, those providing care from a distance and those managing PD alone.

Explore our care partner resources

 

We are setting bold goals for 2026 to create an even greater impact on the Parkinson’s community — and your support makes it possible.

Donate today

Podcasts

Episode 185: Conversations with Our Loved Ones

Caregiving takes many forms — from spouses, family members and friends providing daily, hands-on care, to those supporting from a distance to individuals managing care responsibilities on their own. No matter the circumstance, every caregiver plays an important role. This year, the Parkinson’s Foundation is highlighting the diverse experiences of caregivers within the Parkinson’s disease community and beyond with our theme: Real Care. Anywhere.

In this episode, we speak with CJ Polkinghorne and Nikki Logan, care partners for their spouses living with young-onset Parkinson’s disease. They share their stories of navigating the day-to-day challenges of caregiving, while remembering to celebrate the victories along the way. They emphasize the importance of communicating their needs and recognizing when it’s time to take a step back and care for themselves. They also reflect on learning to adjust expectations -- not only for their loved ones, but for themselves as well.

Released: November 25, 2025

We want to thank this episode’s podcast sponsor, Amneal, for supporting our mission.

Amneal logo
Educational Events

El Parkinson y los tratamientos: ¿Qué hay de nuevo?

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

La enfermedad de Parkinson (EP) sigue siendo una condición con muchas incógnitas, pero la investigación constante nos está ayudando a cerrar estas brechas en el conocimiento. En los últimos años, se han logrado importantes avances en las terapias diseñadas no sólo para el manejo de los síntomas motores y no motores, sino también para frenar el avance de la enfermedad. Este programa explorará los últimos hallazgos en la investigación de la EP y tratamientos innovadores.

10 a.m. hora del Pacífico (California)
11 a.m. hora de la Montaña (Colorado, Arizona y Nuevo México)
12 p.m. hora del Centro (Texas y Ciudad de México)
1 p.m. hora del Este (Nueva York, Peru y Colombia)
2 p.m. hora de Venezuela
3 p.m. hora de Chile y Argentina
7 p.m. hora de España

*Por favor, verifica su zonas horarias.*

Presentadora

Dra. Natalie Diaz
Trastornos del movimiento, Neurología
Pacific Neuroscience Institute

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.


Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

Upcoming Events

Educational Events

Live Fitness Friday - Full Power Circuit

Virtual ( Zoom )
1:00 pm to 1:45 pm EST
Free
A man lifting two weights in a T motion

A dynamic, high-energy circuit combining aerobic activity with lower-body strength and power. Participants will move through stations designed to challenge endurance, build strength, and enhance functional mobility. This session focuses on improving cardiovascular fitness, explosive movement, and high amplitude training, all while maintaining accessibility and safety for people of varying abilities.

Instructors

Bethany Althaus, PT, DPT, NCS, PWR! Moves
Director of Clinical Excellence at Maine Strong Balance Centers 

Anna Chornyak, PT, LSVT, PWR! Moves

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Mind, Body, Voice: An Expressive Movement Experience

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Husband and wife lookin at a tablet while on their porch

What do Shakespeare, opera, and pickleball have in common? Join Kurt Brungardt for an engaging, playful session that trains your brain, body, and spirit. Through a mix of movement, vocal exercises, and expressive activities, participants will explore voice, speech, expression, and balance in ways that awaken confidence, presence, and joy.

No acting, singing, or fitness experience is required—just bring your curiosity and a willingness to explore. This session blends creativity and physicality, offering a unique opportunity to connect with your body, strengthen your voice, and have fun along the way.

Speaker

Kurt Brungardt
Writer, Director, Teacher, and Personal trainer
Shakespeare for Parkinson's

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Podcasts

Episodio 35: Envejecer juntos en casa: Apoyo a aliados en el cuidado y familias

Noviembre es el Mes Nacional de Cuidadores Familiares, una época para honrar a quienes cuidan desinteresadamente de sus seres queridos. Este año, la Parkinson's Foundation destaca las diversas experiencias de los cuidadores dentro de la comunidad de la enfermedad de Parkinson y más allá con nuestro tema: Cuidado real. En cualquier lugar.

Cuidar de una persona con Parkinson significa prestar mucha atención, no sólo a los síntomas y las necesidades de su ser querido, sino también a su propio bienestar. Formar un equipo de apoyo, ya sea apoyándose en la familia, los vecinos o los amigos, crea una base sólida para que tenga el mejor apoyo a lo largo de su recorrido como cuidador. 

En este episodio, hablamos con Joanna Fitzgibbons, investigadora de Colorado University, dedicada a la comunidad de aliados en el cuidado. Nos cuenta cómo el valor cultural de "cuidar de los suyos" a veces puede hacer que sea difícil pedir ayuda. Ese orgullo, aunque profundamente arraigado en el cuidado y el propósito, puede llevar al cansancio y el agotamiento. Nos recuerda que nunca es demasiado pronto para hablar de recursos y crear un plan de cuidados antes de que se presente una crisis.

Durante el episodio, Joanna mencionó el Conversation Project, un recurso en línea que ofrece orientación acerca de cómo entablar conversaciones difíciles con la familia y abogar por uno mismo ante el equipo de atención médica. Incluiremos un enlace aquí.

Publicado: 4 de noviembre de 2025

Books

Guía para aliados en el cuidado

Tanto si recién conoce la enfermedad de Parkinson (EP) como si ha sido aliado en el cuidado por mucho tiempo, esta guía está diseñada para usted.

La guía se organiza en torno a cinco claves para el bienestar del cuidador con estrategias que le ayudarán a:

  1. Crear su equipo de apoyo.
  2. Equilibrar los cuidados diarios con el autocuidado.
  3. Reforzar la dinámica de las relaciones.
  4. Trabajar en equipo para manejar la EP.
  5. Planificar para el futuro.

Además de consejos prácticos, encontrará perspectivas alentadoras de otros cuidadores, actividades, hojas de trabajo y recursos importantes para ayudarle en su recorrido.

Caregiving Topics

3 Essential Resources for 3 Different Kinds of Care Partners

Older couple walking through a park

November is National Family Caregivers Month, a time to honor care partners. This year, the Parkinson’s Foundation is highlighting the diverse experiences of caregiving with our theme, “Real Care. Anywhere.” 

Care partners are essential members of the care team for people with Parkinson’s disease (PD). However, the way they provide care and support can look different — from sharing a home with someone who has PD to providing care from afar to managing PD alone — caregiving is not one-size-fits-all. We are proud to provide support for all types of care partners. Here are essential resources for three different kinds of care partners: 

Everyday Care Partner 

An everyday care partner lives with someone who has PD and offers daily support. This can include setting up and attending appointments, helping with medications and navigating day-to-day challenges.  

1. Read our Care Partner Guide.

Whether you have been a care partner for a while or are just starting to navigate Parkinson’s disease, this guide is designed for you. It includes practical tips about things like building a support network and planning for the future, along with insights from other care partners and activities and worksheets to support your journey. 

2.  Check out tips for caring for yourself.

It can be hard to find balance as a care partner, but it is important to remember to care for yourself as well. These tips can help you prevent caregiver burnout, manage stress and build a support system. 

caregiver support group

3. Find a Parkinson’s support group near you.

In addition to providing a comfortable environment for asking questions and sharing experiences, support groups can lead to lasting friendships. Some groups are for care partners only, while others include care partners and people with PD. Contact our Helpline at 1-800-4PD-INFO (1-800-473-4636) to find one near you. 


Caring From Afar 

Some care partners live away from their loved ones and offer support from a distance. This type of caregiving can include managing logistics for everyday care, finding ways to coordinate tasks virtually or providing emotional support through regular phone calls and visits.  

1. Learn about Parkinson’s.

You will be better able to provide support if you have a basic understanding of PD. Our PD Library is filled with resources to help you learn more about Parkinson’s, being a care partner and managing daily activities and long-term plans. 

2. Connect with outside help.

If you are the primary care partner and live away from your loved one, consider hiring someone to help you manage day-to-day care needs. From utilizing your network to finding in-home care providers, know that there are many options available to help you assist your loved one from afar. 

3. Get yourself and your loved one connected with a local Parkinson’s Foundation chapter. 

Connect with other people with PD and care partners in each of your areas, learn about events and learn more about living well with Parkinson’s together, from a distance. 


Solo Care Partner 

Many with Parkinson’s care for themselves. This often-overlooked group acts as their own care partner, managing schedules, medications and wellness routines on their own. 

1. Join the PD Solo Network.

The PD Solo Network is a virtual network for people with Parkinson’s disease who live alone, by choice or circumstance. This community meets monthly to share ideas, review resources and build relationships. 

2. Review the Home Safety Considerations checklist.

Ensure your home is safe and easily accessible. This checklist will help you determine if anything about your home or lifestyle should be adapted to help you live well with Parkinson’s.  

3. Remember, our Helpline is always here for you.

Call or email the Parkinson's Foundation Helpline 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s disease (PD) questions. Our Helpline is answered by PD information specialists who are skilled in providing the right information at the right time. 


Real Care Starts Here 

No matter what caregiving looks like for you, the Parkinson’s Foundation is here to help.  

  • Sign up for free online courses through our Care Partner Program 

Learn how you can celebrate National Family Caregivers Month at Parkinson.org/CaregiversMonth. 

Educational Events

Financial and Estate Essentials for Life with Parkinson’s

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Husband and wife lookin at a tablet while on their porch

Planning for the future can feel daunting—but it’s one of the most meaningful ways to care for yourself and your loved ones. In this session, we’ll break down the basics of financial and estate planning in clear, practical terms. Learn how to protect your assets, make informed choices, and create a plan that reflects your values and priorities.

Whether you’re just getting started or revisiting your plans, you’ll walk away with the tools and confidence to move forward with peace of mind.

Speaker

Colleen Ceh Becvar, Gerontologist
Owner, Certified Care Manager
Trinity Advocacy Group, LLC
Trinity Advocacy Guardians, NFP

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Videos & Webinars

Expert Briefing: Steady Steps - Improving Gait and Balance in Parkinson's Disease

October 15, 2025

Gait and balance issues are common challenges for people with Parkinson’s disease (PD), increasing the risk of falls and impacting mobility and independence. This program provides a comprehensive exploration of the factors that contribute to gait and balance difficulties in PD, such as muscle rigidity, postural instability, and coordination challenges.

Download Slides

Additional Resources

Presenter

Mitra Afshari, MD, MPH
Director, Neurointerventional Program for Movement Disorders
University of Illinois Hospital

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