This program will cover various treatment options for Parkinson’s Disease, from exercise, therapies, medications, and surgery options.
Speakers
Dr. Fernando Pagan
Dr. Yasar Torres-Yaghi
More speakers are to be announced.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Episode 149: How Artificial Intelligence Can Detect Parkinson’s from Breathing Patterns
Historically and even today, Parkinson’s disease (PD) is a clinical diagnosis, wherein a physician observes signs of the disease and an individual reports symptoms. In routine practice, there is no blood test, other biomarker, or machine to make the diagnosis or to track progression of the disease. But given advances in computing power and through computer analysis of massive amounts of data, artificial intelligence (AI) may add a valuable tool to the diagnostic process. In one form of AI, a computer analyzes a stream of input data to discern patterns that represent an outcome of interest.
A recent study used AI to non-invasively collect and analyze data on breathing patterns, using one night of breathing signals from 7,671 individuals with PD as they slept. One of the co-authors of the study was Aleksander Videnovic, MD, MS of Harvard Medical School and Massachusetts General Hospital, where he is Chief of the Division of Sleep Medicine. The hospital is a Parkinson’s Foundation Center of Excellence. In this episode, he explains how the study was done, its findings, and how AI may be useful for diagnosis of PD, gauging its severity, following its progression, and possibly, in the future, assessing risk of PD before its clinical diagnosis.
Released: April 18, 2023
Aleksandar Videnovic, MD, MSc is an Associate Professor of Neurology at Harvard Medical School, Director of the Division of Sleep Medicine at MGH, and Director of the MGH Program on Sleep, Circadian Biology and Neurodegeneration. He completed Neurology residency at Northwestern University Feinberg School of Medicine in Chicago, followed by fellowships in Movement Disorders at Rush University and Sleep Medicine at Northwestern University.
Dr. Videnovic holds a Master of Science degree in clinical research. His clinical activities include the diagnosis and treatment of a wide spectrum of movement disorders and co-existent sleep dysfunction associated with these disorders. Dr. Videnovic directs a clinical and research program on REM Sleep Behavior Disorder at MGH. His research programs are focused on the interface of sleep, circadian biology and neurodegeneration, as well as on clinical trials in sleep and neurodegenerative disorders, with an emphasis on Parkinson's disease. Dr. Videnovic serves on numerous scientific committees within professional organizations, including the American Academy of Neurology, the American Academy of Sleep Medicine, the International RBD Study Group and the Parkinson Study Group.
Expert Briefing: Freezing and Fall Prevention in Parkinson's
April 12, 2023
While aging may put us all at an increased risk for falling, people living with Parkinson’s disease have twice the risk of their peers. Falls often result in injuries ranging from minor cuts to serious fractures, impacting mobility and quality of life. Learn how freezing and other movement and non-movement symptoms can contribute to falls and how to lessen the risk.
Colum MacKinnon, PhD
Professor, Department of Neurology, Institute of Translational Neuroscience, University of Minnesota
Educational Events
Mind, Mood & Motion
3:00 pm to 6:00 pm EST
FREE
Check-in and exhibitor tables open at 2 p.m. ET
Parkinson’s disease effects multiple aspects of a person’s life. Join us and learn about some of the cognitive, emotional, and movement symptoms that can come with Parkinson’s, hear from top researchers in the state about advancements in treatments and care, and get connected with local wellness classes and support groups so that you can live your best life with Parkinson’s.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Expert Speakers:
Mitesh Lotia, MD
Movement Disorder Neurologist, AdventHealth Neuroscience Institute
Dawn Bowers, PhD, ABPP/CN
Neuropsychologist, UF Departments of Neurology and Clinical & Health Psychology
UF Research Foundation Professor, the Director of the Cognitive Neuroscience Laboratory
Norman Fixel Institute for Neurological Diseases, a Parkinson's Foundation Center of Excellence
Expert Panelists:
Moderator: Joanne August, MSN, BSN
OPS Research Scholar
UF Departments of Neurology & Movement Disorder
Laura Patrick, PT, DPT
Clinical Neuro Program Manager, AdventHealth
Mia Watler, MSW
Brain Health Clinical Social Worker, AdventHealth
Tammy Dunseath
Genesis Health Clubs Brownwood
Gary Canner, Parkinson's Foundation Ambassador & Person with Parkinson's Joan Canner, Gary's Spouse and Care Partner
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Get out and move with your community! Every dollar raised supports the Parkinson’s Foundation mission to make life better for people affected by Parkinson’s disease (PD). At Moving Day Community Walks across the country, we’re fighting Parkinson’s and celebrating movement — proven to help manage Parkinson’s symptoms — and we’re doing it together. The Moving Day Community Walk Program is a complement to the Parkinson’s Foundation Moving Day, A Walk for Parkinson’s. These walks are family-friendly and help the Foundation make life better for people with PD.
The Community Walk program offers volunteers an opportunity to organize a walk in their own community that does not have a Moving Day event. The program leverages the personal experiences and community leadership of passionate volunteers to promote Parkinson’s awareness and raise funds for the Parkinson’s Foundation.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.
Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better — from lifesaving resources to delivering quality care to more than 196,700 people living with Parkinson’s to improving Parkinson’s treatments through research.
Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.
Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better — from lifesaving resources to delivering quality care to more than 196,700 people living with Parkinson’s to improving Parkinson’s treatments through research.
Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners and loved ones to help beat PD. Moving Day is more than just a walk. It’s a celebration of movement – proven to help manage Parkinson’s symptoms.
Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better — from lifesaving resources to delivering quality care to more than 196,700 people living with Parkinson’s to improving Parkinson’s treatments through research.
Moving Day proceeds help bring quality care to more people with Parkinson’s, further Parkinson’s research, education and outreach initiatives. Moving Day raises awareness of Parkinson’s both nationally and in the local community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
April 17 to 23 marks National Volunteer Week! All year round, we rely on the passion and energy of volunteers serving as Parkinson’s Foundation Ambassadors, to make a difference in the lives of people with Parkinson’s disease (PD) every day. Thank you from the bottom of our hearts for everything you do in your community to spread awareness and make life better for people with Parkinson’s today.
Meet three amazing volunteers and read their inspiring stories that celebrate their contributions to the PD community.
Mark Kelm
People with Parkinson’s Advisory Council Vice Chair
Minnesota and Dakotas Chapter
Living with young-onset Parkinson’s disease while raising three kids with my wife has offered a few unique challenges and a superabundance of blessings. Like so many others experience, my PD rigidity, tremors, and balance issues make daily life tasks more taxing for me. It can be easy to allow these symptoms to make me sit on the sidelines of life. I’m sure many others have felt the same way.
I have come to understand, however, that we were not made to sit on the bench. We were created to actively engage in this life, making an impact in our own small but significant way.
When my wife and I told our kids of my diagnosis, they were in ninth, seventh and third grade. Our oldest daughter jumped right in, volunteering with the Parkinson’s Foundation Minnesota and Dakotas Chapter. She inspired us to participate as a family in Moving Day Twin Cities. That day, we became more aware of other opportunities to connect and volunteer. By getting involved, we have found that volunteering connects us to others, is good for our minds and bodies, and has brought fun and fulfillment to our lives… keep reading.
Moving Day San Antonio Team Captain
South Central Chapter
I do not do it alone. Like the saying goes, “There’s no I in team.” Going into my third year as team captain of “Team Sloth” for Moving Day San Antonio, I am very proud to volunteer with this energetic and passionate group to raise awareness of Parkinson’s. I may be the captain, but WE all do it all together.
Parkinson’s disease (PD) is not always an easy conversation, especially for the other party. It was difficult for me as well at the very beginning. It took me four years to tell my family and friends that I, indeed had Parkinson’s. I just couldn’t say the words.
Eventually, I found and joined a support group. I learned that they were going to participate in a walk to raise funds for Parkinson’s. I thought to myself, “this is the time to tell my family and friends” … keep reading.
The impact my father’s Parkinson’s diagnosis had on my family was severe and palpable. I’m an only child, so it’s just my mom, dad and me. Shortly after Dad was told he had Parkinson’s in 2018, there was an aggressive narrowing of their independence in the span of about 90 days. My mom became the primary caregiver to my dad, and luckily, I only live about an hour away, so since I’m fairly close I can be there at almost a moment’s notice to help when needed.
It was hard on all of us — the uncertainty and unknowns related to my dad’s diagnosis, but also the change in the family dynamic.
I work in Nasdaq’s San Francisco, CA, office. About six months before my dad was diagnosed with PD, my boss at the time, Jeff Thomas, whose father also has PD, organized a company happy hour to support the Parkinson’s Foundation Moving Day San Francisco event. In that first year, as we all familiarized ourselves with Parkinson’s, Jeff became a great resource and comfort since he had lived through what I was experiencing. He encouraged me to check out the Foundation’s resources and helped me get involved in Moving Day.
Getting involved with the Parkinson’s Foundation felt like a way to do something for my mom… keep reading.
