Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Join the Parkinson’s Foundation (in person or online) for the New York Chapter Parkinson’s Symposium. Hear about current and upcoming treatments, ongoing research, and resources available in your community to help you live your best life with Parkinson’s. 

Speakers: 

Matthew Moore, MFA
Parkinson’s Activist, Actor, Playwright, Keynote Speaker, Coach

Kelly Andrzejewski, DO, PhD
Department of Neurology
UBMD Neurology

Assaf Berger, MD
Department of Neurosurgery
UBMD Physician’s Group

Allison Dilliott, PhD

Genomics Lead, Clinical Research

Parkinson's Foundation

   Directions: Erie Community College Map

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Join the Parkinson’s Foundation (in person or online) for the New Jersey & Pennsylvania Chapter Parkinson’s Symposium. Hear about current and upcoming treatments, ongoing research, and resources available in your community to help you live your best life with Parkinson’s.

Speakers:

Jacqueline Cristini, PA
Hackensack Meridian Health

Jill Farmer, DO, MPH, FCPP, DipABLM
BoroNeuro

Vanessa Christine Milano, MD
Hackensack Meridian Health

Ling Pan, MD
RWJ Barnabas Health

Valerie Zaloom Buccino, Esq.
Goldberg Law Group

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Guest Check-In begins at 10 a.m. and the program starts at 10:45 a.m.

The Parkinson’s Foundation, in collaboration with IU Health-A Parkinson's Foundation Center of Excellence, is hosting its annual Parkinson’s Disease Symposium. This informative event will feature discussions on key topics such as sleep, mindfulness-based stress reduction, and the impact of Parkinson’s disease on autonomic function. Attendees will also have the opportunity to explore a vendor fair, highlighting valuable local resources for individuals affected by Parkinson’s disease.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

Speakers from IU Health Neuroscience Center- A Parkinson's Foundation Center of Excellence:

Dr. Cynthia L. Bodkin, MD

Dr. Alex C. Barboi, MD

Eden C. Mock MSW, LCSW

In-person check-in begins at 12 p.m. and the program starts at 1:00 p.m. A complimentary boxed lunch will be provided. Please call Jessica at (312) 762-5706 if you have any dietary requirements.

Living with Parkinson's can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. We will cover common Parkinson's disease (PD) medications, their benefits, potential side effects, and the need for adjustments over time. We will also emphasize the importance of a well-rounded care plan that includes exercise and social engagement to combat isolation. Together, these factors can greatly improve the quality of life for those living with PD.

Speakers

Danny Bega, MD, MSCI
Northwestern Medicine Parkinson's Disease & Movement Disorders Center, A Parkinson's Foundation Center of Excellence

Katie Fagan, MSW, LCSW, CDP
Northwestern Medicine Parkinson's Disease & Movement Disorders Center, A Parkinson's Foundation Center of Excellence

Adam Burns, PT, DPT, NCS
Allied Health Supervisor, Burr Ridge, Outpatient Center
Senior I Physical Therapist
APTA Board Certified Neurologic Clinical Specialist
Shirley Ryan AbilityLab

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Check-in starts at 12 p.m. and the program starts at 1 p.m. 

There are many non-motor challenges associated with Parkinson's disease that may not always be easy to discuss. With a focus on sleep issues and falls, this program will provide strategies for coping and talking about it with healthcare providers or loved ones. We will hear about how Parkinson's affects sleep quality and learn about the neurobiology behind fall risk.

Speakers

Mark Garwood, MD 
Assistant Professor of Neurology, Michigan Medicine

Vikas Kotagal, MD, MS
Associate Professor of Neurology, Michigan Medicine

Katie Afton
Coordinator of Rock Steady Boxing at TITLE A2

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

This program is done in partnership with Michigan Medicine and registration information will be shared with them. 

Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression so you can live your best life with PD now.

Speakers

Nami Shah, MD
Department of Neurology, Movement Disorders
University of Rochester

Megan Hotchkiss, PT, DPT
Director of Clinical Education/Associate Professor
Ithaca College

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:
– March 11, 2025
– April 8, 2025
– May 13, 2025
– June 10, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.