Educational Events

Managing Changing Symptoms

10:00 am to 1:00 pm CDT
FREE
Managing Changing Symptoms

Check-in and Resource Fair start at 9 a.m.
The program will be held from 10a.m. - 12:30 p.m.

After many years of good symptom management, Parkinson’s disease may become more challenging.  Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Agenda: TBD

This program is free. Lunch will be served.

Speakers

Jamie Toms, MD, Stereotactic and Functional Neurosurgeon

Ochsner LSU Health Shreveport

Jamie Toms, MD, comes back home to practice after completing his neurosurgical residency and functional neurosurgery fellowship at Virginia Commonwealth University in Richmond, Virginia. His current focus is the surgical treatment of epilepsy and movement disorders. He also treats brain tumors, neurological trauma and spinal disorders. He has extensive experience with frameless stereotactic procedures for intracranial placement of deep brain stimulators, lasers, and stereo-electroencephalography leads. He is currently involved in clinical and basic science research involving dementia, device development and substance use disorder. His clinic will be accepting patients for deep brain stimulation, epilepsy surgery, spinal surgery and all other general neurosurgery needs. Dr. Jamie Toms has spent most of his life in North Louisiana and has a strong calling for treating and caring for this community. He grew up in the small town of Quitman, Louisiana, and obtained a bachelor's degree in Animal Biology from Louisiana Tech University in Ruston, Louisiana. He obtained his medical doctorate from LSU Health Sciences Center-Shreveport and then traveled to Richmond, Virginia, for neurosurgery residency at Virginia Commonwealth University. He also completed a Fellowship in Stereotactic and Functional Neurosurgery under the mentorship of Kathryn Holloway, MD. Following training, he decided to return home to North Louisiana to treat patients in the community that raised him. When Dr. Toms is not treating patients, he loves spending quality time with his wife, children, family and friends. He enjoys gardening, eating good food and getting to know people.

Jamie Toms, MD

Julie Schwertfeger, PhD, DPT, MBA, CBIST, Board-Certified Clinical Specialist in Neurologic Physical Therapy

LSU Health Shreveport

Dr. Schwertfeger joined LSU Heath Shreveport in November 2024 in the School of Allied Health Profession in the clinical research track. She holds joint appointments in Neurosurgery, Neurology, and Neuroscience, Toxicology, and Pharmacology. 

 

Dr. Schwertfeger is a seasoned clinician and a neurologic clinical researcher who completed her PhD in 2020 and earned her neurologic board certification in June of 2022. Her PhD research, "A 3-day ‘stroke camp’ addressed chronic disease self-management elements and perceived stress of survivors of stroke and their caregivers reduced: Survey results from the 14 US camps", was published in Topics in Stroke Rehabilitation. Schwertfeger completed the advanced polytrauma/ TBI research postdoctoral fellowship in the VA with a focus on neuromodulation as an adjunct treatment for movement and cognition after brain injury and published "A map of evidence using transcranial direct current stimulation (tDCS) to improve cognition in adults with traumatic brain injury (TBI). She has presented nationally on topics including balance and falls, stroke, TBI, neuromodulation, cognitive rehabilitation, measurement, and mixed methods research design.

 

Prior to completing her doctoral training, Schwertfeger won an NINR subaward and served as a site PI and a STRONG study investigator. STRONG is the acronym for the Stroke, Stress, Rehabilitation, and Genetics study, which investigated biomarkers that may better predict long term recovery over the course of one year after first time stroke. Dr. Schwertfeger attained brain injury specialization- trainer level certification in 2015. She served as a core faculty member in the PT program at Rosalind Franklin University of Medicine and Science, where she directed and taught neurologic balance clinics, neuroscience, and neurologic clinical care, documentation, and reasoning to physical therapy, pharmacy, pathology, and medical assistant student cohorts. Prior to her academic role, Schwertfeger held full time roles as a clinical manager in IRF and LTAC. Her clinical experience includes leading patients, caregivers, and clinical teams through recovery from stroke, brain injury in the hyperacute through community reintegration stages of recovery.  In her rehabilitation role, she participated in advancing stroke care through development of comprehensive stroke certification and leading a team through stroke rehabilitation disease specific rehabilitation.  

 

Schwertfeger has been recognized for her leadership and service through awards from the American Physical Therapy Association (APTA) Research Academy (APTR), the APTA Neurology Academy (ANPT), and the Illinois Physical Therapy Association (IPTA). Her professional service roles have included university senate and committees, PhD student mentoring, AHA CDA grant reviews, journal article reviews.

Julie Schwertfeger

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Raise Awareness

From Fear to Care: How to Address Parkinson’s Hospital Risks

Female doctor talking to hospital patient in bed

People with Parkinson’s disease (PD) are at a higher risk of hospitalization and face many challenges while in the hospital. It is important for all people with Parkinson’s to be aware of the risks, prepare ahead of time and know how to advocate for their needs while in the hospital.  

To raise awareness of how quickly things can go wrong, we highlight three hospital experiences from people with Parkinson’s below. The Parkinson’s Foundation is committed to helping people like Cindy, Ron and Julie, receive better hospital care. Get to know them and their stories. We’re thankful for their willingness to share their share to help educate and empower our community.  

Cindy’s Story

Cindy prepared for a routine surgery. An avoidable medication interaction still caused hallucinations. 

I recently had a total knee replacement. Beforehand I did everything I was told that was needed to prepare. I had gone to my primary doctor and my neurologist to get clearance and felt calm going into surgery.  

My neurologist wrote notes on what medications I should not take. But when I went to the hospital for my surgery, the nurse doing my intake didn’t know I had Parkinson’s disease (PD). Not one person I spoke to had looked at the notes my doctor sent. I was left feeling fearful and alone.  

I went in thinking maybe there would be some glitch during my hospitalization, but it wasn’t just one thing. I didn’t get my Parkinson’s medications when I woke up from surgery, they didn’t have my medications available that night and they gave me a medication that I should have never been given, which led to a major reaction. 

After being discharged, at home I took the pain medication prescribed at the hospital and became delirious. I was hallucinating and had a 103-degree fever. My husband and I didn’t know what was wrong. I found out later that I had a medication interaction caused by Serotonin Syndrome, which is rare but can be fatal. This was a worst-case scenario for me and set my recovery back.  

I was shocked that this happened even after everything I did to prepare for my surgery. I am a PD advocate, and I am very involved in the Parkinson’s community. I heard bad hospitalization stories before, but you just don't realize how bad things can be until they happen to you.  

I’m happy to share that since this happened, I spoke to the patient liaison about my experience, and have since joined their patient advocacy council. Through participating I will be able to help the hospital address the problems I experienced and help ensure that others will not go through what I went through.  

Cindy shares her story in this video:


Julie’s Story

An unexpected reaction to THC sent Julie to the emergency department in an unknown city. When she arrived, the team didn’t believe she had Parkinson’s.

Julie Obreiter selfie

Julie was on a cross-country road trip with her daughter when she began experiencing severe dyskinesia and cramping. This was a fairly common experience for her, and sometimes, she used THC (a form of medical marijuana) to find relief. However, when she did this time, she became unresponsive, and her daughter had to pull over to call 9-1-1.  

When they arrived at the hospital, the emergency room (ER) team didn’t believe her when she said that she had Parkinson’s disease. They refused to perform any tests or allow her to take her Parkinson’s medications. Unfortunately, it took several hours to convince the medical team that Parkinson’s medications were essential.  

Once they realized that her Parkinson’s medications were not street drugs, she was finally allowed to take them get her symptoms under control.  

Read Julie’s Full Story Now


Ron and Amy’s Story

Ron and Amy prepared for an emergency room visit. But when Covid-19 sent Ron to the hospital it still took too long for him to receive his Parkinson’s medications. 

Ron McConnell in hospital bed holding a sign with Amy McConnell next to him

Ron and Amy experienced an unthinkable hospital stay in 2023 after Ron, diagnosed with Parkinson’s in 2019, developed a severe case of Covid-19.  

Prior to the emergency visit, they prepared for the unexpected with resources from the Parkinson’s Foundation Hospital Safety Guide. They asked for these materials to be scanned into his electronic chart, knowing that it was essential that the medical team understood Ron’s diagnosis and the importance of administering his Parkinson’s medications in a timely manner.  

Despite being assured that Ron’s chart had been updated, they later learned that this had not been the case — the medical team was unaware of his Parkinson’s diagnosis. 

Despite Amy’s pleading, Ron did not receive any of his Parkinson’s medications on time. After going into respiratory failure, a life-or-death situation, a new doctor took over, and made time to listen to Amy. He agreed to administer Parkinson’s medications and took great care of Ron for several days throughout the recovery period. In the end, Ron recovered and the new doctor declared that by advocating for Ron’s Parkinson’s needs, Amy had made him an even better doctor.  

Read Ron and Amy’s Full Story Now

Hospital Safety Tools Designed to Help  

Prepare for your next planned or unplanned hospital stay with the below resources designed to help you.  

  1. Share the Parkinson’s Care Summary for Health Professionals with attending hospital staff (from nurses to doctors) to alert them of medications to avoid and safe alternatives.    

  1. Keep the Medical Alert Card in your wallet so that you have it in case you need to show that you have Parkinson’s.  

  1. Bring your Doctor’s Letter: Parkinson’s Hospital Care Needs, signed by your primary Parkinson’s care provider, to emphasize the importance of getting your Parkinson’s medications.  

These tools and more can all be found in the Parkinson’s Foundation Hospital Safety Guide, designed to help you prepare for and navigate a hospital stay.   

Order or download a free copy of the Hospital Safety Guide now.

Fundraising Events

2025 El Tour de Tucson

6:00 am to 6:00 pm MST
Parkinson's Champions runners

The Parkinson's Foundation is an official charity partner for the 2025 El Tour de Tucson. By signing up to ride as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org

Fundraising Commitments:
•    Century (102m) - $1,500
•    Metric Century (63m) - $1,000
•    Half Century (32m) - $750
•    Honorary Champion - $500

El Tour de Tucson is one of the premier bicycling events in the country.  If you participate in this year’s event, you won’t be alone given that annually over 9,500 cyclists participate in the renowned and popular event. Charity, community, health and wellness are what Perimeter Bicycling and El Tour are all about. They all go hand-in-hand when it comes to building awareness for a bike ride that has been part of the Tucson community for nearly four decades. The routes start and end in downtown Tucson, and engage parts of the majestic Sonoran desert including Davis Monthan Air Force Base, the mountainous and saguaro lined vistas of Old Spanish Trail & historic Colossal Cave. Some routes will also pass through the communities of Corona de Tucson, Vail, Sahuarita and Green Valley.

Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.

If you have questions, send us an email at Run4PD@Parkinson.org. For more information about the race itself, visit the El Tour de Tucson Homepage.
 

 

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Fundraising Events

2025 Tour de Scottsdale

6:00 am to 6:00 pm CDT
Parkinson's Champions runners

The Parkinson's Foundation is an official charity partner for the 2025 Tour de Scottsdale. By signing up to ride as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org

Fundraising Commitments:
For our 2025 race there is no official minimum, however we hope that you will aim to raise at least $500 or more, the sky is the limit on how much impact you can have!

The HonorHealth Tour de Scottsdale offers challenging and scenic courses that will undoubtedly push the limits of cyclists. The Tour de Scottsdale has grown from just a few hundred participants in its early years to attracting thousands of riders from all over the world today! This incredible growth reflects not only the beauty of the route but the strength of the cycling community that comes together each year. The Metric Century Ride circumnavigates the McDowell Mountains riding through Scottsdale, Rio Verde and Fountain Hills. The Half Century is a scenic routes through Scottsdale, AZ that circles Pinnacle Peak.

Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.

If you have questions, send us an email at Run4PD@Parkinson.org. For more information about the race itself, visit the Tour de Scottsdale Homepage.
 

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Fundraising Events

2026 Grandma's Marathon

6:00 am to 6:00 pm CDT
Parkinson's Champions runners

The Parkinson's Foundation hopes to be an official charity partner for the 2026 Grandma's Marathon. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org.

Please note that the current listed date is an estimate only and has not been officially announced. Fundraising minimums are subject to change.

Fundraising Commitments:
•    Marathon - $1,500
•    Honorary Champion - $500

Since our inaugural race in 1977, Grandma’s Marathon has grown into something much bigger than just a 26.2-mile race along the scenic north shore of Minnesota. It’s now become a “can’t-miss” weekend in June, a moment when participants of all calibers come together to celebrate the vigor of the human spirit. It’s a day the word “impossible” ceases to exist, a day that you and thousands of others will start as strangers but finish as friends. So get ready to once again tie up your laces for another year of memories, miles, and human might.

Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.

If you have questions, send us an email at Run4PD@Parkinson.org. For more information about the race itself, visit the Grandma's Marathon Homepage.
 

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Fundraising Events

2025 Denver Colfax Marathon Weekend

6:00 am to 6:00 pm MST
Parkinson's Champions runners

The Parkinson's Foundation is an official charity partner for the 2025 Denver Colfax Marathon Weekend. By signing up to run as a Parkinson's Champion you commit to raising funds and awareness for the Parkinson's Foundation, and in return you get access to a free entry (bib) to the race in addition to tons of other fun benefits and perks. You can learn more about our program and join our interest list at Run4PD.org

Fundraising Commitments:
For our 2025 race there is no official minimum, however we hope that you will aim to raise at least $500 or more, the sky is the limit on how much impact you can have!

The Denver Colfax Marathon is the premier marathon weekend in the Mountain West Region, committed to community, philanthropy, and fun.  Originally created by the cities of Denver, Lakewood, and Aurora to recognize Colfax Avenue, the longest main street in America; it’s Denver’s only marathon.  The race has grown to be a nationally recognized event featuring unique courses incorporating the iconic landmarks of the Mile-High City.  In addition to Marathon Weekend, there are other events in the year such as the annual Colorado Running Hall of Fame evening with new inductees and high school athlete recognition.

Are you looking for a fun way to volunteer for the Parkinson's Foundation & raise your voice while raising awareness? Come out and cheer on our incredible athletes! Learn more and apply at Parkinson.org/ChampionsCheer.

If you have questions, send us an email at Run4PD@Parkinson.org. For more information about the race itself, visit the Denver Colfax Homepage.
 

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Videos & Webinars

Mental Wellness & Connection for Veterans with Parkinson's

Breaking the Silence: Mental Wellness & Connection for Veterans with Parkinson's

February 27, 2025

This program will bring awareness to the symptoms that are often unspoken among veterans with Parkinson’s. We will address the real impact of loneliness and isolation, offer strategies for managing post-traumatic stress disorder, and provide guidance on overcoming fears associated with symptoms. Explore resources and support options designed to relieve isolation and nurture meaningful connections.

Download Slides

Additional Resources

Presenter

Ellen Bradley, MD 
Assistant Professor, Department of Psychiatry and Behavioral Sciences 
Weill Institute for Neurosciences  

Educational Events

Navigating the Road Ahead: Understanding Driving and Parkinson’s

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
FREE
Husband and wife lookin at a tablet while on their porch

Driving can symbolize freedom and independence, making decisions around driving a particularly sensitive subject for people living with Parkinson's disease. This webinar will address the complex considerations of driving with Parkinson's, including safety, self-assessment, and available resources. Participants will gain insights into how Parkinson's can impact driving skills, explore options for assessing driving abilities, and learn about practical approaches to planning for the future. Through expert guidance and real-life perspectives, this session aims to empower individuals and families to approach this topic with confidence, compassion, and informed decision-making.

Speaker

Margaret O'Connor, PhD, ABPP
Harvard Medical School

 

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

Light of Day Logo

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Educational Events

Managing Changing Symptoms

11:00 am to 3:00 pm EST
FREE
Managing Changing Symptoms

After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them. 

Speakers

Stephen Lee, MD, PhD
Dartmouth Hitchcock Medical Center

Mary Feldman, DO
Dartmouth Hitchcock Medical Center

Anas Hannoun, MD
Dartmouth Hitchcock Medical Center

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.  

Registration is now closed as we have reached the venue capacity. We have opened registration to join the waitlist. If a spot becomes available, we will notify those on the waitlist.

Agenda (Eastern Time)

Gold Sponsor

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
Educational Events

New England Chapter Parkinson’s Symposium

Virtual ( Zoom )
10:00 am to 2:30 pm EST
FREE
2025 New England Symposium

Join the Parkinson’s Foundation [in person or online] for the New England Chapter Parkinson’s Symposium. Hear about current and upcoming treatments, ongoing research, and resources available in your community to help you live your best life with Parkinson’s. 

Speakers:

Joy Antonelle de Marcaida, MD
Hartford HealthCare

Anna DePold Hohler, MD, FAAN
St. Elizabeth’s/Boston Medical Center Health System

David K. Simon, MD, PhD
Beth Israel Deaconess Medical Center

Anas Hannoun, MD
Dartmouth Hitchcock Medical Center

Agenda (Eastern Time)

Gold Sponsor

More to Parkinson's

Upcoming Events

Fundraising Events

2025 Denver Colfax Marathon Weekend

Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.

Denver, CO
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