Podcasts

Episode 79: How Clinical Studies Help People with PD

Clinical studies fall into two main categories – observational and interventional. An observational study is non-experimental. Researchers observe the effects of a risk factor, such as an inherited gene, or air quality, or a treatment that has already been applied. Researchers have no control over the variables. Such a study can show a correlation between the variable and the observed outcome but cannot prove that one caused the other. In an interventional study, such as a clinical trial, researchers introduce an intervention, such as a drug treatment, exercise, or meditation and then observe the results. A rigorous form of an interventional trial divides people into two or more groups, one receiving the intervention and, for example, the other receiving a placebo or standard treatment. Both types of study are valuable, and sometimes the findings from an observational study can suggest a hypothesis and lead investigators to design a clinical trial.

The Parkinson’s Foundation PDGENEration: Mapping the Future of Parkinson’s Disease study is a flagship initiative providing free genetic testing and genetic counseling to look at specific Parkinson’s-related genes and connect their presence with disease course, medication usage, and other outcomes. Besides potentially helping people with Parkinson’s manage their disease better, the results may empower clinical trial design, such as seeing how a medication may affect the disease depending on what type of gene is present. Dr. Tanya Simuni, Chief of Movement Disorders at the Northwestern University Feinberg School of Medicine in Chicago and Dr. Michael Schwarzschild, director of the Molecular Neurobiology Laboratory at Massachusetts General Hospital in Boston, discuss some aspects of clinical studies in PD and why it is important for people with PD to participate in them. Both institutions are Parkinson’s Foundation Centers of Excellence.

Released: April 21, 2020

Podcasts

Episode 78: Benefits of Self Awareness with PD

Self-awareness is an ability to focus on one’s own thoughts, actions, and emotions and evaluate and manage them according to what standards and values you set for yourself. Being self-aware from moment to moment can lead to better self-understanding and an ability to manage thoughts, emotions, strengths, weaknesses, beliefs, and motivations, with a goal of a more peaceful existence. Fortunately, self-awareness can be learned and cultivated using some simple techniques. Dr. Carsten Eggers, Professor of Neurology and Co-director of the Parkinson’s Foundation Center of Excellence at Philipps University in Marburg, Germany, discusses self-awareness and how health confidence, the confidence to be able to manage health problems, relates to it.

Released: April 7, 2020

Podcasts

Veterans Day Bonus Episode

In honor of Veteran’s Day, we want to share Lou Eisenbrandt’s My PD Story about her experience as a Vietnam Veteran whose Parkinson’s disease is a result of exposure to the herbicide Agent Orange during the war. Lou is a steadfast PD advocate and has been involved with the Parkinson’s Foundation Heartland, and recently joined the Parkinson’s Foundation People with Parkinson’s Council.

Released: November 11, 2020

Podcasts

Episode 107: Advocating for a Safe Hospitalization

As most people with Parkinson’s disease (PD) and their care partners know, medication management is crucial for controlling PD symptoms. Given that many people need to take medication multiple times a day, “on time every time” becomes a way of life, regardless of where one is – at home, at work, visiting with friends, shopping, or traveling. Ironically, one of the most difficult places to get medications on your individual schedule is in the hospital. Hospitals have set times to dispense medications, so a hospitalized person with Parkinson’s or their care partner needs to impress upon the staff that Parkinson’s medicines have to be given on the patient’s schedule, not the hospital’s.

Rose Lang’s husband, John, fell and broke his hip, resulting in his transport to a local hospital and several hours in the emergency department. Fortunately, he brought some of his pills with him and took them while waiting to be admitted to a room in the hospital. But even then, Rose, a retired pharmacist, had to educate the medical and nursing staff about the need for John’s “pills on time, every time.” She is also a Parkinson’s Foundation Ambassador, so John arrived at the hospital with his Aware in Care kit, and Rose made ample use of the resources within the kit to inform and educate the hospital staff caring for her husband.

The Parkinson’s Foundation Hospital Safety Guide is the updated and improved version of the former Aware in Care Hospital Safety kit, which you’ll hear referenced in this episode. The Guide has new, vital information, based on research and feedback, prioritizing what is most important — staying safe and empowered when hospitalized with Parkinson’s.

To learn more about the updated Hospital Safety Guide, or for information about becoming a hospital safety focused Parkinson’s Foundation Ambassador, visit Parkinson.org/HospitalSafety.

Released: June 29, 2021
Updated: July 9, 2024

Videos & Webinars

Neuro Talk: Top 3 Parkinson’s Disease Research Areas We Fund

Why is research important for understanding Parkinson’s disease (PD)? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, outlines the Foundation’s research strategy and some exciting Parkinson’s research being conducted right now. Dr. Beck highlights three key areas of PD research funded by Parkinson’s Foundation grants: biology, neural circuitry and symptoms.

Videos & Webinars

Neuro Talk: How Does Basic Parkinson’s Research Get Us Closer to a Cure?

How can understanding the basic biology of Parkinson’s disease (PD) help us prevent Parkinson’s altogether? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, discusses what basic research is and how funding researchers early in their careers can lead to scientific breakthroughs. He also highlights the role that Parkinson’s Foundation initiatives like PD GENEration: Mapping the Future of Parkinson’s Disease and Reach Further play in furthering PD research.

Videos & Webinars

Neuro Talk: What To Know About Parkinson’s Disease Statistics

Did you know that Parkinson’s disease (PD) cases in the U.S. are expected to surpass 1.2 million by the year 2030? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, outlines key statistics related to PD. He also shares insights from the Parkinson’s Prevalence Project, a research study conducted by the Parkinson’s Foundation to calculate the prevalence of Parkinson’s throughout North America.

Videos & Webinars

Neuro Talk: Top Findings from the Parkinson’s Outcomes Project

What challenges are people with Parkinson’s disease (PD) facing and how can research help improve their lives? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, outlines top findings from the largest-ever clinical study of Parkinson’s disease, the Parkinson’s Outcomes Project. This study captures the experiences of people with Parkinson’s and their care partners over time, to identify new and better ways to provide care and manage Parkinson’s disease.

Videos & Webinars

Neuro Talk: Top Questions About PD GENEration

Why should I participate in a genetics research study if I already know I have Parkinson’s disease (PD)? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, answers your top questions about the cutting-edge genetics research study, PD GENEration: Mapping the Future of Parkinson’s Disease. This national initiative offers genetic testing for clinically relevant Parkinson's-related genes and genetic counseling at no cost for people with Parkinson’s.

Videos & Webinars

Neuro Talk: Surgical Options for Parkinson’s Disease

Even after years of managing Parkinson’s disease (PD), symptoms may become more challenging to control. Parkinson's Foundation Chief Scientific Officer James Beck, PhD, walks us through how symptoms may change over time and when surgical therapies, such as deep brain stimulation (DBS), may become a better option for those living with Parkinson’s.

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