EP Salud: Miércoles de Bienestar - La enfermedad de Parkinson (EP) y la cognición (o los procesos cognitivos): comprendiendo y mejorando la salud de su cerebro
El propósito de esta charla es educar a las personas con Parkinson y sus cuidadores acerca del impacto de la EP en los procesos cognitivos, discutir los rasgos más comunes y relevantes acerca de los aspectos cognitivos y la EP y cómo éstos también pueden afectar otras áreas como el bienestar emocional. Se hablará de la importancia de mantenerse conectados y los recursos de apoyo disponibles.
Presentadora
Annelly Buré-Reyes, PhD
Assistant Professor, División de neuropsicología
Departmento de neurología
University of Miami Miller School of Medicine
Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, personas de apoyo y promotores de salud.
How do you find harmony in juggling it all? Caring for your parent or family member or your children, plus all the things going on in your life. Join us to discuss how to talk about caring for yourself while living with PD, as well as caring for others, setting boundaries, and how to find resources.
Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.
Speaker
Joan Hlas, MD
Struthers Parkinson’s Center, A Parkinson's Foundation Center of Excellence
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Join us for an overview on laws governing the rights of individuals in the workplace, including reasonable accommodations and medical leaves. Daniel Olson will present this interactive session, which will allow you to learn about disability laws and have your questions answered. Mr. Olson is the Co-Chair of the Employment Law Practice Group at Bassford Remele, P.A., in Minneapolis, and an Adjunct Professor of Employment Law at the University of St. Thomas School of Law.
Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.
Speaker
Daniel Olson, Co-Chair
Employment Law Practice Group, Bassford Remele
Adjunct Professor of Employment Law, University of St. Thomas School of Law
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Many people living with Parkinson’s disease experience non-motor symptoms that can impact urinary and sexual functioning. Although these topics can be uncomfortable to discuss, learning more about what can be done could positively impact quality of life.
Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.
Speaker
Dr. Matthew Ziegelmann, Mayo Clinic Rochester
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
8 Questions You’ve Always Wanted to Ask a Physical Therapist
Did you know that physical therapy can help delay the progression of Parkinson’s disease (PD) symptoms? Jenny Wilhelm, PT, DPT, NCS, is a physical therapist at Oregon Health and Science University, a Parkinson’s Foundation Center of Excellence. We asked Jenny the most frequently asked questions about Parkinson’s disease and physical therapy.
What is the difference between physical therapy and exercise?
Exercise is a tool that physical therapists use to treat people with Parkinson's disease. Exercise can take several different forms such as aerobics, strengthening, stretching and balance.
Physical therapy can help you design an exercise program that will benefit you personally. In addition to the movement symptoms addressed by exercise, physical therapy can also improve your non-movement symptoms such as pain, low blood pressure and bladder or bowel problems. We teach people with Parkinson’s life strategies so they can stay safe at home, and we also train care partners to help support their loved one with PD.
How can physical therapy benefit people with Parkinson’s disease?
I would give my hats off to occupational therapists first, for teaching people with PD how to adapt their behavior and how to move. Physical therapists are next in line in helping with activities of daily living: getting on and off the toilet, sitting down and standing up from the couch and getting in and out of bed.
Physical therapy can help people with Parkinson's throughout the stages of the disease. Early on, we educate clients about the types of exercises that might be most effective for them. Later in PD, the physical therapist can help problem solve and make modifications to address new or changing symptoms. We help people with Parkinson’s adapt to everyday life scenarios in a way that is easier, safer and more enjoyable.
Is seeing a physical therapist who specializes in movement disorders more effective than seeing a general physical therapist?
In a perfect world, all people with Parkinson’s disease would be seen at a Center of Excellence by an interdisciplinary team. Research has shown that people with PD do better if they see someone who knows a lot about Parkinson’s.
For people who live in rural areas, however, it may be difficult to find a physical therapist who specializes in Parkinson’s. If you do not have access to a PD specialist, try to see someone who at least knows neurological physical therapy. Or you could try virtually seeing a physical therapist who specializes in Parkinson’s. Even if you only check in with this person a few times per year, their guidance will help with your overall symptom management.
Why did you become a physical therapist?
The story of how I became a physical therapist is a little unique. I've always been interested in research. I started doing research at the University of Nebraska when I was 16. Then I grew into basic neuroscience research but as I was doing that, I really missed people. I ended up in physical therapy for myself for a low back injury, and it seemed like a good fit.
I got into physical therapy school, and my combined interest in physical therapy and neuroscience led me to specialize in neurological conditions.
Can you share a feel-good story about helping people with PD?
Last year, I supported a van full of people who were doing a 130-mile relay race to raise awareness for Parkinson’s. I met with half a dozen people with Parkinson's (most of whom I had never met before) and assessed them on their symptoms and ability to walk two legs of a relay, to help them finish this race successfully.
During the race itself, we encountered some obstacles due to various PD symptoms. I had to get out of the van and massage someone’s foot at 2 a.m. because her dystonia was so bad that she couldn't walk. I had to help someone with gait training because they were pushing themselves and walking fast. I had to help hydrate someone who had low blood pressure. Despite these setbacks, however, everyone was determined to complete the race.
The important thing is that we were able to successfully support this team and get them across the finish line. I think the experience was empowering for this small group of individuals. The hope is that their success can inspire other people to step up to the challenge and raise awareness for Parkinson’s.
What do you do to manage the stress of your job?
I'm a part of a huge team, which is super helpful. In clinic, I work primarily with people with Parkinson's, but I see patients who are living with all neurological diseases. With PD, I have such a functional team that it makes a huge difference in being able to treat patients effectively. When there are issues, I can lean on other people to help me through problems that I might be having.
I am also a big fan of vitamin N: nature. My family and I do a lot of outdoor activities — being outside is my biggest stress management tool.
Is it ever too late to start physical therapy?
It is never too late to start physical therapy. People with PD may want to see a physical therapist for numerous issues throughout the course of the disease. I see a lot of people who have back pain or shoulder pain. They may not be coming to me directly because of Parkinson's, but I can help address their pain issues so they can continue to exercise.
Ideally, you would begin seeing a physical therapist shortly after diagnosis. But even if you are in the late stages of PD, there are still ways that physical therapists can help you move better and improve your quality of life.
If you have not yet seen a physical therapist, talk to your movement disorders specialist or neurologist to get a referral.
What is one takeaway the PD community should know about physical therapy?
I have never seen someone living with Parkinson's with an issue that physical therapy can't address. No matter what stage of PD you are currently in, there is a role for physical therapy to make your life a little bit easier.
For help finding a physical therapist near you, contact our Helpline at 1-800-4PD-INFO (1-800-473-4636).
This program will provide a basic overview of Parkinson’s disease. Learn what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.
Speaker
Pravin Khemani, MD, FAAN
Medical Director, Movement Disorders
Department of Neurology, Swedish Neuroscience Institute
Seattle, WA
There is no charge to attend, but registration is required.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
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Check-In starts 12:30pm
Participants will learn how research helps shape treatments and identify new care strategies for managing Parkinson's symptoms. This program will also provide information on current research in Parkinson's.
*This program may include moderately scientific terms and concepts.*
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Speakers
Stephen L. Lee, MD, PhD
Dr. Lee is a Movement Disorders Specialist in the Department of Neurology at Dartmouth-Hitchcock Medical Center. He completed his PhD and MD at Washington University School of Medicine and his Neurology Residency in St. Louis.
Dr. Lee joined DHMC after completing his Movement Disorders Fellowship at Vanderbilt University Medical Center in 2004. He is a co-founder and director of the Parkinson’s and Movement Disorders Center at DHMC, and Assistant Professor at Geisel School of Medicine at Dartmouth. Dr. Lee is a member of the Parkinson’s Study Group, which is a non-profit group of physicians and other healthcare providers experienced in the care of people with Parkinson’s and dedicated to clinical research of Parkinson's disease.
Dr. Havrda is an Assistant Professor of Research in Molecular and System Biology at the Geisel School of Medicine at Dartmouth College. He completed his PhD in Biochemistry and Molecular Biology at the University of Maine and has served on multiple study panels including Neurotoxin Exposure and Treatment of Parkinson’s with the Department of Defense, Parkinson’s Foundation Review Committee, the Target Validation Program with the Michael J. Fox Foundation and the Impact of Aging on Chronic Conditions with the National Institutes of Health.
He has lectured extensively on inflammasomes in Parkinson’s research, served on numerous steering committees and consultations regarding Parkinson’s Disease, and holds an inventor patent in Method and agent for treating and preventing neurodegenerative diseases. He is currently an ad hoc reviewer for several scientific journals, including the Journal of Neuroinflammation and Toxicological Sciences.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
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Check-In begins at 12:00 pm
Emotional and social health is an important part of living well with Parkinson’s disease. Many symptoms of Parkinson’s can affect emotional and social wellness. Learn how various clinical and creative therapies can support not only symptom management but the overall well-being of the person living with PD.
Speaker
Dr. Gregory Pontone,MD
Johns Hopkins
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
PARKING: The parking garage adjacent to Hotel is owned and managed by the Dulaney Center (not Sheraton Baltimore North). Hotel guests are permitted to access and use the garage at all times. There is a Hotel preferred rate of $6.00 per car for up to 3 hours and $15.00 per car per day (up to 24 hours).
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
The Parkinson's Foundation is an official charity partner for the 2026 Philadelphia Marathon Weekend. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. Register to run now at PDChampionsPhilly.org.
Fundraising Commitments:
Marathon - $1,500
Half Marathon - $1,000
8k - $750
*Do you have your own bib? Do you have a runner under age 18 to register? Please email us at VKapur@Parkinson.orgfor special registration instructions.
Expect beautiful views through Fairmount Park and along the Schuylkill River and neighborhood crowds gathering on sidewalks in University City and Manayunk. Weave through the well-traveled streets of the historic district, passing sights familiar to Franklin, Washington and the rest of the gang, and end your race speeding towards the steps of the majestic Art Museum. The Philadelphia marathon is a beautiful, fast, flat and scenic course and you’ll set a PR while support people living with Parkinson’s and research toward a cure.
PLEASE NOTE: The Philadelphia Half Marathon & 8k will occur on the Saturday of race weekend. The Full Marathon will occur on the Sunday.
Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Join us for another fantastic evening of fun, camaraderie, and raising money and awareness about the Parkinson's Foundation. Decorate and provide your own food/beverage for YOUR table based on our theme for 2025: The 1950's!
Partnership Opportunities
If you are interested in becoming a partner at this year's Party for Parkinson's event, please contact Diana Parrish at DParrish@Parkinson.org or 336-817-4190.
Event Partners will enjoy a wide variety of benefits, including prominently displayed signage at the event, verbal recognition, signage on auction tables and two (2) seats at the VIP Table.
Party for Parkinson's Video
The Party for Parkinson's event was captured by the talented owner of Salt Creek Films, Taylor Horton. Watch the full video below.
To see more content by Taylor and the Salt Creek Films team, visit www.SaltCreekFilms.com or check out their Instagram page at @SaltCreekFilms.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
