Not every person with Parkinson’s disease (PD) will develop psychosis or its symptoms, but it can still be a frightening thought. Hallucinations and delusions can be common in PD, but understanding what it means in Parkinson’s and how a person may experience symptoms can ease the fear and embarrassment that may result. Learn causes, related symptoms and how to address them.
Speaker
Sarah Horn, MD
Assistant Professor of Neurology
Parkinson's Disease and Movement Disorders Program
Director, Movement Disorders Fellowship Program
UT Health San Antonio
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
We want to thank this webinar's sponsor, Acadia Pharmaceuticals, for supporting our mission. Acadia has provided support for this educational event but had no influence on the creation of these materials.
This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
My dad, “Poppy”, “Chellini”, “Albert” was a fiercely independent self -made man, a Jewish Iraqi immigrant who arrived in New York, NY, all on his own, on his 16th birthday in 1939. He hustled hard and lived the American dream. He spoke Arabic, English, some Spanish, some Yiddish, traveled the world with my sister and me. He was filled with passions for Broadway plays, good belly dancing and live music. Parkinson’s disease (PD) robbed him of his independence, his ability to speak, to feed himself, and to walk, but his joys remained the same, and we kept them coming…
Parenting a parent is emotionally stunning at first, but it felt good to do for him what I knew would bring him joy. Middle eastern food delivery, of course. And professional belly dancing! We hoisted him out of bed in some hospital crane contraption, rolled his wheelchair into the living room, and voila… His own private belly dancer, every month, and a dance party with his little grandsons and neighbors from the apartment building. We were keeping traditions alive!
I also asked his relatives and the network of people who’d known him for decades to send me a paragraph of their fondest memory of my dad and created a book of these stories. So, despite his diminished abilities and social outings, he could hear and feel that continued love and respect. He loved every single story.
With mobility limited, and conversation topics getting smaller, we filled time by reading joke books —short jokes. Nothing’s better than laughter. And weekly massages from a professional masseuse to soothe the body that was betraying him.
My father died just shy of his 82nd birthday. And now, sadly, I have two friends, peers, recently diagnosed with Parkinson’s.
My partner and I launched Jewelry for Good to raise funds for Parkinson’s Foundation. We turn unwanted/broken/out of style/haven’t-worn-it-in-years gold jewelry and sterling silver items like bowls, trays, flatware that our kids don’t want to inherit, into cash for Parkinson’s Foundation. Donors get a tax deduction receipt for the full value, and the Parkinson’s Foundation gets the check to aid their important work.
Parkinson’s Revolution will take place across the country on February 22, 2025. Join us in-person at your studio location or virtually for a high energy ride that generates funds and awareness for Parkinson’s disease (PD).
Come ride for a reason and then celebrate the power of movement at our post-ride happy hour the Sweat Social! Friends, family, and members of the PD community are welcome to enjoy a short program and light refreshments immediately following the ride.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
The Parkinson's Foundation hopes to be an official charity partner for the 2026 Life Time Miami Marathon Weekend. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org.
The Life Time Miami Marathon has evolved to become one of the fastest-growing annual marathons that hosts tens of thousands from around the world. Known for its scenic, USTAF-certified, flat, single-loop and Boston-qualifying course, the event attracts first timers and elite distance runners alike. With tropical views and sounds of the city it has a finish line alongside the water at Bayfront Park in the beautiful South Beach.
NOTE: The Tropical 5k usually occurs the Saturday of race weekend, while the Marathon & Half are usually on Sunday.
Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Exercise and Slowing the Progression of Parkinson’s Disease: An Informational and Interactive Seminar
Hosted by the Parkinson’s Foundation Georgia Chapter in partnership with The Marcus JCC of Atlanta.
Featuring Dr. Madeleine Hackney
Free with advanced registration
Host Co-Chairs: Lisa and Ron Brill
Join us for an informative evening featuring one of the leading voices in Parkinson’s research, renowned mobility expert, Dr. Madeleine Hackney. Dr. Hackney will lead a discussion on the latest research surrounding exercise and Parkinson’s disease (PD), sharing invaluable insights into how movement can enhance the quality of life for those living with PD.
In addition to this in-depth presentation, this session will feature an interactive component, offering participants the chance to experience exercises specifically designed for Parkinson’s care. This event is perfect for individuals with Parkinson’s, caregivers, healthcare professionals, and anyone interested in learning how exercise can play a vital role in managing Parkinson’s Disease.
Dr. Madeleine Hackney is co-founder of MDT Education Solutions, a Parkinson's Foundation Accredited Continuing Education Provider.
Dr. Madeleine E. Hackney
Dr. Madeleine E. Hackney is an Associate Professor in the Emory School of Medicine, Department of Medicine, Division of Geriatrics and Gerontology and a Research Scientist with the Center for Visual and Neurocognitive Rehabilitation at the Atlanta VA. She graduated from New York University, Tisch School of the Arts with a Bachelor of Fine Arts in Dance Performance and completed pre-medical curriculum at Hunter College, City University of New York. She received her PhD in Movement Science at Washington University in St. Louis and then completed post-doctoral work at Emory University and the Atlanta VA in geriatric sensorimotor rehabilitation.
Dr. Hackney uses laboratory and clinical measures to characterize mobility and gait under simple and challenging conditions (e.g., backward walking). She also investigates aspects pertaining to improved quality of life and goal-attainment as a result of rehabilitative physical activity approaches. She has presented her work nationally and internationally as an invited speaker, including at the Karolinska institute in Sweden, and in Tel Aviv, Israel.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Finding Balance: 8 Tips for Avoiding Caregiver Burnout
November is National Family Caregivers Month, a time to honor those who care for their loved ones. This year, the Parkinson’s Foundation is highlighting the importance of caregiver well-being and acknowledging the challenges of burnout. Addressing caregiver burnout is essential, as it often affects both the caregiver's health and the quality of care provided.
Caregivers play a crucial role in the lives of people with Parkinson's disease (PD), providing invaluable support and assistance that enhances their quality of life. Life does not stop with a PD diagnosis — but PD and its symptoms change over time, as does the role of a care partner.
Being a care partner can be rewarding, but the stress and change of caring for someone can be emotionally, mentally and physically draining. Recognizing caregiver burnout and its signs is essential for maintaining your well-being and providing the best possible care for your loved one.
What is caregiver burnout?
Caregiver burnout is a state of physical, emotional and mental exhaustion that may include a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don't get the help they need, or if they try to do more than they are able, physically or financially.
Caregiver burnout symptoms can include:
Fatigue
Irritability, frustration or anger
Feelings of hopelessness or helplessness
Changes in sleep patterns
Withdrawal from social activities
Why Addressing Caregiving Burnout is Important
Addressing caregiver burnout helps preserve the caregiver's well-being, ensures quality care for loved ones and fosters a supportive caregiving environment overall.
You cannot pour from an empty cup. It’s important to give yourself time to rest and fill up. As a care partner, your well-being is foundational to sustaining compassionate care and providing support to your loved one.
If you’re experiencing symptoms of caregiver burnout or are aiming to prevent it, here are eight tips that can help:
Tip 1: Make Time for Yourself
Carve out moments for self-care and relaxation. Taking breaks allows you to recharge mentally and emotionally, reducing the risk of burnout.
Balance is key. While caring for others is important, neglecting your own needs can lead to exhaustion. Whether it's a short walk, reading a book or pursuing a hobby, these moments of respite are crucial for maintaining your well-being and sustaining your ability to provide support to your loved one over the long term.
MY PD STORY: Carla Velastegui
Since she was 15 years old, Carla Velastegui has been a care partner to her mother. She has learned along the way that taking time for herself is crucial to avoiding burnout.
Be realistic about what you can handle. Prioritize tasks and focus on what's most important. Understand your capabilities and limitations and ask for help when you need it.
Tip 3: Celebrate Small Victories
Celebrate small victories and recognize the progress you’ve made in your caregiving journey. These milestones, whether big or small, serve as reminders of your dedication and the positive impact of your efforts on your loved one's well-being.
Tip 4: Delegate and Accept Help
Even if you are the sole care partner for your loved one, don’t be afraid to ask for outside help. Whether that be family, neighbors, friends or professionals, know that you don’t have to do everything on your own. Asking a family member to sit and watch TV with your loved one while you go to the movies can be a welcome mini break.
There are also many communities and online resources for care partners that offer support, information and practical advice to navigate the challenges of caregiving.
Tip 5: Seek Emotional Support
If you're unsure about what to expect or how to manage certain aspects of caregiving, don't hesitate to seek advice from healthcare professionals, support groups or experienced caregivers. They can provide valuable insights and practical tips based on their expertise.
Connecting with others who understand your situation can be an effective way to reduce feelings of isolation and self-doubt as a caregiver.
Going to therapy can also be a huge help in managing stress, providing a safe space to express your emotions, gaining perspective on challenges and developing coping strategies.
Tip 6: Exercise Regularly and Get Enough Sleep
While easier said than done for many, regular exercise has been linked to lower depression and stress levels. Find something you enjoy — whether it’s a walk in nature, yoga or going to a workout class. Exercise may also help you sleep better at night.
Aim for seven to nine hours of sleep at night to maintain your physical and emotional health, which is crucial for effectively and sustainably managing the duties of caregiving.
Tip 7: Stay Organized
Staying organized can be a simple but effective way to reduce stress levels. Keeping track of appointments, medications and important information can help you avoid feeling overwhelmed.
As a caregiver, you know some things are out of your control. Control what you can and try to stay flexible, keeping in mind some days (or hours) are better than others when it comes to PD symptoms.
Tip 8: Incorporate Stress-Relief Techniques into Your Daily Routine
Incorporating stress-relief techniques into your daily routine can improve your ability to manage burnout. Techniques like deep breathing exercises help calm the mind and reduce physical tension. Meditation offers a chance to practice mindfulness, allowing you to step back from stressors and regain perspective.
Caregiver burnout can affect anyone helping a loved one with Parkinson's. Incorporating just some of these tips can help you avoid burnout and prioritize your own needs.
We're here for care partners. For more information:
Care needs in Parkinson’s change as symptoms progress. This program will provide you with tools to help you decide when it’s time to ask for outside help. Learn what you need to know to find the right kind of caregiver to meet your needs and discuss next steps to consider for care as Parkinson’s advances.
Presenter
Joan Miravite, DNP, RN, FNP-BC, FAAN, FAANP
Assistant Professor, Icahn School of Medicine at Mount Sinai
Director of Interdisciplinary Clinical Care for Movement Disorders
Mount Sinai Beth Israel, Department of Neurology
Strauss Movement Disorder Center
Parkinson Foundation Center of Excellence
This program will bring awareness to the symptoms that are often unspoken among veterans with Parkinson’s. We will address the real impact of loneliness and isolation, offer strategies for managing post-traumatic stress disorder, and provide guidance on overcoming fears associated with symptoms. Explore resources and support options designed to relieve isolation and nurture meaningful connections.
Speaker
Ellen Bradley, MD
Assistant Professor, Department of Psychiatry and Behavioral Sciences
Weill Institute for Neurosciences
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
The Parkinson's Foundation is proud to partner with U.S. Department of Veterans Affairs to improve the health, well-being and quality of life for veterans with PD.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
This program offers essential support and practical guidance for care partners of veterans living with Parkinson’s disease. Discover effective strategies for managing the evolving responsibilities of caregiving and learn how to access a range of valuable resources designed to enhance your caregiving journey.
Join us to deepen your understanding of the comprehensive care services and dedicated support available through the VA and the Parkinson’s Foundation, empowering you to provide the best care possible while prioritizing your own well-being.
Speaker
Corlynn Hullfish, LCSW
Caregiver Support Coordinator
Parkinson’s Disease Coordinator
Program of General Caregiver Support Services (PGCSS)
Respite Subject Matter Expert
Corporal Michael J. Crescenz VA Medical Center
(She/Her/Hers)
* While this webinar is designed for care partners, we welcome those living with Parkinson's disease to join us. Please note that the focus of this program is on supporting those who identify as care partners.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Whether you are new to Parkinson’s disease (PD) or have been a care partner for a long time, the Care Partner Guide is specifically designed for you.
The guide is organized around five care partner wellness keys with strategies to help you:
Build your support network.
Balance daily caregiving with self-care.
Strengthen relationship dynamics.
Work as a team to manage PD.
Plan for the future.
In addition to practical tips, you will find encouraging insights from other care partners, as well as activities, worksheets and important resources to support your journey.
