When you or a family member is diagnosed with Parkinson's disease (PD), you will experience a range of emotions and go through several stages of adjustment to the disease. As PD progresses and brings new challenges, you will go through many of the emotions and stages of adjustment anew. Each person experiences stages in their own order and at their own pace.
Remember that you are not alone. One million people in the U.S. and 10 million people worldwide live with PD. These estimates do not account for cases of PD that are unreported, undiagnosed, or misdiagnosed. With a diagnosis and the freedom to learn at your own pace, you can begin to understand PD, its treatments, and the role they will play in your life. Your diagnosis can be the first step to taking charge of your life with PD. What are some next steps?
Hear Stories from People with PD
It is common for many people to experience a wide range of emotions upon diagnosis from shock, to anger and even to sometimes a sense relief at being able to name symptoms (perhaps a small tremor or weaknesses) that have gone unexplained or misdiagnosed for years. Hear from others who may have had a similar experience similar. Start with My PD Story.
Call or email our Helpline at 1-800-4PD-INFO (1-800-473-4636) for answers to your questions — from PD information to referrals to nearby specialists.
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We offer the community, resources and advice to support you and your family as you begin to build a better life with Parkinson's.
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Use our search tool to find medical centers that specialize in Parkinson’s, nearby specialists, your closest Chapter and local resources.
Page reviewed by Dr. Lauren Fanty, Movement Disorders Fellow at the University of Florida, a Parkinson’s Foundation Center of Excellence.