Podcasts

Episode 170: Introducing Our Hospital Safety Guide

A hospital stay can be a stressful situation for everyone, whether you are the person receiving care or the support person providing comfort.  People with Parkinson’s (PD) are at a higher risk of hospitalizations, so it is crucial to be prepared ahead of time for when the situation arises. The Parkinson’s Foundation recently created the Hospital Safety Guide, which is the updated and improved version of the former Aware in Care kit. The Guide incorporates information from the kit, but now highlights the “Five Parkinson’s Care Needs”, which is a tool for communicating your needs and priorities with hospital staff. It also includes a Hospital Planner checklist with step-by-step instructions on how to create a hospital “go bag” for emergencies. The Guide provides infographics and real-life examples from people with Parkinson’s and loved ones who have solved common problems relating to their PD when in the hospital. 

In this episode, Annie Brooks, Director of Strategic Initiatives at the Parkinson’s Foundation, discusses features of the new Hospital Safety Guide and how best to use it.

Released: July 9, 2024

Fundraising Events

Moving Day Birmingham

9:00 am to 12:00 pm CDT
FREE

Moving Day banner - Multigenerational family standing in front of a hand-drawn Moving Day logo at the Parkinson's Foundation walk

Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.

Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better — from lifesaving resources to delivering quality care to more than 196,700 people living with Parkinson’s to improving Parkinson’s treatments through research.

Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
Educational Events

Navigating Advancing Needs

4:00 pm to 7:00 pm EST
FREE
Navigating Advancing Needs

Check-in and vendor visits start at 4 p.m. and the program starts at 4:45 p.m.

Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression, and understanding the importance of financial and legal planning, so you can live your best life with PD now.

Speakers

Elizabeth Zauber, MD
IU Health, A Parkinson's Foundation Center of Excellence

Justin Schuhmacher, Attorney at Law
Indiana Estate and Elder Law

There is no charge to attend, but pre-registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
Educational Events

Parkinson’s Disease Patient and Family Symposium 2024

Virtual ( Zoom )
10:00 am to 1:00 pm CDT
FREE
raising hands in a conference

Parkinson's Foundation and Northwestern Medicine Parkinson's Disease and Movement Disorders Center present: Parkinson's Disease Patient and Family Symposium.

This program will feature experts discussing: Tips from a Movement Disorder Specialist, Advances in Parkinson’s Research, and the Benefits of the Creative Arts for PD. Q&A with the experts, will follow each presentation.

Speakers

Tanya Simuni, MD, FAAN
Northwestern Medicine

Danny Bega, MD, MSCI
Northwestern Medicine

Paulina Latapi, MD, MSc
Northwestern Medicine

Carly Liegel
The Joffrey Ballet

Linda Jedrzejek, MT, BC
Neurologic Music Therapist

Lisa Bany
The Second City

Annie Arnold, MA, ATR-BC, LCPC, CATAP
Institute for Therapy through the Arts

This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required.

Northwestern Medicine logo

A Parkinson's Foundation Center of Excellence

Northwestern Medicine Parkinson's Disease and Movement Disorders Center provides innovative, multidisciplinary care for patients and families affected by Parkinson's disease and other movement disorders. The Center's care team works to promote health, education and support for patients. It also supports caregivers, family members, healthcare providers and the community. We continually strive to meet the needs of the Parkinson's community in a variety of ways. In doing this, we have adapted our annual symposium to a virtual setting for the safety and accessibility of the larger Parkinson's community.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
Educational Events

Opening Up on Uncomfortable Topics

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
FREE
Husband and wife lookin at a tablet while on their porch

Wellness Wednesday

There are many daily challenges associated with Parkinson’s disease that may lead to social discomfort and ultimately isolation.  This webinar will focus on a few that may be less talked about including drooling, urinary incontinence, dyskinesia and even eating in public.  We will discuss how each impacts the person with Parkinson’s and address ways to speak to family and friends about how these visible symptoms cause self-consciousness in social situations.

Speaker

Taylor Rush, PhD - Health Psychologist
Director of Behavioral Services and Interdisciplinary Programs
Center for Neurological Restoration
Cleveland Clinic, A Parkinson's Foundation Center of Excellence

There is no charge to attend, but registration is required.

We want to thank this webinar's sponsor, Merz, for supporting our mission.

Merz Therapeutics

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
Advancing Research

4 Ways People with Parkinson’s Can Avoid Common Hospital Complications

Older woman laying in a hospital bed holding her adult daughter's hand and speaking to a doctor

For most people, being in the hospital is a stressful experience. People are usually sick or experiencing a health issue. For people with Parkinson’s disease (PD), their symptoms may get worse, and new symptoms, like confusion or thinking changes, can develop because of stress, infection, fatigue, sleep disturbances, surgery or new medications.

A new published review of more than 35,000 hospital admissions of people with Parkinson’s found an increased risk of delirium and aspiration pneumonia as potentially avoidable complications. 

As we share in our Hospital Safety Guide, preparation and clear communication can help you minimize complications and recovery time when hospitalized. Understanding the risks you or a loved one with Parkinson’s face and ways to have your needs met can help the hospital care team provide the best possible care. 

Know how to identify Delirium

Delirium is a reversible change in a person's level of attention and concentration. 

Anti-nausea, gastrointestinal and pain medications, which are routinely given before and after surgery, can worsen existing PD symptoms or cause new, temporary symptoms like delirium. Avoiding these medications can decrease your risk of developing delirium.

Additionally, some common treatments for delirium aren’t appropriate for people with PD, and can make Parkinson’s symptoms and the delirium worse. If you or a loved one develop delirium in the hospital, it is important to avoid the antipsychotic medications that are antidopaminergic, meaning they decrease the amount of dopamine in the brain. 

People with Parkinson’s should only be given one of the three antipsychotics that are safe: 

  1. Pimavanserin (Nuplazid)
  2. Quetiapine (Seroquel)
  3. Clozapine (Clozaril). 

All psychotics, with the exception of these three, should be avoided in nearly all circumstances.

Read our list of medications to avoid

Know the signs of Aspiration Pneumonia 

Aspiration pneumonia accounts for 70% of deaths among people with PD, according to an NIH study

Aspiration pneumonia is an infection that happens when bacteria from your mouth gets pulled down into the lungs and causes an infection. This can happen after a person aspirates, meaning they swallow the wrong way, and something enters their airways or lungs. Aspiration occurs more frequently when someone has issues with swallowing (dysphagia), which is a common Parkinson’s symptom. 

To prevent aspiration and aspiration pneumonia, people with Parkinson’s need to be screened for swallowing changes, also known as dysphagia, to safely maintain their medication routine and minimize their risk of aspiration pneumonia and weight loss. 

In addition, ensuring that you or your loved one with Parkinson’s get their Parkinson’s medications on time and avoid contraindicated medications that are not safe for people with Parkinson’s can also help prevent the development of new dysphagia or the worsening of mild dysphagia. 

Tips to avoid delirium and aspiration pneumonia in the hospital

Tip 1.  Avoid medications that are not safe for Parkinson’s. 

This can potentially help you to:

  • Prevent delirium caused by taking contraindicated anti-nausea medications
  • Prevent worsening of delirium caused by taking contraindicated antipsychotic medications

Review the list of harmful medications on the Parkinson’s Care Summary with your hospital care team before surgery and before any new medication is prescribed.

Tip 2. Take medications on time, every time to help prevent new or worsening swallowing challenges. 

If your nurse or speech-language pathologist is concerned about your swallowing ability, discuss safe ways to continue taking your medications, such as with a sip of water or crushed with applesauce.

Use the Medication Form to list all your medications for Parkinson’s and other conditions, including over-the counter medications and supplements in the order that you take them each day. Your list should be clearly labeled with the dosage (usually mg or milligrams) and the specific time that you take each medication.

Download the Medication Form

Tip 3. Tell your nurses if you are having trouble swallowing and ask to see the Speech Language Pathologist (SLP). 

Together, your nurse and SLP can provide safety measures to decrease risks.

You may need to temporarily stop eating and drinking if you have a serious swallowing issue (dysphagia) or are scheduled for a medical procedure that requires fasting. If you or your loved one are instructed you cannot swallow pills, show the nurse and SLP “Other Ways to Take your Medication” to explore potential ways to safely continue taking Parkinson’s medications

If you have swallowing or speech symptoms, we recommend you regularly see a speech language pathologist. Once discharged, ask your doctor for a referral, or call our Helpline at 1-800-4PD-INFO (1-800-473-4636).

Tip 4. Reducing the risk of aspiration pneumonia is a two-part process.

Help reduce aspiration pneumonia when hospitalized and at home that involves (1) preventing swallowing issues and (2) reducing bacteria in your mouth by cleaning your teeth and mouth regularly. Learn more about dental health and Parkinson’s.

Prevent aspiration by eating when PD meds are working and you have energy. It can also help to sit up for meals and take smaller bites. Prevent aspiration pneumonia by brushing your teeth, tongue and mouth before and after eating to reduce bacteria. 

Read more about the steps you can take to avoid delirium, aspiration pneumonia, and other avoidable complications in our Hospital Safety Guide.

Help Spread the Word

Share this graphic on Facebook to help your friends and family with Parkinson's stay safe in the hospital.

Graphic for social media sharing that explains the tips from this blog to help prevent complications while in the hospital
 
Fundraising Events

Moving Day Atlanta Corporate Breakfast

8:00 am to 9:30 am EST
FREE
Moving Day DC

Check-in begins at 7:30 a.m.

The Moving Day Atlanta Corporate Kickoff Breakfast is an opportunity for business and community leaders to come together in support of the Parkinson’s Foundation’s mission to make life better for people living with Parkinson’s disease (PD).

Enjoy a complimentary breakfast while hearing powerful stories from our Parkinson’s community and learning how your organization can get involved with Moving Day Atlanta—the Parkinson’s Foundation’s signature fundraising walk.

Whether you are a long-time supporter or exploring partnership for the first time, this event offers meaningful ways to engage your business, build community impact, and support the Foundation’s vital work to improve care and advance research toward a cure.

Because awareness is moving. Community is moving. Georgia is moving.

There is no charge to attend, but registration is required.  

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
Podcasts

Episode 169: Implications of Gene-Based Therapies for Parkinson’s Disease

Gene-based therapy for Parkinson’s disease is an area of research that is currently being developed. It works by introducing genetic material into the brain, which can then “instruct” cells to produce compounds that can potentially alleviate symptoms of Parkinson’s. Although years have gone by since the first gene-based clinical trial, there is still much to learn before fully realizing its potential impact to treat Parkinson’s disease.

In this episode, Movement Disorders Neurologist, Andrew Feigin, MD of New York University Langone Health discusses what gene-based therapy is, how it differs from cell-based therapy, different trials currently in progress, and considerations for future research.

Released: May 28, 2024

Thank you to this episode’s podcast sponsor:

Blue Rock logo
Raise Awareness

The Latest on The National Parkinson's Project

Capital building

The National Parkinson’s Project is a first-ever federal initiative to prevent and cure Parkinson’s disease, treat its symptoms and slow or stop its progression. The National Parkinson’s Project is being carried out under the National Plan to End Parkinson’s Act, by the Secretary of Health and Human Services (HHS).

What’s Next

The U.S. Department of Health and Human Services is building a supporting advisory council to develop the National Parkinson’s Project. This is a collaborative effort, as government agencies and leaders in the PD space, including the Parkinson’s Foundation, will provide essential community input and planning support.

The National Parkinson’s Project will encompass research, care, and services for Parkinson’s and all other neurodegenerative Parkinsonisms, including multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, and Parkinson’s-related dementia.

To receive updates on the Act, please sign up for the NIH listserv.


January 2025 Update

National Plan to End Parkinson's Update: NIH Seeks Nominations for Advisory PD Council

The National Institutes of Health (NIH) has received a delegation of authority to lead the implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act, which was signed into law on July 2, 2024. Along with the HHS Office of the Assistant Secretary for Health (OASH), the National Institute of Neurological Disorders and Stroke (NINDS), part of NIH, will co-chair the Advisory Council on Parkinson’s Research, Care, and Services called for in this Act.

The NIH, with support from OASH and in collaboration with the Council, will create, maintain, and periodically update a National Plan to prevent, diagnose, treat and cure Parkinson’s, as well as stop disease progression.

The National Plan will encompass research, care, and services for Parkinson’s disease (PD) and all other neurodegenerative Parkinsonisms, including multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, and Parkinson’s-related dementia.  

To receive updates on the Act, please sign up for the NIH listserv.


September 2024 Update

President Biden Signs Parkinson's Bill into Law 

How to Make an Impact on Parkinson’s National Day of Action

On September 17, 2024, thousands of policy advocates across the country will virtually rally together to urge elected officials to take steps to better understand and address environmental risk factors for Parkinson’s disease (PD).

Led by the Unified Parkinson’s Advocacy Council, the Parkinson’s National Day of Action is entirely virtual, and it only takes a few minutes to participate! On September 17:

  1. Sign a petition to the White House urging them to ban paraquat, a harmful herbicide thought to increase Parkinson’s risk by as much as 500%.
  2. Call your member of Congress to ask them to cosponsor the HEALTHY BRAINS Act (H.R. 9233). This new bill would direct the federal government to research environmental risk factors for neurodegenerative diseases like Parkinson’s.
    • Call Congress directly from your phone by looking up your senators’ and representatives’ office numbers online or by calling the U.S. Capitol Hill switchboard at 202-224-3121 and ask to be connected to their offices.

More than 1 million Americans live with Parkinson’s, the second most common and fastest growing neurological disease. Help us get closer to a cure by participating in the Parkinson’s National Day of Action!


July 2024 Update

On July 2, 2024, President Biden signed the National Parkinson's Project into law. This is the first-ever federal legislation dedicated to ending Parkinson’s disease (PD).

Top five ways this monumental bill can make an impact:

  1. Dramatically increase federal research funding
  2. Develop more effective pathways for treatments and cures
  3. Improve early diagnosis
  4. Spark new and improved models for patient care
  5. Address health disparities in diagnosis, treatment and clinical trial participation

“The Parkinson’s Foundation is excited for what comes next,” said John Lehr, Parkinson’s Foundation President and CEO. “We look forward to having input in designing exactly how this bill will mobilize meaningful change for the one million Americans living with this disease.”

The Parkinson’s Foundation would like to thank all the PD advocates, volunteers and people who wrote to their senators and representatives to make this bill to become law. We also thank President Biden and members of the U.S. Senate and House of Representatives for helping us make PD history.

President Biden Signs the National Plan to End PD into law

Spread the word!

Share this monumental victory on your social media channels! Get friends and family excited that Parkinson’s disease has received legislative support.

Share the news on social media. Click here.

Timeline at a Glance:

  • July 2, 2024: President Biden signs the National Parkinson's Project S.1064/H.R.8585), the first-ever federal legislation dedicated to ending Parkinson’s.
  • May 23, 2024: U.S. Senate passes the Act.
  • December 14, 2023: U.S. House of Representatives passes the Act.
  • March 29, 2023: the Act is reintroduced in the House and Senate for the 2023 session.

What’s Next?

Follow us on social media (Facebook, X, Instagram and others) to stay up to date on what happens next. We are excited to document the process and any movement spurred by the new Act and our involvement alongside the Michael J. Fox Foundation and other leaders in the PD space to establish next steps.


May 2024 Update

On May 23, 2024, the U.S. Senate unanimously passed the National Plan to End Parkinson’s Act, the first-ever federal legislation dedicated to ending Parkinson’s disease (PD). Next, the bill will be sent to President Biden’s desk to be signed into law. The bill passed with overwhelming bipartisan support in the U.S. House of Representatives in December.

“As we eagerly await the bill to be signed into law, we applaud members of congress for their bipartisan support and recognition of one of the most pressing health care issues of our day,” said Parkinson’s Foundation President and CEO John L. Lehr. “On behalf of the Parkinson’s Foundation, I’d like to thank members of the United States Congress for joining the Michael J. Fox Foundation for Parkinson’s Research, the Unified Parkinson's Advocacy Council and the greater PD community in the fight against Parkinson’s disease.”

This monumental bill has the potential to shape the lives of the one million Americans living with Parkinson’s. It is designed to:

  • Dramatically increase federal research funding
  • Develop more effective pathways for treatments and cures
  • Improve early diagnosis
  • Spark new and improved models for patient care
  • Create standards and measures to prevent Parkinson’s disease
  • Address health disparities in diagnosis, treatment and clinical trial participation
  • Enhance public awareness of the disease

Timeline at a Glance:

  • On May 23, 2024, the U.S. Senate passed the National Plan to End Parkinson’s Act S.1064/H.R.8585), the first-ever federal legislation dedicated to ending Parkinson’s.
  • On December 14, 2023, the Act passed through the U.S. House of Representatives.
  • On March 29, 2023, the Act was reintroduced in the House and Senate for the 2023 session.

What’s Next?

Once President Biden signs the bill into law, the Federal government will begin to establish actionable steps to carry out the plan. The Parkinson’s Foundation looks forward to working alongside the Michael J. Fox Foundation and other leaders in the PD space to help throughout this process.

Content provided by The Michael J. Fox Foundation for Parkinson’s Research (MJFF). Read the MJFF blog article here.


December 2023 Update

Congress Reintroduces the National Plan to End Parkinson’s Act

On December 14, 2023, The National Plan to End Parkinson’s Act (S.1064/H.R.8585) passed through the U.S. House of Representatives. Next, the bill will go to the U.S. Senate. 

Now is the time to have all of your members of Congress sign on to support the bill so it will pass this session!

Social media graphic - National Plan to End PD

Your senators and representatives need to hear from members of the Parkinson’s community about why we need a focused, national strategy to prevent Parkinson’s, find a cure, and ensure those living with the disease can access care.

Specifically, we encourage members of the Parkinson’s community in the U.S. to Call Your Members of Congress.

  • Call Congress directly from your phone by looking up your senators’ and representatives’ office numbers online or by calling the U.S. Capitol Hill switchboard at 202-224-3121 and asking to be connected to their offices.

VIEW THE CALL SCRIPT

Telling Your Story: An easy step-by-step guide

Members of Congress and their staff want to know what is important to you and how to best represent you. Your representative and senators need to learn about what it is like living with Parkinson’s — or loving or knowing someone with Parkinson’s — so they can understand why it is important to support The National Plan to End Parkinson’s Act (S.1064/H.R.8585). 

Here is an easy way to help you tell your story to members of Congress and their staff:

  • Hello, my name is ____________________, and I live in _____________.
  • I would like to ask you to support The National Plan to End Parkinson’s Act (S.1064/H.R. 8585), and I’d like to start off by telling you why it’s important and so personal to me, if that’s okay with you and you have the time. 
  • I was diagnosed/My loved one was diagnosed with Parkinson’s disease in _____. Here is a little bit of information about the impact Parkinson’s has had on my/their life: 
    • Impact at work
    • Impact at home with daily tasks
    • Impact on family and friends
    • Impact on finances
    • Impact on other areas of life that you wish to share 
  • There is no way to slow, stop, or reverse Parkinson’s from progressing.
  • There is also no way to prevent Parkinson’s, and there is no cure for the disease.
  • Parkinson’s is the fastest-growing brain disease in the world, and more than a million people in the U.S. have Parkinson’s. 
  • I’d like to ask you to support The National Plan to End Parkinson’s Act (S.1064/H.R. 8585) so that the government and private sector can come together to end this disease. This is a bipartisan bill, and it comes at no cost. Supporting this bill is important to me and to others in our area and across the United States.

I hope you will help contribute to a cure by co-sponsoring this legislation. 

On July 28, 2022, the U.S. House of Representatives introduced the first-ever legislation solely devoted to ending Parkinson’s. This is a historic moment for the Parkinson’s community!

The National Plan to End Parkinson’s Act will, for the first time, unite the federal government and private enterprises in a mission to prevent and cure Parkinson’s, alleviate financial and health burdens on American families, and ensure those living with the disease have access to the care they need.

This bipartisan legislation is led by Representative Paul Tonko (D-NY) and Representative Gus Bilirakis (R-FL). The Parkinson’s community is thankful for its leadership.

Now what?

This bill will go through the traditional congressional process and will need to be voted on by the House. A Senate’s companion bill will be introduced in the coming weeks, because it is standard congressional procedure for both chambers of Congress to pass the bill before it can go to the President for signature.

Why a national plan and why now?

Parkinson’s is a disease that requires a national effort to cure and prevent. Parkinson’s costs the U.S. $52 billion every year, half of which is shouldered by the federal government, and that annual cost is expected to grow to $80 billion by the year 2037.

A national plan to end Parkinson’s has the potential to:

  • Dramatically increase federal research funding
  • Develop more effective pathways for treatments and cures
  • Improve early diagnosis
  • Spark new and improved models for patient care
  • Create standards and measures to prevent Parkinson’s disease
  • Address health disparities in diagnosis, treatment and clinical trial participation
  • Enhance public awareness of the disease

The public-private advisory council created as part of this legislation will report every year to Congress on their progress and impact in ending Parkinson’s. This is the kind of forward-looking strategy and responsible accountability the Parkinson’s community needs and deserves.

The Parkinson’s Foundation is a member of the Unified Parkinson’s Advocacy Council (UPAC), a collection of nearly 30 Parkinson’s organizations that come together to help shape federal and state public policy in ways that support the Parkinson’s community. There will be many opportunities for all of us to engage our Members of Congress on this legislation and have conversations about the bill and its intended impact, and we will begin to communicate those opportunities in the coming weeks.

Content provided by The Michael J. Fox Foundation

We will update this blog and our social media channels as the legislation advances, so stay tuned! Follow us on Facebook, Instagram and Twitter.

Fundraising Events

Community Walk Niceville

9:00 am to 1:00 pm EST
FREE
Group of people going through the finish line at a Moving Day Walk

Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.

The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.

Learn more about bringing an event to your area

Upcoming Events

Fundraising Events

2025 Utica Boilermaker Race Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Utica, NY
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