Educational Events

Impacto de la EP en el habla y la deglución

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
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Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

En este webinar, exploraremos el impacto de la enfermedad de Parkinson (EP) en el habla y la deglución, analizando qué sucede en la garganta que dificulta estas funciones. Además, presentaremos estrategias y ejercicios prácticos para mejorar la comunicación y la seguridad al tragar, promoviendo una mejor calidad de vida.

Presentadora

Ana Molano MS, CCC-SLP 
Especialista clínica en voz y deglución
Voice Rehab 

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

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Cómo las perspectivas hispanas están transformando el cuidado de la salud

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
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Una pareja mirando una tableta juntos en su porche

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Este webinar ofrecerá una visión general sobre los diferentes tipos de investigación clínica, incluyendo la observacional y la intervencional. Exploraremos investigaciones psicosociales enfocadas en mejorar la comunicación en personas con la enfermedad de Parkinson y cómo las opiniones de los participantes son esenciales para la creación de grupos de apoyo culturalmente inclusivos. Se destacarán las perspectivas de los participantes y se discutirán formas de involucrarse en estudios de investigación para contribuir al avance del cuidado de Parkinson.

Presentadora

Gemma Moya-Galé, PhD, CCC-SLP  
Profesora adjunta, Programa en Ciencias y Trastornos de la Comunicación 
Directora del Laboratorio Comunicación, Tecnología y Diversidad Lingüística 
Directora, Speech for PD
Teachers College, Columbia University (un Centro de Excelencia de la Parkinson's Foundation)
 

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

Light of Day Logo

 

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Educational Events

Learn More. Live Better. Parkinson's Symposium

9:00 am to 1:30 pm EST
FREE
Learn More. Live Better. Parkinson's Symposium banner

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. 

Expert Speakers

Henry P. Moore, MD
Director of Movement Disorders at Palm Beach County
University of Miami-Miller School of Medicine 
A Parkinson’s Foundation Center of Excellence

Daniel Kantor, MD, FAAN
Vice President, Clinical Research & Development | Gateway Institute for Brain Research 

Tarannum Khan, M.D., CPE, FAAN, FANA
Ambulatory Director (Weston Neurology)
Staff Neurologist, Movement Disorders
Pauline Braathen Neuroscience Institute

Learn more about the expert speakers and panelists by clicking here.

Panelists

Shoshana Bielich, MS, CCC-SLP, CBIS, Cleveland Clinic Weston Hospital

Shari Gordon, DPT, Cleveland Clinic Weston Hospital

Jacqueline A Bryan, MSW | Social Worker | Neuroscience Institute

Laura Duarte, Cleveland Clinic Weston Hospital

Fitness Demonstration: Lenisson "Lenny" Carneiro, PT, DPT, GCS, CEEAA), Dr. Physio Therapy & Wellness

Fitness Demonstration: Allie and Mark Barker, RAW Kickboxing and Fitness

Event Volunteers Needed! Service hours and lunch are provided. To sign up and learn more, visit: Volunteer sign-up here

For in-person attendees: Check-in and Resource Fair start at 9 a.m. Lunch will be served.

Unloading/Room Location: The program is located at the Main Entrance, Building B. Parking and drop-off is in front of the building. For the entrance to our parking lot, use this address: 500 NE 2nd St., Fort Lauderdale, FL 33301

There is no charge to attend, but registration is required since lunch will be served. This program is open to people with Parkinson's, their family, friends and the community.

Gold Sponsor

Kyowa Kirin

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Fact Sheets

Exploring Next Steps in Care

Parkinson’s disease (PD) affects each person differently, but it typically progresses slowly over time. As your symptoms change, you may need to rely on more support and care. There are many options to help manage these changes, based on your needs, preferences and resources.

When is it time to get more help?

Start by having open and regular conversations with loved ones and your care team. Discuss everyone's needs, what's working well, where things are getting harder and any safety concerns. Signs that extra help may be needed include difficulty with daily tasks, falls, changes in behavior and thinking or care partner fatigue. The goal is to find a balance that keeps you safe and supports the best quality of life.

Key Questions When Considering Care:

  • Is staying active or social difficult?
  • Are treatments hard to manage?
  • Are daily tasks like getting out of bed or bathing a struggle?
  • Do you need help with transportation?
  • Is the care partner feeling stressed, at risk of burnout or in need of respite?
  • Does the care partner have health issues?
  • Are there safety concerns, such as falls, getting lost, or managing medications?
  • Is getting around your home challenging due to stairs or other barriers?

Care Options

Knowing your choices and planning ahead can help make it easier to navigate changes as they come up.

Home-Based Support

Services that can help support a person living at home include:

  • Family & Friends —Depending on ability and availability, may help with household tasks, personal care, medications, driving and support
  • Meal & Transportation Services — Meal delivery, rides to appointments
  • Personal Care Aide, Homemaker & Companion Care — Help with errands, housekeeping, daily living activities like dressing and bathing, medication reminders, meal prep and companionship
  • Short-Term Skilled Care — Short-term nursing care and therapy (must be homebound and medically necessary for insurance coverage)
  • Adult Day Programs — Social activities, meals, care during the day
  • Respite Care in Residential Settings — Short-term overnight stays

Care Communities

Housing options that offer different levels of support include:

  • Independent Living — Activities, meals, housekeeping
  • Assisted Living — Help with daily activities, medication management, dining services, wellness programs, social opportunities, transportation
  • Residential Care Homes — Smaller home settings with 24/7 support from care staff and on-call nursing
  • Skilled Nursing — 24/7 care for more complex needs and rehab
  • Continuing Care Retirement Community — A range of care from independent to skilled nursing
  • Dementia Care — Available in some assisted living and skilled nursing facilities, includes memory support and specialized care

Parkinson's-Specific Care

Finding care with staff experienced in PD can be difficult. Be sure to ask if the care team offers support for movement challenges, medication management, mood changes and whether exercise and rehab are available on-site.

The Parkinson's Foundation Community Partners in Parkinson's Care program trains care staff to support the complex needs of people with PD. Contact our Helpline to explore local resources, including any participating sites in your area. For more information, visit Parkinson.org/CommunityPartners.

Paying for Care

Medicare and private insurance do not cover many of the costs associated with care. Depending on your situation, Medicaid, Veterans benefits or long-term care insurance may be available to help. An elder law attorney and financial planner with expertise in long-term care planning can help you understand your options.

Tips for Finding Local Care Resources

  • Ask your support network for recommendations, including family, friends, members of your support group and care team.
  • Do your research. Review background checks, references and online reviews. Arrange tours and interviews and invite a friend or family member for support.
  • Rely on trusted organizations, like the Parkinson's Foundation and your local Area Agency on Aging, for guidance and resources.
Educational Events

Managing Changing Symptoms

10:00 am to 12:30 pm CST
FREE
Managing Changing Symptoms

After many years of good symptom management, Parkinson’s disease may become more challenging.  Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Expert Speaker:
Enrique Urrea-Mendoza, MD
Neurologist | Movement Disorders Specialist
Assistant Professor
Department of Clinical Sciences
FSU Health | FSU College of Medicine

Lunch will be served.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

This program is hosted by the Parkinson’s Foundation Gulf Coast Chapter, in collaboration with Southeast Health.

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Celebrate Movement in the PNW

Virtual ( Zoom )
7:00 pm to 7:45 pm PST
Free
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Movement

Join us for a webinar this month to Celebrate Movement in the PNW, with our guests Dirty Freehub! They will be sharing information about their All Access program, an amazing resource for those with PD looking to get out and ride their bike in Oregon this summer. We'll also share upcoming events in region and ways to create your own movement-based event. See you on April 23! 

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Learn More. Live Better. Parkinson’s Symposium

10:00 am to 2:00 pm CST
FREE
Learn More. Live Better. Parkinson's Symposium banner

Check-in & the Resource Fair (for in-person attendees) begins at 9:00 a.m. CDT 

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life.  This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.

Expert Speaker:

Anthony P Nicholas, MD, PhD, The University of Tennessee Health Science Center

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

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Managing Changing Symptoms

1:00 pm to 3:00 pm EST
Free
Managing Changing Symptoms

Check-in begins at noon and the program starts at 1 p.m. 

After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Speakers from OSU Wexner Medical Center:

Katherine Brownlowe, MD Neuropsychiatrist

Jonathan Zins, DPT, PT Physical Therapist

Elyse Everett, MD Neuropalliative Care Physician

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

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Parkinson's Resource Fair

1:00 pm to 3:30 pm CST
Free
Symposium

Join us in growing your knowledge of support, classes, and services for your journey with Parkinson's. Visit the local resources at the exhibit tables to learn more about their offerings. Join us to hear what a newly trained movement disorder specialist has learned about treating people living with PD and an overview of motor and non-motor symptoms and cognition. Complimentary refreshments.

Speaker:

Dr. Meaghan Berns
M Health Fairview

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community. 

The program is in partnership with the Eden Prairie Community Center

eden prairie

Thank you to our sponsors.

Supernus
Acadia
Amneal logo
SilverCrest
Navigate Aging
Visiting Angels
Amada

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Fact Sheets

All About PD: Mental Health

Mental health symptoms are common in Parkinson’s disease (PD). Learn the causes, signs and what to do. You are not alone.

Up to 50% of people with PD experience depression or anxiety.

Understand the Causes

The same brain chemicals that affect movement in PD can also impact emotions and behavior. Stress, isolation, life’s ups and downs and coping with PD also play a role.

Know the Signs

Feeling sad, anxious or unmotivated from time to time is normal. If these feelings last or interfere with daily life, reach out for help.

Depression, anxiety and apathy, if not managed, can worsen movement symptoms and impact quality of life.

Depression: Ongoing sadness, low energy, loss of pleasure, hopelessness.

Anxiety: Excessive worry, fear or stress, restlessness, irritability.

Apathy: Lack of motivation, disinterest in activities once enjoyed.

Call or text 988 if you’re in crisis.

What You Can Do

Talk to your doctor
Mental wellness care often includes lifestyle strategies, talk therapy and other forms of support. Sometimes, medications are needed too.

Keep moving
Even just 30 minutes of moderate activity, like walking or yoga, boosts brain chemicals that help reduce stress, anxiety and depression.

Seek support
Reach out to friends, family, counselors, support groups and other resources. For guidance, contact our Helpline at 1-800-4PD-INFO (1-800-473-4636).

Stay engaged
Schedule time to connect with others and look for ways to get involved. Even when you don’t feel like it, staying active can improve your mood over time.

For more tips to support your mental health, visit Parkinson.org/MentalHealth.

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