Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD

There are two sessions available each week: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants. The Foundation will provide resources to launch and maintain the network for a one-year period. 

Phase One will be 4 consecutive weeks via Zoom and will continue to meet thereafter via Zoom at a frequency to be determined by the participants through February 2023.

Phase One- 2023
Wednesdays, February 1, 8, 15, 22

Meeting time- 1 p.m. ET - 2:30 p.m. ET and /or 7:30 p.m. ET - 9 p.m ET

There is no charge to attend, but registration is required in order to receive the Zoom link.

EP Salud: Miércoles de Bienestar

Regístrese Aquí

El diagnóstico de una enfermedad crónica puede ser el comienzo de muchos desafíos. Aprender los matices de una enfermedad crónica es un viaje en sí mismo. Podemos concentrarnos mucho en navegar estos desafíos y perder de vista lo que es más importante: nuestras relaciones. Este taller le ayudará a comprender mejor las enfermedades crónicas y le brindará habilidades aplicables para mejorar sus relaciones.

Presentador

Federico Mendez, LMFT
Consejero clínico y técnico
Cannenta, Center for Healing and Empowerment
www.cannentacenter.com

Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, personas de apoyo y promotores de salud.

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa- PD Health @ Home en YouTube.

Check-in and Resource Fair starts at 9 a.m.

APDA Minnesota Chapter, Parkinson's Foundation, and the Udall Center at the University of Minnesota are the three leading organizations for Parkinson's disease advocacy in Minnesota. We are excited to invite you to the annual Spring Parkinson's Symposium on April 11, 2023. Attend in-person or online.

This event will feature a free vendor exhibit, lunch, and educational presentations about living well with Parkinson's disease. We will also have a panel discussion highlighting the stories and experiences of people with PD.

Speakers

• Managing Exercise as Parkinson's Progresses
  Beth Wittry, PT, DPT, Courage Kenny Rehabilitation Institute
• Research Overview: Gait and Balance
  Dr. Colum McKinnon, Udall Center at the University of Minnesota
• Urinary Issues & Constipation
  Dr. Martha Nance, Struthers Parkinson Center

For in-person attendees: Check-in and resource fair is from 9 a.m - 9:45 a.m. A boxed lunch will be served at 11:30 a.m.

For virtual attendees, via Zoom: The morning's presentations (from 9:45 a.m to 11:30 a.m.) will be shared virtually. The entire program will be recorded and available for viewing on the 3 organizations' websites 1-2 weeks after the symposium.

This program is open to people with Parkinson's, their family, friends and the community.

Wellness Wednesdays: Mental Wellness Series

Although Parkinson’s disease (PD) is known as a movement disorder, for many people living with PD, mood disturbances, such as depression, anxiety and apathy, are some of the most troublesome symptoms. Recognizing mood changes and deciding when it’s time to seek help are the first steps to building your mental health team. An important part of this process is finding and connecting with the right specialists.

Join us to learn how others are managing mental health challenges and building their mental health team during this candid, virtual conversation.

Speakers

Jessica Shurer, MSW, LCSW
CurePSP, Director, Clinical Affairs & Advocacy

Lance Wilson, LSW, C-SWHC, ASW-G
Jefferson Health Comprehensive Parkinson's Disease & Movement Disorder Center, Education Outreach Coordinator

Rosemary Pierce, BSN, Person with Parkinson’s

Dan Novak, PhD, Person with Parkinson's
Parkinson's Foundation Ambassador

There is no charge to attend, but registration is required.

Join health psychologist, Taylor Rush, PhD, as she explores different dimensions of a mindfulness practice. She will share ways to ground and settle the mind and body. These mindfulness techniques can offer moments of respite and clarity that can be useful throughout your week. Find a comfortable seat and join your mindful Parkinson's community for a special session.

Whether this is your first mindfulness Monday or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.

Speaker

Taylor Rush, PhD, Health Psychologist
Director of Behavioral Services and Interdisciplinary Programs
Center for Neurological Restoration
Cleveland Clinic, A Parkinson's Foundation Center of Excellence

There is no charge to attend, but registration is required.

Mindfulness of breath is one of the cornerstones of meditation practice. In this session we will review the benefits of bringing awareness to the breath in relation to managing symptoms of Parkinson’s and offer a guided meditation on mindfulness of the breath.

Whether this is your first mindfulness Monday or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.

Speaker

Nico Hase, PhD

There is no charge to attend, but registration is required.

Participants will learn how research helps shape treatments and identify new care strategies for managing Parkinson’s symptoms. This program will also provide information on current research in Parkinson’s.

*This program may include moderately scientific terms and concepts.

This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required as in-person seating is limited.

Speakers 

Jeffrey H. Kordower, PhD, Center Director & Professor, ASU Banner Neurodegenerative Disease Research Center (NDRC)

Tom Beach, MD, PhD, Director, Brain and Body Donation Program, Banner Sun Health Research Institute

Chapter Supporters
The Parkinson’s Foundation is grateful for the unwavering support of our Program Sponsors. We invite you to view our full list of sponsors and learn more about them by visiting our Chapter Supporters Webpage.

Check-in and Vendor Visits start at 4 p.m.

Most people with Parkinson’s disease (PD) will experience changes in speech, voice and swallowing at some point during the course of the disease. Learn tools and exercises to help you better understand and manage speech, swallowing and communication problems in PD.

Speakers

Eric Jackowiak, MD
Neurology, Froedtert and Medical College of Wisconsin

Elizabeth Kelley, SLP
Froedtert

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.