Post-Study Support
💡 Quick Summary
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PD GENEration participants gain access to a wide network of Parkinson’s Foundation resources, including our Helpline, online support communities and local programs, events and peer connection.
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Educational hub featuring guides for the newly diagnosed, videos, webinars, clinical trial information, genetics education, safety resources and expert-led podcasts to support every stage of the Parkinson’s journey.
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Participants can deepen involvement through advocacy, volunteer opportunities and research programs, while also accessing related fact sheets, blogs and tools.
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Share your personal PD GENEration story to help advance community understanding.
Support for Every Stage of Your Parkinson’s Journey:
Next Steps After Participating in PD GENEration
When you take part in PD GENEration: Powered by the Parkinson’s Foundation, you join the Parkinson’s Foundation network — a community united to understand the genetics behind the disease, advance research and support each other in making life better for people with Parkinson’s disease (PD). Whether recently diagnosed, or seeking new ways to connect with others or advocate for the PD community, we offer tools and resources to help you live your best life with PD and offer hope for the future:
Connect
Helpline
Call 1-800-4PD-INFO (1-800-473-4636) or email Helpline@Parkinson.org for answers to your PD questions, in English and Spanish, weekdays, 9 a.m. to 7 p.m. ET.
PD Conversations
Join an online support community where you can ask questions, connect with others, and receive and share support.
Local Chapters
Find your local chapter for nearby programs, support groups and community events like Moving Day, A Walk for Parkinson’s.
Learn
Newly Diagnosed Guide
Designed to help you and your loved ones start your PD journey, learn more about PD and prepare for doctor's appointments.
PD Library
Access an extensive library of educational videos, webinars, books, podcasts and more, in both English and Spanish.
Hospital Safety Guide
Prepare for potential hospital stays with guidance and downloadable tools to help you advocate for your needs.
Podcast: Substantial Matters
Listen to experts share the latest Parkinson’s treatments, techniques and research to help you live better.
Clinical Trials
Learn about different types of clinical trials, why they are important in the fight against Parkinson's and what the experience is like when enrolled.
Genetics Behind PD
Explore the different genetic factors that can contribute to Parkinson's risk and the latest results from the PD GENEration study.
Advocate
Join a Study
Explore opportunities to get involved with Parkinson’s research beyond PD GENEration.
Research Advocate Program
Become a patient advocate by working with PD researchers to promote participation in studies.
Volunteer Opportunities
We are looking for individuals who are passionate about our mission and who want to advance research toward a cure.
PD Trial Navigator
The Parkinson’s Foundation has launched PD Trial Navigator, a new pilot program that helps connect people who have participated in PD GENEration with research studies focused on genetics. Through education and one-on-one guidance, PD Trial Navigators help participants understand clinical trial options and support them in deciding whether to take part.
Building on the success of PD GENEration — which has provided free genetic testing and counseling to more than 30,000 people with Parkinson’s — this program helps more people explore research opportunities related to their genetic results.
To learn more please email PDNavigator@parkinson.org.
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