My PD Story

Richard Huckabee is a passionate Parkinson’s advocate, global speaker and retired Executive Manager who lives by two powerful mottos: “Get Better Every Day” and “Every Day I Fight.” Diagnosed with Parkinson’s disease (PD) in 2013, he transformed adversity into action—turning his journey into a global mission of hope, movement and momentum.

A devoted husband to Angela and proud father, Richard blends his love for global travel, hiking and photography with relentless advocacy. From hot air balloon safaris in Africa to exploring the pyramids, he proves that for him, Parkinson’s does not limit possibility, but fuels purpose.

Honored with the 2023 and 2024 President’s Bronze Volunteer Service Award, signed by President Joe Biden, Richard serves as a Parkinson’s Foundation Ambassador and Research Advocate, an InMotion Ambassador, and a member of the Michael J. Fox Foundation (MJFF) Patient Council along with various other non-profit volunteer groups. He has led Ohio delegates on Capitol Hill advocating for increased federal funding for Parkinson’s research and has spoken to thousands, including at the World Parkinson Congress.

Richard is a powerful champion of inclusion in research. He was instrumental in encouraging the Black community to participate in PD GENEration: Powered by the Parkinson’s Foundation, helping ensure genetic research reflects the diversity of the PD community. His advocacy continues to open doors and build trust between underrepresented communities and leading research institutions.

“I want people with Parkinson’s to know that participating in PD GENEration is free, private, doesn’t involve any medications and is a way of contributing to a finding a cure someday. When you get your genetic testing results, you can review them and ask questions with a health professional.” – Richard

Exercise has been central to his journey from day one. In 2013, he participated in a dance drumming research study for people with Parkinson’s and their care partners. From this study, the members of the group formed into a source of invaluable support for Richard and his wife. They continue to meet for breakfast as the “Breakfast Club” and enjoy hikes together.

Additionally, Richard has participated in hundreds of research initiatives and groundbreaking clinical trials, including Cleveland Clinic’s Augmented Reality study, an experience that led to his appearance in the 2025 Cleveland Clinic Super Bowl commercial spotlighting Parkinson’s research.

Whether mentoring those newly diagnosed, collaborating with researchers, speaking internationally or lacing up his hiking boots, Richard inspires others to rise, move and believe in a bright future.

Explore ways to get involved with Parkinson’s research today. Visit our Join A Study page and learn more about PD GENEration, the Parkinson’s Foundation genetics study that offers genetic testing and counseling at no cost to participants.