Educational Events

Parkinson's, Sleep, and Me

10:00 am to 1:00 pm CDT
Free
Understanding Sleep Banner Updated

Parkinson’s disease can create many challenges to getting a good night’s sleep. This program provides information on how Parkinson's disease affects sleep quality and addresses ways you can get a better night's sleep while living with PD.

A boxed lunch will be provided, please reach out to Jessica if you have any dietary needs at 312-762-5706 (vegetarian, vegan, or gluten free).

Guest Check-In/Vendor Visit: 10:00-10:45 a.m.

Speakers

Karen Blindauer, MD - Professor of Neurology, Director of the Parkinson Disease and Movement Disorders Program Froedtert & Medical College of Wisconsin- A Parkinson's Foundation Comprehensive Care Center. 

Terry Walton, MS OTR- Froedtert & Medical College of Wisconsin- A Parkinson's Foundation Comprehensive Care Center. 

There is no charge to attend, but registration is required.  This program is open to people with Parkinson's, their family, friends, medical providers, and the community. 

 

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Minnesota Spring Parkinson's Symposium 2025

Virtual ( Zoom )
10:00 am to 2:00 pm CDT
FREE
REGISTER FOR VIRTUAL
Symposium

APDA Minnesota Chapter, Parkinson's Foundation, and the Udall Center at the University of Minnesota are the three leading organizations for Parkinson's disease advocacy in Minnesota. We are excited to invite you to the annual Spring Parkinson's Symposium.

For in-person attendees: In-person check-in and vendor visits start at 9 a.m.

For virtual attendees, via Zoom: The live stream starts at 10 a.m.

Speakers:

Natalie Heinrich, RPh M Health Fairview

Dr. Kevin Webb-Kay Struthers Parkinson's Center

Dr. Michael Howell, MD M Health Fairview

 

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The PD Solo Network

Virtual ( Zoom )
1:00 pm to 2:30 pm EST
FREE
REGISTER FOR VIRTUAL
PD Solo event banner of woman staring out the window

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– December 10, 2024
– January 14 and January 28, 2025
– February 11 and February 25, 2025
– March 11 and March 25, 2025
– April 8 and April 22, 2025
– May 13 and May 27, 2025
– June 10 and June 24, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

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Educational Events

The PD Solo Network

Virtual ( Zoom )
1:00 pm to 2:30 pm EST
FREE
REGISTER FOR VIRTUAL
PD Solo event banner of woman staring out the window

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– December 10, 2024
– January 14 and January 28, 2025
– February 11 and February 25, 2025
– March 11 and March 25, 2025
– April 8 and April 22, 2025
– May 13 and May 27, 2025
– June 10 and June 24, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

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EP 101: lo que usted y su familia deben saber

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
REGISTER FOR VIRTUAL
Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

Acompañe a la Parkinson’s Foundation para aprender acerca de las causas, los síntomas y el manejo de la enfermedad de Parkinson, así como la participación en investigaciones.

Presentadora

Dra. Elsa Rodarte Rascon, Neurología general
Trastornos del movimiento
UT Health Houston

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

Light of Day

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Nutrición saludable para la enfermedad Parkinson

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
REGISTER FOR VIRTUAL
Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

Este webinar le ayudara a elegir alimentos saludables y preparar recetas sencillas para sentirse mejor con la EP. El enfoque es aprender acerca de la nutrición como también de los síntomas más comunes que se relacionan con el aparato digestivo y el cerebro y que afortunadamente pueden mejorarse modificando su alimentación.

Presentadora

Debbie Polisky
Coach de Nutrition Tango y nutricionista
Fundadora de Nutrition Tango
Nutrition Tango: www.nutritiontango.com
 

Por favor, verifica su zonas horarias.
10 a.m. Hora del Pacífico (Los Ángeles y Phoenix)
11 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México)
12 p.m. Hora del Centro (Texas, Colombia y Perú)
1 p.m. Hora del Este (Nueva York y Venezuela)
2 p.m. Hora de Chile

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

Light of Day

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Educational Events

Fortaleciendo las conexiones al vivir con Parkinson

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
REGISTER FOR VIRTUAL
Una pareja mirando una tableta juntos en su porche

Miércoles de Bienestar

Regístrese Aquí

La enfermedad de Parkinson puede presentar desafíos que afectan las relaciones, dificultando mantenerse conectado con los seres queridos. Este webinar ofrecerá estrategias simples y prácticas para ayudarle a mantener la cercanía emocional y fortalecer sus enlaces. Aprenda cómo la comunicación, las actividades compartidas y la comprensión pueden marcar la diferencia, incluso en los momentos difíciles.

Presentadora

Dra. Carla Abdelnour
Becaria de posdoctorado
Poston Lab, Departamento de neurología y ciencias neurológicas
Stanford Medicine (un Centro de Excelencia de la Parkinson's Foundation)

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

Light of Day

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Educational Events

El Parkinson y los tratamientos: ¿Qué hay de nuevo?

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
REGISTER FOR VIRTUAL
Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

La enfermedad de Parkinson (EP) sigue siendo una condición con muchas incógnitas, pero la investigación constante nos está ayudando a cerrar estas brechas en el conocimiento. En los últimos años, se han logrado importantes avances en las terapias diseñadas no sólo para el manejo de los síntomas motores y no motores, sino también para frenar el avance de la enfermedad.

Este programa explorará los últimos hallazgos en la investigación de la EP y tratamientos innovadores.

Presentadora

Dra. Veronica Bruno, con maestría en salud pública y miembro del Royal
College of Physicians of Canada
Trastornos del movimiento, Neurología
Profesora adjunta de neurología
Departamento de neurociencias clínicas
University of Calgary (Centro de Excelencia)

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.

Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

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Videos & Webinars

Expert Briefing: What's on Your Mind? Thinking & Memory Changes

November 13, 2024

Cognitive changes, including slowness in thinking, decreased attention span and difficulty finding words, can often occur in Parkinson’s disease. These changes, along with memory loss, can be frustrating and challenging for the person with Parkinson’s and those close to them.  This webinar will review the cognitive and memory changes in Parkinson’s as well as practical strategies to help with daily activities.

Download Slides

Additional Resources

Presenter

Greg Pontone, MD, MHS
The Louis and Roberta Fixel Chair 
Division Chief, Aging, Behavioral, and Cognitive Neurology
Co-Director of the Fixel Neuropsychiatry Program
University of Florida College of Medicine
Professor, Department of Neurology

My PD Story

James Higgins Headshot
People with PD

James Higgins

Since I've had Parkinson's disease (PD), I've learned that there's not enough research going on within the black community for people with Parkinson's. Simply put, we’re different, our genes are different. Our genetic make-up is unique compared to white people and other backgrounds. Which is why I signed up for the Parkinson’s Foundation genetics study, PD GENEration.  

I signed up for PD GENEration at Rush University Medical Center, a Parkinson’s Foundation Center of Excellence. Participating was simple. I went to Rush, where Stacy took some blood. We got four tubes of blood. Two of them went to the Parkinson's Foundation where their PD GENEration lab will complete the genetic testing specific to Parkinson's. The other two tubes go to the NIH where they're doing a study to better understand what Parkinson's and genetics looks like. I asked Stacy if I would walk the blood samples to the lab with her, where we submitted them together. 

Look for James in our new PSA aiming to help people find real answers to their Parkinson’s questions. 

WATCH NOW

I find it exciting that the PD GENEration study looks at genes from black folks and compares them to genes of all other races, and that researchers will use this information to see if we can find out what particular genes affect us. Ultimately, this study help us all try to deal with the Parkinson's a little bit better.  

I signed up for PD GENEration because I want people living with Parkinson's, and those who know somebody with Parkinson's, to know that you can participate in research. Participating in research can help us see what's going on with ourselves. We're just trying to make life better for the folks with Parkinson’s that come after us.  

We don't expect to solve the issue of Parkinson’s right away, but we do expect to get enough research underway that involves us — this research is for us.  

A genetics counselor will call me to discuss my genetics test results. They’re going to let me know what they discovered in that test. I’m looking forward to completing the PD GENEration life cycle as I continue to fight this disease.  

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