Little is known about the impact of COVID-19 on the health and day-to-day activities of people with Parkinson’s disease (PD). A Parkinson’s Foundation survey titled The Impact of COVID-19 and Social Distancing on People with Parkinson’s Disease: A Survey Study, aimed to understand the impact of public health policies on the Parkinson’s community.
About the Study
This study was conducted in collaboration with Columbia University Medical Center, a Parkinson’s Foundation Center of Excellence. Five people with Parkinson’s and one care partner reviewed this study.
increase in use of telehealth – most often used for doctor’s appointments and mental health therapy.
of respondents participated in an activity that had transitioned to an online format.
of respondents would prefer to continue using telehealth after the COVID-19 outbreak ends.
- Only 1% of people with PD reported a COVID-19 diagnosis by a health provider, of which 0.3% had this diagnosis confirmed by testing.
- Telehealth use increased by 54% and was most often used for doctor’s appointments and mental health therapy.
- Individuals with higher income and education were more likely to use telehealth services.
- About 50% of respondents shared that they would prefer to continue using telehealth after the COVID-19 outbreak had ended.
- Having received support or instruction for telehealth, having a care partner or friend to help with virtual appointments and having used telehealth before were associated with continued use after the pandemic.
- Most respondents (75%) had participated in an activity that had transitioned to an online format, including exercise and wellness classes, support groups, educational events and religious services.
- This study took place between May and June 2020
Figure Description: Participant representation by COVID-19 per capita infections as of May 27, 2020. Darker states indicate higher per capita infections of COVID-19. Grey dots reflect survey participant locations. Black dots reflect the location of a Parkinson’s Foundation Center of Excellence.
Join the Parkinson’s Foundation Surveys initiative to make sure your voice is heard!