Podcasts

Episode 146: Parkinson’s Disease in the Black Community

An early Parkinson’s diagnosis is the first step to getting Parkinson’s disease (PD) symptoms under control and living well with Parkinson’s. Getting a PD diagnosis is also one of the first obstacles many people in the Black PD community experience.

Research has shown racial disparities in the diagnosis and treatment of Parkinson’s – finding that Black people with PD are diagnosed at a later disease stage than white people and are less likely to be diagnosed compared to other racial and ethnic groups. These differences may be due to Black patients being historically excluded from research and to a range of health disparities, which cause them to systemically experience decreased access to resources and care due to social, economic and environmental disadvantages. 

Working with specialists who understand and treat Parkinson’s can help you better manage your symptoms and reduce complications. Since people in the Black community are often less likely to see a PD specialist, awareness of PD in Black communities is essential.

In this episode for Black History Month, we speak with a woman who has been very involved in raising awareness of PD among the Black community. Since her diagnosis, Denise Coley has become engaged in PD organizations. She served on the Parkinson’s Foundation’s People with Parkinson’s Advisory Council, and she is currently the Chair of the Mission and Outreach Committee of the California Parkinson’s Foundation Advisory Council.

Educational Events

La enfermedad de Parkinson y la cognición

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
Woman on the couch looking at an ipad

EP Salud: Miércoles de Bienestar - La enfermedad de Parkinson (EP) y la cognición (o los procesos cognitivos): comprendiendo y mejorando la salud de su cerebro

Regístrese Aquí

El propósito de esta charla es educar a las personas con Parkinson y sus cuidadores acerca del impacto de la EP en los procesos cognitivos, discutir los rasgos más comunes y relevantes acerca de los aspectos cognitivos y la EP y cómo éstos también pueden afectar otras áreas como el bienestar emocional. Se hablará de la importancia de mantenerse conectados y los recursos de apoyo disponibles.

Presentadora

Annelly Buré-Reyes, PhD
Assistant Professor, División de neuropsicología
Departmento de neurología
University of Miami Miller School of Medicine

Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, personas de apoyo y promotores de salud.

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa- PD Health @ Home en YouTube.

La conferencia se transmitirá en vivo utilizando la aplicación de videollamadas Zoom.

Educational Events

Young-Onset Parkinson’s Disease: Caring for Others

Virtual ( Zoom )
4:00 pm to 6:00 pm CST
FREE
Young family

Young-Onset Parkinson's Disease Webinar Series

How do you find harmony in juggling it all? Caring for your parent or family member or your children, plus all the things going on in your life. Join us to discuss how to talk about caring for yourself while living with PD,  as well as caring for others, setting boundaries, and how to find resources.

Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.

Speaker

Joan Hlas, MD
Struthers Parkinson’s Center, A Parkinson's Foundation Center of Excellence

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Young-Onset Parkinson’s Disease: Planning and Your Rights

Virtual ( Zoom )
4:00 pm to 6:00 pm CST
FREE
Young family

Young-Onset Parkinson's Disease Webinar Series

Join us for an overview on laws governing the rights of individuals in the workplace, including reasonable accommodations and medical leaves.  Daniel Olson will present this interactive session, which will allow you to learn about disability laws and have your questions answered.  Mr. Olson is the Co-Chair of the Employment Law Practice Group at Bassford Remele, P.A., in Minneapolis, and an Adjunct Professor of Employment Law at the University of St. Thomas School of Law.

Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.

Speaker

Daniel Olson, Co-Chair
Employment Law Practice Group, Bassford Remele
Adjunct Professor of Employment Law, University of St. Thomas School of Law

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Young-Onset Parkinson’s Disease: Intimacy and Incontinence

Virtual ( Zoom )
4:00 pm to 6:00 pm CST
FREE
Young family

Young-Onset Parkinson's Disease Webinar Series

Many people living with Parkinson’s disease experience non-motor symptoms that can impact urinary and sexual functioning. Although these topics can be uncomfortable to discuss, learning more about what can be done could positively impact quality of life.

Join us for an educational presentation, followed by a Q&A session with our speaker. We will then have the opportunity to connect with others in the Young Onset community via Zoom breakout rooms to continue the discussion.

Speaker

Dr. Matthew Ziegelmann, Mayo Clinic Rochester

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Parkinson's 101: What You and Your Family Should Know

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
FREE
Husband and wife lookin at a tablet while on their porch

Wellness Wednesdays

This program will provide a basic overview of Parkinson’s disease.  Learn what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.

Speaker

Pravin Khemani, MD, FAAN
Medical Director, Movement Disorders
Department of Neurology, Swedish Neuroscience Institute
Seattle, WA

There is no charge to attend, but registration is required.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Parkinson’s Research and Care

1:00 pm to 5:00 pm EST
FREE
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Check-In starts 12:30pm

Participants will learn how research helps shape treatments and identify new care strategies for managing Parkinson's symptoms. This program will also provide information on current research in Parkinson's.

*This program may include moderately scientific terms and concepts.*

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Speakers

Stephen L. Lee, MD, PhD

Dr. Lee is a Movement Disorders Specialist in the Department of Neurology at Dartmouth-Hitchcock Medical Center. He completed his PhD and MD at Washington University School of Medicine and his Neurology Residency in St. Louis.

Dr. Lee joined DHMC after completing his Movement Disorders Fellowship at Vanderbilt University Medical Center in 2004. He is a co-founder and director of the Parkinson’s and Movement Disorders Center at DHMC, and Assistant Professor at Geisel School of Medicine at Dartmouth. Dr. Lee is a member of the Parkinson’s Study Group, which is a non-profit group of physicians and other healthcare providers experienced in the care of people with Parkinson’s and dedicated to clinical research of Parkinson's disease.

Matthew C. Havrda, PhD

Dr. Havrda is an Assistant Professor of Research in Molecular and System Biology at the Geisel School of Medicine at Dartmouth College. He completed his PhD in Biochemistry and Molecular Biology at the University of Maine and has served on multiple study panels including Neurotoxin Exposure and Treatment of Parkinson’s with the Department of Defense, Parkinson’s Foundation Review Committee, the Target Validation Program with the Michael J. Fox Foundation and the Impact of Aging on Chronic Conditions with the National Institutes of Health.

He has lectured extensively on inflammasomes in Parkinson’s research, served on numerous steering committees and consultations regarding Parkinson’s Disease, and holds an inventor patent in Method and agent for treating and preventing neurodegenerative diseases. He is currently an ad hoc reviewer for several scientific journals, including the Journal of Neuroinflammation and Toxicological Sciences.

COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.

Upcoming Events

Educational Events

Social & Emotional Wellness

12:30 pm to 4:00 pm EST
FREE
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Check-In begins at 12:00 pm

Emotional and social health is an important part of living well with Parkinson’s disease. Many symptoms of Parkinson’s can affect emotional and social wellness. Learn how various clinical and creative therapies can support not only symptom management but the overall well-being of the person living with PD.  

Speaker

Dr. Gregory Pontone, MD
Johns Hopkins

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

PARKING: The parking garage adjacent to Hotel is owned and managed by the Dulaney Center (not Sheraton Baltimore North). Hotel guests are permitted to access and use the garage at all times. There is a Hotel preferred rate of $6.00 per car for up to 3 hours and $15.00 per car per day (up to 24 hours).

COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.

Upcoming Events

Fundraising Events

2026 Philadelphia Marathon Weekend

8:00 am to 8:00 pm EST
Participant in Philly Race

The Parkinson's Foundation is an official charity partner for the 2026 Philadelphia Marathon Weekend. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. Register to run now at PDChampionsPhilly.org

Fundraising Commitments:

  • Marathon - $1,500
  • Half Marathon - $1,000
  • 8k - $750

*Do you have your own bib? Do you have a runner under age 18 to register? Please email us at VKapur@Parkinson.org for special registration instructions.

Expect beautiful views through Fairmount Park and along the Schuylkill River and neighborhood crowds gathering on sidewalks in University City and Manayunk. Weave through the well-traveled streets of the historic district, passing sights familiar to Franklin, Washington and the rest of the gang, and end your race speeding towards the steps of the majestic Art Museum. The Philadelphia marathon is a beautiful, fast, flat and scenic course and you’ll set a PR while support people living with Parkinson’s and research toward a cure.

PLEASE NOTE: The Philadelphia Half Marathon & 8k will occur on the Saturday of race weekend. The Full Marathon will occur on the Sunday.

Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.

If you have questions, send us an email at VKapur@Parkinson.org. For more information about the race itself, visit the Philadelphia Marathon Homepage.

Upcoming Events

Fundraising Events

Party for Parkinson's

5:30 pm to 9:30 pm EST
Party For Parkinsons 2024

Join us for another fantastic evening of fun, camaraderie, and raising money and awareness about the Parkinson's Foundation. Decorate and provide your own food/beverage for YOUR table based on our theme for 2025: The 1950's!

Partnership Opportunities

If you are interested in becoming a partner at this year's Party for Parkinson's event, please contact Diana Parrish at DParrish@Parkinson.org or 336-817-4190.

Event Partners will enjoy a wide variety of benefits, including prominently displayed signage at the event, verbal recognition, signage on auction tables and two (2) seats at the VIP Table.

Party for Parkinson's Video

The Party for Parkinson's event was captured by the talented owner of Salt Creek Films, Taylor Horton. Watch the full video below.

To see more content by Taylor and the Salt Creek Films team, visit www.SaltCreekFilms.com or check out their Instagram page at @SaltCreekFilms.

Couple Dancing Outdoors

Upcoming Events

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