My PD Story

Hi, my name is Marjorie Webb. My Parkinson's story began a few months before the "COVID shut down" in 2020. Toward the end of 2019, I began having several unusual symptoms —I fell several times and just didn't quite feel like myself. 

I went to my primary care doctor who immediately began testing. Some of my tests were delayed due to the challenges of trying to schedule them during a global pandemic. Even our large academic medical center was operating on reduced capacity for non-emergent conditions. Many tests later my diagnosis was neurological, but not certain what it was. My Neurologist worked diligently to try to help me with my early symptoms. 

Fast forward to spring of 2024. Something crazy but very telling happened. My gait started freezing. This would happen at the top of the stairs or when I moved from room to room. I was then sent to a Movement Disorders Specialist at The University of Alabama at Birmingham and received a diagnosis of Parkinson's disease (PD) in the summer of 2024. 

I began Sinemet and Entacapone was added later. These medications helped immensely however, I still had a great deal of "off time" — which is when the effects of Parkinson’s medication dosages may not last as long, leading to "off" periods, when symptoms return between doses. During the summer of 2025 I was approved to receive the Vyalev pump from Abbvie. It has been a game changer. 

Additionally, I was very motivated to participate in the PD GENEration genetics study. I wanted to know more about my Parkinson's and perhaps be able to inform my children of any known genetic ties to PD. It was very informative and continues to be. 

After receiving my PD GENEration information, I actively look for research studies. I think that participation in research is essential.

I am back to my old self most days. I now have less "off time" and sleep so much better. I currently participate in any Parkinson's research I am eligible for. I believe that research is what leads to better treatment like the Vyalev, and eventually a cure.

The only way we will find a cure for Parkinson’s is through research. Explore the different opportunities to get involved with Parkinson’s research today.