In-person attendance is now at capacity. Please register to join us virtually.
Join us for a day dedicated to groundbreaking insights and community connections, where you’ll learn about the latest treatments, ongoing research, and resources available locally and beyond. Engage with expert-led sessions and interactive demonstrations to empower yourself to live your best life with Parkinson's. This symposium is for patients and caregivers looking to deepen their understanding and enhance the well-being of those with Parkinson's. Secure your spot today.
Keynote Address:
Dr. Ray Dorsey
Featured Speakers:
Ochsner Movement Disorders Providers & Care Team
Movement Disorder Specialists from Across the State of Louisiana
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
This program is hosted by Ochsner Health in partnership with the Parkinson's Foundation Gulf Coast Chapter.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
Join the Parkinson’s Foundation for the Learn More, Live Better Symposium in Chattanooga. Attendees will learn about symptoms, treatment options and strategies to help navigate the challenges of living with PD. While each person’s experience is unique, the more you know, the more empowered you will be to play an active role in your care and manage your life with Parkinson’s.
Speakers - TBA
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
This program is hosted by the Parkinson's Foundation Tennessee-Kentucky Chapter in partnership with Erlanger.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
En este webinar contaremos con una musicoterapeuta certificada, quien hablará acerca de la musicoterapia y sus beneficios, explorando sus efectos físicos, mentales, emocionales y sociales en la enfermedad de Parkinson.
La sesión será interactiva, invitándolo a cantar, moverse y tocar instrumentos, todo para calentar un día de invierno.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
20 regalos adecuados para una persona con Parkinson
🧠 ¿Qué aprenderá en este artículo?
Este artículo ofrece ideas de regalo para algún conocido suyo que vive con la enfermedad de Parkinson. Incluye:
20 regalos adecuados para una persona con Parkinson.
Ideas de regalos pensados para hacer la vida un poco más fácil.
Regalos que una persona con Parkinson puede utilizar en distintos estadios de la enfermedad.
¿No sabe qué regalar a su ser querido con la enfermedad de Parkinson (EP) para las próximas fiestas o un cumpleaños? El Parkinson es una enfermedad que progresa con el tiempo y conlleva una infinidad de síntomas y, a veces, un pequeño regalo puede ayudar a facilitar un poco la vida.
Los siguientes productos no están respaldados por la Parkinson’s Foundation.
1. Para quien quiere moverse
Las investigaciones demuestran que el ejercicio habitual puede ayudar a aliviar los síntomas de la EP. Ayude a motivar a su ser querido a hacer ejercicio. Las pesas ligeras pueden llevar el gimnasio a su sala, mientras que un ejercitador de pedal de bicicleta portátil puede ayudar a activar la circulación, desde cualquier silla. Una nueva raqueta de pickleball puede inspirar el movimiento y generar comunidad. Para entrenamientos a la carta, explora nuestros videos de Viernes de Ejercicio.
2. Para quien necesita simplificar su cuidado personal
Mantener la salud dental es importante para las personas con Parkinson, ya que los síntomas pueden complicar el cuidado dental. Un cepillo eléctrico o un dispensador de pasta de dientes ayudan en estas tareas dentales diarias. Simplifique otras tareas de cuidado personal con una afeitadora eléctrica para hombres y mujeres.
3. Para quien ama ver a sus seres queridos
¡Ver a su ser querido en persona puede ser el mejor de todos los regalos! Entre visita y visita, ayúdele a tener las manos libres con un dispositivo inteligente para videollamadas, como el Amazon Echo Show. Estos dispositivos suelen tener la ventaja añadida de contar con un calendario y alertas activados por voz. Ayude a su ser querido a configurar otras funciones inteligentes, como conectarlo a lámparas y electrodomésticos mediante enchufes inteligentes.
4. Para quien necesita ayuda para probar cosas nuevas
Un 40% de las personas con la EP utiliza terapias complementarias para obtener alivio de los síntomas. Considere regalar una experiencia que su ser querido pueda probar cerca, como una clase de Tai Chi o yoga, una sesión de acupuntura o un masaje.
5. Para los amantes de la buena comida
Es habitual que las personas con la EP experimenten cambios de peso: algunas pierden peso, mientras que otras aumentan. Un regalo infalible para cualquier foodie puede ser programar una deliciosa entrega de comida de un restaurante local o comprarle sus comestibles para la semana utilizando un servicio de entrega como Instacart o AmazonFresh.
Haga que ver la televisión y comer bocadillos sea más cómodo con una bandeja de TV ajustable. Para el que lo ha visto todo, regale una suscripción mensual a un servicio de streaming que su ser querido aún no haya probado.
12. Para quien quiere mostrar su apoyo
Explore la tienda en línea de la Parkinson's Foundation para encontrar regalos atentos que devuelven algo. Desde sudaderas calentitas, playeras, botellas de agua, bolsos y pegatinas (stickers) y más, tenemos algo para todos. Cada compra genera concientización sobre la EP y apoya nuestra misión de facilitar la vida a las personas con Parkinson. Es una manera profunda de generar un impacto. Comprar ahora.
13. Para quien ama revivir los recuerdos
Un álbum de fotos personalizado tiene posibilidades ilimitadas y puede ser un gran tema de conversación. Elige un tema con valor sentimental: vacaciones familiares pasadas, una página dedicada a cada persona de la familia, lugares favoritos. Ver fotos del pasado puede ayudar con la memoria.
14. Para el amante de la naturaleza
Si su ser querido no puede esperar a las actividades de primavera o verano, un sombrero nuevo puede ayudarle a protegerse del sol. Los bastones de trekking (o bastones para caminar) también pueden ayudarle a disfrutar de los paseos y las excursiones al aire libre.
15. Para quien necesita darse un gusto
El autocuidado es esencial para las personas con Parkinson y sus aliados en el cuidado. Una lámpara de fototerapia puede ayudar a aliviar o prevenir la depresión estacional, mientras que un juego de lociones de spa puede ayudar a tratar los cambios en la piel, otro síntoma de la EP. Busque productos que traten la piel que pica, grasosa, seca e inflamada, todos ellos síntomas de la EP.
16. Para quien disfruta de ejercitar el cerebro
Los libros de rompecabezas pueden ayudar a dar variedad al día y promover la estimulación mental. La lectura de libros puede ayudar a las personas con la EP a mantener la claridad mental.
17. Para quien ama contar historias
Ayude a su ser querido a contar su historia. Cada semana, Storyworth books le envía a usted (o a su ser querido) una pregunta. Al final del año, las respuestas se encuadernan en un libro. Para compartir la experiencia, programe una llamada semanal con su ser querido y respondan juntos a la pregunta.
Los audiolibros permiten tener las manos libres y disfrutar de la lectura durante los paseos o los viajes largos en auto. Regale una suscripción a Audible de uno a 12 meses. Igualmente, los lectores de libros electrónicos, como Kindle, también pueden facilitar un poco la lectura a las personas con Parkinson. Ayude a configurar el Kindle con texto grande y otros ajustes personalizados.
20. Para quien lo tiene todo
Nunca subestime el regalo de su compañía. Invite a su ser querido al cine, al parque o simplemente ayúdele en casa. ¿Busca algo que hacer juntos? Explore experiencias locales, como museos o una clase de ejercicios para la EP. Encuentre su Chapter de la Parkinson’s Foundation más cercano para conocer las clases que se imparten en su localidad.
¿Aún no sabe qué regalar a su ser querido? Considere hacer un donativo a la Parkinson’s Foundation en su nombre. Como parte de su donativo, puede enviar una eCard o imprimir una tarjeta.
Join us for a dynamic aerobic boxing class designed specifically to help manage Parkinson’s symptoms. Through targeted, low-impact boxing exercises, you'll improve balance, strength, and range of motion while working up a sweat. This high-energy workout is tailored to address the unique physical challenges of Parkinson's, enhancing motor skills, coordination, and confidence.
Get ready to punch your way to better health in a fun, supportive environment. No prior boxing experience is needed—just bring your energy and a desire to move!
Instructor
Coach Dean Moskowitz
Owner and Head Coach of Boxing for Balance and Rock Steady Boxing
San Fernando Valley
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
This educational program explores the connection between mindfulness and Parkinson’s disease, offering an in-depth look at current research, practical applications, and the potential benefits of mindfulness practices for individuals with Parkinson’s. Participants will gain a foundational understanding of mindfulness techniques, learn about the neurological impact of mindfulness on Parkinson’s symptoms, and discover strategies for incorporating mindfulness into their daily lives.
Designed for individuals with Parkinson's, care partners, and healthcare professionals, this program equips attendees with practical tools to foster resilience, reduce stress, and improve quality of life through mindful awareness.
Speaker
Crista Ellis, Yoga & Meditation Teacher, Inspirational Mentor
Founder of Rising Rose Yoga
Senior Community Engagement Manager
Parkinson's Foundation
There is no charge to attend, but registration is required.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
Not every person with Parkinson’s disease (PD) will develop psychosis or its symptoms, but it can still be a frightening thought. Hallucinations and delusions can be common in PD, but understanding what it means in Parkinson’s and how a person may experience symptoms can ease the fear and embarrassment that may result. Learn causes, related symptoms and how to address them.
Speaker
Sarah Horn, MD
Assistant Professor of Neurology
Parkinson's Disease and Movement Disorders Program
Director, Movement Disorders Fellowship Program
UT Health San Antonio
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
We want to thank this webinar's sponsor, Acadia Pharmaceuticals, for supporting our mission. Acadia has provided support for this educational event but had no influence on the creation of these materials.
This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.
This session will provide an overview of where the field stands—exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
I was 42 years old and newly single. I had a high-pressure job I was excelling at, and my body was in top shape. But my left hip was so tight all the time, my tennis serve was off, and I was having a hard time keeping the rhythm in spin class.
I chalked it up to excessive exercise, or my new sports car with the heavy clutch. But then my toes started to move by themselves, which was curious. And a friend standing behind me mentioned that my left arm was not swinging when I walked. Soon I started to really have to think about picking up my left foot.
Even though my grandmother and aunt had Parkinson's disease (PD), and I was displaying the textbook early signs, I was flabbergasted at my own Parkinson’s diagnosis.
I found a great doctor whose treatment was heavy on exercise, and light on medication. I went to a Moving Day, A Walk for Parkinson’s, event, where I met people who were just living their lives, incorporating Parkinson's into their planning and decision making, but not being ruled by it.
I went to the World Parkinson's Conference and saw how many treatment options were available, or in development. I started medication, and continued to live my life, just with more pills and more exercise.
In the years that followed, I put a lot of work into my wellness to prove to myself that this wasn't a death sentence. I continued to excel in my career, make friends, I dated, I bought my dream house, I met the love of my life, we adopted a puppy and got married.
I'm retired now, to focus on my health, and spread the word that there is life after diagnosis. It's not easy, there are setbacks. I wish we as a community didn't have to do this. But with determination, pharmaceuticals and new technology, the future isn't as bleak as it may have seemed the day I was diagnosed.
Young-onset Parkinson’s disease (YOPD) occurs in people younger than 50 years of age. Learn more.
Watch Rex's experience with the PD GENEration Testing and Counseling session below.
I was born in 1959 and at an early age, I became athletic participating in swimming and basketball activities. I swam as a teenager. I did bodybuilding in my 20s and I completed triathlons from my 30s through 50s. I have completed 18 full Ironman Triathlons.
In 2022, I noticed a tremor in my right hand. I went to a neurologist and was diagnosed with Parkinson’s disease (PD). Slowly over the next 12 months it began its process of degenerative abilities.
I needed hip surgery, which ended my running career. I couldn’t ride my bike because of instability issues (trouble with balance). I continue to lift weights and do stationary cardio activities.
I have been a strength and wellness coach for the last 40+ years. As my ability to train for sports began to decrease, I found it rewarding to put more effort into training my athletes and clients. It’s been a couple years now and I am truly enjoying putting my effort into training clients.
I am a wife, boy mom of two fantastic sons, a speech-language pathologist working in a large inpatient rehabilitation hospital, and a woman living with young-onset Parkinson's disease (YOPD).
I feel like I'm a bit of a unicorn at times, being a woman working in the medical setting with people who have neurological etiologies (some with PD) and having Parkinson's myself. Because of my professional career as a speech-language pathologist, I know what is coming my way with my own diagnosis of Parkinson's in terms of PD’s impact on speech, voice and swallowing.
I can't unknow what I know; however, I am not scared nor deterred to keep on living my best life!
I decided immediately upon receiving my diagnosis that I wanted to use my positivity, knowledge as a speech-language pathologist and personal experiences living with PD to help others. I immediately volunteered to enroll in a phase two clinical trial, which gave me a sense of some control over how I responded to my diagnosis and a sense of purpose.
Beyond sharing my diagnosis initially with my immediate family, a handful of friends and co-workers, I kept my diagnosis "secret" or hidden out of fear. I was too afraid to let people know, especially at my place of employment. I was afraid others would question my skills and abilities having a progressively degenerative neurological disease, especially diagnosed in my 40s.
However, as my symptoms progressed and became more visible, it was harder and more stressful for me to hide them. I would have to slow down, stop while walking due to painful dystonia, be cognizant that my arm was not swinging, and of course, recognize that the tremors in my fingers were progressing to my arm. I knew it was time to share my diagnosis publicly.
I went nearly seven years without disclosing my diagnosis publicly and had no idea there was a whole online community of others with YOPD, including WOMEN!
I work full-time and am a busy wife and mom… I had no time for social media and did not explore this way to connect with others until quite recently. After I publicly disclosed my diagnosis, I discovered this amazing online community of others living amazing lives with Parkinson’s, and felt like I'd found my people... I was not alone living with PD!
Sharing my diagnosis with others has lifted a tremendous weight from my mind and body, allowing me to find community and no longer try to hide my symptoms. I've been met with compassion and my goal is to extend that love and my experience and knowledge to others.
I recently began my journey as a Parkinson's Foundation Research Advocate and am an Ambassador, volunteering within my community. I can't wait to see what the future holds as I continue to serve as a Research Advocate, Ambassador and online advocate to inspire, educate and hopefully be a source of positivity for others living with Parkinson's and their families/caregivers.
