Check-in begins at Noon with lunch and vendor visits. Program starts at 1 pm.
After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.
Speaker
Dr. Wijdan Rai, Sanford Health
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
En este webinar, diseñado para los aliados en el cuidado que enfrentan el agotamiento mientras apoyan a su ser querido, aprenderán a reconocer las señales de agotamiento del cuidador, comprender qué es y explorar herramientas y estrategias prácticas para manejar el estrés y mantener su bienestar mientras brindan cuidados.
10 a.m. Hora del Pacífico (Los Ángeles) 11 a.m. Hora de la Montaña (Colorado, Phoenix y Nuevo México) 12 p.m. Hora del Centro (Texas y Ciudad de México) 1 p.m. Hora del Este (Nueva York , Peru y Colombia) 2 p.m. Hora de Venezuela 3 p.m. Hora de Chile y Argentina
*Por favor, verifica su zonas horarias.*
Presentadora
Edna Hutchinson
CCHW-S3
Gerente de programa, Programa de Educación para la Autogestión de Enfermedades Crónicas
Instructora de formación en primeros auxilios para la salud mental
Instructora del programa PEARLS, Presbyterian Community Health
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
Living with Parkinson’s can be challenging, but many resources are available to help you live your best quality of life. This program will provide important information, resources, and strategies to live well with Parkinson's. We invite you to register early and stay tuned for full details!
The event is free and is open to people with Parkinson's, their family, friends and the community. Registration is required as in-person seating is limited.
Thank you to our event partner, the Greater Fresno Parkinson’s Support Group.
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
More than 110,000 U.S. veterans living with Parkinson’s disease (PD) receive care through the Department of Veterans Affairs (VA), which offers access to specialized treatment, financial benefits, and dedicated support services. In this webinar, we’ll explore the wide range of resources available to veterans with PD through the VA system, including Parkinson’s Disease Research, Education and Clinical Centers (PADRECCs), affiliated sites, and Veteran Service Organizations (VSOs). Participants will also learn how the Parkinson’s Foundation partners with the VA to provide additional education, tools, and support for veterans and their families.
Gretchen Glenn, LCSW
Associate Director of Education
Corporal Michael J. Crescenz VA Medical Center
Philadelphia Parkinson's Disease Research, Education, and Clinical Center
Chair of the National VA Parkinson’s Disease Consortium Education Subcommittee
Helen R. Komninos (McHugh)
NSO Assistant Supervisor
DAV National Service Officer
Cuidar de alguien que tiene problemas de memoria o de pensamiento conlleva desafíos diarios únicos para los aliados en el cuidado y las familias. Acompáñenos en este webinar diseñado especialmente para aliados en el cuidado. Exploraremos estrategias prácticas para promover la movilidad diaria conservando la independencia de su ser querido, prevenir caídas, iniciar conversaciones abiertas con su familia y seres queridos acerca de los servicios de apoyo disponibles para ayudar a guiar un mejor cuidado de su ser querido, y aprender a navegar desafíos frecuentes que los cambios de conducta y cognitivos pueden traer a la experiencia de cuidado.
9 a.m. Hora del Pacífico (Los Ángeles y Phoenix) 10 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México) 11 a.m. Hora del Centro (Texas, Colombia y Perú) 12 p.m. Hora del Este (Nueva York y Venezuela) 1 p.m. Hora de Chile y Argentina
Presentadores
Dra. Tais Protasio
Especialista en medicina geriátrica
Ilian Mino
Asistente de investigación
División de Medicina Geriátrica,
CU Anschutz School of Medicine
Joanna Fitzgibbons, Maestra en Ciencias
Coordinadora del programa,
División de Medicina Geriátrica,
CU Anschutz School of Medicine
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
For most people, being in the hospital is a stressful experience. For people with Parkinson’s disease (PD), symptoms may get worse and new symptoms can develop. Proactively understanding the risks a person with Parkinson’s faces in the hospital can help to minimize complications and recovery time.
Join the Parkinson's Foundation to learn about common challenges and ways to advocate for the best possible care while hospitalized. Attendees will receive a Hospital Safety Guide, parking, and lunch at no cost. Registration is free but required, and seating is limited.
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
Cuéntenos su experiencia con el Parkinson por medio de imágenes que lo inspiren a compartir momentos o historias relacionadas con la enfermedad. En este programa lo invitamos a participar e interactuar con su comunidad de Parkinson. Para asegurar la privacidad de su participación, no estaremos grabando el programa. Queremos ofrecer un espacio de confianza y ánimo.
10 a.m. Hora del Pacífico (Los Ángeles) 11 a.m. Hora de la Montaña (Colorado, Phoenix y Nuevo México) 12 p.m. Hora del Centro (Texas y Ciudad de México) 1 p.m. Hora del Este (Nueva York , Peru y Colombia) 2 p.m. Hora de Venezuela 3 p.m. Hora de Chile y Argentina
*Por favor, verifica su zonas horarias.*
Presentador
Eric E. Espinoza
Coordinador de programa y vinculación, Programa de la enfermedad de Parkinson y los trastornos del movimiento
Coordinador de estudios de investigación, KTEAM Lab
Shirley Ryan AbilityLab
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
Acompáñenos para conocer más acerca de PD GENEration, el estudio pionero de la Parkinson’s Foundation que ofrece pruebas genéticas sin costo a personas con la enfermedad de Parkinson. Compartiremos lo que hemos aprendido hasta ahora de la comunidad hispana, en qué consiste este estudio, los beneficios que ofrece y los pasos para participar, tanto en los Estados Unidos, como en Latino América.
Además, contaremos con el testimonio de un participante del estudio genético, quien compartirá su experiencia.
10 a.m. Hora del Pacífico (Los Ángeles y Phoenix) 11 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México) 12 p.m. Hora del Centro (Texas, Colombia y Perú) 1 p.m. Hora del Este (Nueva York y Venezuela) 2 p.m. Hora de Chile y Argentina
Presentadora
Rebeca De Leon
Directora, Investigación Clinica, Parkinson's Foundation
Panelista
Lic. Laura Ayde Olmos Araujo, MBA
Licenciatura en Administración y Maestría en Administración de Negocios de
Texas A&M International University,
Embajadora líder con la Davis Phinney Foundation,
Embajadora de Parkinson con el WPC2026,
Fundadora de Parkinson Laredo
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
Please join us for a Facebook live Q & A discussion on Monday, 8/25, at 3 pm EST with the co-authors of the new book, The Parkinson’s Plan: A New Path to Prevention and Treatment, Dr. Michael S. Okun and Dr. Ray Dorsey.
Moderated by the Chief Medical Officer of the Parkinson’s Foundation, Dr. Sneha Mantri.
Community Partners in Parkinson’s Care is a program designed to educate and prepare care staff to provide optimal care for people with Parkinson’s disease living in care communities.
Some people with Parkinson’s disease (PD) experience changes in thinking or memory — known as cognitive impairment. While some may struggle focusing on a task, others have difficulty remembering information. Cognitive changes can be common when it comes to Parkinson’s and aging, but every person’s experiences and symptoms are unique to them.
Cognitive impairment is related to Parkinson’s because people living with this disease experience a decrease in the level of dopamine in their brain, the neurotransmitter that is involved in regulating the body’s movement and maintaining working memory.
Here are 10 things everyone should know about Parkinson’s and cognitive changes:
1. Cognitive decline is common in Parkinson's.
Mental and movement decline tend to happen together for people with Parkinson’s. Symptoms of mild cognitive impairment often do not interfere with home and work life. The cognitive changes that accompany Parkinson’s early on tend to be limited to one or two mental areas, with severity varying from person to person. Areas most often affected include attention, speed of mental processing, problem-solving and memory issues.
2. Cognitive changes may occur early in the disease.
Doctors used to believe that cognitive changes did not develop until the middle- to late- stages of PD, but recent research suggests that mild changes may be present at the time of diagnosis.
3. Cognitive Change is different than Dementia.
Cognitive impairment is not dementia, which is when cognitive impairments occur in more than one area of cognition. Dementia leads to a more serious loss of intellectual abilities that interferes with daily living. While mild cognitive impairment can affect 20-50% of people with PD, not all lead to a dementia diagnosis.
4. Executive function changes can be frequent in Parkinson’s.
One of the most prominent cognitive changes in Parkinson's is impairment of executive function. This can impact planning, organizing, multitasking and decision-making. Loved ones can help the person with PD by providing cues, reminders and greater structure of activity.
5. Short-term memory problems are associated with cognitive changes.
The basal ganglia and frontal lobes of the brain (both help the brain organize and recall of information) may be damaged in PD. Long-term memory is typically less impacted, however, short-term memory and the ability to recall recent information are often affected. This can result in difficulty with common tasks such as making coffee, checking your emails, etc.
Research has shown that these strategies can help keep your memory sharp:
Exercise: Finding an activity that you love and can partake in regularly is critical to living with PD. Exercising regularly has been shown to improve cognition and memory problems. The Parkinson’s Foundation’s Fitness Fridays provide a variety of exercises that aim to support those with Parkinson’s.
Find Mentally Stimulating Hobbies: Reading, puzzles, gardening and art are all examples of hobbies that can keep you entertained while sharpening your mind. It’s important for people with Parkinson’s to find hobbies that can promote mental stimulation.
6. Cognitive Change may alter attention and concentration abilities.
People with Parkinson’s may have difficulty sustaining attention or concentrating on tasks for extended periods. This can lead to having issues with mental calculations or concentrating during a task.
Here are some tips to help your attention skills:
Set timers while completing a task to help keep your attention span for the time being. The Pomodoro Technique helps improve focus by working in 25-minute intervals with short breaks in between tasks.
Nourish your body with foods that promote brain health, such as the “MIND” Diet including food groups like whole grains, berries, and vegetables. Prioritize sleep. A minimum of six hours a night is needed to keep your attention and concentration sharp. Try to stick to a consistent sleep schedule every night, going to bed at the same time, to help your body make it a habit.
7. People in the early stages of PD may have trouble with depth perception.
Subtle visual-perceptual problems may contribute to visual misperceptions or illusions. During early stages of Parkinson’s, people often have trouble measuring distance and depth perception. When PD advances, people with PD face problems with processing information about their surroundings or environment.
8. Up to 50% of people with Parkinson's experience depression.
Up to half of people with PD experience a form of depression during the disease. Depression is more likely to occur in people with Parkinson’s who face severe cognitive impairment. Those suffering with depression can find it harder to control motor symptoms. However, depression is often treatable. Talk to your PD doctor about this symptom.
9. Sleep issues are common in Parkinson’s and can impact cognition.
Problems with falling and staying asleep are very common in people with PD. The effects of sleep problems throughout the night can result in physical and cognitive fatigue throughout the day.
The four main sleeping problems related to PD are:
To address sleep issues, talk to your PD doctor who may prescribe medication or a sleep specialist. Some natural remedies include creating a sleep ritual, avoiding screen time before bed, running a warm bath and more.
Issues staying asleep and early morning awakening (insomnia).
Involuntary movements and pain that interrupt sleep.
Increased nighttime urination.
Nighttime agitation, vivid dreams and visual misperceptions or hallucinations.
10. There are different treatments to address cognitive changes.
While researchers are still discovering new ways to address cognitive change in people with PD, doctors often recommend a combination of treatments to help with cognitive change.
They can include:
Cognitive remediation therapy: this treatment emphasizes teaching alternative ways to compensate for memory or thinking problems. It involves using information from neuropsychological testing to identify cognitive strengths that can be used to help overcome weaker areas of thinking.
Behavioral management: Makingchanges in the home environment can help minimize memory, visual-perceptual or orientation difficulties.
Talk to your PD doctor: Yourdoctor can help you come up with treatments options to address your most bothersome cognitive symptoms. They can also refer a psychiatrist, neuropsychologist, speech or occupational therapist for more assistance.
Create a support system: Work on building your own support network. Support groups are often amazing resources.
Explore our Parkinson’s Learning Lab for more information on Cognitive Change.