Study Resources
Thank you for your interest in participating in the Parkinson’s Foundation PD GENEration study.
These key resources are designed to help you participate in PD GENEration. They include instructional videos and study information.
If you have additional questions about how to participate after reviewing the information below, please email the PD GENEration team at Genetics@Parkinson.org or call our Helpline at 1-800-4PD-INFO (1-800-473-4636).
Introduction to PD GENEration Video
This video introduces you to the Parkinson’s Foundation PD GENEration study and covers the general concepts in genetics, the scope of genetic testing offered through PD GENEration and some of the implications of genetic testing.
PD GENEration Study Documents
The below key documents and protocols have been approved by the study’s Institutional Review Board. These documents are used by our team to help conduct the PD GENEration study.
Regulatory Documents
Tasso+ Kit Video
PD GENEration samples are collected using a Tasso+ kit if you are participating at home. Watch the videos below before using the Tasso+ kit.
These videos are designed to help you successfully complete your sample collection at home. You can either watch a person with Parkinson’s or a care partner use the kit to help a person with Parkinson’s. If you have questions or need assistance after watching a video, please contact the live proctoring service using the card included in your kit.
Person with Parkinson’s
Person with Parkinson’s with a Care Partner
Additional Tasso+ documents
- FAQ: This document answers the top questions people with Parkinson’s and their families have about using the Tasso+ kit.
- Instruction Manual: This instruction manual included in your Tasso+ kit provides step-by-step written instructions on how to successfully complete your sample collection.
- UPS Pick-up Postcard: This postcard included in your Tasso+ kit explains how you can schedule a same day pick up for shipping your blood sample to our laboratory.