Tips for Daily Living

Tips for Daily Living: 12 Ways to Boost Your Brain Power

Man reading book

Do you ever walk into a room and forget why? Next time, try closing your eyes to jog your memory.

Your brain is a mysterious organ that researchers are still trying to better understand. Brain Awareness Week is a global campaign that raises public awareness about the progress and benefits of brain research, including research into the causes of Parkinson's disease (PD) and how to treat it. This year we wanted to provide you with 12 ways you can enhance your cognitive function, starting right now:

1. Keep Learning

Choose activities that keep your brain working. Set out to complete a complex goal or learn something new. Start with watching a new video on our YouTube channel.

2. Eat a Healthy Diet

Following the Mediterranean Diet can help people with Parkinson's slow levadopa absorption into the brain. This diet not only helps the brain, but can reduce blood pressure and cardiovacular disease.

3. Take a Book with You

Reading is a complex task that requires multiple parts of the brain to work together. A complex book can improve memory and cause positive neurological changes that last even after you stopped reading.

4. Stay Social

Staying social has been proven to help retain cognitive sharpness. Surround yourself with people who make you laugh and smile, or make new friends at Parkinson’s support groups. Get to know us on Facebook, Twitter and Instagram.

5. Keep Calm

Stress of any kind can temporarily worsen PD symptoms. Meditating just 15 minutes a day can bring a sense of calm and the ability to see things more clearly.

6. Get Enough Sleep

Maintain a regular sleep schedule; get up and go to bed the same time every day. Not sure where to start? Try Sleep: A Mind Guide to Parkinson's Disease.

7. Keep Track of Medications

Establishing a daily routine helps keep you on track with medications and exercise regiments. It can also help with sleep and digestion issues. Watch this guided meditation video to get started now.

8. Increase Your Heart Rate

Intense exercise can improve efficiency of your brain cells using dopamine and lessen PD symptoms.

9. Give Your Brain a Workout

Creativity in everyday life provides excellent mental stimulation. Vary your activity to keep the mind strong and healthy. Draw, paint or write your My PD Story.

10. Groove to the Music

Listening to music can improve memory. Singing and dancing to a song helps cognitive and physical functions. Research shows that exercise, social stimulation and singing can help postpone PD symptoms.

11. Drink Caffeine

Several studies have shown that caffeine may reduce the risk of developing Parkinson’s. A cup a day may also help with motor symptoms, boosting memory and lowering the risk of depression.

12. Laugh Out Loud

Laughing stimulates different areas in the brain. Some studies show laughing can also improve short-term memory. Watching a funny movie or cat video is also a natural stress reducer.

Want more? Follow us on Facebook and Twitter for the latest in Parkinson's news.

Parkinson's Foundation Helpline

Contact our Helpline at 1-800-4PD-INFO (1-800-473-4636) or Helpline@Parkinson.org for answers to your Parkinson’s questions. Helpline specialists can assist you in English or Spanish, Monday through Friday, 9 a.m. to 7 p.m. ET.

Tips for Daily Living

Top 5 Keys to PD

2 women swimming

This Parkinson’s Awareness Month, we want to hear your #KeyToPD.

Here are the Foundation’s top five keys to living a better life with Parkinson’s:

  • Find a neurologist. Regular neurologist care can save the lives of thousands of people each year. Neurologist care saves about 4,600 lives each year in the U.S. alone.
  • Get Answers. Call our 1-800-4PD-INFO (473-4636) Helpline or visit Parkinson.org to get your Parkinson's questions answered — at any stage of PD.
  • Put together a care team. People living with PD who seek expert care have better outcomes — complication risks are lower, they enjoy better quality and longer lives.
  • Establish an exercise routine. Increasing physical activity to at least 2.5 hours a week can slow decline in quality of life for people with PD.
  • Get moving and socialize. Meet others with PD and families living in your area at your nearest Moving Day, A Walk for Parkinson's. Register at MovingDayWalk.org.
Raise Awareness

Parkinson's Foundation Supports Local PD Communities

Group of people exercising

The David Posnack Jewish Community Center is a 2018 Parkinson’s Foundation community grant recipient that runs free exercise programs for people with Parkinson’s disease (PD) in Davie, FL. With their increased number of participants each year, the program utilized a grant from the Foundation to expand and add more classes. Today, they offer PD-tailored Tai Chi, yoga, Ageless Grace®, boxing, aquatic exercises, voice therapy, spinning and dance.

Barbara Jones, a caregiver to her husband who is living with Parkinson’s, never misses a class and always leaves inspired.

“The care that he gets here is unparalleled, you just can’t believe how important this class is for us and how much attending the classes help him get going and moving,” Barbara said. “I don’t know how I would get through this is I if I didn’t have these classes.”

In 2018, the Parkinson’s Foundation expanded its community grants program nationwide, inviting all organizations and individuals who offer a Parkinson’s exercise or wellness class anywhere in the U.S. to apply for a community grant. In 2019, the Foundation will award $1.2 million in community grants to help local programs further their health, wellness and education initiatives that address unmet needs in the Parkinson’s community.

“The best part of my job is attending programs that have received community grants and meeting with the people in our PD community who benefit from these unique PD classes,” said Nadia Romero, Parkinson’s Foundation grants manager.

The Foundation measures the impact of every local community grant recipient in their communities through site visits, developing a deeper understanding of the project, community need and impact.

“We want every grant we award to help as many people as possible — that includes people living with Parkinson’s, caregivers and family members,” Nadia added.

Help your local PD program receive a Parkinson’s Foundation community grant! If you manage a PD program or know someone who does, please visit Parkinson.org/CommunityGrants.

Tips for Daily Living

Staying Active: Hobbies and Leisure Pursuits

Couple biking outside

Enjoyable activities are essential to replenish mind, body and spirit. It is is important for people with Parkinson's disease (PD) and care partners to stay active through physical, mental and social stimulation and to engage in activities that promote relaxation.

Important Considerations for Leisure Activities:

  • Set aside time in your calendar for leisure activities in your week to make sure they happen.
  • Consider trying new activities and/or exercise classes. Call our free Helpline at 1-800-4PD-INFO (473-4636) to find a PD-specific class near you.  
  • Schedule the time of your leisure activity to coordinate with your “on” time. Remember to take your medications with you to ensure dosage schedules stay on time.
  • Stretch before engaging in any physical activity to prevent muscle strain.
  • Join a group or take a class to explore new hobbies and/or connect with others with similar interests. 
  • Balance activity and rest to reduce fatigue. A variety of interests may provide opportunities for both active and more sedentary leisure pursuits.
  • Try simple adaptations to your leisure interests. Build up golf club grips for a better swing; install a handrail on the dock to make getting in and out of the boat easier; experiment with a recumbent bicycle; or build raised beds in your garden.
  • Be aware that Parkinson's can make movements slower, smaller or affect balance reflexes. Use common sense and "test the waters" before beginning activities.
  • Invite others to join you in your leisure activities.
  • Get creative. Try writing, painting, photography, ceramics, knitting or other creative possibilities. Creative expression is an important component to quality of life.

Involving your team

An occupational, physical or recreational therapist can provide assessment and recommendations for current leisure pursuits, make suggestions for exploring new options or provide assistance in making adaptations if needed.

For more information about managing Parkinson'sPD resourcesfinancial matters and personal stories visit Living with Parkinson's

Caregiver Corner

Maggie, Nancy and Cindy Share their #KeyToPD

Older couple jogging together

This Parkinson’s Awareness month, we received more than 100 keys to living well with Parkinson’s disease (PD) from our community! Find out what Maggie, Nancy and Cindy each do to help them or their loved one manage Parkinson’s.

Maggie's #KeyToPD helps her find balance as a caregiver.

Nancy's #KeyToPD is a travel hack that helps her and her husband at airports.

Cindy's #KeyToPD helps her leave her house every day, on time and prepared.

 

Check out more #KeyToPD videos submitted by members of our PD Community.

Tips for Daily Living

These 10 Keys to PD Inspired Us

Group on people sitting outside

This Parkinson’s Awareness Month, we asked our Parkinson’s disease (PD) community to share their keys to Parkinson’s with us. We received hundreds of keys to living well with Parkinson’s!

Whether you are living with PD, are a caregiver or a healthcare professional, thank you for sharing your tips that make life a little easier. We will be posting your keys at Parkinson.org/Blog throughout the year but check out our top 10 keys submitted by YOU.

Exercise

“I listen to audiobooks and love good thrillers. I tease myself into exercising by allowing myself the satisfaction of hearing what happens next only when I’m exercising.”
- Patricia

“Create a playlist for walking. My symptoms get worse towards the end of long walks as I tire. By creating a playlist of songs with a good strong walking beat, the muscle memory kicks in and helps my body finish the walk strong instead of dragging one heel and not having one arm swing.”
- Fred

“For me, I have been blessed to be part of the Rock Steady Boxing (RSB) family for the last 3 plus years. Our coaches encourage us to push ourselves to continue to improve our strength, balance, movements, stamina and endurance. We have class 4 times a week and what a great and supportive new family of friends we have in each other! If you had told me that I would be doing a boxing workout at age 71 for an hour 3-4 times a week, I probably would have laughed. Rock Steady Boxing has given me a whole new positive outlook on my Parkinson's.”
- Wayne

Medication

“I use a black container to put all my husband’s medications in when I get them ready for him to take. I used to use little clear plastic cups that fruit snacks come in, but since most of his pills are white or light colored it was sometimes for him to see if he took them all. Then I found some black sauce cups from an Italian restaurant and he said he could see the pills much better against the black.”
- Susan

“Planning. I am the live-in caregiver for my mom with PD. I set aside a few hours one day a month to set up her pills in four, seven-day containers. That way in case something comes up with her or me at least we have her pills ready. I also set alarm timers in her phone and mine for her pill times. Such a big help!”
- Megan

Daily Living

“My key to living well with Parkinson’s is a metronome. When I get up in the morning, I have trouble walking because of freezing issues. It is very frustrating. There are ways to trick your brain into walking, but the best thing I have found is a metronome. The tick, tick, tick helps me to get going. Now I don’t want to carry a metronome around and as they say, ‘there’s an app for that.’ I have it on my phone and it is my key to get my morning moving!”
- Joyce

“I have rather severe tremors and eating gets pretty messy. I find that if I put my plate of food on top of a large bowl, the distance from plate to mouth is much reduced, which makes more food stay on the spoon or fork during that journey. It is a very small thing but for me, it makes a big difference.”
- Carole

“Use supermarket gift cards so you don't have to sign for a credit card or fumble with paper money and coins.”
- Sandra

“To decrease my leg pain/stiffness when I go to sleep, I do an Epsom salt soak. Heat the water as hot as you can stand it (without sustaining a burn). Add two cups of Epsom salts (there are some that are infused with lavender) and 1/2 cup baking soda. To enhance the experience, light a candle and/or play soothing music. Soak for 20 to 30 minutes.”
- Moises

"Since my hands are weak, I use a Waterpik, face scrubber, button hook, electric toothbrush and hair dryer holder to help me get dressed and out the door faster. My best tip is using a seat belt extender in my car so that I can buckle up with my right hand. These things are small but make life so much easier. Also, it's important to have a 'happy place' and parrots are mine!"
- Martha

Tips for Daily Living

5 Ways to Summer On

A couple walking on the beach

Summer is traditionally a time filled with friends, good food and new adventures. Living with Parkinson’s disease (PD) can interfere with daily life, but it should not stop you from enjoying new things. This summer we want to inspire you to do things that make you feel “on.”

Here are five things people in our community have done to #SummerOn.

  1. Create your own memory game!

After find out she had Parkinson’s, Laura learned more about her brain. She found that games help stimulate the brain and decided to put her drawing skills to use. Laura’s created a memory card game with 24 cards. Instead of the traditional matching games that only use images, her game matches a card with text and an image she created. “This way, the game engages both the limbic system and the part of the brain that processes language,” Laura said.

→ Get inspired by Laura and create your own game.

  1. Take a hike!

Four years after her Parkinson’s diagnosis, Beth took a grand hiking challenge by hiking the Grand Canyon during Parkinson’s Awareness Month. She wanted to raise awareness for Young-Onset Parkinson's disease (YOPD) and the huge toll it takes on families. Plan a hike this summer to raise awareness or just simply head to the mountains or nearby park to enjoy nature. Either way, share your pictures with us ― and remember to use our hashtag #SummerOn.

→ What type of exercise is best for people with PD? Read our exercise article to find out.

  1. Travel On

Nancy did not let her love of travel stop when her husband’s Parkinson’s made it more difficult to do so. Nancy found ways to not let his PD prevent him from traveling. In her #KeyToPD Nancy shares some tips on how to make air travel easier. She encourages people living with PD to ask for a wheelchair at the airport even if they do not need it. This way there is no need to worry about getting to your gate in time, falling or finding things around the airport.

→ Don’t let your PD stop you from visiting your dream destination. Check out our webinar and article about traveling with PD and follow Nancy’s traveling tip and the other tips shared through our #SummerOn campaign.

  1. Fundraise!

Summer is the perfect time to do new things with friends, but planning can be difficult. We have an idea for you. Plan a fundraiser in your community this summer and motivate others with PD. Creating a fundraiser is easier than you think. Fundraisers can be anything from throwing a party or barbeque, gathering a group and going for a bike ride or hosting a movie under the stars. You can even follow Elizabeth’s example and run a marathon with the proceeds going to the Parkinson’s Foundation.

→ Learn more at Parkinson.org/Champions.

  1. #FoodieFriday

Food provides nutrients that give us energy for activity, growth and all functions of the body. Proper nutrition is important when it comes to PD. In episode 4 of our podcast, Dr. Bas Bloom explains how nutrition can help improve some of the symptoms of Parkinson's and optimize the effects of medication. He also offers tips on getting adequate nutrition. Good thing there are tons of yummy healthy recipes on our YouTube channel.

 Join our #FoodieFriday this summer by cooking and sharing some of your favorite healthy meals.

Follow us on our social media to find more ways to #SummerOn before summer sails away.

Tips for Daily Living

Summer Podcast Playlist: Our Top 7 Podcast Episodes to Get you Through the Season

2 people walking on the beach

Whether you’re planning your next beach escape or gearing up for a road trip, the need for entertainment is key, and what better way to tune out than tuning into our podcast?

Featuring the latest treatments and techniques in the Parkinson’s disease (PD) field, our Substantial Matters: Life and Science of Parkinson’s podcast features the experts in the Parkinson’s community who cover a series of PD topics including employee dynamics, the benefits of exercise, alleviating voice challenges and more!

We’ve made it easy for you by picking out our top recommended podcast episodes for the summer― think of this as your curated PD podcast playlist. Just a click away, these episodes will transport you into the labs, offices and meeting spaces of PD health professionals who are eager to share more about your PD topic of interest.

  1. The Benefits of Music Therapy for Parkinson’s

The benefits of music therapy for Parkinson’s have been well established. Rhythm and rhythmic cuing can help with initiation, coordination and maintenance of movement. Benefits can extend to cognitive functions, communications abilities and mood. Some music therapists have furthered their education as academically trained professionals specifically in working with people with Parkinson’s.

Listen Now

  1. Parenting and Parkinson’s: Raising Children While Living with Parkinson’s

Parenting has its challenges and surprises under the best of circumstances, but when a parent has Parkinson’s, it can put added stresses on the family. As parents’ abilities and roles change, children should understand the disease, how it may change their routines and the potential need to take on additional responsibilities. 

Listen Now

  1. More than a Movement Disorder: Addressing Mood and Coping

Parkinson’s is more than a movement disorder. While movement symptoms may be a prominent outward symptom of PD, mood and other emotional changes are also common ― and not just for the person with PD. Care partners may also experience these changes. Often, the best way to recognize these problems and figure out coping strategies may involve other health professionals. 

Listen Now

  1. Talking to Your Employer About PD: Disability Inclusion and Accommodation at Work

Many people with Parkinson’s want to continue to work. Sometimes all it takes is recognition of their condition by their employer and accommodations to compensate for disabilities. In fact, the Americans with Disabilities Act provides certain protections in the workplace for people with disabilities once they reveal their situation to their employers, who are then required to make reasonable accommodations to do the job. 

Listen Now

  1. Alleviating Voice Challenges with PD

Just as Parkinson’s affects movement, it can affect muscles of the face, mouth and throat, leading to problems with speech and swallowing. People with PD may experience voice problems during the course of their disease. The problems tend to increase as the disease progresses but may occur at any stage.

Listen Now

  1. Changing the Hospital Experience Through Aware in Care

People with Parkinson’s need their medications on time, every time. Getting them too soon or too late can cause problems. So when a person with PD enters the hospital, which happens 50 percent more often than their peers, the staff often needs to be educated on the importance of delivering medications at the right dose and at the right times ― times that may differ from the usual times that medications are dispensed.

Listen Now

  1. Encountering Gender Differences: Women and PD Initiative

Given the differences women may encounter when dealing with their Parkinson’s, the Parkinson’s Foundation is leading the first national effort to address gender disparities in Parkinson’s research and care as part of an overall Women and PD Initiative. The Foundation has developed new patient-centered recommendations to improve the health of women living with PD.

Listen Now

If you like what you hear, be sure to subscribe, rate and review the series on Apple podcasts or wherever you get your podcasts. We want to hear what you think about our podcast! Share your feedback here.

Tips for Daily Living

#FoodieFriday: Fun and Healthy Recipes

A balanced diet is the foundation of good health for everyone. However, nutrition is even more important for people with Parkinson’s disease (PD). While there are many things about PD that cannot be changed, the informed choice of diet is one that can help people to live better with Parkinson’s.

The right food can optimize medications, ease symptoms, keep bones strong, fight constipation and weight loss and help maintain general health and fitness. A healthy diet can be delicious at the same time. Check out some of the fun and healthy recipes we made this summer for #FoodieFriday on our social media.

Blue Majik Pancakes

This recipe contains antioxidants, such as blueberries and spirulina, that may help defend your cells from damage. Almond flour is a great replacement for regular wheat flour since it is packed with nutrients, is low in carbs and may reduce “bad” cholesterol and insulin resistance. For a fun breakfast, try these healthy blue pancakes.

What makes the pancakes blue? Blue spirulina, sold at health food stores and sometimes the vitamin aisle, is derived from blue-green algae that is high in nutritional content and can help boost the immune system, increase energy and improve digestion.

Ingredients

1 cup of almond flour  
¼ cup of water
2 eggs
1 tbsp of oil (or maple syrup)
1 tsp of blue spirulina
1 tbsp of chia seeds
Blueberries to taste 

Preparation

Mix all ingredients in a blender
Add oil or butter to a pan
Pour desired amount of batter onto the pan
Add blueberries
Flip pancake
Cook until golden brown
Eat while it’s hot! 

Caregiver Corner

15 Actionable Ways to Practice Self-Care

A couple biking together

As a caregiver for a loved one with Parkinson’s disease (PD), your days may include medication alarms, driving to and from appointments and helping your loved one with activities of daily living. Simultaneously, you may be managing finances, cooking, working and trying to keep up with family and friends. It can be easy to forget that your needs require attention too. Self-care is defined as any practice that relieves stress and encourages a healthy mind and body.

We know you are busy, so we’ve compiled 15 realistic ways you can implement self-care…starting now:

  1. Eat healthy with less hassle. The better you eat, the better you feel.
  2. Manage stress. Determine what helps you relax most: a hot bath, a meditating app, reading a new book or going on a walk. Then devote time to it every day.
  3. Exercise regularly. We know that exercise plays a role for your loved one’s PD, and consistent exercise can also help you. Just 30 minutes of daily exercise can help you sustain your energy and lead to better sleep.
  4. Set limits and stick to them. This means asking for help when you need it. Try new resources. Bring in outside help (family or paid worker) so you can take a break. Call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (473-4636). No one can do everything for everyone all the time!
  5. Reflect on the rewards of caregiving. Alongside trials and challenges, caregiving offers triumphs and joys. Take pride in how much you have learned and in discovering your own strengths.
  6. See to your own health needs. Set up and attend your own medical appointments regularly. Your physical and mental well-being are key to successful caregiving.
  7. Find activities you can enjoy with your loved one outside of care. Go to a movie, host a dinner party or sign up for something new. Enjoy time together.
  8. Drink plenty of water. Staying hydrated helps flush out toxins, so bring a reusable bottle wherever you go.
  9. Socialize with people who uplift you. Nothing can empower you like a feeling of camaraderie. Minimize exposure to negative people. Instead, go out with friends or get involved with a community organization, support group or charity that you believe in.
  10. Laugh. Keeping a sense of humor helps beat anxiety. Watch a funny video or read something funny every day. Recognize and enjoy the happy moments with your loved one.
  11. Schedule breaks from caregiving and make them a priority. Take time to pursue other aspects of your life or just to relax. Plan these breaks in advance and arrange for help while you’re out.
  12. Cultivate a mindfulness practice. Try morning meditations or set a daily reminder to assess how you are coping. If you are stressed, plan your next break.
  13. Life plan. Thinking about your future and what you want to achieve in life can help you maintain personal motivation. Can your loved one help you reach your goals?
  14. Accept your feelings. Guilt, anger and depression are normal reactions to a progressive disease. Recognize the hidden grief component in these emotions and seek out someone who understands it. Knowing what to expect emotionally can help.
  15. Practice being grateful. Recall or write down a few things from your day that made you or your loved one smile. Learn to savor the good times and the things that went right, however small.

Want more caregiver resources? Read Caring and Coping: A Caregiver’s Guide To Parkinson’s Disease or call our free Helpline at 1-800-4PD-INFO (473-4636) for answers to your caregiving questions.

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