My PD Story

Kathy Maiers
People with PD

Kathy Maiers

I’m Kathy Maiers, a retired neurosurgical nurse, an ambassador, a volunteer, an athlete, a wife, a grandmother, and yes, someone living with Parkinson’s disease (PD). In other words, PD hasn’t slowed me down and I don’t plan on letting it anytime soon.  

My diagnosis came in 2018, but I started noticing all the symptoms years before. You name it: slowness of movement, rigidity, a tremor, all of them. Getting diagnosed was difficult, and it definitely took some persuasion from my loved ones to get tested. However, once I was, I knew I could use my expertise and drive to help others. I did just that.  

I love education. I used to teach people before their neurosurgical surgeries and follow them postoperatively. I guess teaching and doing tasks fell into place very perfectly for me. That’s why I love being a Parkinson’s Foundation Ambassador, volunteering whenever I can.  

If there’s one thing I’ve learned about PD, it’s that you need to start exercising. It’s the only thing that can slow the disease down. Exercise is a huge part of my life. I call it my part-time job. I’ve been a part of Lakeville Title Boxing for the past seven years and took up biking in 2023. It’s helped every step of the way.  

Getting exercise in can be hard, and that’s why I love my boxing group. In all honesty, it’s very rewarding. It’s a hard workout and we get our butts kicked, but it's an unbelievable support group. We really welcome everyone. We have a few members out of our 30 total with cancer, dystonia, etc., but at the end of the day we’re a community. If you’re even considering it, I couldn’t recommend it more.  

As an ambassador, I really try to teach people that you need to learn your personal diagnosis — how this disease impacts you.  

It's a very complex disease and everybody is so different. When people share the same symptoms with others, they think they have it figured out. But no, we always say that if you meet one person with Parkinson’s… you meet one person with Parkinson’s.  

You also have to be prepared to fight for yourself, especially in a hospital. I talk about this all the time through the Parkinson’s Foundation hospital safety initiative, because even taking your medicine more than 15 minutes late can cause a world of harm. Once you figure out your medicine, you tell hospital staff and who is boss. People with PD are far more likely to end up in a hospital, and you have to be ready to meet your needs anywhere. (Learn more about how to stay safe during a hospitalization with Parkinson’s). 

So, if you take away anything from my story, it's this: PD isn’t the end of your life, it really can be the beginning. Hey, just look at me! I still spend time with my three grandchildren, I’m a small group leader for Bible Study Fellowship, I sew for non-profits through my church, and I make time for me. Remember to support others, and really support yourself. Hope to see you at boxing soon!  

Explore how you can become a Parkinson’s Foundation volunteer today.  

Videos & Webinars

Navigating Advancing Needs: Planning Ahead with Parkinson’s

November 20, 2025

As Parkinson’s disease progresses, care needs can become more complex—impacting daily routines, independence, and long-term planning. This webinar will help veterans, and their care partners prepare for the changes that may come with advancing Parkinson’s. We’ll explore strategies for proactive care planning, VA services to support evolving needs, and resources to maintain quality of life through each stage of the disease. 

Presentation Slides

Additional Resources

Presenters

Reversa Joseph, MD, MS
Director of Movement Disorders Clinic
Chalmers P. Wylie VA

Amanda Ripke, LCSW
Movement Disorders Clinic
Chalmers P. Wylie VA

Educational Events

Minnesota Spring Parkinson's Symposium

Virtual ( Zoom )
10:00 am to 2:00 pm CDT
FREE
Symposium

APDA Minnesota Chapter, Parkinson's Foundation, and the Udall Center at the University of Minnesota are the three leading organizations for Parkinson's disease advocacy in Minnesota.


For in-person attendees: In-person check-in and vendor visits start at 9 a.m.

For virtual attendees, via Zoom: The live stream starts at 10 a.m.


Speakers

TBD

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Thank you to our Sponsor:

Upcoming Events

Educational Events

Learn More. Live Better. Parkinson's Symposium

10:00 am to 12:00 pm EST
FREE
Learn More. Live Better. Parkinson's Symposium banner

Check-in begins at 9 am and Program begins at 10 am.  

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.

Speaker

Reversa Joseph, MS, MD Director of the Movement Disorders Clinic, Chalmers P. Wylie VA Ambulatory Care Center

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Thank you to our Sponsors:

Upcoming Events

Educational Events

Let's Talk About It

1:00 pm to 3:30 pm EST
FREE
Let's Talk About It Banner Updated

Check-in begins at 12 pm. Program begins at 1 pm. 

Living with Parkinson’s disease involves more than just movement challenges—many people also experience non-movement symptoms that can be difficult to recognize, discuss, and manage. This program will focus on bladder/GI issues, psychoses and impulse control disorder, exploring their impact on daily life and relationships. Attendees will learn strategies for discussing sensitive issues and coping techniques to improve well-being.

Speakers

Michael B. Schonberger, DO, MBA, Movement Disorders Specialist, Corewell Health West

Danette Taylor, DO, MS, FACN, Medical Director, Movement Disorders, Trinity Health Grand Rapids

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Thank you to our Sponsors:

Upcoming Events

Educational Events

Parkinson's Disease Symposium: The Gut-Brain Connection

Virtual ( Zoom )
12:45 pm to 4:00 pm CDT
FREE
Rush Event Page

Please join the Parkinson's Foundation Midwest Chapter in partnership with the Rush University Medical Center, a Parkinson's Foundation Center of Excellence, for our Hybrid Parkinson's Disease Symposium.  

People with Parkinson’s disease (PD) frequently experience gastrointestinal (GI) symptoms that can affect daily function, medication response, nutrition, swallowing safety, and quality of life. The gut is also increasingly recognized as a trigger for brain diseases like PD.

This symposium provides an accessible, interdisciplinary overview of the gut–brain connection, the microbiome, practical “food for health” strategies in PD, and moderated Q&A panels to provide perspective on common challenges.  


For in-person attendees: check-in begins at 12 pm CT.
For virtual attendees: live stream begins at 12:45 pm CT. 


Speakers:

Rush University Medical Center Movement Disorder Staff

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Rush logo

Upcoming Events

Educational Events

Managing Changing Symptoms

10:45 am to 1:00 pm CDT
FREE
Managing Changing Symptoms Banner Updated

Check-in begins at 10:00 am. Program begins at 10:45 am.

Even after years of good symptom control, Parkinson’s disease can take unexpected turns. This program explores the “mid-stride” changes that happen and offers strategies to manage them. Learn about treatment options, when to adjust your care team, and how to stay independent and supported as your needs change.

Speakers

Kathryn Gaines, DO Aurora Neurology
Kelly L. Tritz, NP Aurora Neuroscience

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Thank you to our Sponsor.

Upcoming Events

Educational Events

Live Fitness Friday - Move to the Groove

Virtual ( Zoom )
1:00 pm to 1:45 pm EST
Free
A man lifting two weights in a T motion

Fitness can be fun and time will fly by when you pair exercises with music! Join this live session for a moderate intensity full body strength and aerobic workout with balance, multitasking, and stretching to the beat of the music. This class can be accomplished standing or seated. Light weights and a sturdy chair are recommended for participation.

Instructor

Hannah Morris, NIFS Bold Moves Parkinson’s Instructor, ACSM CPT, APDA Parkinson’s Instructor Certified

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

Light of Day

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Podcasts

Episodio 36: Manejo de los periodos en “off” en el Parkinson

Cuando los síntomas del Parkinson están bajo control durante el día, esto se conoce como estar en "on". Cuando los efectos de los medicamentos empiezan a desaparecer y los síntomas reaparecen o empeoran, se consideran periodos en "off". Estas fluctuaciones de los síntomas pueden variar de una persona a otra; algunas personas pueden notar más síntomas motores durante los períodos en "off”, mientras que otras pueden verse más afectadas por síntomas no motores.  

Los periodos en "off" pueden complicar las tareas diarias, sobre todo si suceden con mayor frecuencia a lo largo del día. En este episodio, hablamos con el Dr. Enrique Urrea Mendoza, neurólogo y especialista en trastornos del movimiento en Tallahassee Memorial Healthcare, para entender mejor por qué se producen los periodos en "off". Habla de los desencadenantes habituales que pueden contribuir a los periodos en "off" y comparte estrategias para manejar mejor estas fluctuaciones.  

Publicado: 20 de enero de 2026

Educational Events

Learn More. Live Better. Parkinson's Symposium: Managing My PD Now, While Looking Ahead

11:30 am to 4:00 pm MDT
Free
Learn More. Live Better. Parkinson's Symposium banner

Regardless of where you are in your Parkinson’s journey there are many things you can do to live well. Managing daily life with Parkinson's disease involves learning and adjusting as symptoms and needs change. This program addresses some common challenges and will provide important information, resources, and strategies to help you every day. Attendees will gain information to help find the balance between a proactive approach and wondering what lies ahead.

This event is free and open to people with Parkinson's and their families. Registration is required as in-person seating is limited.

Speakers:
Alex Baumgartner, MD, UCHealth Anschutz
Emma Bjore, MD, Ivinson Medical Group


Thank you to our event partners, the Laramie Parkinson's Support Group, Ivinson Memorial Hospital and the University of Wyoming Center on Aging. 

Laramie Parkinson's SG
UoWY

Upcoming Events

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