Cardio, strength, balance and coordination exercises will be added in to the PWR Moves curriculum which explores exercises to improve range of motion, agility, and quality of movement in everyday living. We will review the PWR Moves positions and exercises. You may need a chair, water bottle, light weights (or canned goods). All levels welcome.
Instructors
Stacey Macaluso, Life Coach & Fitness Specialist, Founder of Mission PD
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Body mapping is diverse and can be used in different settings. This class will help you learn ways to use the eyes and body mapping in your ongoing exercise routine, rather that be boxing, large amplitude/big movements, strength, or balance.
We will use previous techniques to help integrate the whole body (left and right, lower and upper) during movements. For example, learn how to integrate the lower and upper half of your body while using the eyes to improve rotation during boxing.
Class will be a moderate to higher pace and level but seated variations will be given throughout class.
Equipment needed: Chair, exercise mat, hand towel, small hand weights, and a second chair/walker/foam roller/wall for support during chair to standing transitions
This class is live, so stay tuned towards the end of class and partake in a Q&A to discuss what worked for you or find what adjustments you could make!
Please keep a bottle of water nearby. Enjoy the session!
Instructors
Corey Emberton, Neuro and Movement Specialist, Level 3 Neurostudio Advanced Practitioner
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Maintain a step ahead with the PD-Connect BASIX™ program. A multi-FUNctional class focusing on Balance, Aerobics, Strength, Integration and eXcellence. Engage in our award winning live "Show" and enjoy aerobic activity, dance, strength and dynamic skills to stay ahead of your PD symptoms. The goal is for moderate to vigorous intensity, with modifications in standing and in the chair. Parkinson's-specific fitness couldn't be more fun!
Equipment needed: Chair, weights (or canned goods), and a tennis ball
Please keep a bottle of water nearby. Enjoy the session!
Instructor
Lisa Oei, PT, MSPT, DPT, Physical Therapist, Parkinson's Wellness Coach; PD-Connect, Corte Madera, California
SteF Farina, MCT
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
La enfermedad de Parkinson 101: lo que usted y su familia deben saber Regístrese Aquí
Acompañe a la Parkinson’s Foundation para aprender acerca de las causas, los síntomas y el manejo de la enfermedad de Parkinson, así como la participación en investigaciones.
Presentadora
Andrea Fuentes, MD
Profesora adjunta de clínica
Neurología y ciencia neurológica
Stanford Medicine
Explorando terapias complementarias para el Parkinson: los beneficios de la terapia física, del habla y ocupacional Regístrese Aquí
¡Acompáñenos en una charla en línea donde profundizamos en el mundo de las terapias complementarias y su papel fundamental en mejorar la calidad de vida de las personas que viven con la enfermedad de Parkinson!
Esta sesión interactiva se centrará en la importancia de la fisioterapia, la terapia del habla y la terapia ocupacional, brindando una comprensión integral de sus roles y los numerosos beneficios que ofrecen. No se pierda la oportunidad de participar en demostraciones en vivo de ejercicios terapéuticos diseñados específicamente para pacientes con Parkinson.
Presentadoras
Ana Sanchez Junkin, PT, DPT, NCS
Especialista clínica en neurología certificada
Profesora adjunta
MGH Institute of Health Professions
Dora Jasso, MA, CCC-SLP, CBIS
Patóloga del habla y el lenguaje
MountainView Regional Medical Center
Pamela Talero Cabrejo, OTD, BSOT(Col), OTR/L, CPAM, COT
Profesora adjunta
Programa post-profesional de terapia ocupacional
Departamento de terapia ocupacional
Jefferson College of Rehabilitation Sciences
Thomas Jefferson University
Avances en el tratamiento del Parkinson: ¿Qué hay de nuevo? Regístrese Aquí
Existen muchos medicamentos para mejorar la calidad de vida de las personas con la enfermedad de Parkinson (EP). Sin embargo, cada individuo responde de manera diferente a los medicamentos. Lo que funciona para uno no necesariamente funciona para otro.
Conozca los avances en los tratamientos para la enfermedad de Parkinson, tanto para los síntomas motores como no motores y dónde nos encontramos en el camino hacia la medicina personalizada.
Presentador
Ramon Rodriguez, MD, FAAN
Especialista en neurología
Neurology One
EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.
Raise Awareness
11 Goals You Helped Us Accomplish in 2023
In a word, momentum was the theme for the Parkinson’s Foundation in 2023. Thanks to the Parkinson’s community, especially our donors, we worked hard to make life better for people with Parkinson’s disease (PD) through advancing research and prioritizing access to care.
Here are 11 ways you helped us keep the momentum in 2023:
In July 2023, we published a study that found that only 50% of people with Parkinson’s saw a general neurologist. As a result of these findings, we are expanding disease-specific training to neurologists and other healthcare providers, and pursuing ways to improve access to care across all demographic and population groups.
2. Provided Genetic Testing and Counseling to 11,000 people with PD
In 2023, our global genetics study PD GENEration: Mapping The Future of Parkinson’s Disease reached the milestone of providing genetic testing and counseling to 11,000 people with Parkinson’s. PD GENEration test results empower people, help them work alongside their doctor to tailor PD treatment, and can match them to gene-specific clinical trials. Thus far, PD GENEration data shows that 12.7% of people with Parkinson’s have a genetic link to the disease — much higher than the originally believed 5-10%.
To bring specialized Parkinson’s care to more people, we designate medical centers that know how to treat this complicated disease. In 2023, we designated eight new centers as part of our Global Care Network, with the first-ever designations in Wisconsin and Washington, and the country of Japan.
The Parkinson’s Virtual Biotech, a partnership with the Parkinson’s UK, is currently funding 13 potential medications in development that either address PD symptoms or aim to slow, stop, or prevent the disease altogether. This initiative gets us closer to delivering life-changing treatments in years, not decades.
A Parkinson’s breakthrough can happen at any time, in any lab, which is why we directly fund scientists who are conducting innovative studies attacking Parkinson’s from every angle. In 2023, we awarded $2.8 million across 30 promising research grants.
Dr. Wang is exploring a new way to target the cause of PD by using RNA-degrading technology. His lab is working to prevent over-accumulation of alpha-synuclein (a protein) in the brain, hopefully paving the way to halt the development of the disease.
Ensuring diversity and inclusivity in Parkinson’s research is critical to accelerating breakthroughs toward a cure. In 2023, we partnered with Morehouse Healthcare to expand genetic research in the Black community, making Morehouse the first historically Black institution of medicine to become a PD GENEration research site.
We awarded nearly $1 million in community grants to PD programs across 35 states. From non-contact boxing classes to educational events and wellness programs, we have invested more than $10.4 million in 787 community-based programs since 2011.
Even though 90,000 Americans are diagnosed with Parkinson’s every year, most healthcare professionals — including nurses, pharmacists and general practitioners — do not receive in-depth PD care training. We added new accredited online courses to our Education Series for Community Providers, which are designed to improve treatment and outcomes for people with Parkinson’s.
We launched 50 new Spanish pages on Parkinson.org. From symptoms to managing PD, these pages are designed to reach the Spanish-speaking Parkinson’s community and connect them to key information and tools.
10. Raised $3.5 million through Parkinson’s Champions
Parkinson’s Champions are a dedicated group of people in the PD community who fundraise to help us fight Parkinson’s. Parkinson’s Champions do it all, they run in prestigious races, cycle for Parkinson’s Revolution, host Facebook fundraisers, and more. In 2023, Parkinson’s Champions raised $3.5 million to propel us towards a cure.
Photo credit: Tricia Baron
On April 11, the producing team behind the Broadway hit, A Beautiful Noise: The Neil Diamond Musical presented $500,000 to the Parkinson’s Foundation in honor of legendary singer, songwriter and performer Neil Diamond, who is living with Parkinson’s.
Every year, the top neurologists and Parkinson’s experts in the world attend renowned conferences to share new information about PD treatments and research. In 2023, the Parkinson’s Foundation shared numerous research and care findings at two premier conferences.
As much as we accomplished in 2023, we are committed to doing more for the PD community in 2024. Your continued support is the only way we can make that happen. Thank you.
The Hospital Safety Guide is a resource for people with Parkinson's disease (PD) and their care partners filled with useful tools and information to prepare for and navigate a hospital stay.
Why is hospital safety important for people with Parkinson’s? People with PD are at a higher risk of hospitalization and face many challenges while in the hospital. Hospital staff may not be familiar enough with PD to understand symptoms or realize they can worsen when PD medication is not delivered on time. Careful preparation and clear communication can help minimize complications and recovery time.
The Hospital Safety Guide provides useful information and tools to help you advocate for your best care, including:
The Five Parkinson’s Care Needs
Forms to fill out with personal care details and medication schedules
Tips for care partners
Parkinson’s care information to share with the hospital care team
The Parkinson's Foundation hopes to be an official charity partner for the 2026 Disneyland Half Marathon Weekend. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org.
Fundraising Commitments:
VIP - $5,000
Dumbo Double Dare (Half & 10k) - $1,500
Half - $1,000
5k/10k - $750
Honorary Champion - $500
The Disneyland Resort® will host four fun-filled days of events, featuring some of your favorite Disney Friends. Whether Guests start their day “barking along” a 3.1- mile adventure or “get their ducks in a row” for 6.2 miles ... or even say “see ya real soon” as they embark for an epic 13.1 miles, our Disney friends will be there to cheer them on!! From the start line to the finish line, the Disneyland Half Marathon Weekend will ensure that Every Mile is Magic!
Looking for travel support? Sign up for a free consultation with our wonderful friends at Magical Park Vacations at THIS LINK (whether you end up running with us or not). They have deep knowledge of the parks and traveling with a family member who has Parkinson’s disease.
NOTE: Registration for this race includes access to the Disneyland Resort® amusement parks for the race event only. To “ride-the-rides” you would need to purchase a separate ticket to the parks. There may be the opportunity for friends and family to come cheer you on without needing to purchase entry to the park, but this will be announced later by the runDisney organization at their discretion.
Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
La Parkinson's Foundation y la Fundación de Parkinson Puerto Rico, les invita al primer simposio educativo para personas con Parkinson. El evento se llevará a cabo de manera virtual y presencial en Puerto Rico.
Durante el evento, aprenderá sobre la enfermedad de Parkinson, el rol de la genética, la salud mental, la nutrición y el ejercicio. Todos estos temas están diseñados para ayudar a la comunidad a vivir mejor con Parkinson.
Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, personas de apoyo y promotores de salud.
Para los asistentes presenciales: Registro y visitas a los auspiciantes y mesa PD GENE a las 9:30 a.m. hora del Atlántico (Puerto Rico)
Para los asistentes virtuales, a través de Zoom: La transmisión en directo será de 9:30 a.m. a 11:30 a.m. hora del Este (Nueva York)
SEGURIDAD COVID: La salud y seguridad de nuestros participantes, patrocinadores, voluntarios y personal son nuestra máxima prioridad. Seguimos pendientes de las recomendaciones de los CDC y nos apegaremos a los lineamientos estatales y locales en vigor el día del evento referentes a COVID. Se harán ajustes, de ser necesario.
