Survey Data & Community Insights

💡 Quick Summary

  • The Parkinson’s Foundation uses nationwide surveys to gather real-world input from people with Parkinson’s disease, care partners and healthcare professionals. 
  • These surveys help improve Parkinson’s research, care, programs and policy by highlighting the community’s lived experiences and needs.  
  • People with Parkinson’s help design each survey and findings cover key topics like cannabis use, telehealth and exercise. 
Survey data on a laptop

The Parkinson’s Foundation gathers feedback from people living with Parkinson’s disease (PD), care partners, families and healthcare professionals to better understand the experiences, priorities and unmet needs of the PD community.

People with Parkinson’s help design and review each survey. We collaborate with researchers from our Centers of Excellence and pharmaceutical partners to design surveys that meet research and community interests.

Why Survey Data Matters

Survey findings help the Parkinson’s Foundation:

  • Identify unmet community needs
  • Improve educational programs and resources
  • Inform research and policy priorities
  • Better understand barriers to care and support
  • Amplify lived experiences across the Parkinson’s community

These insights help ensure that the voices of people affected by Parkinson’s remain at the center of our work.

Join our survey initiative

Make your voice heard by taking Parkinson's Foundation Surveys.

SIGN UP

Featured Survey Series: State of the Community

The Parkinson’s Foundation State of the Community Survey is an annual survey designed to better understand the experiences, concerns and priorities of people affected by Parkinson’s disease. The survey is in English and Spanish. Survey findings help guide future education, community programs, research efforts, care priorities and policy initiatives.

Our Surveys

Explore Parkinson’s Foundation surveys and community insights related to care experiences, research participation, education and quality of life in Parkinson’s.

How to get involved in survey research?

  1. Make your voice heard. Participate in our survey initiative. SIGN UP
  2. Learn about types of clinical research studies. Surveys are often part of observational studies. Visit our Understanding Research webpage to learn more.
  3. Explore other ways to get involved.
    You can also become a Research Advocate to help co-design surveys with our team.

If you are a researcher and have interest in partnering with the Parkinson’s Foundation on a survey project, please contact PatientEngagement@Parkinson.org

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