Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Guest Check-In begins at 10 a.m. and the program starts at 10:45 a.m.

The Parkinson’s Foundation, in collaboration with IU Health-A Parkinson's Foundation Center of Excellence, is hosting its annual Parkinson’s Disease Symposium. This informative event will feature discussions on key topics such as sleep, mindfulness-based stress reduction, and the impact of Parkinson’s disease on autonomic function. Attendees will also have the opportunity to explore a vendor fair, highlighting valuable local resources for individuals affected by Parkinson’s disease.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

Speakers from IU Health Neuroscience Center- A Parkinson's Foundation Center of Excellence:

Dr. Cynthia L. Bodkin, MD

Dr. Alex C. Barboi, MD

Eden C. Mock MSW, LCSW

In-person check-in begins at 12 p.m. and the program starts at 1:00 p.m. A complimentary boxed lunch will be provided. Please call Jessica at (312) 762-5706 if you have any dietary requirements.

Living with Parkinson's can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. We will cover common Parkinson's disease (PD) medications, their benefits, potential side effects, and the need for adjustments over time. We will also emphasize the importance of a well-rounded care plan that includes exercise and social engagement to combat isolation. Together, these factors can greatly improve the quality of life for those living with PD.

Speakers

Danny Bega, MD, MSCI
Northwestern Medicine Parkinson's Disease & Movement Disorders Center, A Parkinson's Foundation Center of Excellence

Katie Fagan, MSW, LCSW, CDP
Northwestern Medicine Parkinson's Disease & Movement Disorders Center, A Parkinson's Foundation Center of Excellence

Adam Burns, PT, DPT, NCS
Allied Health Supervisor, Burr Ridge, Outpatient Center
Senior I Physical Therapist
APTA Board Certified Neurologic Clinical Specialist
Shirley Ryan AbilityLab

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Check-in starts at 12 p.m. and the program starts at 1 p.m. 

There are many non-motor challenges associated with Parkinson's disease that may not always be easy to discuss. With a focus on sleep issues and falls, this program will provide strategies for coping and talking about it with healthcare providers or loved ones. We will hear about how Parkinson's affects sleep quality and learn about the neurobiology behind fall risk.

Speakers

Mark Garwood, MD 
Assistant Professor of Neurology, Michigan Medicine

Vikas Kotagal, MD, MS
Associate Professor of Neurology, Michigan Medicine

Katie Afton
Coordinator of Rock Steady Boxing at TITLE A2

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

This program is done in partnership with Michigan Medicine and registration information will be shared with them. 

Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression so you can live your best life with PD now.

Speakers

Nami Shah, MD
Department of Neurology, Movement Disorders
University of Rochester

Megan Hotchkiss, PT, DPT
Director of Clinical Education/Associate Professor
Ithaca College

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– January 14 and January 28, 2025
– February 11 and February 25, 2025
– March 11 and March 25, 2025
– April 8 and April 22, 2025
– May 13 and May 27, 2025
– June 10 and June 24, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– January 14 and January 28, 2025
– February 11 and February 25, 2025
– March 11 and March 25, 2025
– April 8 and April 22, 2025
– May 13 and May 27, 2025
– June 10 and June 24, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Exercise is an essential part of overall Parkinson's management. In addition to helping with movement symptoms, exercise can have a positive impact on non-motor symptoms in Parkinson's. This program focuses on how exercise supports brain health and can lead to improved emotional and cognitive well-being. 

In-person Check-in Time: 10 a.m. ET
Resource Fair: 10 a.m. – 11 a.m.
Program Time:  10 a.m. — 1:30 p.m. Lunch will be served. 

Ample parking is available onsite.

Speakers: 

 Terry Brame
Coordinator, YMCA of Central Virginia Community Health

Lennox McNeary, MD, FAAPMR
Physician specializing in Physical Medicine and Rehabilitation, Neuro Rehab Collaborative

Philip J. Lee, MD
Movement Disorders Fellow, UVA Health University Hospital

Rock Steady Boxing Demonstration

The Parkinson's Foundation Atlanta Healthcare Expo is an event designed to connect your business with resources for your Parkinson's patients, clients and residents. During our event, you will have the opportunity to hear from local Parkinson's Foundation team members, Parkinson's disease (PD) experts and Georgia Chapter Volunteers on the many no-cost resources available to your team.

The Parkinson's Foundation Georgia Chapter is pleased to host this gathering of professionals serving the local PD community. This Healthcare Expo is free to attend, but registration is required. 

Agenda:
7:45 a.m. EST – Registration opens
8 a.m. EST – Breakfast & networking
8:30 a.m. EST – Program begins
9:30 a.m. EST – Program ends