Episodio 27: Los efectos del Parkinson sobre el sueño
Existen diversas causas de los problemas del sueño que pueden experimentar las personas con Parkinson. Entre los trastornos del sueño más comunes están la apnea del sueño (asociada normalmente a un ronquido fuerte), el insomnio y el trastorno donde las personas actúan los sueños mientras duermen.
También sabemos que los problemas emocionales, que son síntomas no motores del Parkinson, pueden estar ligados a los problemas del sueño. Por ejemplo, si uno tiene depresión o ansiedad, puede llevarlo a dormir mal en general.
En este episodio de podcast, escuchamos al doctor Alberto Ramos, profesor de neurología clínica y director de investigación del Programa de Trastornos del Sueño en la University of Miami Miller School of Medicine acerca de los efectos del Parkinson sobre el sueño. El doctor Ramos comparte formas de mejorar el sueño, tratamientos que existen para estos problemas y consejos para las personas con la EP que están experimentando estos problemas, así como para las parejas que experimentan interrupciones debido a estos trastornos del sueño.
Publicado: 1 de agosto de 2023
El doctor Alberto Ramos es profesor adjunto de neurología clínica y director investigador del programa de trastornos del sueño en la University of Miami, Miller School of Medicine. La investigación del doctor Ramos se enfoca en la intersección de los trastornos del sueño con la enfermedad cerebrovascular y el envejecimiento neurocognitivo en estudios basados en la población. El doctor Ramos completó una subvención complementaria de diversidad del Instituto Nacional de la Salud/ Instituto Nacional de Enfermedades Neurológicas y Apoplejía, (NIH/NINDS por sus siglas en inglés), diseñada para determinar los trastornos del sueño asociados con los factores de riesgo de embolia y deterioro cognitivo en el estudio Northern Manhattan Study. También es investigador del Estudio de la Salud de la Comunidad Hispana/Estudio de los Latinos (Hispanic Community Health Study/Study of Latinos, HCHS/SOL, por sus siglas en inglés), donde se desempeña como consultor principal de investigación del sueño en la sede de campo de Miami. El doctor Ramos es Miembro de la American Academy of Sleep Medicine y fue presidente del Foro de Investigación de Jóvenes Investigadores (Young Investigator Research Forum) de la American Academy of Sleep Medicine Foundation en 2019.
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Check-In begins at 12 p.m.
After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them. This event will focus specifically on Motor Symptoms.
Speakers:
Leslie J. Cloud, MD,MSc
Jessica Lehosit, DO
Paul Koch, MD
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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In-person check-in begins at 10 a.m.
After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.
Speakers
Dr. Justin Martello
Dr. Jill Farmer
For in-person attendees: Check-in starts at 10 a.m.
For virtual attendees, via Zoom: The live stream starts at 10:30 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.
This event has now reached capacity for in-person participation. We apologize for any inconvenience. To be placed on a waitlist, please contact Kelly Nicoll at knicoll@parkinson.org. You may also join virtually via Zoom by registering here.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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Join the Parkinson’s Foundation to learn about current and emerging research in Parkinson’s disease (PD). Participants will hear how research helps shape treatments and identify new care strategies for managing Parkinson’s symptoms.
*This program may include moderately scientific terms and concepts.
Speaker
Zoltan Mari, MD, FAAN
Cleveland Clinic Lou Ruvo Center for Brain Health, a Parkinson’s Foundation Center of Excellence
This program is free and is open to individuals with Parkinson’s, their loved ones, and the community. There is no charge to attend, but registration is required as in-person seating is limited.
The Parkinson’s Foundation Southwest Chapter is grateful for the unwavering support of our Chapter Partners and Sponsors. Learn more about them by visiting our Chapter Supporter webpage.
Sponsor
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.
Speakers
Nadine Nye, SLP
Intermountain Healthcare
Paola Testini, MD
University of Utah, Parkinson's Foundation Center of Excellence
This program is open to people with Parkinson's, their family, friends and the community. There is no charge to attend, but registration is required as in-person seating is limited.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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After many years of good symptom management, Parkinson's disease may become more challenging. Learn how Parkinson's symptoms may change over time and how physical and occupational therapies can help manage these changes.
Speakers
Becky Bernhardt, OTD, OTR/L, C/NDT, CAPS
Katrin Ramsey, DSc, PT
Agenda:
12:30 p.m. – check-in, visit with our exhibitors, refreshments
1:15 p.m. to 3:30 p.m. – Managing Changing Symptoms presentations
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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After many years of good symptom management, Parkinson's disease may become more challenging. Learn how Parkinson's symptoms may change over time and how physical and speech therapy can help manage these changes.
Speakers
Dr. Samantha Carty, PT, DPT
Shannon Smith MS, CCC-SLP
Agenda:
12 p.m. – check-in, visit with our exhibitors, lunch
1 p.m. to 3 p.m. – Managing Changing Symptoms presentations
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
Meet Our Volunteers Making Life Better for People with Parkinson’s
Every Parkinson’s Foundation volunteer helps us make a difference in the lives of people with Parkinson’s disease (PD). This year, we celebrated our top volunteers with a prestigious national award. Meet our 2023 National Volunteer Awardees and let their empowering stories inspire you.
Paul Oreffice Volunteer of the Year
Jim Morgan
Florida Chapter
Jim was diagnosed with Parkinson’s disease 16 years ago. Shortly after, he found the Parkinson’s Foundation. Since his first encounter, Jim has been continuously involved with the Foundation and is a leader in helping us fulfill our mission to make life better for people living with Parkinson’s. He demonstrates the selfless and valuable contributions that volunteering makes to our community. He has made a substantial impact, not only in his own community but on a national scale.
“To be associated with an organization that is truly making a difference in people’s lives every day is an honor and a privilege. I am sincerely honored and humbled to be selected as this year’s Paul Oreffice Volunteer of the Year.”
Mark is a Parkinson’s Foundation Ambassador and a member of the Southwest Advisory Board. After being diagnosed with young-onset Parkinson’s, he has made a dramatic initial impact in the Parkinson’s community and goes beyond what is expected to help the Foundation reach more people. He is passionate about helping the Foundation make a long-term impact.
"I am truly honored and humbled to receive such an award! Especially when so many people are working to raise awareness and to help people with Parkinson's across the country. I wouldn't receive an award like this without the love and support of my close friends and fellow "Parkies" who inspire me with their strength and who help lift me up when I need it."
Karan raised more than $80,000 as a Parkinson’s Champion upon completing the elite World Marathon Challenge this year. That’s seven marathons in seven continents in seven days.
“In part, it is to test myself and my boundaries mentally and physically. More importantly, it is to raise awareness and funds for Parkinson’s Foundation and to honor my dad, who has been living with this condition for the past six years.”
His amazing accomplishment puts him among just 200 people in the world who have completed this challenge, and he was able to spread awareness as he shared his journey, appearing on several news stations. In a special moment and the culmination of all his hard work, he presented all seven finishing medals to his hero and inspiration, his father, Rajit. The funds Karan raised help the Parkinson’s Foundation advance research that can lead us to a cure.
BJ serves the Parkinson’s Foundation in numerous impactful ways — this year, he has completed more community service hours than any volunteer, coming in at 189 hours! He serves on the People with Parkinson’s Advisory Council, Gulf Coast Chapter Board, as Chair of the Moving Day Baton Rouge planning committee and a Parkinson’s Foundation Ambassador.
"It isn't about the number of hours; it is about the number of connections made and resources provided. I will provide as many hours as I am capable of to maximize those connections whenever and wherever necessary."
Already a volunteer? Make sure you report your hours at Parkinson.org/Volunteer-reporting so you can be in the running for our community service award next year!
We have reached capacity for our in-person program. Please register to join us at-home via Zoom or contact GreatLakes@parkinson.org to get added to our waitlist.
A balanced diet is important for people with Parkinson’s disease. Learn about foods that may help ease symptoms and support brain health in addition to understanding how some foods can affect the way Parkinson’s medications work. This program will also address the latest information on the gut and brain connection with PD.
Speakers
R. Ross Coleman, MD
Movement Disorders Specialist
Corewell Health West, Grand Rapids, MI
Emily Ruether, MD
Movement Disorders Specialist
Corewell Health West, Grand Rapids, MI
Sarah E. Raguckas, PharmD
Pharmacist
Corewell Health West, Grand Rapids, MI
Angela West, PA-C
Parkinson's Physician Assistant
Corewell Health West, Grand Rapids, MI
Emily Buteyn, MA, CCC-SLP
Parkinson's LSVT-Certified Speech Language Pathologist
Corewell Health West, Grand Rapids, MI
Nicholas Stephanoff, MD
Family Practice and Lifestyle Medicine
Corewell Health West, Grand Rapids, MI
For in-person attendees: Check-in starts at 10 a.m.
For virtual attendees, via Zoom: The live stream starts at 11 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
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The Parkinson’s Foundation Great Lakes Chapter is pleased to be working with Parkinson Partners of Northwestern Pennsylvania for the September 16th program in Erie, Pennsylvania.
In-person check-in starts at 9 a.m.
After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.
Speakers
Xin Xin Yu, MD, MS
Director of Functional Movement Disorders Program
Neurological Institute Experience Officer
Center for Neuro-Restoration
Cleveland Clinic
Dimitrios A. Nacopoulos, MD
Clinical Assistant Professor
Department of Neurology
University of Pittsburgh School of Medicine
UPMC Neurological Institute
For in-person attendees: Check-in starts at 9 a.m.
For virtual attendees, via Computer or Smartphone: The live stream starts at 9:30 a.m.
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
