Educational Events

Cómo las perspectivas hispanas están transformando el cuidado de la salud

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
Una pareja mirando una tableta juntos en su porche

Regístrese Aquí

Este webinar ofrecerá una visión general sobre los diferentes tipos de investigación clínica, incluyendo la observacional y la intervencional. Exploraremos investigaciones psicosociales enfocadas en mejorar la comunicación en personas con la enfermedad de Parkinson y cómo las opiniones de los participantes son esenciales para la creación de grupos de apoyo culturalmente inclusivos. Se destacarán las perspectivas de los participantes y se discutirán formas de involucrarse en estudios de investigación para contribuir al avance del cuidado de Parkinson.

Presentadora

Gemma Moya-Galé, PhD, CCC-SLP  
Profesora adjunta, Programa en Ciencias y Trastornos de la Comunicación 
Directora del Laboratorio Comunicación, Tecnología y Diversidad Lingüística 
Directora, Speech for PD
Teachers College, Columbia University (un Centro de Excelencia de la Parkinson's Foundation)
 

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa en YouTube.


Más información:

Todos los eventos de “EP Salud en Casa" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos

Línea de Ayuda – 1-800-473-4636, opción 3 para español.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

Light of Day

Upcoming Events

Educational Events

Learn More. Live Better. Parkinson's Symposium

9:00 am to 1:30 pm EST
FREE
Learn More. Live Better. Parkinson's Symposium banner

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. 

Expert Speakers

Henry P. Moore, MD
Director of Movement Disorders at Palm Beach County
University of Miami-Miller School of Medicine 
A Parkinson’s Foundation Center of Excellence

Daniel Kantor, MD, FAAN
Vice President, Clinical Research & Development | Gateway Institute for Brain Research 

Tarannum Khan, M.D., CPE, FAAN, FANA
Ambulatory Director (Weston Neurology)
Staff Neurologist, Movement Disorders
Pauline Braathen Neuroscience Institute

Learn more about the expert speakers and panelists by clicking here.

Panelists

Shoshana Bielich, MS, CCC-SLP, CBIS, Cleveland Clinic Weston Hospital

Shari Gordon, DPT, Cleveland Clinic Weston Hospital

Jacqueline A Bryan, MSW | Social Worker | Neuroscience Institute

Laura Duarte, Cleveland Clinic Weston Hospital

Fitness Demonstration: Lenisson "Lenny" Carneiro, PT, DPT, GCS, CEEAA), Dr. Physio Therapy & Wellness

Fitness Demonstration: Allie and Mark Barker, RAW Kickboxing and Fitness

Event Volunteers Needed! Service hours and lunch are provided. To sign up and learn more, visit: Volunteer sign-up here

For in-person attendees: Check-in and Resource Fair start at 9 a.m. Lunch will be served.

Unloading/Room Location: The program is located at the Main Entrance, Building B. Parking and drop-off is in front of the building. For the entrance to our parking lot, use this address: 500 NE 2nd St., Fort Lauderdale, FL 33301

There is no charge to attend, but registration is required since lunch will be served. This program is open to people with Parkinson's, their family, friends and the community.

Gold Sponsor

Upcoming Events

Fact Sheets

Exploring Next Steps in Care

Parkinson’s disease (PD) usually progresses slowly over time. As needs increase, different types of care can help support daily life.

When is it time to get more help?

Talk regularly with loved ones and your care team. Share what is going well, what is becoming more difficult and any safety concerns. You may need more help if your symptoms begin to affect safety or daily activities, or if care partners feel overwhelmed. The goal is to match your needs with the right amount of care.

Signs You May Need More Help:

  • Staying active or social is difficult

  • Treatments are confusing or hard to keep up with

  • Daily tasks like getting out of bed or bathing are no longer safe alone

  • You need help getting to appointments or errands

  • The care partner feels worn down or has health concerns

  • There are safety concerns, such as falls, getting lost or medication mix-ups

  • It's hard to move safely around your home

What care options are available?

Support can take place in different settings as needs change. The tables below show services that support living at home and housing with added support.

Home-Based Support

  • Care partners, Family & Friends — May help with household tasks, personal care, medications, driving and support

  • Meal & Transportation Services — Meal or grocery delivery, rides to appointments, shopping or social activities

  • Personal Care Aide, Homemaker & Companion Care — Help with errands, housekeeping, daily living activities like dressing and bathing, medication reminders, meal preparation and companionship

  • Short-Term Skilled Care — Nursing care or therapy at home for a medical need, often for a few weeks after an illness or injury

  • Adult Day Programs — Supervised daytime programs with meals, activities and care outside the home

  • Respite Care in Residential Settings — Short stays in a care facility for temporary care

Housing Options with Added Support

  • Independent Living — Private housing with meals, activities and housekeeping

  • Assisted Living — Housing with help for daily tasks, medications, meals and activities

  • Residential Care Homes — Small home settings with 24/7 care staff and on-call nursing

  • Skilled Nursing — 24/7 nursing care for serious medical needs or rehabilitation

  • Continuing Care Retirement Community — A range of living options with increasing levels of care in one place

  • Memory Care — Support for memory and thinking changes, often within assisted living or skilled nursing

Parkinson's Care

Look for care teams with Parkinson's experience. Ask about staff training, services and support for daily needs.

The Parkinson’s Foundation Community Partners in Parkinson’s Care program trains care staff to support people living with PD. Contact the Helpline for participating organizations and to learn about other local resources.

Paying for Care

Medicare and private insurance do not cover many long-term care costs. Medicaid, Veterans benefits or long-term care insurance may help. An elder law attorney or financial planner can help you understand your options. To find a certified elder law attorney, visit Naela.org or contact your local Area Agency on Aging.

Tips for Finding Local Care Resources

  • Ask your support network for recommendations, including your family, friends, support group and care team.

  • Research care options. Check references and reviews. Arrange tours or interviews and bring someone with you.

  • Rely on trusted organizations, like the Parkinson's Foundation and your local Area Agency on Aging.

Educational Events

Managing Changing Symptoms

10:00 am to 12:30 pm CDT
FREE
Managing Changing Symptoms Banner Updated

After many years of good symptom management, Parkinson’s disease may become more challenging.  Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Expert Speaker:
Enrique Urrea-Mendoza, MD
Neurologist | Movement Disorders Specialist
Assistant Professor
Department of Clinical Sciences
FSU Health | FSU College of Medicine

Lunch will be served.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

This program is hosted by the Parkinson’s Foundation Gulf Coast Chapter, in collaboration with Southeast Health.

Southeast Health logo

Upcoming Events

Educational Events

Celebrate Movement in the PNW

Virtual ( Zoom )
7:00 pm to 7:45 pm PDT
Free
Movement

Join us for a webinar this month to Celebrate Movement in the PNW, with our guests Dirty Freehub! They will be sharing information about their All Access program, an amazing resource for those with PD looking to get out and ride their bike in Oregon this summer. We'll also share upcoming events in region and ways to create your own movement-based event. See you on April 23! 

Upcoming Events

Fundraising Events

Community Walk Seaside Park, NJ

8:45 am to 10:45 am EST
FREE
Group of people going through the finish line at a Moving Day Walk

Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.  

The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.

Learn more about bringing an event to your area

Upcoming Events

Educational Events

Learn More. Live Better. Parkinson’s Symposium

10:00 am to 2:00 pm CDT
FREE
Learn More. Live Better. Parkinson's Symposium banner

Check-in & the Resource Fair (for in-person attendees) begins at 9:00 a.m. CDT 

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life.  This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.

Expert Speaker:

Anthony P Nicholas, MD, PhD, The University of Tennessee Health Science Center


There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Upcoming Events

Educational Events

Managing Changing Symptoms

1:00 pm to 3:00 pm EST
Free
Managing Changing Symptoms Banner Updated

Check-in begins at noon and the program starts at 1 p.m. 

After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Speakers from OSU Wexner Medical Center:

Katherine Brownlowe, MD Neuropsychiatrist

Jonathan Zins, DPT, PT Physical Therapist

Elyse Everett, MD Neuropalliative Care Physician

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Upcoming Events

Educational Events

Parkinson's Resource Fair

1:00 pm to 3:30 pm CDT
Free
Symposium

Join us in growing your knowledge of support, classes, and services for your journey with Parkinson's. Visit the local resources at the exhibit tables to learn more about their offerings. Join us to hear what a newly trained movement disorder specialist has learned about treating people living with PD and an overview of motor and non-motor symptoms and cognition. Complimentary refreshments.

Speaker:

Dr. Meaghan Berns
M Health Fairview

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community. 

The program is in partnership with the Eden Prairie Community Center

eden prairie

Thank you to our sponsors.

Supernus
Acadia
Amneal logo
SilverCrest
Navigate Aging
Visiting Angels
Amada

Upcoming Events

Fact Sheets

All About PD: Mental Health

Mental health symptoms are common in Parkinson’s disease (PD). Learn the causes, signs and what to do. You are not alone.

Up to 50% of people with PD experience depression or anxiety.

Understand the Causes

The same brain chemicals that affect movement in PD can also impact emotions and behavior. Stress, isolation, life’s ups and downs and coping with PD also play a role.

Know the Signs

Feeling sad, anxious or unmotivated from time to time is normal. If these feelings last or interfere with daily life, reach out for help.

Depression, anxiety and apathy, if not managed, can worsen movement symptoms and impact quality of life.

Depression: Ongoing sadness, low energy, loss of pleasure, hopelessness.

Anxiety: Excessive worry, fear or stress, restlessness, irritability.

Apathy: Lack of motivation, disinterest in activities once enjoyed.

Call or text 988 if you’re in crisis.

What You Can Do

Talk to your doctor
Mental wellness care often includes lifestyle strategies, talk therapy and other forms of support. Sometimes, medications are needed too.

Keep moving
Even just 30 minutes of moderate activity, like walking or yoga, boosts brain chemicals that help reduce stress, anxiety and depression.

Seek support
Reach out to friends, family, counselors, support groups and other resources. For guidance, contact our Helpline at 1-800-4PD-INFO (1-800-473-4636).

Stay engaged
Schedule time to connect with others and look for ways to get involved. Even when you don’t feel like it, staying active can improve your mood over time.

For more tips to support your mental health, visit Parkinson.org/MentalHealth.

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