En este webinar, diseñado para los aliados en el cuidado que enfrentan el agotamiento mientras apoyan a su ser querido, aprenderán a reconocer las señales de agotamiento del cuidador, comprender qué es y explorar herramientas y estrategias prácticas para manejar el estrés y mantener su bienestar mientras brindan cuidados.
10 a.m. Hora del Pacífico (Los Ángeles) 11 a.m. Hora de la Montaña (Colorado, Phoenix y Nuevo México) 12 p.m. Hora del Centro (Texas y Ciudad de México) 1 p.m. Hora del Este (Nueva York , Peru y Colombia) 2 p.m. Hora de Venezuela 3 p.m. Hora de Chile y Argentina
*Por favor, verifica su zonas horarias.*
Presentadora
Edna Hutchinson
CCHW-S3
Gerente de programa, Programa de Educación para la Autogestión de Enfermedades Crónicas
Instructora de formación en primeros auxilios para la salud mental
Instructora del programa PEARLS, Presbyterian Community Health
Panelistas
Margarita Monroy
Aliada en el cuidado
Martha Suárez Torres
Aliada en el cuidado
Terapeuta del lenguaje especialista en Parkinson
Máster en enfermedades neurodegenerativas
Certificada por la Parkinson’s Foundation en el Team Training Program For Parkinson´s y Team-Based Palliative Care Essentials for Parkinson´s
Miembro de la Asociación Civil Parkinson Caracas y de la Sociedad de Trastornos del Movimiento.
Embajadora Líder de la Davis Phinney Foundation for Parkinson´s
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Join the Parkinson’s Foundation to hear from keynote speaker Ray Dorsey, MD, co-author of “The Parkinson’s Plan.” The presentation will overview key points of the book including how prevention, better care, smarter policy and advocacy can change the future of Parkinson’s.
Come together with your community for the presentations, a resource fair, exercise demonstrations, “The Parkinson’s Plan” book signing (while supplies last), and more.
This event is free and open to people with Parkinson's and their families. Registration is required as in-person seating is limited.
Thank you to our event partner, the Greater Fresno Parkinson’s Support Group.
Speakers:
Ray Dorsey, MD
Dr. Ray Dorsey is a neurologist, researcher, and public health advocate working to end Parkinson’s disease by addressing its root causes: toxic environmental exposures. He is the founding Director of the Center for the Brain & Environment at Atria Health and Research Institute and serves as Professor of Neurology at the University of Rochester. Dr. Dorsey has testified before Congress, advised the World Health Organization, and was recognized by the White House as a “Champion for Change.” He is the co-author of Ending Parkinson’s Disease (2020) and the New York Times bestseller, The Parkinson’s Plan: A New Path to Prevention and Treatment (2025).
Rafael Zuzuárregui is a neurologist who cares for patients with Parkinson's disease and other movement disorders. He specializes in using deep brain stimulation (electrodes implanted in the brain to regulate abnormal activity) and botulinum toxin therapy (injections that can relieve muscle contractions). He is also interested in diagnosing and treating rapid eye movement (REM) sleep behavior disorder (a condition in which patients physically act out vivid dreams).
Zuzuárregui's research focuses on the overlap between movement disorders, such as Parkinson's disease, and sleep disorders. He is particularly interested in how deep brain stimulation can help improve sleep in patients with these disorders. He also studies issues related to medical education.
At Boston University School of Medicine, Zuzuárregui earned his medical degree; completed a residency in neurology, serving as chief resident; and completed a fellowship in movement disorders. He then completed a fellowship in sleep disorders at Stanford University School of Medicine. He is a member of the American Academy of Neurology and International Parkinson and Movement Disorder Society.
As Associate Vice President of Advocacy and State Policy for the Parkinson's Foundation, Deborah Swerdlow leads the Foundation's state policy work as well as efforts to engage people with Parkinson's, care partners, and other community members in support of both federal and state policies. Deborah comes to the Foundation with 15 years of experience in policy and advocacy, including her most recent government service as Chief of Staff at the U.S. Department of Agriculture's Food, Nutrition and Consumer Services mission area. She previously served as Deputy Director of the State Campaigns team at the Center on Budget and Policy Priorities, where she led national issue campaigns on tax policy, food assistance, pandemic relief and other anti-poverty priorities. Earlier in her career, she served as Grassroots Advocacy Coordinator for the American Association of University Women and as a program associate and legislative assistant at the Religious Action Center for Reform Judaism.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Please join the Parkinson's Foundation Midwest Chapter in partnership with the Froedtert & the Medical College of Wisconsin Movement Disorders Team, for our Parkinson's Disease Symposium- Brookfield, WI.
This program will feature experts discussing: Ways to Manage Anxiety, Stress, & Depression, Research Updates, Advanced Treatments for PD, and Urinary & Pelvic Floor Health.
For in-person attendees: In-person check-in starts at 10 a.m. Coffee and a boxed lunch will be provided.
For virtual attendees, via Zoom: This program is also available to watch with Zoom, with the streaming portion for at-home viewers, beginning at 12:30 p.m. and ending at 3:00 p.m. CT.
Speakers
Hilary Hicks, PhD
Froedtert & MCW health network
Karen Blindauer, MD
Froedtert & MCW health network
Kunal Gupta, MD, PhD, FAANS
Froedtert & MCW health network
Molly Sievers DPT, NCS
Froedtert & MCW health network
Adria Rodriguez, PT
Froedtert & MCW health network
This program is open to people with Parkinson's, their family, their friends, and the community. There is no charge to attend, but registration is required.
10:00 a.m.-3:00 p.m. CT
• Guest Check In/Vendor Visit/Coffee: 10:00-10:45 a.m. • Welcome: 10:45-10:55 a.m. • Managing Anxiety, Stress, and Depression in PD: 10:55 -11:30 a.m.
• Boxed Lunch/Visit Vendors/Break: 11:30 a.m.-12:20 p.m.
• First Movement Break: 12:20-12:30 p.m.
*12:30 p.m.-Note, this is when the live stream (Zoom) starts for home viewers*
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
More than 110,000 U.S. veterans living with Parkinson’s disease (PD) receive care through the Department of Veterans Affairs (VA), which offers access to specialized treatment, financial benefits, and dedicated support services. In this webinar, we’ll explore the wide range of resources available to veterans with PD through the VA system, including Parkinson’s Disease Research, Education and Clinical Centers (PADRECCs), affiliated sites, and Veteran Service Organizations (VSOs). Participants will also learn how the Parkinson’s Foundation partners with the VA to provide additional education, tools, and support for veterans and their families.
Gretchen Glenn, LCSW
Associate Director of Education
Corporal Michael J. Crescenz VA Medical Center
Philadelphia Parkinson's Disease Research, Education, and Clinical Center
Chair of the National VA Parkinson’s Disease Consortium Education Subcommittee
Helen R. Komninos (McHugh)
NSO Assistant Supervisor
DAV National Service Officer
Cuidar de alguien que tiene problemas de memoria o de pensamiento conlleva desafíos diarios únicos para los aliados en el cuidado y las familias. Acompáñenos en este webinar diseñado especialmente para aliados en el cuidado. Exploraremos estrategias prácticas para promover la movilidad diaria conservando la independencia de su ser querido, prevenir caídas, iniciar conversaciones abiertas con su familia y seres queridos acerca de los servicios de apoyo disponibles para ayudar a guiar un mejor cuidado de su ser querido, y aprender a navegar desafíos frecuentes que los cambios de conducta y cognitivos pueden traer a la experiencia de cuidado.
9 a.m. Hora del Pacífico (Los Ángeles y Phoenix) 10 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México) 11 a.m. Hora del Centro (Texas, Colombia y Perú) 12 p.m. Hora del Este (Nueva York y Venezuela) 1 p.m. Hora de Chile y Argentina
Presentadores
Dra. Tais Protasio
Especialista en medicina geriátrica
Ilian Mino
Asistente de investigación
División de Medicina Geriátrica,
CU Anschutz School of Medicine
Joanna Fitzgibbons, Maestra en Ciencias
Coordinadora del programa,
División de Medicina Geriátrica,
CU Anschutz School of Medicine
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
For most people, being in the hospital is a stressful experience. For people with Parkinson’s disease (PD), symptoms may get worse and new symptoms can develop. Proactively understanding the risks a person with Parkinson’s faces in the hospital can help to minimize complications and recovery time.
Join the Parkinson's Foundation to learn about common challenges and ways to advocate for the best possible care while hospitalized. Attendees will receive a Hospital Safety Guide, parking, and lunch at no cost. Registration is free but required, and seating is limited.
Speakers:
Andrea Fuentes, MD, Movement Disorder Specialist, UCSD
Adriana Gonzalez, MSW, LCSW, Clinical Social Worker, UCSD
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Cuéntenos su experiencia con el Parkinson por medio de imágenes que lo inspiren a compartir momentos o historias relacionadas con la enfermedad. En este programa lo invitamos a participar e interactuar con su comunidad de Parkinson. Para asegurar la privacidad de su participación, no estaremos grabando el programa. Queremos ofrecer un espacio de confianza y ánimo.
10 a.m. Hora del Pacífico (Los Ángeles) 11 a.m. Hora de la Montaña (Colorado, Phoenix y Nuevo México) 12 p.m. Hora del Centro (Texas y Ciudad de México) 1 p.m. Hora del Este (Nueva York , Peru y Colombia) 2 p.m. Hora de Venezuela 3 p.m. Hora de Chile y Argentina
*Por favor, verifica su zonas horarias.*
Presentador
Eric E. Espinoza
Coordinador de programa y vinculación, Programa de la enfermedad de Parkinson y los trastornos del movimiento
Coordinador de estudios de investigación, KTEAM Lab
Shirley Ryan AbilityLab
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Acompáñenos para conocer más acerca de PD GENEration, el estudio pionero de la Parkinson’s Foundation que ofrece pruebas genéticas sin costo a personas con la enfermedad de Parkinson. Compartiremos lo que hemos aprendido hasta ahora de la comunidad hispana, en qué consiste este estudio, los beneficios que ofrece y los pasos para participar, tanto en los Estados Unidos, como en Latino América.
Además, contaremos con el testimonio de un participante del estudio genético, quien compartirá su experiencia.
10 a.m. Hora del Pacífico (Los Ángeles y Phoenix) 11 a.m. Hora de la Montaña (Colorado, Nuevo México y Ciudad de México) 12 p.m. Hora del Centro (Texas, Colombia y Perú) 1 p.m. Hora del Este (Nueva York y Venezuela) 2 p.m. Hora de Chile y Argentina
Presentadora
Rebeca De Leon
Directora, Investigación Clinica, Parkinson's Foundation
Panelista
Lic. Laura Ayde Olmos Araujo, MBA
Licenciatura en Administración y Maestría en Administración de Negocios de
Texas A&M International University,
Embajadora líder con la Davis Phinney Foundation,
Embajadora de Parkinson con el WPC2026,
Fundadora de Parkinson Laredo
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Please join us for a Facebook live Q & A discussion on Monday, 8/25, at 3 pm EST with the co-authors of the new book, The Parkinson’s Plan: A New Path to Prevention and Treatment, Dr. Michael S. Okun and Dr. Ray Dorsey.
Moderated by the Chief Medical Officer of the Parkinson’s Foundation, Dr. Sneha Mantri.
Each month, Dr. Rush invites you to slow down, breathe, and reconnect with yourself and your Parkinson’s community through a guided mindfulness practice.
Some people with Parkinson’s disease (PD) experience changes in thinking or memory — known as cognitive impairment. While some may struggle focusing on a task, others have difficulty remembering information. Cognitive changes can be common when it comes to Parkinson’s and aging, but every person’s experiences and symptoms are unique to them.
Cognitive impairment is related to Parkinson’s because people living with this disease experience a decrease in the level of dopamine in their brain, the neurotransmitter that is involved in regulating the body’s movement and maintaining working memory.
Here are 10 things everyone should know about Parkinson’s and cognitive changes:
1. Cognitive decline is common in Parkinson's.
Mental and movement decline tend to happen together for people with Parkinson’s. Symptoms of mild cognitive impairment often do not interfere with home and work life. The cognitive changes that accompany Parkinson’s early on tend to be limited to one or two mental areas, with severity varying from person to person. Areas most often affected include attention, speed of mental processing, problem-solving and memory issues.
2. Cognitive changes may occur early in the disease.
Doctors used to believe that cognitive changes did not develop until the middle- to late- stages of PD, but recent research suggests that mild changes may be present at the time of diagnosis.
3. Cognitive Change is different than Dementia.
Cognitive impairment is not dementia, which is when cognitive impairments occur in more than one area of cognition. Dementia leads to a more serious loss of intellectual abilities that interferes with daily living. While mild cognitive impairment can affect 20-50% of people with PD, not all lead to a dementia diagnosis.
4. Executive function changes can be frequent in Parkinson’s.
One of the most prominent cognitive changes in Parkinson's is impairment of executive function. This can impact planning, organizing, multitasking and decision-making. Loved ones can help the person with PD by providing cues, reminders and greater structure of activity.
5. Short-term memory problems are associated with cognitive changes.
The basal ganglia and frontal lobes of the brain (both help the brain organize and recall of information) may be damaged in PD. Long-term memory is typically less impacted, however, short-term memory and the ability to recall recent information are often affected. This can result in difficulty with common tasks such as making coffee, checking your emails, etc.
Research has shown that these strategies can help keep your memory sharp:
Exercise: Finding an activity that you love and can partake in regularly is critical to living with PD. Exercising regularly has been shown to improve cognition and memory problems. The Parkinson’s Foundation’s Fitness Fridays provide a variety of exercises that aim to support those with Parkinson’s.
Find Mentally Stimulating Hobbies: Reading, puzzles, gardening and art are all examples of hobbies that can keep you entertained while sharpening your mind. It’s important for people with Parkinson’s to find hobbies that can promote mental stimulation.
6. Cognitive Change may alter attention and concentration abilities.
People with Parkinson’s may have difficulty sustaining attention or concentrating on tasks for extended periods. This can lead to having issues with mental calculations or concentrating during a task.
Here are some tips to help your attention skills:
Set timers while completing a task to help keep your attention span for the time being. The Pomodoro Technique helps improve focus by working in 25-minute intervals with short breaks in between tasks.
Nourish your body with foods that promote brain health, such as the “MIND” Diet including food groups like whole grains, berries, and vegetables. Prioritize sleep. A minimum of six hours a night is needed to keep your attention and concentration sharp. Try to stick to a consistent sleep schedule every night, going to bed at the same time, to help your body make it a habit.
7. People in the early stages of PD may have trouble with depth perception.
Subtle visual-perceptual problems may contribute to visual misperceptions or illusions. During early stages of Parkinson’s, people often have trouble measuring distance and depth perception. When PD advances, people with PD face problems with processing information about their surroundings or environment.
8. Up to 50% of people with Parkinson's experience depression.
Up to half of people with PD experience a form of depression during the disease. Depression is more likely to occur in people with Parkinson’s who face severe cognitive impairment. Those suffering with depression can find it harder to control motor symptoms. However, depression is often treatable. Talk to your PD doctor about this symptom.
9. Sleep issues are common in Parkinson’s and can impact cognition.
Problems with falling and staying asleep are very common in people with PD. The effects of sleep problems throughout the night can result in physical and cognitive fatigue throughout the day.
The four main sleeping problems related to PD are:
To address sleep issues, talk to your PD doctor who may prescribe medication or a sleep specialist. Some natural remedies include creating a sleep ritual, avoiding screen time before bed, running a warm bath and more.
Issues staying asleep and early morning awakening (insomnia).
Involuntary movements and pain that interrupt sleep.
Increased nighttime urination.
Nighttime agitation, vivid dreams and visual misperceptions or hallucinations.
10. There are different treatments to address cognitive changes.
While researchers are still discovering new ways to address cognitive change in people with PD, doctors often recommend a combination of treatments to help with cognitive change.
They can include:
Cognitive remediation therapy: this treatment emphasizes teaching alternative ways to compensate for memory or thinking problems. It involves using information from neuropsychological testing to identify cognitive strengths that can be used to help overcome weaker areas of thinking.
Behavioral management: Makingchanges in the home environment can help minimize memory, visual-perceptual or orientation difficulties.
Talk to your PD doctor: Yourdoctor can help you come up with treatments options to address your most bothersome cognitive symptoms. They can also refer a psychiatrist, neuropsychologist, speech or occupational therapist for more assistance.
Create a support system: Work on building your own support network. Support groups are often amazing resources.
Explore our Parkinson’s Learning Lab for more information on Cognitive Change.
