Episode 182: Allied Health Spotlight: Partnering with an Occupational Therapist
Allied health professionals are a group of healthcare providers whose role and expertise complement the work of physicians. They include specialists such as physical and occupational therapists, speech-language pathologists, nutritionists, and many more. They are just as important as your Movement Disorders Specialists and Neurologists and play a vital role in creating a comprehensive, well-rounded Parkinson’s care team that attends to your individual needs and addresses your overall well-being.
Many people are familiar with physical and speech therapists, but fewer recognize the valuable benefits of working with an occupational therapist (OT). An OT helps identify the activities that you enjoy and ensures strategies are in place so you can continue doing what matters most. They work with you to adapt your environment, tap into your strengths, and create realistic strategies so you can keep living life on your terms.
In this episode, Karyssa Silva, MS, OTR/L, CLT, an occupational therapist at Aldersbridge Physical Therapy & Wellness Outpatient Center in Rhode Island, shares how she helps people with Parkinson’s with daily tasks and activities that bring them joy. She works closely with people with PD and their loved ones to address physical and mental challenges, empowering them to stay engaged in the activities they value the most.
Steps to Prepare for a Parkinson’s Appointment: Worksheet
Released: August 19, 2025
Karyssa Silva is the Director of Rehabilitation at Aldersbridge Physical Therapy & Wellness Outpatient Center in East Providence, Rhode Island, where she leads a dedicated team of Occupational, Physical, and Speech Therapists. Licensed in both Rhode Island and Massachusetts, Karyssa brings over a decade of clinical and leadership experience to her role.
She began her career in 2010 as a Certified Occupational Therapy Assistant in a skilled nursing facility, quickly advancing to Director of Rehabilitation. In 2014, she earned her Master’s Degree in Occupational Therapy from the New England Institute of Technology. Her diverse background spans skilled nursing, home health, and outpatient care, with specialized expertise in LSVT BIG for Parkinson’s disease and certification as a Lymphedema Therapist. Karyssa is passionate about helping individuals with neurological and chronic conditions maintain their independence, function, and quality of life.
With the autumn equinox behind us, the season of cooler days and shorter light has arrived. Just as trees stop producing chlorophyll and reveal the vibrant colors hidden beneath their green, we too can release what no longer serves us and uncover the beauty within. For people living with Parkinson’s—whether as a person diagnosed or as a care partner—this can mean letting go of thoughts, emotions, or habits that add stress or limit joy. In this guided meditation, we’ll use breathwork and visualization to create space for comfort, acceptance, and self-appreciation, and to notice the unique colors and strengths that shine during times of change.
Speaker
Danielle R. Carns, PsyD
Director, Functional Neurological Symptom Disorder Program
Clinical Neuropsychologist, Assistant Professor, University of Pittsburgh School of Medicine
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Parkinson's Foundation and Northwestern Medicine Parkinson's Disease and Movement Disorders Center present: Parkinson's Disease Patient and Family Symposium.
This program will feature experts discussing: How to Build an Exercise Routine for PD, Research/Clinical Treatment Updates, and Autonomic Dysfunction and PD (blood pressure/bladder/bowel/sexual dysfunction). Q&A with the experts, will follow each presentation.
Speakers
Tanya Simuni, MD, FAAN
Northwestern Medicine Parkinson's Disease & Movement Disorders Center
A Parkinson's Foundation Center of Excellence
Danny Bega, MD, MSCI
Northwestern Medicine Parkinson's Disease & Movement Disorders Center
A Parkinson's Foundation Center of Excellence
Miriam Rafferty, PT, DPT, PhD
Shirley Ryan AblityLab
Daniel Corcos, PhD
Northwestern Medicine
Neil Shetty, MD
Northwestern Medicine Parkinson's Disease & Movement Disorders Center
A Parkinson's Foundation Center of Excellence
Juan Deliz, MD
Northwestern Medicine Neurology Orland Park
This program is open to people with Parkinson's, their family, friends, and the community. There is no charge to attend, but registration is required.
10 a.m. Welcome / Opening Remarks
Danny Bega, MD, MSCI, Northwestern Medicine
Jessica Bartsch, MS, NCC, Parkinson's Foundation
10:15 a.m. Key Note: I Finished PT, Now What?
Miriam Rafferty, PT, DPT, PhD, Shirley Ryan AblityLab
Daniel Corcos, PhD, Northwestern Medicine
(Q&A to follow presentation)
11:15 a.m. Therapeutic Pipeline, Research, and Clinical Treatment Update
Tanya Simuni, MD, FAAN, Northwestern Medicine
Neil Shetty, MD, Northwestern Medicine
(Q&A to follow presentation)
12:30-12:35 p.m. Break
12:35 p.m. Autonomic Dysfunction and Parkinson's Disease
Juan Deliz, MD, Northwestern Medicine
Northwestern Medicine Parkinson's Disease and Movement Disorders Center provides innovative, multidisciplinary care for patients and families affected by Parkinson's disease and other movement disorders. The Center's care team works to promote health, education and support for patients. It also supports caregivers, family members, healthcare providers and the community. We continually strive to meet the needs of the Parkinson's community in a variety of ways. In doing this, we have adapted our annual symposium to a virtual setting for the safety and accessibility of the larger Parkinson's community.
This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Join us for an insightful day designed specifically for the Young Onset Parkinson's Community – in-person or online! Brought to you by the American Parkinson Disease Association (APDA), Marlene Meyerson JCC Manhattan (JCC), and the Parkinson’s Foundation.
The program includes three panels, comprised of individuals diagnosed with young-onset Parkinson’s disease, movement breaks, and resource materials.
For in-person attendees: Doors open at 9:45 a.m.; In-person check-in starts at 10 a.m.
A photo ID is required to enter the JCC building, and there is a security check. Lunch will be provided.
For virtual attendees, via Zoom: The live stream starts at 10:30 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
9:45 a.m. Doors open
10 a.m. Check in
10:30 a.m. Welcome & Zoom Live Stream Begins
10:45 a.m. Keeping Your Balance - Work, Life & Finance
11:40 a.m. Movement Break
12 p.m. Lunch Break*
12:45 p.m. Doctor's Orders: Treatment Options Through the Eyes of Health Professionals with PD
1:35 p.m. Movement Break
2 p.m. Hindsight is 20/20 - Wisdom From Those Who've Been There
2:50 p.m. Closing Remarks & Zoom Live Stream Ends
3 p.m. Table Topics for In-Person Attendees
4 p.m. Program Ends
*Breakout rooms will be available for participants joining us on Zoom.
Parkinson’s Foundation has received funding from an educational grant provided by Kyowa Kirin to support this program.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Conversations with 4 Essential Members of Your Parkinson's Care Team
Living well with Parkinson’s takes a team, and some of the most valuable members may not be who you would typically expect. Healthcare professionals, such as physical and occupational therapists, are essential members of your Parkinson’s care team. They help you maintain mobility, independence and communication, working hand-in-hand with movement disorders specialists and neurologists to create a comprehensive, well-rounded care plan that supports your individual needs and overall well-being.
To showcase these key members of your Parkinson’s care team, we’re highlighting recent podcast episodes that explore the unique benefits of working with a diverse group of medical specialists.
Parkinson’s affects more than just movement, it can also impact the small muscles in the face, mouth, throat and chest. These changes may impact your ability to eat, speak and swallow, and can influence your confidence in conversations. A speech-language pathologist will assess speech and swallowing challenges and create a treatment plan to help manage these symptoms.
Melissa Grassia Chisholm, MS, CCC-SLP, a licensed speech pathologist and a voice-swallow airway expert, talks about the importance of getting a baseline evaluation with a speech-language pathologist early on in your PD diagnosis and explains how personalized treatment plans can help address speech and swallowing challenges as your needs evolve.
As Parkinson’s progresses, overall movement, balance, and coordination may become more challenging. A physical therapist helps you stay active by developing a custom training plan that meets your goals and physical needs.
Patricia S. Brown, PT, DPT, NCS, of Chapman University in California, a physical therapist who specializes in neurological diseases, shares her recommendations on staying motivated and choosing an exercise program that matches your lifestyle goals.
Managing Parkinson’s symptoms often involves taking multiple medications, making ongoing conversations with your doctor essential. When questions arise, pharmacists can be readily accessible experts who can help address concerns, identify potential drug interactions, and make you feel more confident about your medications.
Emily Peron, PharmD, MS, and Leslie Cloud, MD, MSc, from Virginia Commonwealth University, a Parkinson’s Foundation Center of Excellence, explain the long-term use considerations of carbidopa-levodopa, the different formulations available, and how to recognize when medication adjustments may be needed.
In addition to prescribed Parkinson’s medications, people with PD may explore complementary or alternative therapies, such as herbs or nutritional supplements. Although often available without a prescription, these supplements can pose risks, especially when taken alongside PD medications. That’s why it’s always advisable to speak with your healthcare provider before starting a new medication or over-the-counter supplement.
Angela Hill, Pharm. D., CRPh, a pharmacist and professor at the University of South Florida, a Parkinson’s Foundation Center of Excellence, talks about the potential side effects and drug interactions that can happen with nutritional supplements, and offers tips for reading and evaluating food labels so you can better understand what you’re taking.
Social workers are often the go-to resource for connecting you with specialists and services that can help you navigate the day-to-day realities of Parkinson’s. They offer a wealth of guidance and support to ensure that your voice is heard.
Lauren Zelouf, MSW, LCSW from Penn Medicine’s Parkinson’s Disease & Movement Disorders Center, a Parkinson’s Foundation Center of Excellence, tackles the often-overlooked topic of mental health. She breaks down the differences between depression, anxiety and apathy, and offers coping strategies for managing symptoms and finding support.
Managing Parkinson’s involves a team-based approach. Each healthcare professional brings specialized expertise that can help you move better, speak more confidently, and feel better supported throughout your Parkinson’s journey.
Coming Soon: We’re excited to feature another essential member of the Parkinson’s care team—an occupational therapist—in an upcoming episode.
Subscribe to our podcast. Search for “Substantial Matters: Life and Science of Parkinson’s” on your favorite podcast platform.
The referenced media source is missing and needs to be re-embedded.
A balanced diet is important for people with Parkinson’s disease. Learn about foods that may help ease symptoms and support brain health in addition to understanding how some foods can affect the way Parkinson’s medications work. This program will also address the latest information on the gut and brain connection with PD.
Speaker
Lisa Deuel, MD
University of Vermont Medical Center, Burlington, VT
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Veterans and Parkinson's: Tools for Living with Parkinson's
11:00 am to 3:00 pm CDT
Free
Check-in & Resource Fair* begins at 11:00 a.m. and the program starts at 12:00 p.m.
Together, we will learn practical strategies to manage symptoms of Parkinson's disease and explore a variety of resources and specialized support services available to veterans. Our goal is to equip participants with the knowledge and tools necessary to improve their quality of life and navigate their journey with Parkinson’s confidently.
*The Resource Fair will feature local Community Partners that provide services and support for the Parkinson’s Community.
Speakers
William Hoffman, MD, Maj, USAF
Medical Director/ Joint Integrated Clinical Medicine Program
Movement Disorder Specialist Neurologist, BAMC
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Le invitamos a participar en este webinar interactivo donde exploraremos cómo los problemas del habla, la voz y la comunicación de nuestro ser querido con Parkinson dificultan la interacción conversacional cotidiana con su aliado en el cuidado y la familia. Adicionalmente, compartiremos técnicas prácticas del habla para mejorar la fuerza vocal y la articulación, así como recursos de comunicación no verbal y claves para el aliado en el cuidado que ayudarán a fomentar una comprensión mutua y aliviar la sobrecarga del cuidado
10 a.m. Hora del Pacífico (Los Ángeles y Phoenix) 11 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México) 12 p.m. Hora del Centro (Texas, Colombia y Perú) 1 p.m. Hora del Este (Nueva York y Venezuela) 2 p.m. Hora de Chile y Argentina
Presentadora
Martha Suárez Torres
Terapeuta del lenguaje especialista en Parkinson
Máster en enfermedades neurodegenerativas
Certificada por la Parkinson’s Foundation en el Team Training Program For Parkinson´s y Team-Based Palliative Care Essentials for Parkinson´s
Miembro de la Asociación Civil Parkinson Caracas y de la Sociedad de Trastornos del Movimiento.
Embajadora Líder de la Davis Phinney Foundation for Parkinson´s
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Join us for a unique and uplifting Wellness Wednesday experience that blends the timeless beauty of Shakespearean poetry with the healing power of breath, voice, and creative expression. Guided by a skilled creative artist, this session invites participants to gently activate their breath and voice through simple, accessible exercises—culminating in the recitation of a Shakespeare sonnet.
Creative practices like poetry and performance offer powerful tools for people living with Parkinson’s. They support vocal strength, emotional expression, presence, and connection—while nurturing a sense of play, confidence, and joy.
Whether you're new to Shakespeare or simply seeking a fresh way to connect with your voice and breath, this session is designed to be welcoming, empowering, and fun. No acting experience necessary—just bring your curiosity and willingness to explore.
Speakers
Kurt Brungardt
Writer, Director, Teacher, and Personal trainer, Shakespeare for Parkinson's
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Golf Course Pesticides, Drinking Water & Parkinson’s Risk
Environmental factors, such as chemical exposure, likely contribute to Parkinson’s disease (PD) risk. Golf courses consume large quantities of these chemicals, including herbicides, pesticides and insecticides. A new study from researchers using the Mayo Clinic–driven Rochester Epidemiology Project shows that living near golf courses could increase the risk of Parkinson’s.
Over the last 20 years, evidence has linked certain chemicals used in agriculture to PD. Farm-workers exposed to the weed-killer paraquat or the insecticide rotenone, for instance, develop Parkinson’s at rates two- to three-times higher than people who have never handled those chemicals. In lab settings, research shows that low doses of these compounds can damage dopamine-producing neurons in the brain — the same cells that are impacted in Parkinson’s.
While golf courses are known to be heavily treated with similar chemicals, no research has directly investigated the potential relationship between PD risk and proximity to golf courses.
This new study on golf courses and chemicals covers 25 years of medical data, from 1991 to 2015, and examines residents of several counties in southeastern Minnesota — a region where there are detailed municipal records, well‐depth charts and groundwater maps. Investigators used this information to study whether people who live close to golf courses face higher Parkinson’s risk. Additionally, they explored whether nearby public water systems explain any extra risk.
Study Results
The research team identified 419 men and women whose Parkinson’s diagnosis occurred during the study window (from 1991 to 2015) and matched them with more than 5,000 people of the same age, sex, race and neighborhood who did not have Parkinson’s.
Researchers then calculated the straight-line distance from each participant’s home to the nearest golf course on the date of PD diagnosis. Those addresses were added on maps of municipal water-service areas, the locations and depths of public wells, and geological charts highlighting regions where groundwater is considered “vulnerable,” meaning the soil or bedrock allows surface chemicals to migrate quickly downward.
Overall, the analysis revealed that people who lived within one mile of a golf course were 126% (or 2.26 times) more likely to receive a Parkinson’s diagnosis than those whose homes were six or more miles away. Being farther from the fairway seemed to help; risk steadily tapered off beyond one mile, with the odds of PD diagnoses decreasing by 9% for each mile of distance from a golf course.
Distance is only part of the story. When researchers looked at households served by a public water system that contained at least one golf course, Parkinson’s risk was 96% higher compared to households whose water systems did not have a golf course within their boundaries, and about 50% higher than people who use private wells. Additionally, when a golf course was in an area with groundwater vulnerable to contamination, the risk of Parkinson’s was 82% higher than in less vulnerable areas with a golf course.
Taken together, the findings suggest that the pesticides and herbicides used to keep putting greens immaculate may be leaching into drinking water, increasing Parkinson’s risk for the surrounding area.
Highlights
Using medical records from 1991 to 2015, researchers pinpointed 419 Minnesotans with a Parkinson’s diagnosis and compared them to a group of more than 5,000 neighbors who were alike in age, sex, race, and residential area with no history of PD.
For every person in the study, researchers measured how close they lived to the nearest golf course, then overlaid addresses onto maps showing city water-service districts, well water depths and locations, and areas where groundwater is more easily polluted.
Those living within one mile from a golf course were 2.26 times more likely to be diagnosed with PD compared to those living 6 or more miles from a course. The odds of PD diagnosis decreased by 9% for each mile of distance from a golf course.
People living in a public-water district with one or more golf courses had almost double the odds of developing Parkinson’s compared to those without a course, and about 50% higher odds than those using private wells.
When a course was on land more vulnerable to pesticide contamination into the community water source, the risk of Parkinson’s was 82% higher compared to regions with a golf course located on more protective geology.
What does this mean?
This study suggests a strong association between living within close proximity to a golf course with an increased risk of developing PD. Additionally, it highlights water sources surrounding golf courses as a primary means of exposure to the chemicals routinely used on golf courses.
However, this study does not prove cause and effect, and the investigators emphasize that more work is needed before drawing firm conclusions. The research lacks direct measurements of pesticide levels in the water over time, and it cannot rule out the impact of other environmental factors related to golf courses, such as higher-income neighborhoods or traffic patterns.
Still, the clear patterns drawn from this study — highest PD risk closest to golf courses, next-highest in the water systems that share ground with a course, and more risk in areas where contaminants travel easily — gives researchers more compelling evidence about how environmental risks play a role in Parkinson’s.
What do these findings mean to the people with PD right now?
The connection between golf courses and increased PD risk may help some people living with Parkinson’s better understand one cause — exposure to environmental contaminants, potentially through drinking water. However, the environmental risk factors for PD that golf courses present are potentially preventable, by individuals and regulators. People can choose not to live near golf courses, knowing that it may put them at an increased risk for developing PD. On the other hand, regulators can also acknowledge the potential risks and improve safety measures surrounding golf courses and water sources.
The prevalence of Parkinson’s is on the rise. These findings — and new, similar studies that will most likely result from this one — highlights the need to push for mitigating risk factors for PD. Studies like this one that tie environmental factors to increased risk are shaping the future of PD research by helping people trace a contributor to their diagnosis — and help identify ways to reduce risk for future generations.
Learn More
The Parkinson’s Foundation believes in empowering the Parkinson’s community through education. Learn more about PD and the topics in this article through our below resources, or by calling our free Helpline at 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s questions.