Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:

• March 11, 2025
• April 8, 2025
• May 13, 2025
• June 10, 2025
• July 8, 2025
• August 12, 2025
• September 9, 2025
• October 14, 2025
• November 11, 2025
• December 9, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Parkinson's Foundation: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

Please note: These meetings are intended for individuals diagnosed with Parkinson’s disease who live alone, by choice or circumstance – only. If this is not your situation, please contact the Parkinson’s Foundation Helpline to receive information about resources that best meet your needs. Call the Helpline at 1-800-473-4636 (1-800-4PD-INFO) or helpline@parkinson.org.

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:

• March 11, 2025
• April 8, 2025
• May 13, 2025
• June 10, 2025
• July 8, 2025
• August 12, 2025
• September 9, 2025
• October 14, 2025
• November 11, 2025
• December 9, 2025

There is no charge to attend, but registration is required in order to receive the Zoom link.

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. 

Expert Speakers

Henry P. Moore, MD
Director of Movement Disorders at Palm Beach County
University of Miami-Miller School of Medicine 
A Parkinson’s Foundation Center of Excellence

Daniel Kantor, MD, FAAN
Vice President, Clinical Research & Development | Gateway Institute for Brain Research 

Tarannum Khan, M.D., CPE, FAAN, FANA
Ambulatory Director (Weston Neurology)
Staff Neurologist, Movement Disorders
Pauline Braathen Neuroscience Institute

Learn more about the expert speakers and panelists by clicking here.

Panelists

Shoshana Bielich, MS, CCC-SLP, CBIS, Cleveland Clinic Weston Hospital

Shari Gordon, DPT, Cleveland Clinic Weston Hospital

Jacqueline A Bryan, MSW | Social Worker | Neuroscience Institute

Laura Duarte, Cleveland Clinic Weston Hospital

Fitness Demonstration: Lenisson "Lenny" Carneiro, PT, DPT, GCS, CEEAA), Dr. Physio Therapy & Wellness

Fitness Demonstration: Allie and Mark Barker, RAW Kickboxing and Fitness

Event Volunteers Needed! Service hours and lunch are provided. To sign up and learn more, visit: Volunteer sign-up here

For in-person attendees: Check-in and Resource Fair start at 9 a.m. Lunch will be served.

Unloading/Room Location: The program is located at the Main Entrance, Building B. Parking and drop-off is in front of the building. For the entrance to our parking lot, use this address: 500 NE 2nd St., Fort Lauderdale, FL 33301

There is no charge to attend, but registration is required since lunch will be served. This program is open to people with Parkinson's, their family, friends and the community.

After many years of good symptom management, Parkinson’s disease may become more challenging.  Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Expert Speaker:
Enrique Urrea-Mendoza, MD
Neurologist | Movement Disorders Specialist
Assistant Professor
Department of Clinical Sciences
FSU Health | FSU College of Medicine

Lunch will be served.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

This program is hosted by the Parkinson’s Foundation Gulf Coast Chapter, in collaboration with Southeast Health.

Join us for a webinar this month to Celebrate Movement in the PNW, with our guests Dirty Freehub! They will be sharing information about their All Access program, an amazing resource for those with PD looking to get out and ride their bike in Oregon this summer. We'll also share upcoming events in region and ways to create your own movement-based event. See you on April 23! 

Check-in & the Resource Fair (for in-person attendees) begins at 9:00 a.m. CDT 

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life.  This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.

Expert Speaker:

Anthony P Nicholas, MD, PhD, The University of Tennessee Health Science Center

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Check-in begins at noon and the program starts at 1 p.m. 

After many years of good symptom management, Parkinson’s disease may become more challenging. Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Speakers from OSU Wexner Medical Center:

Katherine Brownlowe, MD Neuropsychiatrist

Jonathan Zins, DPT, PT Physical Therapist

Elyse Everett, MD Neuropalliative Care Physician

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community.

Join us in growing your knowledge of support, classes, and services for your journey with Parkinson's. Visit the local resources at the exhibit tables to learn more about their offerings. Join us to hear what a newly trained movement disorder specialist has learned about treating people living with PD and an overview of motor and non-motor symptoms and cognition. Complimentary refreshments.

Speaker:

Dr. Meaghan Berns
M Health Fairview

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their families, friends, and the community. 

The program is in partnership with the Eden Prairie Community Center

Thank you to our sponsors.

Participants will learn about the latest treatments and identify new care strategies for managing Parkinson’s symptoms. Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression so you can live your best life with PD now. 

Speakers

Susan Dodwell, MD
Maine Health-Maine Medical Center

Michael Kleinman, DO
Maine Health-Maine Medical Center

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

Join the Parkinson’s Foundation in person or online for the Mid-Atlantic Parkinson’s Symposium. Hear about current and upcoming treatments, ongoing research, and resources available in your community to help you live your best life with Parkinson’s.

Speakers:

Justin P. Martello, MD
Neurologist
Christiana Care Health System

Kyurim Kang, Ph.D., LPMT, MT-BC, NMT
Postdoctoral Research Fellow and Neurologic Music Therapist
Johns Hopkins Center for Music and Medicine

Azaria Norris MBA, NASM CPT
PWR!Moves Certified Instructor
Age Well Senior Fitness

Katie Huber, E-RYT-500, RCYT

Yoga for People with Parkinson's Disease

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.