Caregiver Corner

Finding Balance: 8 Tips for Avoiding Caregiver Burnout

Caregiver month

November is National Family Caregivers Month, a time to honor those who care for their loved ones. This year, the Parkinson’s Foundation is highlighting the importance of caregiver well-being and acknowledging the challenges of burnout. Addressing caregiver burnout is essential, as it often affects both the caregiver's health and the quality of care provided. 

Caregivers play a crucial role in the lives of people with Parkinson's disease (PD), providing invaluable support and assistance that enhances their quality of life. Life does not stop with a PD diagnosis — but PD and its symptoms change over time, as does the role of a care partner.  

Being a care partner can be rewarding, but the stress and change of caring for someone can be emotionally, mentally and physically draining. Recognizing caregiver burnout and its signs is essential for maintaining your well-being and providing the best possible care for your loved one. 

What is caregiver burnout? 

Caregiver burnout is a state of physical, emotional and mental exhaustion that may include a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don't get the help they need, or if they try to do more than they are able, physically or financially. 

Caregiver burnout symptoms can include: 

  • Fatigue 

  • Irritability, frustration or anger 

  • Feelings of hopelessness or helplessness 

  • Changes in sleep patterns 

  • Withdrawal from social activities 

Why Addressing Caregiving Burnout is Important 

Addressing caregiver burnout helps preserve the caregiver's well-being, ensures quality care for loved ones and fosters a supportive caregiving environment overall. 

You cannot pour from an empty cup. It’s important to give yourself time to rest and fill up. As a care partner, your well-being is foundational to sustaining compassionate care and providing support to your loved one.  

If you’re experiencing symptoms of caregiver burnout or are aiming to prevent it, here are eight tips that can help: 

Tip 1: Make Time for Yourself 

Carve out moments for self-care and relaxation. Taking breaks allows you to recharge mentally and emotionally, reducing the risk of burnout.  

Balance is key. While caring for others is important, neglecting your own needs can lead to exhaustion. Whether it's a short walk, reading a book or pursuing a hobby, these moments of respite are crucial for maintaining your well-being and sustaining your ability to provide support to your loved one over the long term. 

Carla Velastegui boat
MY PD STORY: Carla Velastegui

Since she was 15 years old, Carla Velastegui has been a care partner to her mother. She has learned along the way that taking time for herself is crucial to avoiding burnout.

Tip 2: Set Realistic Expectations 

Be realistic about what you can handle. Prioritize tasks and focus on what's most important. Understand your capabilities and limitations and ask for help when you need it. 

Tip 3: Celebrate Small Victories 

Celebrate small victories and recognize the progress you’ve made in your caregiving journey. These milestones, whether big or small, serve as reminders of your dedication and the positive impact of your efforts on your loved one's well-being. 

Tip 4: Delegate and Accept Help 

Even if you are the sole care partner for your loved one, don’t be afraid to ask for outside help. Whether that be family, neighbors, friends or professionals, know that you don’t have to do everything on your own. Asking a family member to sit and watch TV with your loved one while you go to the movies can be a welcome mini break.  

There are also many communities and online resources for care partners that offer support, information and practical advice to navigate the challenges of caregiving. 

Tip 5: Seek Emotional Support 

If you're unsure about what to expect or how to manage certain aspects of caregiving, don't hesitate to seek advice from healthcare professionals, support groups or experienced caregivers. They can provide valuable insights and practical tips based on their expertise. 

Connecting with others who understand your situation can be an effective way to reduce feelings of isolation and self-doubt as a caregiver. 

Going to therapy can also be a huge help in managing stress, providing a safe space to express your emotions, gaining perspective on challenges and developing coping strategies. 

Tip 6: Exercise Regularly and Get Enough Sleep 

While easier said than done for many, regular exercise has been linked to lower depression and stress levels. Find something you enjoy — whether it’s a walk in nature, yoga or going to a workout class. Exercise may also help you sleep better at night. 

Aim for seven to nine hours of sleep at night to maintain your physical and emotional health, which is crucial for effectively and sustainably managing the duties of caregiving. 

Tip 7: Stay Organized 

Staying organized can be a simple but effective way to reduce stress levels. Keeping track of appointments, medications and important information can help you avoid feeling overwhelmed. 

As a caregiver, you know some things are out of your control. Control what you can and try to stay flexible, keeping in mind some days (or hours) are better than others when it comes to PD symptoms.  

Tip 8: Incorporate Stress-Relief Techniques into Your Daily Routine 

Incorporating stress-relief techniques into your daily routine can improve your ability to manage burnout. Techniques like deep breathing exercises help calm the mind and reduce physical tension. Meditation offers a chance to practice mindfulness, allowing you to step back from stressors and regain perspective.  

Caregiver burnout can affect anyone helping a loved one with Parkinson's. Incorporating just some of these tips can help you avoid burnout and prioritize your own needs. 

We're here for care partners. For more information:  

  • Sign up for free online courses through our Care Partner Program 

Videos & Webinars

Exploring Next Steps in Care

July 17, 2024

Care needs in Parkinson’s change as symptoms progress.  This program will provide you with tools to help you decide when it’s time to ask for outside help.  Learn what you need to know to find the right kind of caregiver to meet your needs and discuss next steps to consider for care as Parkinson’s advances. 

Presenter

Joan Miravite, DNP, RN, FNP-BC, FAAN, FAANP
Assistant Professor, Icahn School of Medicine at Mount Sinai
Director of Interdisciplinary Clinical Care for Movement Disorders
Mount Sinai Beth Israel, Department of Neurology
Strauss Movement Disorder Center
Parkinson Foundation Center of Excellence

Educational Events

Veterans and Parkinson's: Mental Wellness

Virtual ( Zoom )
2:30 pm to 4:00 pm EST
FREE
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This program will bring awareness to the symptoms that are often unspoken among veterans with Parkinson’s. We will address the real impact of loneliness and isolation, offer strategies for managing post-traumatic stress disorder, and provide guidance on overcoming fears associated with symptoms. Explore resources and support options designed to relieve isolation and nurture meaningful connections.

Speaker

Ellen Bradley, MD 
Assistant Professor, Department of Psychiatry and Behavioral Sciences 
Weill Institute for Neurosciences  

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

 

The Parkinson's Foundation is proud to partner with U.S. Department of Veterans Affairs to improve the health, well-being and quality of life for veterans with PD.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

Community Walk Moville

Moving Day Community Walk is coming to Moville! You don't want to miss this! Our community is getting together to help raise awareness and funds for the Parkinson's Foundation.

Moville, IA
Educational Events

Care Partners of Veterans with Parkinson's Disease

Virtual ( Zoom )
2:30 pm to 4:00 pm EST
FREE
Veterans Webinar Banner

This program offers essential support and practical guidance for care partners of veterans living with Parkinson’s disease. Discover effective strategies for managing the evolving responsibilities of caregiving and learn how to access a range of valuable resources designed to enhance your caregiving journey.

Join us to deepen your understanding of the comprehensive care services and dedicated support available through the VA and the Parkinson’s Foundation, empowering you to provide the best care possible while prioritizing your own well-being.

Speaker

Corlynn Hullfish, LCSW
Caregiver Support Coordinator
Parkinson’s Disease Coordinator
Program of General Caregiver Support Services (PGCSS)
Respite Subject Matter Expert
Corporal Michael J. Crescenz VA Medical Center
(She/Her/Hers)

* While this webinar is designed for care partners, we welcome those living with Parkinson's disease to join us. Please note that the focus of this program is on supporting those who identify as care partners.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

Community Walk Moville

Moving Day Community Walk is coming to Moville! You don't want to miss this! Our community is getting together to help raise awareness and funds for the Parkinson's Foundation.

Moville, IA
Books

Care Partner Guide

Whether you are new to Parkinson’s disease (PD) or have been a care partner for a long time, the Care Partner Guide is specifically designed for you.

The guide is organized around five care partner wellness keys with strategies to help you:

  1. Build your support network.
  2. Balance daily caregiving with self-care.
  3. Strengthen relationship dynamics.
  4. Work as a team to manage PD.
  5. Plan for the future.

In addition to practical tips, you will find encouraging insights from other care partners, as well as activities, worksheets and important resources to support your journey.

Podcasts

Episode 172: Current Tools for Receiving a Parkinson’s Diagnosis

Parkinson’s disease (PD) is a “clinical” diagnosis, based on a person’s medical history, symptoms, and physical exam. Although certain laboratory or imaging tests can be helpful in reaching a diagnosis, no single test can confirm PD. Among the tests currently used to support a PD diagnosis, or to rule out other conditions that can mimic PD, are magnetic resonance imaging (MRI) of the brain, the dopamine transporter scan (DaTscan) to look at how dopamine is transported in certain areas of the brain, Syn-One, or skin biopsies, and blood work. 

Sometimes, a PD diagnosis is straightforward based on the presence of certain symptoms, but in other cases, it may take a number of clinic visits to make a definitive diagnosis. The best way to ensure a correct diagnosis of PD, or a similar condition, is to see a neurologist specializing in movement disorders. One of the leading Parkinson’s specialists is Dr. Michael Okun, National Medical Advisor for the Parkinson’s Foundation and Director of the Fixel Institute for Neurological Diseases at the University of Florida in Gainesville. In this podcast episode, he explains some of the current tools for making a Parkinson’s diagnosis, how they are used, and some of their limitations.

Released: October 22, 2024

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This podcast is sponsored by Biogen’s Luma study. For more information, go to LumaStudy.com.

Educational Events

Mind, Mood, and Motion

10:00 am to 3:00 pm EST
FREE
Mind Mood Motion Banner

Exercise is an essential part of overall Parkinson’s management.  In addition to helping with movement symptoms, exercise can have a positive impact on non-motor symptoms in Parkinson’s.  This program focuses on how exercise supports brain health and can lead to improved emotional and cognitive well-being.

This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required as in-person seating is limited

Attendance is free. Lunch will be served.

Featured Speaker:

Karen D. Sullivan, PhD, ABPP
Pinehurst Neuropsychology

Gold Sponsor

About the Speaker

Upcoming Events

Fundraising Events

Community Walk Moville

Moving Day Community Walk is coming to Moville! You don't want to miss this! Our community is getting together to help raise awareness and funds for the Parkinson's Foundation.

Moville, IA
Fundraising Events

12th Annual Shakin' Not Stirred

6:00 pm to 11:00 pm EST
SNS Gala Invitation

 

The Parkinson’s Foundation is proud to partner with Team KiMe to host the Shakin’ Not Stirred Gala. This premier fundraising event brings together people living with Parkinson’s and their families, leaders in Parkinson’s care and research, and individual and corporate supporters for an evening of live music, food, fun, cocktails, casino, and a live auction. 

The hour-long cocktail reception begins at 6 p.m. with the event starting at 7 p.m.

Educational Events

Parkinson's Symposium

1:00 pm to 3:00 pm EST
FREE
Symposium

In-person check-in starts at 12:00 p.m.

The Parkinson's Foundation and University of Michigan, a Parkinson's Foundation Center of Excellence, are excited to invite you to our Parkinson's Symposium

Giulia Carli, PhD, Postdoctoral Research Fellow at the University of Michigan will be speaking about how diabetes affects the brain and symptoms in people living with Parkinson's disease. 

Roger Albin, MD, Anne B. Young Collegiate Professor of Neurology at the University of Michigan and AD/R, VAAAHS GRECC Director at the UM Udall Center, will be sharing research findings with special emphasis on participation opportunities for people living with Parkinson's.

Karen Kluin, MS, CCC, BC-ANCDS, Supervisor in Speech-Language Pathology & Clinical Assistant Professor in the Department of Neurology at the Michigan Medicine-University of Michigan & University of Michigan Medical School, will discuss the common motor speech, language, and swallowing problems and review latest PD treatments and strategies.

Speakers

Giulia Carli, PhD
Postdoctoral Research Fellow
University of Michigan
Department of Neurology

Roger Albin, MD
Anne B. Young Collegiate Professor of Neurology
University of Michigan
AD/R, VAAAHS GRECC
Director, UM Udall Center

Karen Kluin, MS, CCC, BC-ANCDS
Supervisor in Speech-Language Pathology & Clinical Assistant Professor in the Department of Neurology
Michigan Medicine-University of Michigan & University of Michigan Medical School

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.


The Parkinson’s Foundation Great Lakes Chapter is pleased to be working with Michigan Medicine for the November 8th program in Ann Arbor, Michigan.

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Upcoming Events

Fundraising Events

Community Walk Moville

Moving Day Community Walk is coming to Moville! You don't want to miss this! Our community is getting together to help raise awareness and funds for the Parkinson's Foundation.

Moville, IA
Videos & Webinars

Expert Briefing: More Than PD - Managing Multiple Chronic Conditions

October 9, 2024

Parkinson’s is a complex disease with many symptoms that can lead to complications, such as falls and pneumonia. At the same time, people with Parkinson’s disease are at risk for other medical conditions that occur in the general population, including heart disease, arthritis, and diabetes.  Learn about coordination of care, medication management and what to know to achieve the best long-term outcomes.

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Additional Resources

Presenter

Christina Swan, MD, PhD
Assistant Professor of Neurological Sciences & Fellowship Director 
Division of Movement Disorders
Rush University Medical Center, a Parkinson's Foundation Center of Excellence

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