My PD Story

Fidel Guzman’s PD Story

I came to this country over 30 years ago from Mexico and have worked various jobs throughout my life to support my family. My true passion has always been music. I come from a family of musicians and have been blessed to be part of several bands here in the U.S., where I played the bajo sexto, or the Mexican 12-string guitar, and sang.

I have two daughters, a son, and two granddaughters who motivate me to face the challenges of my diagnosis. My oldest daughter noticed my early Parkinson's disease (PD) symptoms and helped me find a neurologist who gave me the official diagnosis five years ago. Since then, my daughter has made sure I stay active every day and enrolled me in Rock Steady Boxing, which has helped me feel my best.

I didn't think I was going to enjoy it, but movement has truly been like medicine for me. The Foundation says that the type of exercise you enjoy doing most, as long as it's safe, is the best exercise for you.

I also enjoy dancing with my daughters whenever I can. Music is a kind of therapy for me, and it transports me to a place of pure joy. Even my eldest daughter says that when we dance together, my balance is at its best and mobility seems to come to me easier.

I love spending time with my children and granddaughters, and I'm so grateful for their support.

Read Fidel’s story in Spanish

Myrella Guzman’s PD Story

When my father was diagnosed with Parkinson’s five years ago I knew I needed to find out every single thing about Parkinson’s. My father is the most hardworking and loving person I know, and I did everything in my power to help him navigate this disease.

I decided to pursue physical therapy as my career so I could give him the best care possible myself. After graduating and passing my boards I began working with Parkinson’s patients in various settings and came across the realization that movement is medicine.

During this time, I moved in with my significant other five hours away from my dad, which made it difficult to keep my dad motivated and moving. I signed him up for Rock Steady Boxing and he thrived in this class! I noticed such a positive change in his mood and physical state. It was thanks to the Parkinson’s Foundation that I was able to find these classes.

Since his diagnosis, I’ve become inspired, every day, to help people like my dad and their families. I’ve made it my mission to educate not only my patients about the importance of the Parkinson’s Foundation official exercise recommendations, but also my colleagues. Every day alongside other therapists, I try to create a space where the most up to date guidance, professional training and resources are available to everyone with PD who may come through the door.  

As a first-generation Mexican-American, I also know the challenges adult children may face navigating the healthcare system in both English and Spanish. Having resources available in both languages like those the Parkinson’s Foundation provides, has been a lifesaver.

There seems to be a stigma in the Hispanic community about sharing medical hardships, and oftentimes many people with PD — like my father — feel isolated. This is why building community has been such an important part of my father’s journey, and as advocate, part of mine as well. Educating our community about Parkinson's symptoms and treatments is a job I take very seriously.

I am thankful for my siblings who always check in on Dad and for technology which helps me keep in touch with my father daily. I make the most of my monthly trips to take him to his appointments and check in on his progress in person.

I love you, Dad. You are my best friend, and I would do anything to make sure you’re happy and healthy!

Read Myrella’s story in Spanish

Exercise is essential for people living with Parkinson’s. Find your nearest Parkinson’s Foundation Chapter or call our Helpline at 1-800-473-4636 to explore exercise and wellness PD exercise classes near you.