Podcasts

Episodio 35: Envejecer juntos en casa: Apoyo a aliados en el cuidado y familias

Noviembre es el Mes Nacional de Cuidadores Familiares, una época para honrar a quienes cuidan desinteresadamente de sus seres queridos. Este año, la Parkinson's Foundation destaca las diversas experiencias de los cuidadores dentro de la comunidad de la enfermedad de Parkinson y más allá con nuestro tema: Cuidado real. En cualquier lugar.

Cuidar de una persona con Parkinson significa prestar mucha atención, no sólo a los síntomas y las necesidades de su ser querido, sino también a su propio bienestar. Formar un equipo de apoyo, ya sea apoyándose en la familia, los vecinos o los amigos, crea una base sólida para que tenga el mejor apoyo a lo largo de su recorrido como cuidador. 

En este episodio, hablamos con Joanna Fitzgibbons, investigadora de Colorado University, dedicada a la comunidad de aliados en el cuidado. Nos cuenta cómo el valor cultural de "cuidar de los suyos" a veces puede hacer que sea difícil pedir ayuda. Ese orgullo, aunque profundamente arraigado en el cuidado y el propósito, puede llevar al cansancio y el agotamiento. Nos recuerda que nunca es demasiado pronto para hablar de recursos y crear un plan de cuidados antes de que se presente una crisis.

Durante el episodio, Joanna mencionó el Conversation Project, un recurso en línea que ofrece orientación acerca de cómo entablar conversaciones difíciles con la familia y abogar por uno mismo ante el equipo de atención médica. Incluiremos un enlace aquí.

Publicado: 4 de noviembre de 2025

Books

Guía para aliados en el cuidado

Tanto si recién conoce la enfermedad de Parkinson (EP) como si ha sido aliado en el cuidado por mucho tiempo, esta guía está diseñada para usted.

La guía se organiza en torno a cinco claves para el bienestar del cuidador con estrategias que le ayudarán a:

  1. Crear su equipo de apoyo.
  2. Equilibrar los cuidados diarios con el autocuidado.
  3. Reforzar la dinámica de las relaciones.
  4. Trabajar en equipo para manejar la EP.
  5. Planificar para el futuro.

Además de consejos prácticos, encontrará perspectivas alentadoras de otros cuidadores, actividades, hojas de trabajo y recursos importantes para ayudarle en su recorrido.

Caregiving Topics

3 Essential Resources for 3 Different Kinds of Care Partners

Older couple walking through a park

November is National Family Caregivers Month, a time to honor care partners. This year, the Parkinson’s Foundation is highlighting the diverse experiences of caregiving with our theme, “Real Care. Anywhere.” 

Care partners are essential members of the care team for people with Parkinson’s disease (PD). However, the way they provide care and support can look different — from sharing a home with someone who has PD to providing care from afar to managing PD alone — caregiving is not one-size-fits-all. We are proud to provide support for all types of care partners. Here are essential resources for three different kinds of care partners: 

Everyday Care Partner 

An everyday care partner lives with someone who has PD and offers daily support. This can include setting up and attending appointments, helping with medications and navigating day-to-day challenges.  

1. Read our Care Partner Guide.

Whether you have been a care partner for a while or are just starting to navigate Parkinson’s disease, this guide is designed for you. It includes practical tips about things like building a support network and planning for the future, along with insights from other care partners and activities and worksheets to support your journey. 

2.  Check out tips for caring for yourself.

It can be hard to find balance as a care partner, but it is important to remember to care for yourself as well. These tips can help you prevent caregiver burnout, manage stress and build a support system. 

caregiver support group

3. Find a Parkinson’s support group near you.

In addition to providing a comfortable environment for asking questions and sharing experiences, support groups can lead to lasting friendships. Some groups are for care partners only, while others include care partners and people with PD. Contact our Helpline at 1-800-4PD-INFO (1-800-473-4636) to find one near you. 


Caring From Afar 

Some care partners live away from their loved ones and offer support from a distance. This type of caregiving can include managing logistics for everyday care, finding ways to coordinate tasks virtually or providing emotional support through regular phone calls and visits.  

1. Learn about Parkinson’s.

You will be better able to provide support if you have a basic understanding of PD. Our PD Library is filled with resources to help you learn more about Parkinson’s, being a care partner and managing daily activities and long-term plans. 

2. Connect with outside help.

If you are the primary care partner and live away from your loved one, consider hiring someone to help you manage day-to-day care needs. From utilizing your network to finding in-home care providers, know that there are many options available to help you assist your loved one from afar. 

3. Get yourself and your loved one connected with a local Parkinson’s Foundation chapter. 

Connect with other people with PD and care partners in each of your areas, learn about events and learn more about living well with Parkinson’s together, from a distance. 


Solo Care Partner 

Many with Parkinson’s care for themselves. This often-overlooked group acts as their own care partner, managing schedules, medications and wellness routines on their own. 

1. Join the PD Solo Network.

The PD Solo Network is a virtual network for people with Parkinson’s disease who live alone, by choice or circumstance. This community meets monthly to share ideas, review resources and build relationships. 

2. Review the Home Safety Considerations checklist.

Ensure your home is safe and easily accessible. This checklist will help you determine if anything about your home or lifestyle should be adapted to help you live well with Parkinson’s.  

3. Remember, our Helpline is always here for you.

Call or email the Parkinson's Foundation Helpline 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s disease (PD) questions. Our Helpline is answered by PD information specialists who are skilled in providing the right information at the right time. 


Real Care Starts Here 

No matter what caregiving looks like for you, the Parkinson’s Foundation is here to help.  

  • Sign up for free online courses through our Care Partner Program 

Learn how you can celebrate National Family Caregivers Month at Parkinson.org/CaregiversMonth. 

Videos & Webinars

Expert Briefing: Steady Steps - Improving Gait and Balance in Parkinson's Disease

October 15, 2025

Gait and balance issues are common challenges for people with Parkinson’s disease (PD), increasing the risk of falls and impacting mobility and independence. This program provides a comprehensive exploration of the factors that contribute to gait and balance difficulties in PD, such as muscle rigidity, postural instability, and coordination challenges.

Download Slides

Additional Resources

Presenter

Mitra Afshari, MD, MPH
Director, Neurointerventional Program for Movement Disorders
University of Illinois Hospital

Educational Events

Live Fitness Friday - Power over Parkinson's

Virtual ( Zoom )
1:00 pm to 1:45 pm EST
Free
A man lifting two weights in a T motion

Power Over Parkinson’s is a workout designed to help manage the symptoms associated with Parkinson’s disease. Join us for both seated and standing exercises that will improve stability, power and gait function. Gain strength and confidence in managing Parkinson’s challenges!

Instructors

Trish Froehlich, NAFC* (Coach)

Cindy Rosato, NAFC* (Coach)

Mark (PD Student)

*NAFC = National Association of Fitness Certifications

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
Educational Events

Live Fitness Friday - Building Strength and Stability for Daily Life

Virtual ( Zoom )
1:00 pm to 1:45 pm EST
Free
A man lifting two weights in a T motion

Join us for a dynamic, full-body workout designed to enhance the key areas of fitness recommended by the Parkinson’s Foundation—cardio, strength, flexibility, agility, coordination, and balance. This session focuses on practical, functional movements you can use every day to stay active, confident, and independent. You’ll leave feeling energized and equipped with exercises to help maintain mobility and support overall well-being.

Equipment needed: sturdy chair, water, towel, light dumbbells (or household alternatives like water bottles or soup cans)

Instructors

Allison Boshart, Physical Therapist, DPT
PWR! (Parkinson's Wellness Recovery), Delay the Disease, LSVT Big
Instructor of the Premier Parkinson’s Wellness Program at Miami Valley Hospital North

Alec Heffner, AT, CSCS, TSAC-F, TPI F2
Total Health Works Parkinson's
Instructor of the Premier Health Parkinson’s Wellness Program at Miami Valley Hospital North

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
Educational Events

Managing Changing Symptoms

10:00 am to 1:30 pm EST
FREE
Managing Changing Symptoms Banner Updated

Check-in & Resource Fair* begins at 10 a.m. and the program starts at 11:00 a.m. 

After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

*The Resource Fair will feature local Community Partners that provide services and support for the Parkinson’s Community.

Speakers

Jill Farmer, DO, MPH, FCPP
BoroNeuro

Gian Pal MD, MS
Rutgers Health, Robert Wood Johnson Medical School

Ken Thurman

On-site parking is available. Lunch will be served.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
Educational Events

Making the Most of Your Parkinson’s Care

10:00 am to 12:00 pm EST
FREE
Couple in kitchen

Doors open at 9:30 a.m.

Take charge of your Parkinson’s journey with practical tips to get the most out of every medical visit. This program will highlight simple, effective strategies to help you prepare for appointments, ask the right questions, track symptoms and medications, and build the care team that works best for you.

This program is open to people with Parkinson's, their family members, friends and the community. There is no charge to attend, but registration is required. Lunch will be served.

Expert Speakers:

Julie Kurek, MD
Augusta University/Wellstar-MCG

Lori Burkhead-Morgan, PhD, CCC-SLP
Augusta University/Wellstar-MCG

Agenda

Special Thanks to Our Sponsor:

Wellstar AU

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
Educational Events

Coffee Chat: Movement Symptoms & Parkinson's

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Husband and wife lookin at a tablet while on their porch

Pull up a chair, pour yourself a cup, and join us for an open conversation with the Parkinson’s Foundation’s Chief Medical Officer, Dr. Sneha Mantri and guest expert, Dr. Matthew Burns. Our Coffee & Conversation series creates a space for you to ask the questions that matter most. This sessions will focuse on the movement symptoms of Parkinson's. 

From tremors to stiffness to changes in balance, movement symptoms are often the most visible signs of Parkinson’s—but they can also be the most misunderstood. In this session, Dr. Sneha Mantri Dr. Matthew Burns will answer your questions about managing, treating, and living with movement symptoms.

Bring your questions. Bring your curiosity. Bring the conversation. Don’t forget your coffee (or tea!).

Speakers

Sneha Mantri, MD, MS
Neurologist, Duke University
Chief Medical Officer, Parkinson's Foundation 

Matthew R. Burns, M.D., Ph.D.
Assistant Professor of Neurology, Norman Fixel Institute for Neurological Diseases at UF Health, Department of Neurology, University of Florida College of Medicine

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
Educational Events

Navigating Advancing Needs: Planning Ahead with Parkinson’s

Virtual ( Zoom )
2:30 pm to 4:00 pm EST
FREE
Veterans Banner 2025

As Parkinson’s disease progresses, care needs can become more complex—impacting daily routines, independence, and long-term planning. This webinar will help veterans, and their care partners prepare for the changes that may come with advancing Parkinson’s. We’ll explore strategies for proactive care planning, VA services to support evolving needs, and resources to maintain quality of life through each stage of the disease. 

Speakers

Reversa Joseph, MD, MS
Director of Movement Disorders Clinic
Chalmers P. Wylie VA

Amanda Ripke, LCSW
Movement Disorders Clinic
Chalmers P. Wylie VA

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

The Parkinson's Foundation is proud to partner with U.S. Department of Veterans Affairs to improve the health, well-being and quality of life for veterans with PD.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2026 Grandma's Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Duluth, MN
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