Emotional and social health is an important part of living well with Parkinson’s disease. Many symptoms of Parkinson’s can affect emotional and social wellness. Learn how various clinical and creative therapies can support not only symptom management but the overall well-being of the person living with PD.
Speakers
Rebecca Lalchan, DO
NYU Langone Health, a Parkinson's Foundation Center of Excellence
Aleksandra Rayska, Ph.D.
Supervising Psychologist
Therapists of New York
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
NOTE: Please be aware that filming will be taking place during our educational event for a Parkinson's Foundation volunteer recruitment PSA. You may appear in the video as an attendee at this event. If you have any concerns about being filmed, please let us know upon arrival.
Check in, Resource Fair and Lunch: 11:00 am-12:00 pm
Presentations 12:00 pm-3:00 pm
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Join the Parkinson’s Foundation for an unforgettable evening of excitement, camaraderie, and Bingo!
Enjoy complimentary desserts and coffee and a chance to win prizes! Each prize package for Bingo is worth $100 or more. For some prizes, you must be 21+ to win.
Bingo boards will be available for $5 a board. We will be playing up to 8 games of Bingo. There is a $5 entrance fee if not playing Bingo.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Join the Parkinson’s Foundation on Thursday, July 25 via Zoom for a Parkinson’s 101 program highlighting important resources, such as online exercises, hospital safety, our toll-free Helpline, and more.
There is no need to register! Simply click the 'Join Program' button below on Thursday, July 25 at 5 p.m. Mountain Time. JOIN PROGRAM
This program is open to people with Parkinson's, their family, friends and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
In-person check-in, Lunch, and Vendor Expo start at 12 p.m.
Exercise is an essential part of overall Parkinson’s management. In addition to helping with movement symptoms, exercise can have a positive impact on non-motor symptoms in Parkinson’s. This program focuses on how exercise supports brain health and can lead to improved emotional and cognitive well-being.
Expert Speakers
Aspen Balthazor, DPT
Joy of Movement Physical Therapy and Wellness, LLC
Shana Gatschet, OT
Club Parkinson's
Parking: Parking is available in the parking garage adjacent to the hotel, with parking fees waived for the event. Note: A circle drive for convenient drop-off is available at the entry off W. Waterman St. See Map for parking options and building access. For driving directions, click here.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, medical providers, and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
A hospital stay can be a stressful situation for everyone, whether you are the person receiving care or the support person providing comfort. People with Parkinson’s (PD) are at a higher risk of hospitalizations, so it is crucial to be prepared ahead of time for when the situation arises. The Parkinson’s Foundation recently created the Hospital Safety Guide, which is the updated and improved version of the former Aware in Care kit. The Guide incorporates information from the kit, but now highlights the “Five Parkinson’s Care Needs”, which is a tool for communicating your needs and priorities with hospital staff. It also includes a Hospital Planner checklist with step-by-step instructions on how to create a hospital “go bag” for emergencies. The Guide provides infographics and real-life examples from people with Parkinson’s and loved ones who have solved common problems relating to their PD when in the hospital.
In this episode, Annie Brooks, Director of Strategic Initiatives at the Parkinson’s Foundation, discusses features of the new Hospital Safety Guide and how best to use it.
Released: July 9, 2024
Annie Brooks, MSW serves as the Director of Strategic Initiatives at the Parkinson’s Foundation. In this role, Annie provides leadership and day to day management of Foundation priority programs including the Newly Diagnosed initiative and the Hospital Care Initiative. Since 2018, Annie has helped to lead the expansion of the Parkinson’s Foundation Hospital Care initiative including the publishing of the Foundation’s seminal report, Making Hospital Safer for People with Parkinson’s Diseaseand theParkinson’s Foundation Hospital Care Recommendations.
Her current portfolio of work includes coordinating research collaborations related to improving hospital care and launching and directing the first Parkinson’s Foundation Hospital Care Learning Collaborative. She works closely with colleagues across the foundation to support community programs and resources including the Newly Diagnosed Guide and the Hospital Safety Guide.
Annie completed her Master of Social Work with a focus in Community and Social Justice from The Ohio State University and her Bachelor of Social Work from Florida State University. She is passionate about empowering diverse communities to achieve their best health and social outcomes.
Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.
Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better — from lifesaving resources to delivering quality care to more than 196,700 people living with Parkinson’s to improving Parkinson’s treatments through research.
Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Check-in and vendor visits start at 4 p.m. and the program starts at 4:45 p.m.
Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression, and understanding the importance of financial and legal planning, so you can live your best life with PD now.
Speakers
Elizabeth Zauber, MD
IU Health, A Parkinson's Foundation Center of Excellence
Justin Schuhmacher, Attorney at Law
Indiana Estate and Elder Law
There is no charge to attend, but pre-registration is required. This program is open to people with Parkinson's, their family, friends and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Parkinson's Foundation and Northwestern Medicine Parkinson's Disease and Movement Disorders Center present: Parkinson's Disease Patient and Family Symposium.
This program will feature experts discussing: Tips from a Movement Disorder Specialist, Advances in Parkinson’s Research, and the Benefits of the Creative Arts for PD. Q&A with the experts, will follow each presentation.
Speakers
Tanya Simuni, MD, FAAN
Northwestern Medicine
Danny Bega, MD, MSCI
Northwestern Medicine
Paulina Latapi, MD, MSc
Northwestern Medicine
Carly Liegel
The Joffrey Ballet
Linda Jedrzejek, MT, BC
Neurologic Music Therapist
Lisa Bany
The Second City
Annie Arnold, MA, ATR-BC, LCPC, CATAP
Institute for Therapy through the Arts
This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required.
10 a.m. Welcome / Opening Remarks Danny Bega, MD, MSCI, Northwestern Medicine Jessica Bartsch, MS, NCC, Parkinson's Foundation
10:15 a.m. Key Note: Top Tips from a Movement Disorders Specialist Paulina Latapi, MD, MSc, Northwestern Medicine (Q&A to follow presentation)
11:05 a.m. Therapeutic Pipeline and Research Update Tanya Simuni, MD, FAAN, Northwestern Medicine (Q&A to follow presentation)
12:05 a.m. Break
12:10 p.m. Be Creative: The Benefit of Visual Art, Music, Dance, and Improv for Parkinson's Disease Danny Bega, MD, MSCI, Northwestern Medicine Carly Liegel, The Joffrey Ballet Linda Jedrzejek, MT-BC, Neurologic Music Therapist Lisa Bany, The Second City Annie Arnold, MA, ATR-BC, LCPC, CATAP, Institute for Therapy through the Arts (Q&A to follow presentation)
Northwestern Medicine Parkinson's Disease and Movement Disorders Center provides innovative, multidisciplinary care for patients and families affected by Parkinson's disease and other movement disorders. The Center's care team works to promote health, education and support for patients. It also supports caregivers, family members, healthcare providers and the community. We continually strive to meet the needs of the Parkinson's community in a variety of ways. In doing this, we have adapted our annual symposium to a virtual setting for the safety and accessibility of the larger Parkinson's community.
This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
There are many daily challenges associated with Parkinson’s disease that may lead to social discomfort and ultimately isolation. This webinar will focus on a few that may be less talked about including drooling, urinary incontinence, dyskinesia and even eating in public. We will discuss how each impacts the person with Parkinson’s and address ways to speak to family and friends about how these visible symptoms cause self-consciousness in social situations.
Speaker
Taylor Rush, PhD - Health Psychologist
Director of Behavioral Services and Interdisciplinary Programs
Center for Neurological Restoration
Cleveland Clinic, A Parkinson's Foundation Center of Excellence
There is no charge to attend, but registration is required.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
4 Ways People with Parkinson’s Can Avoid Common Hospital Complications
For most people, being in the hospital is a stressful experience. People are usually sick or experiencing a health issue. For people with Parkinson’s disease (PD), their symptoms may get worse, and new symptoms, like confusion or thinking changes, can develop because of stress, infection, fatigue, sleep disturbances, surgery or new medications.
A new published review of more than 35,000 hospital admissions of people with Parkinson’s found an increased risk of delirium and aspiration pneumonia as potentially avoidable complications.
As we share in our Hospital Safety Guide, preparation and clear communication can help you minimize complications and recovery time when hospitalized. Understanding the risks you or a loved one with Parkinson’s face and ways to have your needs met can help the hospital care team provide the best possible care.
Know how to identify Delirium
Delirium is a reversible change in a person's level of attention and concentration.
Anti-nausea, gastrointestinal and pain medications, which are routinely given before and after surgery, can worsen existing PD symptoms or cause new, temporary symptoms like delirium. Avoiding these medications can decrease your risk of developing delirium.
Additionally, some common treatments for delirium aren’t appropriate for people with PD, and can make Parkinson’s symptoms and the delirium worse. If you or a loved one develop delirium in the hospital, it is important to avoid the antipsychotic medications that are antidopaminergic, meaning they decrease the amount of dopamine in the brain.
People with Parkinson’s should only be given one of the three antipsychotics that are safe:
Pimavanserin (Nuplazid)
Quetiapine (Seroquel)
Clozapine (Clozaril).
All psychotics, with the exception of these three, should be avoided in nearly all circumstances.
Aspiration pneumonia accounts for 70% of deaths among people with PD, according to an NIH study.
Aspiration pneumonia is an infection that happens when bacteria from your mouth gets pulled down into the lungs and causes an infection. This can happen after a person aspirates, meaning they swallow the wrong way, and something enters their airways or lungs. Aspiration occurs more frequently when someone has issues with swallowing (dysphagia), which is a common Parkinson’s symptom.
To prevent aspiration and aspiration pneumonia, people with Parkinson’s need to be screened for swallowing changes, also known as dysphagia, to safely maintain their medication routine and minimize their risk of aspiration pneumonia and weight loss.
In addition, ensuring that you or your loved one with Parkinson’s get their Parkinson’s medications on time and avoid contraindicated medications that are not safe for people with Parkinson’s can also help prevent the development of new dysphagia or the worsening of mild dysphagia.
Tips to avoid delirium and aspiration pneumonia in the hospital
Tip 1. Avoid medications that are not safe for Parkinson’s.
This can potentially help you to:
Prevent delirium caused by taking contraindicated anti-nausea medications
Prevent worsening of delirium caused by taking contraindicated antipsychotic medications
Review the list of harmful medications on the Parkinson’s Care Summary with your hospital care team before surgery and before any new medication is prescribed.
Tip 2. Take medications on time, every time to help prevent new or worsening swallowing challenges.
If your nurse or speech-language pathologist is concerned about your swallowing ability, discuss safe ways to continue taking your medications, such as with a sip of water or crushed with applesauce.
Use the Medication Form to list all your medications for Parkinson’s and other conditions, including over-the counter medications and supplements in the order that you take them each day. Your list should be clearly labeled with the dosage (usually mg or milligrams) and the specific time that you take each medication.
Tip 3. Tell your nurses if you are having trouble swallowing and ask to see the Speech Language Pathologist (SLP).
Together, your nurse and SLP can provide safety measures to decrease risks.
You may need to temporarily stop eating and drinking if you have a serious swallowing issue (dysphagia) or are scheduled for a medical procedure that requires fasting. If you or your loved one are instructed you cannot swallow pills, show the nurse and SLP “Other Ways to Take your Medication” to explore potential ways to safely continue taking Parkinson’s medications
If you have swallowing or speech symptoms, we recommend you regularly see a speech language pathologist. Once discharged, ask your doctor for a referral, or call our Helpline at 1-800-4PD-INFO (1-800-473-4636).
Tip 4. Reducing the risk of aspiration pneumonia is a two-part process.
Help reduce aspiration pneumonia when hospitalized and at home that involves (1) preventing swallowing issues and (2) reducing bacteria in your mouth by cleaning your teeth and mouth regularly. Learn more about dental health and Parkinson’s.
Prevent aspiration by eating when PD meds are working and you have energy. It can also help to sit up for meals and take smaller bites. Prevent aspiration pneumonia by brushing your teeth, tongue and mouth before and after eating to reduce bacteria.
Read more about the steps you can take to avoid delirium, aspiration pneumonia, and other avoidable complications in our Hospital Safety Guide.
Help Spread the Word
Share this graphic on Facebook to help your friends and family with Parkinson's stay safe in the hospital.
