Group of people looking at genetics on whiteboard

These individuals work to make life better for people with Parkinson’s disease (PD) through their leadership and participation in the PD GENEration: Mapping the Future of Parkinson's study.

Principal Investigator

  • Roy N. Alcalay, MD, MS, Chief of the Movement Disorders Division at Tel Aviv Sourasky Medical Center, Parkinson’s Foundation Scientific Advisory Board Member and part-time Associate Professor at Columbia University Irving Medical Center

Members of the Steering Committee

  • Anne Hall, JD, Parkinson’s Foundation Research Advocate, Member of FDA Patient Engagement Collaborative, Research Stakeholder, University of California, San Francisco, Member of International Parkinson and Movement Disorder Society Task Force on Genetic Testing in Parkinson’s Disease
  • Karen S. Marder, MD, MPH, Sally Kerlin Professor of Neurology and Chief of the Division of Aging and Dementia at Columbia University Irving Medical Center
  • Martha Nance, MD, Medical Director at Park Nicollet Struthers Parkinson’s Center and Clinical Professor of Neurology at the University of Minnesota
  • Michael A. Schwarzschild, MD, PhD, Professor of Neurology at Harvard Medical School, Director of Molecular Neurobiology Laboratory at Massachusetts General Hospital, and Chair of the Executive Committee of the Parkinson Study Group
  • Tanya Simuni, MD, Chief of the Division of Movement Disorders and Arthur C. Nielsen, Jr., Professor of Neurology at Northwestern University Feinberg School of Medicine
  • Anne-Marie A. Wills, MD, MPH, Neurologist and Director of the CurePSP Center of Care at Massachusetts General Hospital, Co-Director of the Genes and Environment Working Group of the Parkinson Study Group
  • Cynthia J. Casaceli, MBA, Director of the Clinical Trials Coordination Center at University of Rochester (ex officio)

In partnership with Parkinson Study Group

  • Michael A. Schwarzschild, MD, PhD, Chair of the Executive Committee
  • Hubert H. Fernandez, MD, Co-Chair of the Executive Committee and James and Constance Brown Family Endowed Chair in Movement Disorders at Cleveland Clinic

Clinical Sites

  • PSG: Parkinson Study Group
  • Parkinson’s Foundation Centers of Excellence

Genetic Testing
Fulgent

Genetic Counseling
Indiana University School of Medicine

CRO
University of Rochester

Data Storage
University of Florida

Learn more about our exciting genetics study

Genetics can be a powerful tool used to help us better understand Parkinson's.

PD GENE Latino Advisory Committee

The PD GENE Latino Advisory Committee, comprised of healthcare professionals, researchers, community members and people with PD, works with the Parkinson’s Foundation to develop strategies to increase clinical research education, awareness and participation among Hispanics and Latinos with Parkinson’s throughout the U.S. and the Caribbean. The committee focuses on Parkinson’s Foundation studies, including PD GENEration: Mapping the Future of Parkinson’s Disease and the Parkinson's Outcomes Project. This unique pilot initiative aims to increase participation in these two projects by ten percent. To date, the PD GENE Latino Advisory Committee has helped the Foundation to:

  • Develop educational materials and organizing outreach events specific to the Hispanic community living with PD;
  • Disseminate lessons learned and measures of success in engaging the Hispanic community through scientific publications;
  • Survey the Hispanic community to further understand their needs and gaps in care; and
  • Expand PD GENEration for the first time outside the continental U.S. and into the Caribbean.

Collaborators

The PD GENE Latino Advisory Committee is honored to further collaborate with various institutions that serve the Hispanic community:

Cleveland Clinic Logo
Baylor College of Medicine logo
Cecanot logo
Cedimat logo
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