Este libro ha sido diseñado como guía práctica para explicar el proceso completo recomendado para las personas con Parkinson y las familias que consideran una terapia quirúrgica. El contenido explora todo desde la decisión de someterse a la cirugía, hasta el día de la cirugía y su recuperación. Si bien la información de este libro pretende facilitar una discusión sobre las opciones quirúrgicas con la familia, los amigos y el equipo de cuidado de la salud, no pretende sustituir la asesoría de los expertos en la materia, a cargo de su cuidado.
Join us every Monday as our expert speaker leads you in guided relaxation techniques to help boost brain power and reduce stress.
Whether this is your first mindfulness Monday or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Crista Ellis, BS, RYT-200 - Yoga and Meditation teacher, Community Engagement Manager, Parkinson's Foundation
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
Join health psychologist, Taylor Rush, PhD, as she explores different dimensions of a mindfulness practice. She will share ways to ground and settle the mind and body. These mindfulness techniques can offer moments of respite and clarity that can be useful throughout your week. Find a comfortable seat and join your mindful Parkinson's community for a special session.
Whether this is your first mindfulness Monday, or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Taylor Rush, PhD - Health Psychologist, Director of Behavioral Services and Interdisciplinary Programs, Center for Neurological Restoration, Cleveland Clinic
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
We all think. Mindfulness won’t stop that. What mindfulness can do is help us be aware of our thoughts so that we can put attention and energy into the thoughts that serve us, and let go of the thoughts that aren’t helpful. In this session, we will discuss how this works and offer a guided meditation on awareness of thoughts.
Whether this is your first mindfulness Monday, or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Devon Hase, PhD
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
In today's session, we will discuss various methods of managing our pain with mindfulness practices. The foundation of these practices is grounded in Mindfulness-Based Stress Reduction (MBSR), which was originally created by Jon Kabatt-Zinn, PhD in 1979 to alleviate suffering in patients with chronic pain at the Stress Reduction Clinic Center at UMass Medical Center.
Whether this is your first mindfulness Monday or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Lisa Varno, MMEd, E-RYT, YACEP
Certified Integrative Health Coach, Trained at Duke Integrative Medicine
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
Emotions can be overwhelming, especially for those of us managing a chronic illness. In this session, we will look at how to use mindfulness to tend our emotions and find the wisdom that lives in every feeling.
Speaker
Nico Hase, PhD
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
Join health psychologist, Taylor Rush, PhD, as she explores different dimensions of a mindfulness practice. She will share ways to ground and settle the mind and body. These mindfulness techniques can offer moments of respite and clarity that can be useful throughout your week. Find a comfortable seat and join your mindful Parkinson's community for a special session. Whether this is your first mindfulness Monday, or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.
Speaker
Taylor Rush, PhD - Health Psychologist, Director of Behavioral Services and Interdisciplinary Programs, Center for Neurological Restoration, Cleveland Clinic
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
Episode 151: Strategies to Address Apathy and Exercise Motivation
Besides being a movement disorder and affecting other physical functions, such as the digestive system, blood pressure control, and sleep, Parkinson’s disease (PD) can alter cognition, other mental functions, and mood. Apathy can be part of the disease, resulting in a lack of interest, enthusiasm, or motivation. It can result in a vicious cycle, decreasing one’s motivation to exercise and follow medication schedules, which are essential components of managing PD, including mood.
In this episode, movement disorder neurologist Nabila Dahodwala, MD, MS, Director of the Parkinson’s Foundation Center of Excellence at the University of Pennsylvania, describes what apathy is, how it can affect a person’s life, and ways to help alleviate it and gain motivation to move through exercise.
Released: May 30, 2023
Nabila Dahodwala, MD, MS is a Professor of Neurology at the University of Pennsylvania. She is also a Senior fellow at the Leonard Davis Institute of Health Economics, Institute of Aging fellow, and Director of the Parkinson Foundation Center of Excellence at Penn. Dr. Dahodwala's research interests involve access to care; disease prevention and health promotion; disparities and health equity; and global health and risk communication. She has served as the chair of the American Neurological Association’s Health Services Research Special Interest Group and is a member of the International Parkinson and Movement Disorders Society’s Integrated Care Taskforce and the Michael J. Fox Foundation’s PPMI steering committee.
More than 110,000 veterans with Parkinson’s disease (PD) receive care through the U.S. Department of Affairs (VA). Many U.S. military veterans with Parkinson’s have access to specialized medical care and financial assistance through the VA. We will explore the resources and support services that Veterans have access to through the VA and the Parkinson’s Foundation.
Speakers
Gretchen Glenn, LCSW
Corporal Michael J. Crescenz VA Medical Center
Philadelphia Parkinson's Disease Research, Education and Clinical Center
Social Worker / Associate Director of Education
Christina Ketron, DNP, APRN, PMHNP-BC
Neurology Services, Nurse Practitioner
Ralph H Johnson VA Medical Center
Mr. Welma James Jackson Jr, MA
Capitol Area Regional Manager
Accreditations, OJT and Department Service Officer (VFW)
Louisiana Department of Veterans Affairs
Shawn Katalinas MSOT, OTR/L
Occupational Therapist
OT Clinical Care Coordinator for Education (CCCE)
Ralph H. Johnson VA Medical Center
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice. Together, we’ll explore simple ways to ground the body, calm the mind, and cultivate compassion and clarity that you can carry into your week.
How a Neurologist is Using Data to Make Parkinson’s Research and Care More Inclusive
Life with Parkinson’s disease (PD) is unique to every person. The journey to a diagnosis, symptoms and disease progression varies. Roshni Patel, MD, MS, believes that diverse and inclusive care practices and research recruitment are key to ensuring access to quality care for everyone, and to learning more about PD.
“There has been a push for more diverse and inclusive patient recruitment in Parkinson’s research studies,” Dr. Patel said. “And that push actually led me to a subtopic I've become very interested in – LGBTQ+ health and neurology. Not much is known about LGBTQ+ health in Parkinson’s. People with Parkinson’s have high rates of mood disorders, depression and anxiety, and it’s also been shown that LGBTQ+ patients with other neurological disorders have high rates of those symptoms, so I wanted to see if LGBTQ+ people with Parkinson’s may be at a higher risk for mood disorders.”
During her movement disorders fellowship at Rush University Medical Center, a Parkinson’s Foundation Center of Excellence, Dr. Patel reviewed recent self-reported survey data where she looked at the movement and non-movement symptom burden among LGBTQ+ people with Parkinson’s. This is one of the first studies looking at Parkinson’s symptom burden for LGBTQ+ people and could inform care practices for this population. She recently submitted her findings and is awaiting publication.
During her fellowship, Dr. Patel became interested in epidemiological research (the study of diseases as they relate to populations), where she used large datasets to answer questions. In her current role as a neurologist at Jesse Brown VA Medical Center, Dr. Patel splits her time between seeing patients and conducting research. While she has access to the VA system’s robust clinical database, she is excited to see the current trend in research is making more data open access.
“The move to make more data available for any researcher to access and analyze is really promising,” she said. “It offers the chance for new people to take a look and possibly see new things that the original researchers might not have thought about or looked at. It can hasten discoveries and makes things more transparent.”
She also believes that genetic studies of Parkinson’s, like PD GENEration: Mapping the Future of Parkinson’s Disease, can make a big impact. “Access to data from a big genetic cohort will be amazing,” she said. “I think that data will speed up the rate of discovery in terms of identifying genetic risk factors.”
Lately, through patient visits, Dr. Patel has noticed a trend of increased telehealth neurology opportunities. The ability to see a movement disorders specialist virtually improves inclusivity since it simplifies access to care. One program she is excited to get more involved with offers telehealth neurology visits to veterans in rural areas who do not have access to a neurologist. Participants wear a device similar to an accelerometer that measures their movements and generates a report that helps their doctor see their movement response to their medications.
“This program will be a good proof of concept to show that in a cohort of telemedicine-only Parkinson’s patients, a doctor could manage their movement Parkinson’s symptoms with a remote body-worn sensing device that provides objective data. Something like this has the potential to greatly increase access to care.”
Dr. Patel credits her Parkinson’s Foundation fellowship for her deep interest in leveraging data to find Parkinson’s disease trends and information that can be helpful for doctors and people with PD — along with her passion for improving inclusivity in PD research and care.
“This unique two-year fellowship gave me time to both care for patients and develop a research interest and learn more about the research process,” she said. “Research fellowships need funding. The Parkinson’s Foundation is essential because it allowed Rush to provide that fellowship to me.”
The Parkinson’s Foundation is proud to provide several types of grants that encourage young clinicians and researchers like Dr. Patel to devote their talents to the study of Parkinson's disease.
