Join the Parkinson's Foundation and Struthers Parkinson’s Center, A Parkinson's Foundation Center of Excellence, for the Progress & Possibilities Symposium. Expand your Parkinson's disease knowledge and learn practical strategies and insights from members of the Struthers Parkinson Care team. Featuring a Resource Fair, a plated lunch, and afternoon breakout sessions.
Speakers from Struthers Parkinson's Center
Annie Adix, DPT
Laura DesHotels, DPT
Sarah Donley, RN
Ellen Hornbreak, DPT
Lori McManus, OTR
Kris Neirengarten, OTR
Kyle Nelson, MD
Lacey Severson, LICSW
Sydney Spagna, MD
Kevin Webb-Kay, MD
For in-person attendees: In-person check-in starts at 9 a.m.
For virtual attendees, via Zoom: The live stream starts at 10 a.m. and ends at 12 p.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
10 a.m. Welcome
10:05 a.m. Non-Motor Complications in Parkinson's
Dr Sydney Spagna
10:50 a.m. Break/Vendor Visits
11:10 a.m. Movement Break - Rehab team
11:20 a.m. Let's Have Fun- Making Adaptions to Recreation
Ellen Hornbeak- DPT, Lori McManus- OT-R, & Kris Neirengarten- OT-R
12 p.m. Lunch / Vendor Visit; Zoom Live Stream Ends for Online Participants
12:45 p.m. Announcements and Move to Breakout Rooms
1 p.m. Breakout Rooms
Breakout 1 - Breaking down Barriers to Exercise as Medicine - Ballroom
Annie Adix, DPT
Breakout 2 - Updates in DBS - Break out Rm 1
Dr Kyle Nelson & Sarah Donley, RN
Breakout 3 - Parkinson's & Palliative Care - Break out Rm 2
Dr Kevin Webb-Kay
1:45 p.m. Move to Next Breakout
2 p.m. Breakout Rooms
Breakout 1 - Food for Mood & Wellness - Ballroom
Laura Deshotels- DPT
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Robin Williams: Demencia con cuerpos de Lewy, suicidio y Parkinson
A lo largo de su carrera, el genio de la comedia Robin Williams nos hizo reír y nos emocionó con sus actuaciones. Pero su historia también aumentó la conciencia acerca de la demencia con cuerpos de Lewy, una prevalente enfermedad que altera la vida. Volcó la tan necesaria atención sobre la importancia de la salud mental y los síntomas no motores de depresión y ansiedad que pueden acompañar a una enfermedad neurodegenerativa.
Casi 10 años después de su fallecimiento, ¿qué sabemos acerca de la demencia con cuerpos de Lewy? ¿Cómo podemos ayudar a la gente que tiene una enfermedad neurológica cuando experimentan pensamientos suicidas?
¿Qué es la demencia con cuerpos de Lewy?
La demencia con cuerpos de Lewy (DCL) es un trastorno cerebral progresivo que se diagnostica cuando el deterioro cognitivo es uno de los primeros síntomas. También puede diagnosticarse cuando el deterioro cognitivo y los síntomas motores comienzan y se desarrollan conjuntamente.
"La demencia con cuerpos de Lewy es un tipo común de demencia —es la segunda demencia neurodegenerativa más común después del Alzheimer," dijo Jennifer G. Goldman, neuróloga especializada en trastornos del movimiento jefa de sección de enfermedad de Parkinson y trastornos del movimiento en el Shirley Ryan AbilityLab y profesora de medicina física y rehabilitación y neurología en la Feinberg School of Medicine de la Northwestern University, un centro de excelencia de la Parkinson’s Foundation.
"Se cree que afecta a 1.4 millones de individuos en los EE.UU., pero no está ampliamente reconocida. Con una mayor educación y concientización, donde la demencia con cuerpos de Lewy incluya tanto la demencia con cuerpos de Lewy como la demencia de la enfermedad de Parkinson (EP), podemos empezar a cambiar ese panorama."
¿Cuál es la diferencia entre la demencia con cuerpos de Lewy y la demencia de la enfermedad de Parkinson?
La demencia con cuerpos de Lewy es un término utilizado tanto para la demencia de la enfermedad de Parkinson como para la demencia con cuerpos de Lewy. Tienen algunas cosas en común, pero su progresión y tratamiento son diferentes.
Aunque muchas personas con Parkinson pueden experimentar cambios cognitivos, es importante saber que no todas las personas con Parkinson desarrollarán demencia. "Cuando observamos cambios cognitivos más graves, sobre todo cuando afectan la función o la capacidad de alguien para actuar de forma independiente en las actividades de la vida diaria, su trabajo o sus aficiones, lo consideramos como una forma de demencia", afirma la dra. Goldman.
"Con la demencia de Parkinson, los síntomas motores preceden a la demencia. En la demencia con cuerpos de Lewy, el síntoma principal inicial es la demencia; los cambios cognitivos son tempranos y los rasgos motores, si están presentes, aparecen tras el inicio de la demencia o de forma concurrente", dijo la dra. Goldman.
Luchar por un diagnóstico
Antes de que a Robin Williams le diagnosticaran demencia con cuerpos de Lewy, se informó que experimentaba de paranoia, confusión, insomnio, estreñimiento y falta de olfato. Para muchos, la amplia gama de síntomas iniciales —no todos relacionados con la función cerebral—, dificulta el diagnóstico de la demencia con cuerpos de Lewy.
La Dra. Goldman exhorta a los pacientes a luchar por encontrar su diagnóstico. "Continúe buscando las respuestas y busque a un especialista que le ayude a identificar la causa de los problemas cognitivos o el tipo de demencia", dijo la dra. Goldman. "El médico adecuado puede cambiar el tratamiento, el pronóstico y la posibilidad de participar en estudios de investigación. Es importante tener el mejor entendimiento de la enfermedad para tener la oportunidad de obtener los mejores resultados."
Las personas que viven con Parkinson se benefician más de un enfoque de cuidado integral y basado en el trabajo en equipo que incluya un profesional de la salud mental. Con un equipo establecido, si surgen la depresión o pensamientos suicidas, tendrá una relación establecida con un profesional en quien confía. Sin embargo, nunca es demasiado tarde para añadir un profesional de la salud mental a su equipo de atención.
Si usted o un ser querido tiene pensamientos suicidas:
Encuentre el recurso que le funcione: las líneas directas de prevención del suicidio disponibles las 24 horas pueden ayudar, como la National Suicide Prevention Lifeline (Línea Nacional de Prevención del Suicidio) llamando al 1-800-273-8255.
Busque ayuda profesional: Busque un psicólogo, terapeuta, consejero o trabajador social en quien pueda confiar y apoyarse.
Manténgase activo: Para las personas con Parkinson, puede ser fácil distanciarse. Intente ponerse en contacto con familiares y amigos, programe llamadas telefónicas periódicas, busque un grupo de apoyo o una clase de bienestar.
Construya su equipo de apoyo: llame a la Línea de Ayuda de la Parkinson's Foundation al 1-800-4PD-INFO (473-4636), opción 3 para español, para encontrar un grupo de apoyo local o en línea.
Existen opciones de tratamiento para la demencia con cuerpos de Lewy y la demencia de la enfermedad de Parkinson. Los equipos de atención médica están descubriendo que el enfoque más eficaz es una combinación de medicación, ejercicios físicos y mentales y la incorporación de un profesional de la salud mental como parte de dicho equipo.
"Se está investigando bastante acerca de la demencia con cuerpos de Lewy", dijo la dra. Goldman. "Los investigadores intentan comprender por qué ocurre y si existen diferencias entre la demencia de la enfermedad de Parkinson y la de cuerpos de Lewy, a pesar de que comparten muchos síntomas clínicos y patología. La investigación en curso abarca desde el intento de predecir o detectar cambios tempranos en individuos que podrían desarrollar demencia con cuerpos de Lewy hasta el estudio de distintos tratamientos: desde medicamentos hasta ensayos más recientes que empiezan a estudiar el papel de los ejercicios mentales y físicos.”
Más recursos
La Parkinson’s Foundation cree en empoderar a la comunidad de Parkinson a través de la educación. Aprenda más:
Contacte a la Línea de Ayuda de la Parkinson’s Foundation llamando al 1-800-4PD-INFO (1-800-473-4636), opción 3 para español, para obtener más información acerca de cualquiera de estos temas y el Parkinson.
Fundraising Events
Community Walk Ageility Palm Aire
8:30 am to 12:00 pm EST
FREE
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Participants will learn how research helps shape treatments and identify new care strategies for managing Parkinson’s symptoms. This program will also provide information on current research in Parkinson’s.
*This program may include moderately scientific terms and concepts.
Speakers:
Clarisse Goas, MS, APRN-CNP
Nurse Practitioner
The Center for Parkinson's Disease and Other Movement Disorders
The Ohio State University Wexner Medical Center
Zachary Jordan, MD
Physician
Clinical Assistant Professor of Neurology
The Center for Parkinson's Disease and Other Movement Disorders
The Ohio State University Wexner Medical Center
Pietro Mazzoni, MD
Co-Director
The Center for Parkinson's Disease and Other Movement Disorders
The Ohio State University Wexner Medical Center
Ariane Park, MD, MPH
Co-Director
The Center for Parkinson's Disease and Other Movement Disorders
The Ohio State University Wexner Medical Center
Michael Schonberger, DO, MBA
Physician
The Center for Parkinson's Disease and Other Movement Disorders
The Ohio State University Wexner Medical Center
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
The Parkinson's Foundation and University of Michigan, a Parkinson's Foundation Center of Excellence, are excited to invite you to our Parkinson's Symposium.
Roger Albin, MD, Movement Disorders Neurologist and Director of the Udall Center of Excellence for Parkinson’s Disease Research at the University of Michigan will be speaking about research on “Trying to Figure Out How L-Dopa Works”.
Miriam Bohnen DPT, Physical Therapist with the University of Michigan Functional Neuroimaging, Cognitive, and Mobility Laboratory will be sharing research findings about movement and activity in PD including discussing “The Moving Desk” and addressing practical approaches to increasing daily activity.
Speakers
Roger Albin, MD
Movement Disorders Neurologist and Director of the Udall Center of Excellence for Parkinson’s Disease Research
University of Michigan
Miriam Bohnen, DPT
Physical Therapist
Functional Neuroimaging, Cognitive and Mobility Laboratory
University of Michigan
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
The Parkinson’s Foundation Great Lakes Chapter is pleased to be working with Michigan Medicine for the March 15th and June 21st programs in Ann Arbor, Michigan.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
You’re invited to a Moving Day Sacramento Kickoff on Thursday, April 11, 2024 at The Barn Drake’s Brewing Co. in West Sacramento! Guests will enjoy live music and a raffle. There are also food trucks and beers/drinks available for purchase. You will be able to mingling with Moving Day team captains, local business leaders, and Moving Day committee members.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Please join us for a virtual conversation around creating estate plans for families with Parkinson’s. Our expert speaker will discuss the basics of estate planning including the importance of having a plan in place, an introduction to the essential documents needed for an estate plan, and some common estate plan structures. Attendees will have a clearer understanding of various terms like wills, trusts, probate, and powers of attorney and will learn how to find an experienced professional to assist with estate planning.
Speaker
Julie Westbrock Vice President of Business Development
TrustPoint Wealth Management
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
Join the Parkinson’s Foundation for the Pacific Northwest Parkinson’s Symposium. Learn about motor and non-motor symptoms and treatments, hear about research, and find resources to help you live your best life with Parkinson’s.
This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required as in-person seating is limited.
Mothers will receive a flower in honor of Mother’s Day!
Speakers include:
Anny Lin, MD, UW Medicine Movement Disorder Clinic
Pravin Khemani, MD, Swedish Movement Disorders Clinic, a Parkinson's Foundation Center of Excellence
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Join us for the launch of Ambassadors in Action—a special 4-part pilot series designed to connect Parkinson’s Foundation Ambassadors, volunteers, and staff to expand education and outreach in our communities.
