I had just turned 50 in 2013 when I was diagnosed with Parkinson’s disease (PD). I remember sitting in my neurologist’s office bewildered, thinking “what is Parkinson’s disease?” I had little to no knowledge about Parkinson’s and there’s no history of anyone in my family with this disease.

I quickly learned the struggle of living with PD. Because of my young age, my neurologist decided not to start treating me with dopamine replacement. I was given dopamine agonist medication instead to trick my brain to produce dopamine.

The medication did not prevent the progression of the disease and by 2017, my Parkinson’s disease was full-blown, and my struggles affected my quality of my life. I went from being a healthy active woman who was like the Energizer bunny to a slow elderly person who cannot stand upright without losing her balance. I struggled with walking, moving, eating and getting dressed on my own… the list was long. I pretty much depended on my husband, family and friends to help me with the simplest tasks.

Despite the invasion of this beast in my life, I refused to let this disease take me down without a fight. Firstly, I relied on my faith to carry me through each day. I pretty much told God I didn’t want to deal with Parkinson’s disease as I don’t have the strength for it. I totally surrendered everything to God as I knew He knows what my future holds.

Secondly, I did my part to keep this disease from devouring me by doing what is needed of me. I exercised, took care of my health and found ways to use what I was going through to help others like me. I started blogging and even wrote a song for people with Parkinson’s.

For four years, I adapted to life with Parkinson’s. I persevered and never lost hope. It was January 2017 when my neurologist decided to start the dopamine replacement treatment as the quality of my life has been seriously compromised. That was the beginning of my miraculous recovery.

It was literally the next day after I took carbidopa levodopa that I realized my body didn’t have to move in one piece. I could independently move my head and hips from side to side. I was deliriously happy and couldn’t believe what was happening. Slowly but surely over the course of the next few months, I was able to do more and more of what I had lost since my diagnosis. We had also moved from Chicago, IL, to Ft. Myers, FL, in 2017. That was the best move as the warmer temperature and 12 months of sunshine allowed me to be more active and exercising became my obsession.

As of today, I was able to reverse 90 percent of my Parkinson-related struggles. I play pickle ball, tennis, ping pong, zumbs, swim, run, kayak, dance… I’m actually more fit and healthier now than before I had Parkinson’s. I’m not cured from Parkinson’s but I’ve definitely been restored and given a second chance in life.

I know there are people who are doing the same thing as I am but not reaping the same benefits. I don’t have the explanation but what I have learned with my experience is to never give up. If you had told me I would be doing Zumba and walking without struggling in my eight year with Parkinson’s, I would have definitely thought you were crazy.

Don’t let the struggles and bad circumstances of today dictate your final outcome in life. You never know what your final chapter of your life holds if you give up too quickly. So, have faith, don’t lose hope, and don’t give up for you don’t know what tomorrow brings. Living with Parkinson’s allowed me to understand the plight of anyone struggling with life, and my recovery allows me to share my story to never lose hope as no one knows how all our stories unfold.

Read Fitness Counts to learn more about Parkinson’s and exercise

Teresa Bennett, my mom, began experiencing Parkinson's disease (PD) symptoms nearly 10 years ago. Just last year, at age 65, she started rock climbing.

A year ago, Dr. David Whitney at Inova formally diagnosed her with Parkinson’s in 2020. His office organized a fantastic support group for people with Parkinson’s, which led my mom to a podcast episode about how rock climbing is a wonderful, safe and beneficial exercise for folks with Parkinson’s.

The harness and rope system in indoor rock-climbing gyms makes the activity accessible for people with Parkinson's, even if they’re experiencing severe tremors or difficulty walking, because there’s no falling or hard impact involved. Plus, the problem-solving required to climb up a specific route and the strength-building can hugely help slow the progression of symptoms, which for my Mom included tremors, stomach woes and stiffness.

My Mom shared the podcast episode with our family, and we all decided to gift her rock-climbing lessons for Mothers’ Day 2021 in hopes that we’d all be vaccinated. When googling around for rock-climbing lessons for Mom, we coincidentally found this video featuring climber Michelle Sloane and instructor Molly Donelan.

We reached out to a local climbing gym in Virginia, SportRock, and connected with Molly — who just happened to be the guest on that same podcast episode — to set up the intro lessons for Mom. Molly came across instantly as knowledgeable, kind, thoughtful and passionate about how rock climbing could help people with Parkinson’s.

Mom started with a lesson with Molly and Michelle and was hooked on rock climbing almost instantly. “Since I started climbing at SportRock with a group of people living with Parkinson’s, I am stronger, happier, and healthier than ever before,” said Teresa. “I very much enjoy the community and friendships among us.”

Mom joined Molly’s incredible group of climbers who have Parkinson’s and climb together multiple times a week. A few phenomenal instructors volunteer alongside Molly to belay and guide the fearless climbers, and the community has become beautifully tight-knit through their shared experience. Some of the climbers even attended Molly’s wedding in October 2021!

During the first lesson, Molly was very gentle with Mom and started her on a short, 25-foot wall. My Mom felt safe in the harness, and after that short wall, Molly took her to a 40-foot wall. Mom definitely felt nervous and scared, and at one point she looked down and thought, “What the heck am I doing here?!” All the while Michelle was cheering, “Go, Teresa! Go!” Mom says she teared up a little and told them that she hated having Parkinson’s and that she wouldn’t be rock-climbing if she didn’t have it.

Now, Mom rock-climbs at least three times a week if not four, sending 40- and 60-foot walls. She never misses a climbing session unless she’s out of town, and even then, she often finds a climbing gym.

She’s learned to use the auto-belay system so she can climb alone, usually when she wants to work on a route that has been challenging her. Her climbing shoes already need repairs because they’re so worn, and she has all the gear and clothing fabulously matched. Her arms, back, and leg muscles are even more pronounced than they were before she started climbing, and she can’t get enough of climbing documentaries or YouTube videos of stars like Margo Hayes and Tommy Caldwell.

Most importantly, her symptoms have greatly subsided. Her left hand used to be stiff and stuck in a cupped position, and now it looks relaxed and stronger than ever. Her tremors are even less visible, and her left foot no longer drags when she walks. Her gait is more secure with bigger, surer steps. Her mental health has also improved, and she feels more energetic than she has in years.

“Before rock-climbing, I used to be very scared about my future with Parkinson’s, and now I don’t think about it as much,” Mom said. “I feel that as long as I can rock-climb, I will be fine.”

Early on, Dr. Whitney told Mom he might recommend an increase in her medication based on how her symptoms had been progressing before she started rock climbing. But when he saw her in person just a few months after she started rock-climbing, he concluded that there was no need to increase medication at that point because of how well she was doing.

Rock-climbing quickly motivated Mom to take up additional activities to help her become a stronger climber. She now swims laps with an awesome neighborhood coach and swimming group twice a week and goes to a Pilates gym once a week. Not to mention her usual fun continues, seeing friends, traveling, walking in nature. Since she feels so good about life, Mom signed up to volunteer with a non-profit that supports students striving to become the first in their families to graduate from high school, to navigate the college admissions process.

May will mark one year of Mom’s rock climbing, and I don’t think any of us could have predicted the astounding results, especially in such a short amount of time. Not many people start rock climbing at 65, but I am endlessly grateful that my mom did. I hope anyone newly diagnosed with Parkinson’s takes time to feel those feelings, leans on a support system, and channels that fear into something that helps them feel stronger and makes them smile the way rock-climbing does for Mom.

Keep moving! Exercise and physical activity can improve many PD symptoms. Call our Helpline at 1-800-4PD-INFO (473-4636) or visit your Parkinson’s Foundation Chapter online to find an exercise class near you.

Patrick Welch, PhD, Sgt. USMC (Ret.) is a member of, and tireless advocate for, both the veterans’ community and the Parkinson’s community. Dr. Welch was awarded a Purple Heart for his service in Vietnam, founded the Center for Veterans and Veteran Family Services at Daemen College, and previously served as the Director of the Erie County Veterans Service Agency in New York.

Dr. Welch works with the Parkinson’s Foundation to spread awareness about PD, support veterans on their PD journey, and provide education on the critical importance of exercise for people living with this disease.

visit Parkinson.org/Veterans for resources

It was like skiing with a wooden leg.

It was January 29, 2011, and I was competing in the 50-km Noquemanon Ski Marathon. I was only 5 or 10 km into the course when the wooden-leg effect struck. It affected me every time I climbed a hill or pushed my pace. If I relaxed for a minute or two it would go away, but it always returned.

The hopes I had for a podium finish in my age group were clearly not to be fulfilled.

I was seen by regional sports medicine doctors and the Mayo Clinic at that time, but no one could provide a definitive diagnosis. I strongly suspect that this was an early indication of Parkinson’s disease (PD). Other symptoms appeared over time. I knew that something was wrong and that it was getting worse.

It wasn’t until February of 2019 that the diagnosis of Parkinson’s disease became evident. It is a diagnosis that was too familiar: my wife, Sally, also lives with PD.

Excellent medical care, a very active lifestyle, and good social connections have all helped me cope with my diagnosis and live well with PD.

In 2020, another outlet for dealing with Parkinson’s found me: music.

I was wide awake, at 3 AM in October of 2020, with the strains of Dolly Parton’s “9-to-5” running through my brain like an earworm. As I lay there, words started to come into my head —words about Parkinson’s — that fit the 9-to-5 tune. I soon realized that I needed to get up and write it all down or I would forget it.

I got up and turned on the computer.

Sally heard me talking to myself and singing and called out to ask what was going on. “I’m composing!” I called back. Over the next several weeks the entire song came together, but I had no idea what to do with it.

In November 2020, Sally and I had our semiannual appointments with our neurologist at the University of Michigan. At the end of my visit, I suggested that if my doctor had 3 minutes and 35 seconds to waste, I would sing him a song about Parkinson’s that I had written. He agreed, and I played a karaoke version of 9-to-5 and sang along. He got a kick out of it and asked me if I would send him the lyrics! He shared them with some of his colleagues, who forwarded them on to others.

About three weeks later the Parkinson’s Foundation reached out and asked if I could send a video of me singing the song!

I decided if I was going to make a video, I needed a band.

I found a talented local rock group that was interested in working with me. After weekly rehearsals for several months and the band’s patient guidance, we were ready.

We secured an auditorium (no small task in the middle of the pandemic) a videographer and a sound and lighting technician, and recorded We’ve got Parkinson’s, along with a second song that I had written to the tune of Stevie Ray Vaughn’s “Pride and Joy.”

After months of post-production, we finally had our music video! I sincerely hope it brings joy and laughter to others who are dealing with PD.

My Parkinson’s is well managed. I believe that exercise, especially mountain biking, has helped tremendously. I am fortunate to live in a place like Marquette, Michigan where I can ride my road bike and mountain bike on a nationally recognized trail system. There is something magical about the mountain bike. Riding involves balance, coordination, concentration and quick decision making. When I get on the bike, my balance issues disappear and everything is fine.

I strongly encourage others with PD to keep pursuing their passions and their creativity – even in the most unexpected ways!

Videography by Nick Slattery
Editing by Nick Jensen and Nick Slattery
Music performed by Maynards and Friends
Words and vocal by Bruce Closser

"Get busy living or get busy dying,” is the favorite quote of Jeff, the owner of a Rock Steady boxing gym in Pittsburgh. Years ago, Jeff was working at the gym when his boxers asked him why they were not teaching classes for people with Parkinson’s disease (PD). Jeff didn’t know much about PD or that the sport he loved to teach could immensely improve PD-related motor symptoms. After some research, Jeff became determined to meet this demand at his gym.

Today, Rock Steady’s Pittsburgh location offers classes for people with PD six days a week, in the mornings and afternoons, including on Saturdays. Jeff has more than 50 active members between the ages of 54 and 92 who attend classes each week. He has personally assessed the motor skills and needs of more than 75 gym members with Parkinson’s who box to improve their symptoms.

Jeff believes that boxing may be the most intimidating exercise to begin. He’s heard from people hesitant to join his classes, excuses such as, “I could get hurt” or “it’s embarrassing if I can’t do it right.” He simply tells them to not be afraid and not to give up. He has proved in the progress he’s seen firsthand with his students.

It doesn’t seem to matter how progressed your Parkinson’s is or if you’ve undergone injuries before, boxing works. For one student, Diane, it changed her way of life in just three weeks. Diane walked into Jeff’s gym, cane in hand, unable to even jump rope. In fact, due to her Parkinson’s, she couldn’t raise the rope over her head. But after several weeks of boxing classes, she stopped using the cane and is throwing the rope around with ease. Her strength, balance and tremors have visibly improved.

It’s stories like these that drove Jeff to further his involvement in the Parkinson’s community. He’s often invited to speak at Parkinson’s support groups, where he talks about his boxing classes and the benefits of boxing, but he also spreads awareness about the power of people battling Parkinson’s disease. This was his goal when he applied to star on a special episode of “Ink Masters: Angels” dedicated to Parkinson’s.

Jeff wrote to the creators of the national TV show about his experience with PD and the experiences of his students, hoping to share their impact and possibly become one of the two people in the Parkinson’s community who would receive tattoos related to PD from the Ink Master artists. He’d only had one tattoo and wasn’t looking so much for the ink as he was the opportunity to support people with Parkinson’s in a different way. He was given the chance to do just that.

In the episode, Ink Master artist Rachel, gave Jeff a 6-hour, massive tattoo on his left outer bicep. He had brought in a picture he’d taken of these 1940s boxing gloves he keeps hung on a brick wall in his gym. The gloves have the word “Hope” stitched on their exterior.

Hope is Rock Steady Pittsburgh’s slogan and a pillar of every person on a Parkinson’s journey. He thought their vintage vibe would make for a cool tattoo, but more importantly, they would accurately represent the work he does with his boxers and how strong each of them proves to be as they battle Parkinson’s disease. He even brought his student, Diane, along with him on the show to share the experience with him.

Together, Rachel, Diane and Jeff rocked the show. Jeff ultimately ended up with an incredible piece of art on his arm that showcases his passions: boxing and spreading Parkinson’s awareness.

For anyone who saw this episode or is reading his story now, Jeff wants to share that tattoos are a personal choice - he can’t tell someone to get a tattoo for Parkinson’s. He will say, “anything you can do to create awareness around Parkinson’s and what boxing can do to benefit those with PD, is well worth it.”

Jeff participated in a special charity episode of "Ink Masters: Angels" where proceeds from an auction were donated to the Parkinson’s Foundation.

Become a Parkinson’s Champion to raise funds and awareness in a creative way

Brad can’t slow down. He works full time managing more than 600 clients and hundreds of millions of dollars at Wells Fargo Advisors. When he was diagnosed with young-onset Parkinson’s disease (YOPD) it could’ve been his excuse to slow down, but it only made him pick up the pace.

In his early 20s he taught himself the stock market and turned $2,000 into $8,000 with the help of his grandfather, whom he admired dearly. Brad’s focus was never school, but the stock market fascinated him. After numerous interviews he was given a chance at a major financial institution where he received formal training to become a financial advisor. Years later he was recruited to bring his clients over to what is now Wells Fargo Advisors where he works today as co-founder of the “Arch & McMorris Wealth Management Group of Wells Fargo Advisors.”

Brad was self-made by 27, the same year his father was diagnosed with PD. For the next decade Brad and his brother took care of their father. They saw the entire progression of the disease, from symptoms that began as bad posture and constipation to immobilization. They moved him to Miami, where they were both living, to take better care of him.

One day, Brad reached into a cabinet and felt a sudden slowness take over his arm. Months passed and other symptoms manifested. When he began experiencing waves of rigidity while walking, his coworkers would ask him if he was okay. He felt like his body and brain weren’t communicating when everyday tasks like using a fork, brushing his teeth and putting on cufflinks were becoming a challenge.

His father’s PD symptoms were worsening. By this point Brad and his brother each knew their father’s doctor. At a neurology appointment, Brad decided to ask about his own symptoms. He was hoping to hear that the symptoms were of no concern, but his fear was realized when the doctor told him to come in for tests.

He did his research, and decided to start fresh with a new doctor, making an appointment with a top neurologist in Miami; however, the next available appointment was in two months. In October 2015, Brad’s father passed away and one month later, after a DAT scan and multiple tests, Brad was diagnosed with YOPD. Driving back home from his appointment he emotionally broke down. He thought about how he had worked so hard to succeed and indulge in material possessions, but that he’d give them all up to have his health.

Brad doesn’t do anything half-speed and PD is not the exception. Mere days after his diagnosis, he went to Moving Day® Miami. With his father’s recent passing and his own diagnosis, he became completely overwhelmed when he saw how many other people in Miami were affected by PD. As he was leaving he met Mindy McIlroy, a National Parkinson Foundation (NPF) Board Member, who convinced him to join her for lunch. After hearing about NPF and its mission to make life better for people with PD, he immediately became involved with NPF’s South Florida Chapter.

At only 39, Brad was apprehensive to begin a medication regimen he’d be on for the rest of his life without seeking a second opinion. He made an appointment with NPF’s National Medical Advisor and one of the top PD specialists in the world, Dr. Michael S. Okun. He made the five-hour drive to see Dr. Okun. Brad is a fitness enthusiast, so when Dr. Okun took that into consideration and adjusted his dosages knowing that Brad’s body would go through the medicine quickly; Brad knew that Dr. Okun was going to be his doctor.

Brad finds that keeping up with PD is expensive and time consuming. He works long weeks, exercises every day, drives to another city to see a doctor and stays on top of his PD medications. He has a newfound respect for the one million people who live with PD. He often wonders how anyone who works a 60-hour week and supports a family can keep up with managing their PD. Brad wants to advocate for every person with PD to have access to expert care, which is another reason he is involved with NPF.

Brad continues to avidly exercise because it makes his body feel normal and is the only thing proven to ease PD symptoms.  He prepares healthy meals for the next day and eats at his desk so instead of going to lunch he goes to the gym, which is where he met Bradley Murcia, a personal trainer. Their passions aligned and they found a way to integrate exercise with PD awareness. In July, they launched a fitness program called “Monday Madness,” a free, intense boot camp-style class that is open to everyone. 

“From day one I’ve known that Brad is a beast,” Bradley said. “With everything he does and how hard he goes, there are times when I forget he has PD so I push him harder.” Bradley is the Monday Madness trainer while Brad attends every class, both never letting up.

Brad’s PD has even changed the dynamic he has with his clients. Some of his clients have PD and when they find out Brad does as well, they just talk. It’s become therapeutic for Brad because someone else knows exactly what he’s going through. November 2016 will mark the one-year anniversary of his PD diagnosis. He continues to fight Parkinson’s and support the PD community by promoting exercise. He will be attending Moving Day® Miami on November 13.

Check out the trailer for an upcoming movie featuring Brad and his PD story: "Monday Madness: A Parkinson's Documentary"