The Parkinson's Foundation Florida Chapter is hosting a virtual volunteer celebration via Zoom on May 8 at 5:30 p.m. During this quarterly call, you'll have the opportunity to hear about the positive impact your efforts had had on the Parkinson's Foundation Florida Chapter.
Mark your calendar and connect with us via Zoom. Registration is required.
Karen Lopez
Join us to discuss Parkinson's symptoms, treatments, and progression while we explore important factors in helping live your best life, including diet, exercise, and staying connected. This program will also feature a live Q & A with Parkinson's experts.
Mitesh Lotia, MD
Medical Director of Movement Disorders | AdventHealth
Ramón Rodríguez, MD, FAAN
Medical Director, Neurology One
Víctor Lameda, MD
Clinical Research Coordinator, Neurology One
People with Parkinson's and Care Partner Panel
Moderator: Anna Moreno, MSW, Parkinson's Foundation, Senior Parkinson Information Specialist
Fitness Demonstration: Firebush, a Parkinson's Foundation Community Grant recipient.
Fitness Demonstration: PunchWorX, a Parkinson's Foundation Community Grant recipient.
For in-person attendees: Check-in and Resource Fair start at 9 a.m. Lunch will be served.
For virtual attendees via Zoom: The live stream starts at 10 a.m.
There is no charge to attend, but registration is required since lunch will be served. This program is open to people with Parkinson's, their family, friends and the community.
Jennifer De Gruccio
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Acompáñenos en un webinar informativo que explora la relación entre el dolor y la enfermedad de Parkinson. Esta sesión tiene como objetivo adentrarse en los diversos tipos de dolor asociados con la enfermedad de Parkinson, ya sea derivado de síntomas motores o manifestaciones no motoras.
Hablaremos sobre las estrategias prácticas para el manejo del dolor y mejorar su comprensión de cómo el dolor afecta la calidad de vida en general de aquellos afectados por la enfermedad de Parkinson.
Dr. Daniel Martinez-Ramirez
Profesor, Investigador Nacional por México Nivel 2
Neurología, trastornos del movimiento
Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud
Instagram: @neurologoparkinson
¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa- PD Health @ Home en YouTube.
Más información:
Todos los eventos de “EP Salud en Casa-PD Health @ Home" – Parkinson.org/EPSalud.
Una lista de nuestros recursos en español – Parkinson.org/Recursos Línea de Ayuda – 1-800-473-4636, opción 3 para español.
Jenny Fearday
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Please join the Vanderbilt Medical Center and Parkinson’s Foundation Center of Excellence team for the 26th annual Blazing Toward a Cure educational symposium. Please register for this no cost educational opportunity.
This program will be held at the Vanderbilt Student Life Center (Nashville, TN), where free valet parking will be available. Doors open at 8:00 a.m. and the program will begin promptly at 9:00 a.m. Continental breakfast will be served at 8:30 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
Thomas L. Davis, MD
Division Chief/Movement Disorders, VUMC
Sabrina Livezey, Pharm D, CSP
Vanderbilt Specialty Pharmacy
John Domback, Pharm D
Vanderbilt University Medical Center
Britt Stone, MD
Assistant Professor of Clinical Neurology, VUMC
Travis Hassell, MD, PhD
Assistant Professor, Neurology, VUMC
Annie Long
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
In the brisk winds of the Windy City, my world shifted at the tender age of 12 when my mother received a life-altering diagnosis — aggressive Young-Onset Parkinson's Disease (YOPD) at just 39. Witnessing her daily struggles and noticing the subtle changes in her laughter and zest for life, I couldn't comprehend the gravity of the situation back then. Little did I know, this pivotal moment would set the stage for a transformative journey.
Our family relocated to the city that never sleeps, NYC, just as the COVID-19 pandemic took hold. At 14, I found my mother grappling with the challenges of Parkinson's without her usual support system. As a remedy for my own challenges and a way to support my mother, I delved into cross-country running, seeking solace on outdoor tracks. I also initiated my mother's "marathon" training, a seemingly audacious feat given her struggle to walk a few steps.
She began to receive expert Parkinson’s care at Columbia University Irving Medical Center, a Parkinson’s Foundation Center of Excellence. Her doctors and others in our new Parkinson's disease (PD) community told us to reach out to the Parkinson’s Foundation. We quickly took advantage of online classes, organized walks, fundraising events and downloadable books. They have incredibly useful resources and information for both people with YOPD and PD.
She raised thousands for Parkinson’s Foundation when she ran as a Parkinson’s Champion! Crossing the finish line at the NYC marathon in nine odd hours with an Achilles guide, became a powerful testament to her resilience and determination, chronicled by the Brian Grant Foundation in "We are the Elites.”
Fueled by a desire to empower not only my mother but countless others facing similar battles, I committed myself to making a difference. Last year, at age 16, I launched Moversandshakers.info, a website providing information, community and hope for people with Parkinson's. The platform features weekly podcasts, lifestyle tools, clinical trial details, and QR-code-based PD training for first responders, offering a comprehensive resource and community hub for patients and caregivers alike. Additionally, I design and distribute free PD button kits and lanyards for public awareness of hidden disabilities.
The genesis of Movers and Shakers emerged from qualitative research conducted with those who attended the 6th World Parkinson Congress in Barcelona, Spain where people with PD and caregivers helped identify research and support gaps especially, for those in marginalized communities. Recognizing the need for systemic change, awareness and education, I transitioned from digital platform creator to founder of HOPE (Health, Outreach, and Parkinson’s Empowerment) in the winter of 2023. HOPE focuses on building a register of people with Parkinson's and advocating for policy change. This initiative aims to connect local PD communities, targeting under-represented minorities, for events, connections, and trials.
Currently, my relentless effort to push for policy change involves engaging elected New Jersey Representatives at the Capitol to co-sponsor the National Plan to End Parkinson’s Act (H.R.2365/S.1064). Having successfully garnered support from Senator Booker and Congresswoman Wexton last year, I am now in negotiations with other NJ congressional members for their vote and support.
My mom's diagnosis, a seismic event in our lives, became a catalyst for meaningful change. It transformed me into a compassionate advocate, a dedicated website creator, a social justice champion, and, above all, a son fighting for his mother's future and the futures of countless others entangled in the clutches of Parkinson's.
The journey continues, marked by a sincere promise to her tribe, that innovation, resilience, voice, advocacy and an unwavering commitment to fostering hope will always be my passion and priority.
You can read my full story on my blog.
from the Parkinson's community
Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.
Erin Edmundson, PT, DPT
Huntsville Hospital Parkinson's Care Clinic
Anitra Ford, MS, CCC-SLP
Huntsville Hospital Therapy Services
Jay van Gerpen, MD, FAAN
Neurology Consultants of Huntsville
Carolina Parker, MD
Neurology Consultants of Huntsville
Brandi Ivey M.Ed, CPPN
Huntsville Hospital Parkinson's Care Clinic
Katelyn Bowden, OT
Huntsville Hospital Parkinson's Care Clinic
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Join Stanford and UCSF for a free educational event for two under-served communities – the African American Parkinson’s community and the Latinx Parkinson’s community. There will be simultaneous sessions (different rooms) in English and Spanish.
Ideally for those diagnosed in the last few years. Family members and friends are welcome and encouraged to join!
Attendance is free, but registration is required and seating is limited. Lunch will be provided.
To register, email Aaron Daley at aaron.daley@ucsf.edu.
Expertos en el tratamiento de trastornos del movimiento hablarán en español acerca de los sintomas y el manejo de la enfermedad de Parkinson y se dará información acera de agencias en la comunidad que ofrecen grupos de apoyo y programa de ejercicio.
Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, aliados de cuidado y promotores de salud.
Ubicación del evento, direcciones y información de estacionamiento: https://ce.csueastbay.edu/conference/index.html#location.
Este evento gruito. Se ofrecerá almuerzo.
Para inscribirse, envie un correo electrónico a: aaron.daley@ucsf.edu.
Sponsored by the Parkinson's Foundation and hosted by UCSF Movement Disorders and Neuromodulation Center & Stanford Movement Disorders Center. Both are Parkinson's Foundation Centers of Excellence.
Aaron Daley, MA - UCSF
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
This program offers an introduction and basic overview of Parkinson’s disease (PD). PD varies from person to person and changes over time. Discover its causes, common symptoms and available treatments. Learn practical daily living tips to empower you to take charge of your health and to navigate the challenges of living with PD.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
This program is hosted by the Parkinson's Foundation Georgia Chapter in partnership with Senior Medicare Patrol.
Annie Long
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
Vanessa Hinson, MD, PhD
Medical University of South Carolina (MUSC) - A Parkinson's Foundation Center of Excellence
Nathan DeTurk, MD
Medical University of South Carolina (MUSC) - A Parkinson's Foundation Center of Excellence
Courtney Conner, RD
Encompass Health Rehabilitation Hospital of Bluffton
Ellen Glazer, SLP
Encompass Health Rehabilitation Hospital of Bluffton
Renee Bannon, RN, BSN
Encompass Health
Robert Scutta, CSA
Scutta Advocacy Group
Rhonda Hiott
Lowcountry Council of Governments
Jay & Marilyn Phillips
Ron Stokes
Scott Rider
Pete & Mary Anne Oliver
Rock Steady Boxing Hilton Head
Carter Barrett, RipTide MMA
Join us in-person at our main symposium location - Creative Church in Hardeeville, SC: Check-in and the Resource Fair start at 9:00 a.m. Lunch will be served immediately following the program.
Join us in-person at an Encompass Viewing Party: If you cannot join us in person in Hardeeville, we encourage you to attend an Encompass Viewing Party (locations outlined below). At a Viewing Party, you can participate in a Resource Fair, watch the livestream, and enjoy refreshments with other members of your local Parkinson's community.
Encompass Viewing Party Locations:
To register for a viewing party, click on the "Register for Virtual" button above and specify which location you will be joining.
Join us online: If you cannot participate in our in-person Symposium or a Viewing Party, you can join us online from home!
This program is hosted by the Parkinson's Foundation Carolinas Chapter in partnership with Encompass Health.
De Rush
A virtual network for people living with Parkinson's disease who live alone, by choice or circumstance.
Practical strategies, therapeutic approaches, and supportive tools will be shared to help people with Parkinson’s and care partners feel more confident and empowered in daily communication and eating.
Parkinson’s Champions athletes raise funds and awareness for the Parkinson’s Foundation while competing in some of the world’s most popular races. Every step we take brings us closer to a future without Parkinson’s disease, because Parkinson’s isn’t a sprint, it’s a marathon.
