Acompáñenos en un webinar informativo que explora la relación entre el dolor y la enfermedad de Parkinson. Esta sesión tiene como objetivo adentrarse en los diversos tipos de dolor asociados con la enfermedad de Parkinson, ya sea derivado de síntomas motores o manifestaciones no motoras.
Hablaremos sobre las estrategias prácticas para el manejo del dolor y mejorar su comprensión de cómo el dolor afecta la calidad de vida en general de aquellos afectados por la enfermedad de Parkinson.
Presentador
Dr. Daniel Martinez-Ramirez
Profesor, Investigador Nacional por México Nivel 2
Neurología, trastornos del movimiento
Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud
Instagram: @neurologoparkinson
26th Annual Blazing Toward a Cure Educational Symposium
9:00 am to 12:00 pm CDT
FREE
This event has reached capacity. To be added to the waitlist, please email tnky@parkinson.org.
Please join the Vanderbilt Medical Center and Parkinson’s Foundation Center of Excellence team for the 26th annual Blazing Toward a Cure educational symposium. Please register for this no cost educational opportunity.
This program will be held at the Vanderbilt Student Life Center (Nashville, TN), where free valet parking will be available. Doors open at 8:00 a.m. and the program will begin promptly at 9:00 a.m. Continental breakfast will be served at 8:30 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Expert Speakers
Thomas L. Davis, MD
Division Chief/Movement Disorders,VUMC
8 Practical Ways to Work on Your Mental Health with Parkinson’s
For people with Parkinson’s disease (PD) and care partners, dedicating time to maintaining mental health can feel like its own battle. From the mental exhaustion leading up to a Parkinson’s diagnosis to what can feel like ever-changing symptoms as PD progresses, it’s easy for mental health to not be a priority.
Below we explore eight practical ways to work on your mental health. Most of these can be applied to people with PD and care partners, as both are constantly navigating the complexities of mental health symptoms alongside the physical ones.
1. Get to know the science behind the psychological impact of Parkinson's.
Depression, anxiety and apathy are all common Parkinson’s symptoms. In fact, up to 50% of people with Parkinson’s will experience some form of depression. Our research shows that together, depression and anxiety have the greatest impact on the health of people with PD, even more than the movement challenges.
The science behind mood symptoms is that Parkinson’s directly impacts the production of dopamine in the brain. Dopamine plays an essential role in helping the body move smoothly and the brain process emotions.
What can you do? Get to know non-movement symptoms. Learn the signs of depression. Bring up any mood-related symptoms to your Parkinson’s doctor. Together, you can find treatment options that work for you.
Research shows that exercise and physical activity can not only maintain and improve mobility, flexibility and balance but also ease non-movement PD symptoms. Exercise releases chemicals in the brain such as neurotransmitters and endorphins that make us feel good. It reduces immune system chemicals that can worsen depression, and it increases body temperature, which may have a calming effect.
PD-tailored exercises classes, from non-contact boxing to indoor cycling, are excellent forms of exercise and have the bonus of helping build your PD support system.
Increasing physical activity alone was shown in some studies to improve mood. Walking, gardening, housework, washing the car — any activity that gets you moving can help improve your mood. Even adding small amounts of physical activity throughout your day can be useful.
Resource that can help: Try an on-demand exercise class through our Fitness Friday videos, or call our Helpline at 1-800-4PD-INFO (1-800-473-4636) to find a PD-tailored exercise class near you.
3. Try complementary therapies.
Explore holistic approaches that can support mental wellness in addition to your treatment plan. About 40% of people with Parkinson’s use some type of complementary therapy as part of their regular treatment routine.
Eating a whole food, plant-based diet, often called the Mediterranean diet, can help you live well with PD. Eat what you need to be happy — but also eat more of the food that is good for your health.
If you have Parkinson’s, every healthy lifestyle change can help. While it can be challenging to eat better, most people make minor diet changes gradually that become major changes over time. Always consult your physician before making major changes.
5. Attend an in-person event and try a new resource.
For everyone, finding the tools that help you cope with stress and anxiety can be a lifelong endeavor. Explore Parkinson’s Foundation resources that can help you get the support you need.
How can I support my loved one with Parkinson’s through mental health changes? How can I support my own mental health? As a caregiver, you have a dual role — taking care of the person with Parkinson’s and taking care of yourself. These roles are equally important! A strong personal support network will help you have an outlet for your emotions and be able to take time off. Call our Helpline at 1-800-4PD-INFO (1-800-473-4636) to find a local caregiver support group.
Regularly check in with yourself. Seek help professionally or from a trusted friend as you need it. Remember to take breaks — utilize people in your life, or external resources, to allow you respite from caregiving.
7. For everyone: Build your mental health support team.
Recognizing your individual emotional needs and building a strong support network that includes mental health professionals is part of a comprehensive plan to navigate PD.
Surround yourself with people who will listen, uplift and encourage you when you need them. Look for support among your friends, family and community. Take the time to find the right therapist. It may be difficult to find one familiar with PD, but those who are specialized in chronic illness, grief, anxiety and depression can often address common feelings and experiences of living with a PD diagnosis.
8. For everyone: Call our Helpline for personalized resources and tools.
Our Helpline is here to answer your Parkinson’s questions. Speak to our Helpline specialists to find resources that work best for you or your loved one with Parkinson’s. Regarding mental health, our Helpline can provide referrals to:
Healthcare professionals.
Community resources including exercise classes and local support groups.
Mental health resources.
Resource that can help: Call 1-800-4PD-INFO (1-800-473-4636) or emailHelpline@Parkinson.org.
7 de los principales recursos bilingües acerca del Parkinson
Vivir bien con la enfermedad de Parkinson (EP) significa obtener el apoyo que necesita: desde herramientas que le ayuden a trabajar junto con su equipo de atención médica hasta recursos que lo empoderen. La Parkinson’s Foundation es su aliada de confianza para obtener información que puede ayudarle a navegar por cada etapa de esta enfermedad.
¿Sabía que nuestros 7 recursos principales están disponibles en inglés y español? Explore a continuación estos recursos diseñados para ayudar a facilitarle un poco más la vida a las personas con la enfermedad de Parkinson, a sus cuidadores y a sus familiares:
1. Línea de Ayuda
Llame al 1-800-4PD-INFO (1-800-473-4636), opción 3 para español o envíe un correo electrónico a Helpline@Parkinson.org para hacer sus preguntas sobre la EP a un especialista de la Línea de Ayuda, de lunes a viernes de 9 a.m. a 7 p.m., hora del Este.
Visite nuestrositio web para consultar un número ilimitado de artículos dedicados a la información más reciente sobre el Parkinson. Consulte nuestras páginas más populares: 10 signos, Etapas del Parkinson y Levodopa.
Inscríbase a un evento en línea diseñado para usted. ¿Listo para aprender algo nuevo ahora mismo? Explore nuestra impresionante colección de eventos grabados:
Visite nuestro blog para leer artículos que destacan los temas más recientes sobre el Parkinson: desde investigaciones hasta consejos para ayudarle a vivir mejor con el Parkinson.
Recuerde participar con nosotros en este Mes de la Concientización sobre el Parkinson compartiendo su ABC de la EP y lea nuestras ideas para publicaciones en redes sociales en nuestro kit de herramientas en español.
Educational Events
Learn More. Live Better. Parkinson’s Symposium
10:00 am to 1:30 pm CDT
FREE
Check-in & the Resource Fair (for in-person attendees) begins at 9:00 a.m. CDT
Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.
Expert Speakers
Erin Edmundson, PT, DPT
Huntsville Hospital Parkinson's Care Clinic
Jay van Gerpen, MD, FAAN
Neurology Consultants of Huntsville
Carolina Parker, MD
Neurology Consultants of Huntsville
Brandi Ivey M.Ed, CPPN
Huntsville Hospital Parkinson's Care Clinic
Katelyn Bowden, OT
Huntsville Hospital Parkinson's Care Clinic
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
9 a.m. – 10:00 a.m.
Check-in & Resource Fair
10:00 a.m. – 10:10 a.m.
Welcome: Stacey Faber
Senior Director, Community Education & Outreach, Southeast
Parkinson’s Foundation
10:10 a.m. – 10:40 a.m.
Optimizing Your Parkinson’s Care
Carolina Parker, MD,
Neurology Consultants of Huntsville
10:40 a.m. – 11:00 a.m.
Question & Answer Session
11:00 a.m. – 11:15 a.m.
Movement Break
Clarissa Sharp, MPT
Traci Aday, LPTA
Parkinson’s Care Clinic, Huntsville Hospital
11:15 a.m. – 11:45 a.m.
Mind Your Mouth: Speech, Swallowing & Smiles in Parkinson’s
Anitra Ford, MS, CCC-SLP
Huntsville Hospital Therapy Services
12:30 p.m. – 1:10 p.m.
Let’s Get Uncomfortable:
The Parkinson’s Topics We Need to Talk About
Moderated By: Erin Edmunson, PT, DPT
Huntsville Hospital Parkinson’s Care Clinic
Jay Van Gerpen, MD, FAAN
Huntsville Hospital
Brandi Ivey, M.Ed, CPPN, Care Navigator
Parkinson’s Care Clinic, Huntsville Hospital
Kristi Holland, OT
Parkinson’s Care Clinic, Huntsville Hospital
Kristi Holland, OT
Parkinson’s Care Clinic, Huntsville Hospital
Parkinson's Disease Program for African American and Latinx Communities
10:00 am to 2:00 pm PDT
FREE
Join Stanford and UCSF for a free educational event for two under-served communities – the African American Parkinson’s community and the Latinx Parkinson’s community. There will be simultaneous sessions (different rooms) in English and Spanish.
Ideally for those diagnosed in the last few years. Family members and friends are welcome and encouraged to join!
Attendance is free, but registration is required and seating is limited. Lunch will be provided.
Expertos en el tratamiento de trastornos del movimiento hablarán en español acerca de los sintomas y el manejo de la enfermedad de Parkinson y se dará información acera de agencias en la comunidad que ofrecen grupos de apoyo y programa de ejercicio.
Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, aliados de cuidado y promotores de salud.
Sponsored by the Parkinson's Foundation and hosted by UCSF Movement Disorders and Neuromodulation Center & Stanford Movement Disorders Center. Both are Parkinson's Foundation Centers of Excellence.
Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD
There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET
What is the PD Solo Network:
A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.
The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.
Upcoming Meeting Dates:
– February 13 and February 27, 2024
– March 12 and March 26, 2024
– April 9 and April 23, 2024
There is no charge to attend, but registration is required in order to receive the Zoom link.
Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD
There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET
What is the PD Solo Network:
A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.
The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.
Upcoming Meeting Dates:
– May 14 and May 28, 2024
– June 11 and June 25, 2024
– July 9 and July 23, 2024
– August 13 and August 27, 2024
There is no charge to attend, but registration is required in order to receive the Zoom link.
My Parkinson’s disease (PD) diagnosis started one morning when my wife said to me that I should see a doctor about how I was walking. She had noticed that my gait had changed, and had been searching online for reasons why. As soon as she mentioned it to me, I realized she was right, and I became very aware of how my movement had changed.
I started with my regular doctor who after watching me walk and noticing an occasional tremor in my hand told me that it was likely Parkinson’s. She told me everyone’s journey with Parkinson’s was different. She referred me to a neurologist who ordered a DAT scan that confirmed my results were consistent with Parkinson’s.
The diagnosis was confirmed on January 5, 2023, about one week before we embarked on a 111-day world cruise. My neurologist encouraged me to take the cruise and just be careful on the cobble stone streets around the world. “Just don’t fall.” It was the trip of a lifetime, and I was able to do almost everything I wanted.
After returning from the cruise, I made an appointment with a neurologist who was a family friend, and he also confirmed the diagnosis. He was in Los Angeles and a five-hour drive from my home in Las Vegas. It wasn’t practical in the long term, so he referred me to the Cleveland Clinic at the Lou Ruvo Center for Brain Health in Las Vegas.
Fortunately, my doctor at the Cleveland Clinic was also the Principal Investigator for a new Parkinson’s medication. I was accepted into the Phase three trial and didn’t think twice about participating, even though you don’t know if you’re in the placebo group or the drug group.
Participating in research led me to new opportunities, including being invited to speak about my drug trial experience at a Cleveland Clinic event. This event was also my introduction to the Parkinson’s Foundation. In just three months, I began exploring and utilizing Parkinson’s Foundation resources, which motivated me to apply to the People with Parkinson’s Advisory Council and to become a research advocate for the Foundation.
Throughout my research experience, I have learned that it’s challenging to enroll participants in drug trials for many reasons. I didn’t think twice about participating in the trial because it is an opportunity to not only help my own Parkinson’s symptoms, but to help other people who will be diagnosed with PD in the future.
I found myself constantly checking for any change in my condition to see if I could tell which trial group I was assigned. After 27 weeks of phase three participation, I will move to the Phase four trial and receive the new drug for an entire year.
In the last two months I’ve joined a gym and started playing racquetball again. I’ve noticed my better days are the active ones. Staying active really makes a difference for me. I think of exercise as important as medication for my Parkinson’s journey.
I have started attending Parkinson’s events and grow my participation in the PD community here in Las Vegas. I find that events let me meet other people with PD, which is different than reading about someone’s journey online. I find it helpful to reading about PD news and studies to help me understand the state of the disease.
I would encourage everyone to see a neurologist as early as possible when you display early symptoms, such as the loss of sense of smell and active/restless sleep. I had these symptoms more than 10 years ago but never understood they would be the early steps towards Parkinson’s.
Find a PD-trained neurologist using our In Your Area search feature or by calling our Helpline at 1-800-4PD-INFO (1-800-473-4636).
