Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD
There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET
What is the PD Solo Network:
A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.
The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.
Upcoming Meeting Dates:
– January 9 and January 23, 2024
– February 13 and February 27, 2024
– March 12 and March 26, 2024
– April 9 and April 23, 2024
There is no charge to attend, but registration is required in order to receive the Zoom link.
Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD
There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET
What is the PD Solo Network:
A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.
The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.
Upcoming Meeting Dates:
– January 9 and January 23, 2024
– February 13 and February 27, 2024
– March 12 and March 26, 2024
– April 9 and April 23, 2024
There is no charge to attend, but registration is required in order to receive the Zoom link.
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In-person check in starts at 10 a.m.; Program starts 10:45 a.m.
Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, such as how to evolve your care plans, treatments throughout progression, aging in place, and home safety - so you can live your best life with PD now.
Speakers
Karen A. Blindauer, MD
Froedtert & the Medical College of Wisconsin Neuroscience Institute, a Parkinson Foundation Comprehensive Care Center
This program is free and is open to individuals with Parkinson’s, their loved ones, and the community. There is no charge to attend, but registration is required as in-person seating is limited.
The Parkinson's Foundation is grateful for the unwavering support of our Program Sponsors. We invite you to view our full list of sponsors and learn more about them by visiting our Chapter Webpage.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Episodio 29: Navegar su cuidado en los inicios del diagnóstico
Recibir un diagnóstico de la enfermedad de Parkinson (EP) puede ser una experiencia que cambie su vida, pero hay pasos que puede tomar desde el principio para ayudar a crear y mantener una vida de calidad con la EP. Aprender más acerca de la enfermedad, identificar una red de apoyo y formar un equipo de profesionales de la salud son algunos de los primeros pasos que hay que dar. Aunque pueda estar atravesando una oleada de emociones, no está solo y hay recursos disponibles para ayudarle a vivir mejor con la EP.
En este episodio, hablamos con la Dra. Nicte Mejía González, neuróloga del Massachusetts General Hospital. Ella comparte su experiencia de primera mano al hablar con los pacientes, proporcionar el diagnóstico inicial de la EP y sus recomendaciones en los primeros pasos de la atención.
Publicado: 12 de diciembre de 2023
La Dra. Nicte Itzel Mejía González es profesora adjunta de neurología en la Harvard Medical School y directora de diversidad e inclusión en la salud de la comunidad de neurología en el Massachusetts General Hospital. Nació en Guatemala y creció en México, donde se tituló en medicina con mención honorífica en el Instituto Tecnológico de Estudios Superiores de Monterrey. Tras realizar una investigación clínica en el Baylor College of Medicine, la Dra. Mejía se formó en MGH/BWH/Harvard, donde realizó una pasantía en medicina, una residencia en neurología, una beca de investigación en trastornos del movimiento, una maestría en salud pública y becas posdoctorales en neuroestadística y neuroepidemiología y política de salud mental. También ha sido seleccionada para participar en diversos programas locales y nacionales de desarrollo del liderazgo, incluyendo en 2023 el programa inaugural Leaders USA de la Obama Foundation.
Además de atender a las personas que viven con la enfermedad de Parkinson, la Dra. Mejía trabaja para impulsar la equidad y la justicia a través de esfuerzos comprometidos con la comunidad, incluido el Programa de Educación e Investigación de Neurología Juvenil del MGH, que ofrece oportunidades de investigación tutelada remunerada y apoyo profesional longitudinal a los jóvenes de Massachusetts y, que desde 2020, incluye a 118 jóvenes.
La Dra. Mejía ha sido reconocida con los premios HMS Harold Amos Faculty Diversity, Boston YMCA Achievers, Profesional Sanitario Sobresaliente de Dominican Medical College New England y Hispanic Health Professionals Association, Mención Honorífica en Liderazgo de Excelencia en el Servicio del MGH, MGH Ernesto Gonzalez, HMS Scholars in Medicine Excelencia en Mentoría para Estudiantes y los premios AAN AB Baker Teacher Recognition y ANA Audry S. Penn.
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Join the Parkinson’s Foundation NYNJ Chapter & The Kensington for Living Well with Parkinson’s. Together with your community, learn about treatments and strategies to manage Parkinson’s disease as well as community resources.
This education program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required as in-person seating is limited.
Speakers
Jennie Valles, MD
Burke Rehabilitation
White Plains, NY
Katherine Amodeo, MD
MidHudson Regional Hospital
Poughkeepsie, NY
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
To solve a puzzle, you need all the pieces. Right now, Parkinson’s disease (PD) researchers are working to identify all the pieces in the brain and how they fit together to form Parkinson’s. Every year, scientists get closer to gathering all the pieces, understanding how this disease works in order to solve it.
Our Science News blog series focuses on the latest Parkinson’s studies and how they can impact you or your loved one living with this disease. 2023 was a busy year for PD research. Explore the top Science News articles of 2023:
Parkinson’s is not always easy to diagnose or monitor. Unfortunately, there is no single test — besides a doctor assessing symptoms — to diagnose Parkinson’s or predict the course of the disease.
Prior studies have shown a connection between Parkinson’s and breathing patterns. Using this data, researchers created a new AI system that uses breathing patterns while a person is sleeping to help diagnose and monitor disease progression — with 90% accuracy.
Diagnosing and treating Parkinson’s early on can lead to better disease management and a higher quality of life. This study found evidence of molecular changes in the blood that mirror changes in the brain of people with Parkinson’s who experience cognitive and movement symptoms.
Understanding and identifying these molecular changes is essential for developing new minimally invasive tests that would not only diagnose Parkinson’s but help track its progression and how it responds to treatment. To connect these dots, this study looked at RNA (a molecule essential for various biological processes) for answers.
Constipation impacts more than 60% of people with Parkinson’s. Of those with PD who suffer from constipation, it is often chronic, severe and unresponsive to standard treatments. A new drug is hoping to change that.
In Parkinson’s, the protein called alpha-synuclein clumps in the brain. These clumps can also form in the nerves of the gastrointestinal (GI) tract, which can decrease the strength and coordination of the bowels, resulting in constipation. In a clinical trial, the biotech company Enterin tested ENT-01, a compound designed to act on nerve cells in the GI tract and prevent this protein from clumping. This drug was found to help people with Parkinson’s who experience constipation.
By the time a doctor makes a PD diagnosis, the disease has most likely progressed for years before early signs even show. However, this study adds promising new data to support a test that may allow Parkinson’s to be diagnosed before symptoms appear.
In the brains of people with Parkinson’s, the protein alpha-synuclein clumps. There are different types of clumping, including a type that act as “seeds” that spread, much like a red sock in the washing machine can turn everything pink. When these misfolded proteins clump together, they eventually kill brain cells, and PD symptoms appear. This study used a test called an alpha-synuclein seed amplification assay (SAA) that distinguishes between people who do or do not have Parkinson’s. The study found that SAA detected early Parkinson’s 87% of the time.
Inflammation plays a key role in helping the immune system recognize and fight illness and disease. However, if inflammation persists over long periods of time — which might be the case in Parkinson’s — it can begin to do more harm than good. New research suggests that inflammation may play a critical role when it comes to predicting and treating Parkinson’s.
In this study, researchers sought to determine whether inflammation is present early in Parkinson’s, and whether certain markers of inflammation were connected to particular symptoms.
From constipation to medication absorption and nutrition, the gut plays a role in Parkinson’s. This is why a team of researchers set out to design a study that links a stool sample test to a PD diagnosis.
To develop a test for a disease, researchers often rely on a biological indicator (called a biomarker). The alpha-synuclein protein is a potential biomarker of Parkinson’s, and when it clumps, it can be detected in the saliva, tears, urine and blood of people with Parkinson’s. However, there is no test that can reliably predict or diagnose Parkinson’s using these samples. This new investigated how alpha-synuclein levels detected in stool samples could predict Parkinson’s.
Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.
Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide vital resources and deliver quality care to more than 364,000 people living with Parkinson’s and other movement disorders, while improving Parkinson’s treatments through research.
Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
Join Crista Ellis for a gentle guided meditation to reignite hope. This practice reminds us that the more you nurture hope, the more joy and positivity you will create in your life. Whether this is your first mindfulness Monday, or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Crista Ellis, Yoga & Meditation Teacher, Transformational Mentor, Founder of Rising Rose Yoga, Community Engagement Manager, Parkinson's Foundation
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
