My PD Story

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People with PD

Cherrie Zaun

It’s been nearly two years, but it feels like yesterday when the doctor told me I have Parkinson’s disease (PD). My First worry was what it would mean to my family. Then, of course I was concerned about how it will affect my second great passion golf.

In my 20s, I took a job as the women’s coach at the University of Southern California and played golf on the Ladies Professional Golfer’s Association (LPGA) tour as a minor league pro. I put the game on hold for nearly two decades while my husband and I were raising our three children. Then, in the late 90s, I joined the Futures Golf Tour, competing in more than 36 tournaments over three years.

Gradually, I began to feel something was wrong. My right arm often seemed frozen at my side, my right foot dragged and I tired easily. It felt like I had only half a body. My golf game suffered. I struggled just to sign my name. I hoped it was a pinched nerve, but thought it could be something worse.

My son, Baltimore Orioles Catcher Gregg Zaun, set me up for a battery of tests with his team doctors. In 2003, I was diagnosed with Parkinson’s disease.

I felt helpless. I read everything I could to learn how to live my life in spite of the disease. Armed with information, I set out to fight the battle against Parkinson’s

Today, I’m able to teach and play golf again.* I talk about PD with doctors and other Parkinson’s Patients. Every day, I learn more about this disease is still in it’s impact on the body and spirit.

My disease is still in it’s early stages, so I don’t have any tremors. I’m taking medicine, including a drug called Mirapex ( pramipexole dihydrochloride tablets), one of a class of medications called dopamine agonists. I’m exercising (I find yoga and golf especially helpful) and I welcome the support of my family and friends.

Living with Parkinson’s disease is not all that different from doing great at the round of golf- it takes practice and determination.

My doctor is optimistic that, one day, a cure will be discovered. Meanwhile, my initial fear of the disease is gone and my joy of life has never been stronger. I wish the same for you!

My PD Story

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People with PD

Tyaisha Blount-Dillon

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“I keep active so I can keep up with my son,” said Tyaisha Blount-Dillon, a dedicated mom of 8-year-old William-Wallace and wife who is living with Young-Onset Parkinson’s disease. “My husband and I enjoy going to my son’s baseball games. I have a goal that if he is playing baseball in college, I am going to attend without using any assistive devices. I don't allow myself to imagine anything else.”

In the near decade since Tyaisha was diagnosed at age 35, her determination to live a long, healthy life with Parkinson’s disease (PD) has only strengthened. Today, Tyaisha helps and listens to others living with the disease, because she knows just how difficult getting a diagnosis can be. She hopes that her appearance in “Better Lives. Together.” the Parkinson’s Foundation public service announcement (PSA) will spread critically needed awareness to the millions of people who live with or love someone with PD.

“I hope that this video really informs everybody because when I didn't have a diagnosis is when I most used the Parkinson's Foundation,” said Tyaisha. “The website offers so much information, and so many resources, like the Helpline, that are so empowering.”

When Tyaisha was officially diagnosed in 2013, she had already forged a proactive path toward better health. She had spent nearly 10 years searching in vain for the cause of her debilitating symptoms, including extreme fatigue and painful muscle cramps (which she later found out was a form of dystonia common in Young-Onset PD). Her age and gender were not considered typical of PD, and as a Black woman experiencing bias in healthcare, finding proper medical care was that much more challenging.

“I was very athletic, and I still am, so my physique did not look like someone who was ill,” said Tyaisha. “Doctors would tell me that I wasn't sick, but why would I tell them I was having trouble walking if nothing was wrong? Doctors did not believe me, and I could not find any medical support.”

Tyaisha did her best to push through her mounting pain and fatigue. Ultimately, after experiencing a heartbreaking pregnancy loss prior to her pregnancy with William-Wallace, she knew she had to be even more aggressive in finding out what was wrong.

“There was a point in 2010 where I could barely walk. I was lethargic and I didn’t know what was wrong,” said Tyaisha. “My brain was not coming together properly with my body.”

Relying on her research and what she remembered from her physical therapy courses in college, Tyaisha designed an exercise regimen for herself. She hired a personal trainer and set out to eat healthier. “I was walking better and getting stronger,” she said.

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She became pregnant again, unwavering in her dream of being a healthy, active and involved mom. “I kind of had to put myself in a position to fight, because I knew this was not the end for me,” she said.

Tyaisha’s pregnancy with William Wallace also created a sense of urgency for her healthcare team to find a diagnosis. She eventually found a doctor she trusted. “He had the patience and the understanding I was looking for in a provider,” said Tyaisha.

After undergoing several neurological tests, Tyaisha’s care team finally arrived at a Parkinson’s diagnosis. With a newly prescribed course of medications, her health continued to improve.

She gave birth to a healthy son, William-Wallace, who follows his mom’s active example. “I demonstrate to him that every day is a new day,” she said. “If I had a bad day yesterday, I forget about it and start over.”

While Tyaisha’s journey with PD has included ups and downs, she has continued to find new ways to adapt. She shifted from a high-stress full time job to self-employment. She underwent deep brain stimulation (DBS) surgery to help control her movement symptoms when her son was just six years old. She continues to stay active every day, whether gardening, working out with her trainer or playing with her son.

"Parkinson’s stretches you — it can force you to do things that you never thought you would be able to do,” said Tyaisha. “You just need to develop ways to fight through it. People may feel that they cannot improve, but I am living proof that you can.”

Watch our “Better Lives. Together.” public service announcement

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