Are you a nurse educator? Apply to The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation to help us prepare the next generation of nurses to care for the growing population of people with Parkinson’s disease (PD).
The 50-hour accredited train the trainer Nurse Faculty Program improves PD nursing care by training faculty leaders across the U.S. to educate nursing students. To date the program has trained more than 300 nurses who in turn educate an estimated 24,000 nursing students each year to meet this need.
Background and Goals
Nurses are critical to Parkinson's care. As the global population ages, and with the current shortage of neurologists specializing in the disease, it is pressing to prepare nurses how to treat Parkinson's. Estimates show the number of people living with Parkinson's in the U.S. is expected to rise to 1.2 million by 2030.
Established in 2009, the program offers faculty members from undergraduate nursing programs a 50 continuing education unit (CEU) approved time, that includes academic instruction, hands-on experience with Parkinson’s patients, independent study and mentorship from nurse specialists at nationally recognized movement disorder centers. The Parkinson's Foundation has hosted the program since 2014 as part of its commitment to training health care professionals.
- Enhance the knowledge and confidence of nursing faculty in developing course content, delivering lectures and providing clinical mentorship on Parkinson’s in undergraduate schools of nursing.
- Develop a long-term relationship between participating guest nursing faculty scholars and Parkinson’s experts at nationally recognized movement disorder centers.
- Prepare baccalaureate nursing graduates to care for people living with Parkinson’s, caregivers and families.
Co-Founder and National Director
Gwyn M. Vernon is a certified registered nurse practitioner who has cared for people living with Parkinson's since 1982. She is passionate in caring for those with Parkinson's and educating future generations of nurses on Parkinson's care.
Gwyn is the national director of The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation, which she co-developed with Lisette Bunting-Perry, PhD, RN. Gwyn is one of the founding members of the Parkinson's Disease and Movement Disorders Center, Penn Medicine Neuroscience Center at Pennsylvania Hospital in Philadelphia. In addition to direct patient care, she has served as coordinator of the center and clinical researcher in past years.
She has authored more than 45 peer reviewed articles and chapters on Parkinson's and co-authored Comprehensive Nursing Care for Parkinson's Disease. Gwyn speaks nationally and internationally on the topic. She obtained a master's degree in community health education and a Master of Science degree in nursing from the University of Pennsylvania.
The Parkinson’s Foundation also acknowledges the contributions of co-founder Lisette Bunting-Perry, PhD, RN, in developing this program.
- All scholars who enroll and are accepted will be given a link to the self-paced modules (nine hours) that must be completed prior to the advanced content days. Scholars can complete modules and repeat sections at their own pace. Modules will be available from September 1 to November 10, 2022.
- Scholars will register for one of the three three-day on-site programs offered at:
Option 1 (Available through September 10)
October 3 – 5, 2022
Muhammad Ali Parkinson’s Center, Phoenix, AZ
November 8 – 10, 2022
Struthers’ Parkinson’s Center, Golden Valley, MN
To be rescheduled
Virtual training for advanced content over two sessions:
October 27, 2022 from 12:15 p.m. to 5 p.m. EST and
October 28, 2022 from 9 a.m.to 1 p.m. EST
For scholars who choose the virtual option 4, clinicals will be scheduled separately and individually, and will require travel for most scholars
May 2 through October 15, 2022
Applicants will be notified of acceptance by:
October 25, 2022
Part 1 – self paced online sessions
Must be completed ONE FULL week prior to start of advanced training
Part 2 – Advanced In-person training OR Live Virtual Sessions
Part 3 – Clinical Work/Support Group/
Part 4 – Independent Project
Upon completion, the scholar will receive a $2,000 stipend and 50 nursing contact hours.
This continuing nursing education activity has been submitted to the American Association of Neuroscience Nurses, an accredited approver by the American Nurse Credentialing Center’s Commission on Accreditation to offer a maximum of 50 nursing contact hours.
This continuing nursing education activity was approved by the American Association of Neuroscience Nurses, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation and offers a maximum of 50 nursing contact hours.
Both scholars and auditors are eligible for CEUs.
Scholars receive a $2,000 stipend after completing all requirements, including an independent project. The program includes a project to give nursing faculty the opportunity for self-directed learning. The project should contribute to nursing education on Parkinson’s and/or enhance the overall care of people with Parkinson’s and their families. The program director and nurse experts at the host sites will discuss projects with scholars and guide or mentor as needed.
Scholars (but not auditors) are eligible for a stipend.
- Introduction to epidemiology, signs, symptoms, presentation and progression of Parkinson’s and the chronic care model.
- Nursing care of a person with PD and family from early through advanced disease.
- Medical management of Parkinson’s.
- Surgical management of Parkinson’s.
- Basic, clinical and nursing research in Parkinson’s.
- Resources for a person with PD and the family.
- Role of the multidisciplinary team and rehabilitation strategies in PD.
- Parkinson’s disease curriculum development in schools of nursing
This continuing nursing education activity was approved by the American Association of Neuroscience Nurses, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation and offers a maximum of 50 nursing contact hours.
"The program has given me a scholarly focus to pursue research."
"Truly the best continuing education program I’ve ever attended."
"The faculty experts who mentored me were incredible and so dedicated to their patients."
"The program is full of practical information from which I have drastically changed my clinical practice and teaching of students."
"Parkinson’s disease has become part of my nursing, my teaching and my life."
"The nurses mentoring me were so knowledgeable and I was amazed at their personal relationships with their patients."
Below we answer the most common questions about The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation. If you have additional questions, please contact us at Nursing@Parkinson.org.
We welcome applications from nursing faculty members in schools of nursing in the U.S. and internationally who can share their new Parkinson’s knowledge with nursing students. The program is also open to other nurse educators such as hospital and long-term care in-service instructors and adult/geriatric nurse practitioners if space allows. We call these participants “auditors.”
Yes, we accept international participants. However, the program does not cover travel/lodging costs.
For 2022, the program will accept approximately 20-25 scholars per program.
The application deadline for 2022 is September 15, 2022.
You can apply online here. Please indicate whether you are applying as a nurse faculty or as an auditor. When applying, please be prepared to submit your:
- Statement of purpose (why you want to attend the program)
- Two professional references
- Two reference letters
You should hear from the National Director within 2-3 weeks of submitting a completed application online.
Our hybrid program models for 2022 include two clinical days for programs where the scholar will be on site three days. These are:
- Muhammad Ali Parkinson’s Center, Phoenix, Arizona
- Struthers Parkinson’s Center, Golden Valley MN
- University of California/San Francisco Veterans Administration
Scholars enrolled in the live zoom sessions for advanced content (October 27 and 28, 2022) will work with the National Director to schedule clinicals at an approved Parkinson’s clinic with recognized Parkinson’s experts. This may require travel by the scholar at their expense.
Are you a nurse who works with people with Parkinson's? Our Nurse Webinar Library is designed for and by the Edmond J. Safra Visiting Nurse Faculty Program scholars at the Parkinson's Foundation exploring the latest PD care innovations.
Nurse scholars represent an innovative nurse educator network working with the Foundation to advance research, care and nursing education. The on-demand webinars below support their ongoing instruction and collaboration. Other professionals who share these goals are invited to view the series.
This series supports the Parkinson's Foundation's mission to make life better for people with Parkinson's disease by improving care and advancing research towards a cure. Support from the Edmond J. Safra Foundation and Lundbeck LLC makes it possible.
2021 Edmond J. Safra Visiting Nurse Faculty Alumni Awardee
Mo Kyung Sin, PhD, RN, is an associate professor at Seattle University, Seattle, WA, and alumni of the 2019 Visiting Nurse Faculty Program held in Seattle, WA. In addition to classroom content in Parkinson’s disease, Dr. Sin has developed the “Nursing Student Ambassador Program,” a unique curriculum on PD for students in their junior and senior years.
The Nursing Student Ambassador Program consists of two components. The first component of the program is designed for junior-level students. Juniors receive didactics on PD integrated into the Health Assessment and Intervention course covering the pathophysiology of PD, motor and non-motor symptoms, as well as case studies focused on orthostatic hypotension identification and accompanying fall risks. In addition, the cases teach the identification and differences in the assessment of essential tremor and resting tremor and freezing of gait.
The second component of the Nursing Student Ambassador Program is designed for seniors and consists of a competitive exemplar. Six students are selected through a competitive process for the senior exemplar. To be eligible, students must have completed a research course and express great interest in learning more about PD and/or intend to pursue a career in neurology nursing. The students attend a one-day course led by Dr. Sin and guest PD experts. After the course, the students are divided into two groups and challenged to develop an evidence-based project and manuscript.
Professor Sin’s assessment of the Nursing Ambassador Program showed a significant increase in knowledge of PD and a sense of competency in the care of those with Parkinson’s disease. Student feedback on the program was positive, and under Professor Sin’s guidance, the students have published three papers related to their project. The papers are listed below.
Ho, H., Jose, I., Cheesman, M., Garrison, C., Bishop, K., Taber, S., Witt, J., Sin, M.K. (2021). Depression and anxiety management in Parkinson’s disease. Journal of Neuroscience Nursing, 53(4), 170-176.
Garrison, C., Bishop, K., Taber, S., Ho, H., Jose, I. Khemani, P. , Sin, M.K. (2021). Insomnia: An underrecognized nonmotor symptom in Parkinson’s disease. The Journal for Nurse Practitioners. http://doi.org/10.1016/j.nurpra.2021.03.004.
Cheesman, M., Bishop, K., Ho, H., Sin, M.K. (in press). Constipation management in Parkinson’s disease. Journal of Neuroscience Nursing
2020 Safra Nurse Scholar Alumni Awardee
Diane is Clinical Assistant Professor at Villanova University, Villanova, PA. She has exhibited a long-term commitment to excellence in educating nurses about PD and has been an advocate for improving patient care. She was a participant in our pilot VNF held in Philadelphia, PA, in 2009. Since then, she has continued to develop creative programs for her nursing students as well as complete research on patient medication safety during transitions. In the process, Diane has utilized her colleagues in the nursing school who have developed a passion for PD as well.
More recently, Diane has developed an interprofessional program between her nursing school and Philadelphia College of Osteopathic Medicine, bringing together nursing, medical, psychology, and nurse anesthetists in simulated PD case work. She has researched the effectiveness in her methods in “Parkinson’s medication error and mock code simulation: Impact on students’ perceived comfort and competency in working with interprofessional teams”.
Diane has published her work in Nursing Education Perspectives and presented her work at the Collaborative Family Healthcare Association Virtual Conference, 2020, the Quality and Safety in Nursing Education Forums, the World Parkinson Congresses and several other venues. Diane was recently recognized in “Nova Worthy, 2020” for her committed care to championing patient care in groundbreaking ways.
In 2018, Stephanie attended The Edmond J. Safra Visiting Nurse Faculty Program at the University of Toledo. The training and experiences provided there convinced Stephanie that she had to find a way to improve the quality of life for those living with Parkinson’s in Northwest Missouri and Northeast Kansas. Stephanie was chosen for her excellent and most comprehensive efforts to improve quality of life for those with Parkinson’s, her contributions to nursing education for PD and her advocacy work.
After returning to Missouri after her VNF experience, Stephanie sought out others interested in making a difference and found two women who possessed equal passion and drive. Stephanie, Dr. Maureen Raffensperger (physical therapist), and Tara Patterson (martial arts and boxing instructor) shared a dream to create a free PD exercise program in St. Joseph, MI. In 2018, Live with PD! was born and began offering three boxing and one BIG AMPLITUDE exercise class (based on LSVT Big) per week. Later, Live with PD! joined the Freudenthal Family (a home health entity) and became the Freudenthal Center for Parkinson’s Disease. Stephanie and her team have continued to develop the center which now offers Singing for PD. The sessions are well attended, and plans are in progress to include cycling, dancing, yoga, Tai Chi, caregiver supports, educational programs and social services. A nurse navigation component is included which provides research for Stephanie’s doctoral thesis.
Additionally, Stephanie has plans to develop and implement a nurse navigator program as the culmination of her doctoral studies. Stephanie plans to undertake a capital campaign in the next several years and her goal is raise $3.5 million to build a Parkinson’s Center for these important community services for those with Parkinson’s disease.
Along with her active role in the community Stephanie maintains an active agenda of teaching nursing students about Parkinson’s and getting them involved. Students participate in a 7-week blog with patients and caregivers providing them with an active learning experience and receive an updated evidenced based lecture. A simulation lab Stephanie has created uses a home care Parkinson’s patient case study. For teaching research strategies, Stephanie is working with her nursing students on assessing nurses’ knowledge on Parkinson’s.
Stephanie works hard in the community and is involved in advocacy work for Parkinson’s disease. Examples include arranging speakers for the local support group, participating in Moving Day 2019 with the Parkinson’s Foundation Heartland Chapter and participating as an Aware in Care Ambassador. She has also presented on needs of those with Parkinson’s disease for staff at a local hospital.
Stephanie takes advantage of opportunities to keep herself up to date on Parkinson’s disease and she, her team members and two of her nursing students attended the Foundation’s Team Training program. Additionally, to keep her skills and knowledge current, Stephanie audited a 2019 Edmond J. Safra Visiting Nurse Faculty Program and participated in a back to clinic day at Struthers’ Parkinson’s Disease Center in Minneapolis, MN.
The 2018 Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation annual award is given to two colleagues from Louisiana Tech University, Tara Haskins, DNP, RN, Associate Professor, and Donna Hood, PhD, RN, CNE, Professor and Nursing Director. Drs. Haskins and Hood attended the 2017 program hosted by the University of Alabama at Birmingham.
Drs. Haskins and Hood became interested in Parkinson’s when they were introduced to a Rock Steady Boxing Class locally and then attended the Edmond J. Safra Visiting Nurse Faculty Program at the University of Alabama at Birmingham in 2017. Their project was to develop a phenomenological research study of care partners of the Rock Steady Boxing program (publication pending). Part of the outcome of this study was a demonstrated need for more education and support for those facing the uncertainty of the physical, emotional and cognitive symptoms of PD. In searching for resources in their area, Drs. Haskins and Hood found only 5 resources groups/medical communities in the state of Louisiana addressing PD, and very limited access to PD resources and support in the rural northeast and central areas near Louisiana Tech University in Ruston, LA. To addresses their findings, Drs. Haskins and Hood have developed a 4-year plan which brings together University resources to establish a PD Information Center. The Center will train nursing students and leverage multiple disciplines including speech/audiology, kinesiology, nutrition, dietetics and biomedical engineering, developing future leaders while providing resources and interventions for the PD community.
Dr. Haskins holds the Lincoln General-Glenwood Endowed Professorship at Louisiana Tech University and is an Associate Professor. She is a certified Family Psychiatric Mental Health Nurse Practitioner and has been recognized for her excellence with multiple awards, including the 2018 Louisiana Tech University Foundation Professorship Award for Research, Teaching and Service. She holds a DNP from the University of Tennessee at Memphis, a MSN from the University of Texas at Tyler and a BSN from Northwestern State University, Shreveport, LA
Dr. Hood is the Professor and Director, Division of Nursing, Louisiana Tech University. She is a certified nurse educator and has been recognized for her leadership with the 2018 Louisan Nursing School Administrator of the Year award. She is a certified qualitative researcher, holds a PhD from the University of Texas at Tyler and a MSN and BSN from Northwestern State University, Shreveport, LA.
Debra attended the “VNF” at the Muhammed Ali Parkinson’s Disease Center in 2016. Since then she has spoken at her college conference to RN, LPN, NA, and care techs by showing on/off videos, addressing meds on time, safety, exercise and non-motor symptoms. She has influenced over 100 nurses in her first year since completing the “VNF”. She is furthering her efforts to bring knowledge on PD to others by joining her university’s network for humanities, art and neurodegenerative care, a program bringing art and music to those with neurodegenerative processes. Since Debra still occasionally “works a hospital shift” she has been able to influence hospital nurses’ understanding of PD care and share the Aware in Care Kit. Debra has been able to help a close family member who has PD by recognizing that there is so much more to one’s care and needs than she had previously appreciated.
“Prior to my attendance at the Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation, I felt that I had completed my schooling; having completed my Associate’s and bachelor’s degree in Nursing, followed by my Master’s Degree in Nursing in 2016. However, the program ignited my new aspiration to obtain a Doctorate in Nursing and pursue a career in Parkinson’s Disease and Movement Disorders.”
Dr. Kelly is Associate Professor and Program Director at Columbia University School of Nursing and Dr. Leiningen is Assistant Professor at Monmouth University School of Nursing and Health Studies. Both maintain clinical nursing practices.
After completing their training with the Nurse Faculty Program in 2015, Drs. Kelly and Leiningen developed a 15-week interactive educational activity “Meet Val And Holly: An Experiential Tour Through the Lives of A PD Family,” for their nursing curriculums, which they presented at the 4th World Parkinson Congress in Portland, OR. It walks nursing students through the journey of a person with Parkinson’s and care partner as they cope with a new diagnosis. Throughout the semester-long activity, as students read the journal of “Val and Holly” and submit assignments, we introduce them to Parkinson’s complexities — motor and non-motor symptoms, medication management, nutrition, home safety, care partner stress, adaptive equipment and resources — and the role nurses play in helping people to cope and live well.
The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation congratulates and thanks Drs. Kelly and Leiningen for their work as it relates to nursing education to improve care in Parkinson’s.
Dr. Altmiller is Associate Professor at the College of New Jersey and a clinical specialist at Albert Einstein Medical Center. She is an exceptional teacher, having been recognized for her excellence in nursing education with the 2014 Lindback Award for Distinguished Teaching.
Dr. Altmiller has rapidly integrated her “VNF” experience into her career in nursing and nursing education, and has had an impact on the field by through the development of tools she is sharing with fellow nursing educators across the U.S.
After her training with VNF, Dr. Altmiller developed and published a case study entitled, “Unfolding Case Study: Applying the QSEN Competencies to the Care of Patients with Parkinson’s Disease," on QSEN, a website highly utilized by nursing faculty around the country. Her case study addresses patient safety in Parkinson's disease. She also presented the case study on PD at the annual meeting of QSEN in San Diego in May 2015. It is now available as a free tool for nursing educators around the U.S. In a very short time, it has had far reaching impact, with nursing professors from across the country using her case study to teach their students about safe Parkinson's disease care.
In addition to Dr. Altmiller’s QSEN work, she has published about quality and safety in graduate and undergraduate nursing education and spoken nationally at other conferences on this topic. She focuses her research on health care delivery communication challenges and educational and clinical arena incivility challenges, which have negative effects on patient safety. The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation congratulates and thanks Geralyn for her work on the behalf of nursing education and Parkinson’s disease patient safe care.
Dr. Prettyman is the Nurse Managed Health Center director and School of Nursing at the University of Delaware assistant professor.He co-directs the university’s Parkinson’s Clinic with 2010 awardee Ingrid Pretzer-Aboff. Dr. Prettyman attended the program at Johns Hopkins University in 2013. He has a broad nursing background with specific preventive healthcare expertise. He led the March 2014 opening of the Parkinson’s Disease Telehealth Clinic in Newark, Del., which he and Pretzer-Aboff designed along with other colleagues to serve patients living far from easy access to PD experts. It allows people with Parkinson’s, without easy access to expert care, to telecommunicate with internationally known PD neurologists. This innovative clinic demonstrates that strong leadership and vision can combine clinical services, academic mission and research outcomes into an integrated and effective healthcare model. Dr. Prettyman is proud that he could provide an immersive educational platform focused on PD for three graduate nursing students and 11 undergraduate students in the clinic’s first six months. He plans to soon expand PD immersion for graduate and undergraduate students.
Dr. Rowe has been a nursing educator since 1989. Chronic illness, family nursing, simulation and curriculum development are the focus of her most recent teaching. She consults across the country on learning theory in nursing education, simulation design and curriculum, and has won teaching and scholarships awards at the University of Portland. Recently Linfield College-Good Samaritan School of Nursing appointed her full professor. She was hired to help implement a competency-based curriculum.
Dr. Rowe was chosen in appreciation of her work as the editor on the leading nursing textbook on U.S. family nursing, now used in more than 100 nursing schools. Her Edmond J. Safra Visiting Nurse Faculty Program project was including a chapter on Parkinson’s disease in the context of families dealing with chronic illness in this book. This effort to enhance nursing education on Parkinson’s disease has the potential to reach thousands of nursing students in the U.S. and Canada.
Johanna Romero deSlavy participated in The Edmond J. Safra Visiting Nurse Program at the Parkinson’s Foundation at Johns Hopkins University in 2011. Mentored by Margaret McCormick (2011 Awardee), she took the PD simulation laboratory experience outside the university and into the hospital setting, educating newly hired nurses on Parkinson's care. She is helping to meet the needs of Parkinson's patients in the acute care setting. She is co-author with Ms. McCormick on "Teaching with Technology: Improving critical thinking through the use of a simulated unfolding case study in Parkinson's Disease," in the Journal of Neuroscience Nurses in February 2013.
Margaret participated in the 2010 Johns Hopkins University program. An excellent nursing educator at Towson University in Maryland, she developed “Teaching with Technology: Improving Critical Thinking Through the Use of a Simulated Unfolding Case Study on Parkinson’s Disease.” Her project recognizes the power of simulation labs in nursing education. Many universities plan to replicate this model for nursing student Parkinson’s disease education. Her unfolding case study follows a patient from early diagnosis to the middle stages of Parkinson’s, and then on to the advanced care period. She integrates family involvement and caregiver roles by having some students role-play parts, while others are nurses and the voice of the patient. Ms. McCormick presented her work at the 2010 Second World Parkinson Congress in Scotland. More recently, she completed an article with co-author Rebecca Dunlop, BSN, RN, host site coordinator for the program at Johns Hopkins University, entitled "Placebo surgery in clinical trials research for Parkinson's Disease," which is now in press.
Dr. Pretzer-Aboff received the first-ever Alumni Award in 2010. She participated in the 2009 pilot program. She continues to be actively involved in improving the lives of those with Parkinson’s disease through her research in a home exercise PD program that incorporates supportive telephone care and home visits. She also established a group exercise program for those with Parkinson’s disease, assisted with a PD support group, assisted with establishing an alliance of PD support groups and presented a poster on PD at the 2nd World Parkinson Congress in Scotland, 2010. Never to tire, she also visited her state Senator and advocated for the hiring of a movement disorder trained physician for the state of Delaware which previous to her involvement had none.
Most recently, Dr. Pretzer-Aboff has been the driving force behind the first nurse managed Parkinson's disease telehealth clinic at the University of Delaware, which opened in March 2014. Her current research is a collaborative study with the Department of Engineering at the University of Delaware to evaluate the effect of step synchronized vibration on people living with Parkinson's disease.
Password Protected Scholar Page
This repository is for Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson’s Foundation alumni and includes a link to the alumni book and independent projects.
To access this page, you must be a scholar of the program. If you are a scholar and you have not received the password for page access, please contact Gina Dyer at GDyer@Parkinson.org.
This award supports up to a maximum of $10,000 for three (3) alumni to take their EJS VNF Program independent project to the next step or to explore expanding another idea that would enhance their ability to teach about Parkinson’s or increase learning of Parkinson’s disease among nurses, students, or patients. Only EJS VNF Scholars who have completed their Independent Project may apply.
When applying, please address the scope of impact that your project will have on the PD community, for instance, distinguish if an immediate vs long term impact, or research vs community impact project. The Grant Awardee will also be matched with a Nurse Mentor, for a period of one-year, to offer guidance, support and encouragement to help cultivate the development of the project.
Applications OPEN: September 12 - November 14, 2022
The Parkinson’s Foundation Nurse Faculty Award is for a maximum of $10,000 a year. Up to 10% of the award total, i.e., $1,000, may be used to defray indirect costs. Salary support is permitted.
This award is open to EJS VNF Scholars who completed their Independent Project only.
The application process will be open from Monday, September 12th through Monday, November 14, 2022. Review will take place in November/December and notices of award will go out in December 2022.
Diane M. Ellis, MSN, RN, CCRN
Research Scholar, Villanova University
Edmond J. Safra Nurse Faculty Scholar, University of Pennsylvania 2009
Diane’s project will further her prior works on Medication Safety in PD during transitions. She has been conducting research on this topic within nursing student groups, interprofessional groups and will now study hospital care staff nurses. Prior research indicates hospitalized patients with PD often do not receive their medications on time, experience an abrupt stoppage, have medications omitted or inappropriately prescribed such as antidopaminergic medication, with 61 percent of patients suffering poor outcomes. These adverse events during hospitalization contribute to overall decline in patients with PD and even death.
To improve quality and safety among this population, a study focusing on the omission of time sensitive medications will be conducted at two to three large academic healthcare institutions. Pre- and post-test results will be compared before and after an educational intervention among approximately 600 clinical nurses. This study holds great potential for dissemination among clinical nurses for improvement of quality and safety for those living with PD.
Carey Heck, PhD
Director, Adult Gerontology Acute Care Nurse Practitioner Program, Thomas Jefferson University
Edmond J. Safra Nurse Faculty Scholar, Muhammad Ali Parkinson’s Center 2020
Dr. Heck’s project will focus on discussing difficult news in PD. Receiving the initial diagnosis of Parkinson’s disease is a significant life event for many individuals. Studies have demonstrated the positive impacts of skillful provide communication around this event, often termed discussing difficult news or “breaking bad news.” Conversely, negative impacts are experienced by both patient and provider with inept communication. Nurse practitioners (NPs) scope of practice includes the diagnosis and management of acute, chronic, and complex health conditions. Diagnosis and prognosis discussions are often new skill sets for nurses transitioning to an NP role. Current NP curricula offer little formal training on this essential skill. As a result, NP students often feel ill-prepared to discuss new diagnosis with patients causing distress and potentially negatively impacting patient experiences.
The SPIKES protocol is a validated framework for discussing difficult news with patients and families. This project serves as the first of a three-part series consisting of a learning module and simulation session for training NP students. This project offers learners a robust experience in the safety of a simulated environment with faculty support and oversight.
Char Miller, DNP
Edmond J. Safra Nurse Faculty Scholar, University of Toledo 2018
Ju Young Shin, PhD, APRN, ANP-C
Edmond J. Safra Nurse Faculty Scholar, John’s Hopkins 2013
Lori Cooke, DNP, Med, RN-BC
Edmond J. Safra Nurse Faculty Scholar, University of Toledo 2018
Aggarwal, R., Pretzer-Aboff, I., Winfree, K.N., Dhankar, G, Shiva, T., Vashista, V., Behari, M. (2019). Clinical outcomes of step synchronized vibration training in Parkinson’s disease patients with freezing of gait. Annuals of Movement Disorders, 2(1), 15.
Ahn, S., Chen, Y. Bredow, T., Cheung, C. Yu, F. (2017). Effects of non-pharmacological treatments on quality of life in PD: A review. Journal of Parkinson’s Disease and Alzheimer’s Disease. 4(1): 10.
Bartzak, P.J. (2016). Orthostatic hypotension as an expression of autonomic dysfunction occurring in the Parkinson’s patient. MEDSURG Matters, 25(6), 1-9.
Beck, C.A., Bera, D.B., Biglan, K.M., Boyd, C.M., Carter, J. Dorsey, ER et al (2017). National randomized controlled trial of virtual house calls for Parkinson’s disease. Neurology, 89(11), 1152-1161.
Beitz, J. (2013). Skin and wound issues in patients with Parkinson’s: An overview of common disorders. Ostomy Wound Management, 59 (6): 26-36.
Beitz, J. (2014). Parkinson’s disease: A review. Frontiers in Bioscience, 6(1), 65-74.
Bhimani, R. (2014). Understanding the burden of caregivers of people with Parkinson’s disease: A scoping review. Rehabilitation Research and Practice. http://dx.doi.org/10.1155/2014/718527
Biller, T; Fatterpekar, G; Nirenberg, M; Brys, M. (2016). Late onset Wilson's disease with central pontine and extrapontine MRI changes. Parkinsonism & Related Disorders, Vol. 22: e140.
Boersma, I., Jones, J., Carter, J., Bekelman, D. Miyasaki, J., Kutner, J., Kluger, B. (2016). Parkinson’s disease patients’ perspectives on palliative care needs: What are they telling us? Neurology Clinical Practice 6(3): 209-219.
Boersma, I., Jones, J., Coughlan, C., Carter, J., Bekelman, D. Miyasaki, J. et. al (2017). Palliative care and Parkinson’s disease: Caregivers’ Perspectives. Journal of Palliative Medicine, 20(9): 930-938.
Carter, J., Lyons, K., Stewart, B., Archbold, P. Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young vs. older caregivers in early stage Parkinson’s disease. Movement Disorders, 25(6): 724-30.
Carter, J. Stewart, B, Lyons, K., Archbold, P. (2008). Do motor and nonmotor symptoms in Parkinson’s disease patients predict caregiver strain and depression? Movement Disorders, 23(9):1211-1216.
Cheesman M, Ho H, Bishop K, Sin MK.(2021). Constipation Management in Parkinson Disease. J Neurosci Nurs. 2021 Dec 1;53(6):262-266. doi: 10.1097/JNN.0000000000000611. PMID: 34369433.
Cho, M. (2012). Expanding Your Knowledge to Give Good Quality Nursing Care” http://www.nursetogether.com/continuing-education-quality-nursing-care.
Cheung C, Bhimani R, Wyman JF, Konczak J, Zhang L, Mishra U, Terluk M, Kartha RV, Tuite P. (2018). Effects of yoga on oxidative stress, motor function, and non-motor symptoms in Parkinson's disease: a pilot randomized controlled trial. Pilot Feasibility Stud. 2018 Oct 23;4:162. doi: 10.1186/s40814-018-0355-8. PMID: 30377537; PMCID: PMC6198358.
Rantuzzi, A. D. (2020). The rise of dementia with Lewy Bodies. Journal of Neuroscience Nursing, 52(6), 311-315. DOI:10.1097/JNN.0000000000000540.
Davis, A., Moore, L., Farmer, J., Lewis, S. (2021). Development and implementation of virtual clinical skill experiences for psychiatric nurse practitioner students. Journal of the American Association of Nurse Practitioners. DOI: 10.1097/JXX.0000000000000669.
DeJong, J. Doebbeling, K., Haugen, A., Leen, N., & Scherer, C. (November 2016-January 2017). Knowledge and Confidence Levels of Senior-Level Nursing Students in the Care and Treatment of Individuals with Parkinson's Disease. The North Dakota Nurse: A Publication of the North Dakota Nurses' Association, Bismarck, ND.
DiBartolo, M.C. (2017). Enhancing care for the hospitalized patient with Parkinson’s disease: Development of a formal educational program for nursing staff. Journal of Gerontological Nursing, 43(5), 18-22.
DiBartolo, M. (2016). Comorbidities Matter: A call to improve care for hospitalized patients with Alzheimers’ and Parkinson’s Disease. Journal of Gerontological Nursing 42(2) 4-5.
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