Audiobooks

Mood: A Mind Guide to Parkinson’s Disease

Everyone experiences changes in mood over the course of any given day, week, month, and year. But “mood changes” is a broad term that can mean different things to different people. This guide explains what mood changes can happen in Parkinson’s disease (PD), why people with Parkinson’s might experience these changes and how to treat and cope with them.

Not everyone develops every symptom of Parkinson’s disease, but if you’re affected, non-motor symptoms including depression, anxiety, anger, and irritability can have a huge impact on your quality of life and those around you. The information, tips, and stories included here will provide answers, help you organize thoughts and questions for your medical team and remind you that you are not alone on this Parkinson’s journey

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Fact Sheets

Managing Anxiety in Parkinson's

Anxiety affects many people with Parkinson’s disease (PD) and can impact quality of life as much as movement symptoms. Recognizing

the signs of anxiety and understanding how it is connected to PD can help you manage symptoms and improve your well-being.

Quick Facts

  • About 40% of people with PD experience anxiety.
  • Brain changes that affect movement can also contribute to anxiety.
  • Anxiety often makes other PD symptoms more difficult to manage.

Signs of anxiety:

  • Ongoing fear or worry
  • Feeling on edge or overly alert
  • A sense of doom or dread
  • Irritability or restlessness
  • Unwanted, repetitive thoughts
  • Sudden panic or terror
  • Difficulty sleeping
  • Trouble focusing
  • Avoiding situations and places
  • Physical symptoms like fatigue, racing heart, dizziness or nausea
  • Excessive sweating
  • Internal shaking or buzzing

Understanding Anxiety in Parkinson's

Anxiety can develop at any stage of Parkinson's. For some, anxiety starts before diagnosis. For others, it becomes noticeable around diagnosis, often intertwined with the emotions of a major life change. Anxiety may also develop or worsen as symptoms progress.

While the exact causes of anxiety aren't fully understood, several factors can contribute, including family history, brain chemical imbalances, health conditions and stressful or traumatic experiences.

Parkinson's can also play a role in different ways:

  • Brain changes — Parkinson's causes a loss of dopamine, a chemical that regulates movement and mood. This loss, along with changes in other brain chemicals, can cause or worsen anxiety.
  • "Off" periods — PD medication increases dopamine, but its effects can wear off between doses. When dopamine levels drop, movement and some non-movement symptoms, like anxiety, can worsen — sometimes without warning.
  • Daily life with Parkinson's — Coping with symptoms often brings up a range of feelings, including frustration, fear and anxiety.
  • Sleep disturbances — Parkinson’s impacts sleep in different ways. Poor sleep can worsen anxiety and other symptoms.
  • Isolation — PD symptoms can make it more difficult to stay socially connected. This can increase feelings of loneliness and anxiety.
  • Uncertainty — Not knowing how Parkinson's will affect quality of life or independence can create anxiety.

Recognizing Anxiety in Parkinson's

Anxiety can show up in different ways, such as constant worry, fear of social situations or sudden panic attacks. Sometimes there's no clear cause — just a lingering sense of unease or dread. Anxiety can also cause physical symptoms like a racing heart, nausea or fatigue.

Just as Parkinson’s impacts anxiety, anxiety can worsen PD symptoms like tremor or sleep issues, creating a difficult cycle.

Feeling stressed or anxious from time to time is normal, especially when living with a chronic condition like Parkinson's. However, if these feelings stick around or start to interfere with daily life, it is important to talk with your healthcare team.

Managing Anxiety in Parkinson's

Anxiety can feel overwhelming, but you are not alone. There are strategies and treatments that can help:

  • Manage PD symptoms — If your anxiety is tied to “off” periods or symptoms in general, talk to your doctor about adjusting treatment. Tracking anxiety and medication timing can help identify patterns.
  • Support mental health — Focus on one task at a time, organize your space and prioritize rest, healthy eating and exercise. Mindfulness techniques like yoga, meditation and breathing exercises can also help.
  • Explore talk therapy — A therapist can offer support and tools like cognitive behavioral therapy for managing difficult thoughts and emotions. Ask your doctor for a referral or contact our Helpline.
  • Stay connected — Combat isolation by reaching out to friends, family and support groups. Consider joining PD-specific groups where you can share experiences and discover strategies for managing anxiety.
  • Consider medications — Antidepressants can help with anxiety and mood but may take time to work. Some also aid sleep or other symptoms. Talk with your doctor about options — and a psychiatrist if needed. Learn more at Parkinson.org/MedicationsBook.

Tips for Managing Anxiety

  • Keep a routine. Predictable timing for medications, meals and rest helps lower anxiety.
  • Have a plan. Work with your care team to develop strategies for managing anxiety when it arises.
  • Loop in others. Let family and friends know that anxiety is often part of PD and how they can support you.
Audiobooks

Cognition: A Mind Guide to Parkinson's Disease

There are many aspects of cognition: thinking, understanding, learning, remembering, problem solving, language, and more. This guide explains what affects your thinking (age, sleep problems, medications, etc.), and what cognitive changes can happen in Parkinson’s disease. It includes coping tips for both people with Parkinson’s and care partners and stories that show strategies others use to manage their thinking changes.

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Please note this book was updated in 2024. The audiobook will be updated soon. For the most recent content, please read the book here.

Audiobooks

Frequently Asked Questions: A Guide to Parkinson’s Disease

People affected by Parkinson’s disease (PD) — those living with Parkinson’s, their family members, their friends, and the healthcare professionals that care for them — are all looking for answers to questions about the disease, its symptoms and treatments.

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Please note this book was updated in 2024. The audiobook will be updated soon. For the most recent content, please read the book here.

Videos & Webinars

Veterans and PD: What You Need to Know

The VA estimates that 110,000 veterans have Parkinson’s disease. For some veterans, developing PD can be associated with exposure to Agent Orange or other herbicides during military service. Watch this on demand recording to learn more about the latest treatment advances from Parkinson’s experts and hear from veterans who are now living with Parkinson’s disease. The video explores the resources and support services that veterans have access to through the VA and the Parkinson’s Foundation.

For more information, visit Parkinson.org/Veterans.

Audiobooks

Fitness Counts: A Body Guide to Parkinson’s Disease

This audiobook contains descriptions and explanations of specific exercises that can help to maintain flexibility, strength, and aerobic conditioning.

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Audiobooks

Psychosis: A Mind Guide to Parkinson’s Disease

As part of the Parkinson’s Foundation's Educational Book Series, Psychosis discusses just that: the causes, symptoms and treatments for hallucinations and delusions, as well as tips for caregivers of someone experiencing psychosis.

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Books

Medical Alert Card

Fill in your card with emergency contact information and place in your wallet.

Books

What You and Your Family Should Know (Chinese)

This book is in Chinese. It offers a basic overview of Parkinson's symptoms, diagnosis, related conditions and treatment options. It also includes tips for putting your health team together, adapting to Parkinson's and maintaining good health through exercise, nutrition, sleep and mental wellness.

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