There are many types of organizations that offer diverse types of resources, services, information and support.
Contact the Parkinson’s Foundation Helpline
Your first call can always be to the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (1-800-473-4636). Helpline specialists provide up-to-date information about Parkinson’s, referrals to healthcare professionals, community resources.
Call us Monday through Friday, 9 a.m. to 7 p.m. ET. or email us any time at Helpline@Parkinson.org.
I am looking for information and resources related to:
These organizations offer information about services for older adults.
- Alliance for Aging: 800-96-ELDER (800-963-5337)
- Health in Aging: 800-563-4916
- US Aging: 202-872-0888
- Next Avenue: articles about aging, health and caregiving
These groups provide a range of options for caregiver education, support and networking.
- AARP Caregiving: 877-333-5885
- ARCH National Respite Network and Resource Center: 919-490-5577
- Caregiver Action Network: 202-454-3970; Check out the Family Caregiver Toolbox
- Connecting with Caregivers, from the American Psychological Association
- Family Caregiver Alliance: 800-445-8106
- Family Caregiver Council
- Lotsa Helping Hands
- National Adult Day Services Association: 877-745-1440
- National Alliance for Caregiving: 301-718-8444
- National Caregivers Library
- Next Step in Care
- Well Spouse Association: 800-838-0879
Different types of healthcare professionals can help along caregiving journey:
- Aging Life Care Association: 520-881-8008
- Find a Therapist
- Visiting Nurse Associations of America
- Find a Physical Therapist: Search for a therapist with a specialty in geriatric or neurological rehabilitation
- Find a Speech-Language Pathologist
- Find an LSVT-Certified Clinician (You can search LSVT LOUD speech-language clinicians and LSVT BIG physical and occupational therapists)
Join A Team Training
The Parkinson’s Foundation offers PD care training for healthcare professionals. To find a healthcare professional who has completed our Team Training, call our Helpline at 1-800-4PD-INFO (1-800-473-4636).
U.S. Government Agencies
You and your loved one might be eligible for various government programs. Call or visit their sites for information and to find out if you qualify.
- Administration for Community Living
- Centers for Medicare and Medicaid Services: 800-MEDICARE (800-633-4227)
- Social Security Administration: 800-772-1213
- National Institute on Aging: 800-222-2225
- Veterans Administration: 800-827-1000
There are general medication assistance programs as well as programs specifically for low-income individuals and families.
- Medicare Savings Programs: 800-MEDICARE (800-633-4227)
- NeedyMeds: 800-503-6897
- Medicine Assistance Tool
- Supplemental Security Income Benefits: 800-772-1213
- RxAssist: Some pharmaceutical companies provide medication to people who cannot afford it. This database lists these patient assistance programs.
- Patient Access Network Foundation: an organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for prescribed medications.
People with neurogenic orthostatic hypotension (nOH) may be eligible for financial assistance related to their treatment through a program administered by the National Organization for Rare Disorders (NORD). For information, contact NORD at Noh@RareDiseases.org or 844-827-8743.
Financial, Legal and Insurance Issues
These groups can help you navigate the unique, complex issues facing seniors and people with disabilities and help you access crucial services (such as, affordable healthcare).
- Medicare Rights Center: 800-333-4114
- Find a Financial Planner: 800-322-4237
- Patient Advocate Foundation: 800-532-5274
Activities of Daily Living
There are many companies that offer products to help with activities of daily living. Learn more about these devices on our individual pages:
Assistive devices and products may be covered by Medicare, with a doctor’s order and if deemed medically necessary. In this case, they are referred to as durable medical equipment (DME).
"I feel blessed because of my work. Caring for and loving people with Parkinson’s disease (PD), or any disease, is very important to my patients, their families and me."
These groups offer resources, guidance and support to help you plan ahead and provide care.
- Aging with Dignity: 800-537-2118
- National Hospice and Palliative Care Organization Caring: 800-658-8898
- CaringInfo: 503-494-4463
- The Conversation Project
Parkinson's Foundation Helpline
Contact our Helpline at 1-800-4PD-INFO (1-800-473-4636) or Helpline@Parkinson.org for answers to your Parkinson’s questions. Helpline specialists can assist you in English or Spanish, Monday through Friday, 9 a.m. to 7 p.m. ET.