Join us for this highly engaging program designed to provide valuable insights and effective strategies for maintaining and enhancing communication and cognitive abilities. Discover practical methods and exercises aimed at improving your overall voice and cognitive functioning.
Speaker
Sabiha Parveen, Ph.D., CCC-SLP
Associate Professor & Graduate Program Director
Dept. of Communication Sciences and Disorders
Oklahoma State University
There is no charge to attend, but registration is required.
Due to the nature of our social engagement programs and to protect the privacy of participants, we will not be recording or archiving these programs. By not recording, it's our hope that the program provides a comfortable environment that encourages meaningful participation.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Check-in, lunch and exhibitor tables open at 12 p.m. ET.
A balanced diet is important for people with Parkinson's disease. Learn about food that may help ease symptoms and support brain health in addition to understanding how some foods can affect the way Parkinson's medications work. This program will also address the latest information on the gut and brain connection with PD.
There is no charge to attend, but registration is required. Lunch will be served. This program is open to people with Parkinson's, their family, friends and the community.
Featured Speaker
Carolee Horner
Functional Nutritionist
This program is hosted by the Parkinson's Sisters Support Group in partnership with the Parkinson's Foundation Georgia Chapter.
COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
A free flowing movement class that brings out the dancer in you without needing any prior dance knowledge. Using music, we explore range of motion throughout the body and develop an awareness of movement in space. It is a full body workout.
Please keep a bottle of water nearby. Enjoy the session!
Instructors
Cecilia Fontanesi, PhD, BC-DMT
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Cardio, strength, balance and coordination exercises will be added in to the PWR Moves curriculum which explores exercises to improve range of motion, agility, and quality of movement in everyday living. We will review the PWR Moves positions and exercises. You may need a chair, water bottle, light weights (or canned goods). All levels welcome.
Instructors
Stacey Macaluso, Life Coach & Fitness Specialist, Founder of Mission PD
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Body mapping is diverse and can be used in different settings. This class will help you learn ways to use the eyes and body mapping in your ongoing exercise routine, rather that be boxing, large amplitude/big movements, strength, or balance.
We will use previous techniques to help integrate the whole body (left and right, lower and upper) during movements. For example, learn how to integrate the lower and upper half of your body while using the eyes to improve rotation during boxing.
Class will be a moderate to higher pace and level but seated variations will be given throughout class.
Equipment needed: Chair, exercise mat, hand towel, small hand weights, and a second chair/walker/foam roller/wall for support during chair to standing transitions
This class is live, so stay tuned towards the end of class and partake in a Q&A to discuss what worked for you or find what adjustments you could make!
Please keep a bottle of water nearby. Enjoy the session!
Instructors
Corey Emberton, Neuro and Movement Specialist, Level 3 Neurostudio Advanced Practitioner
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
Maintain a step ahead with the PD-Connect BASIX™ program. A multi-FUNctional class focusing on Balance, Aerobics, Strength, Integration and eXcellence. Engage in our award winning live "Show" and enjoy aerobic activity, dance, strength and dynamic skills to stay ahead of your PD symptoms. The goal is for moderate to vigorous intensity, with modifications in standing and in the chair. Parkinson's-specific fitness couldn't be more fun!
Equipment needed: Chair, weights (or canned goods), and a tennis ball
Please keep a bottle of water nearby. Enjoy the session!
Instructor
Lisa Oei, PT, MSPT, DPT, Physical Therapist, Parkinson's Wellness Coach; PD-Connect, Corte Madera, California
SteF Farina, MCT
There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.
In this session we will talk together about how to build joy into your days, and introduce a joy meditation that you can do sitting quietly or on the go.
La enfermedad de Parkinson 101: lo que usted y su familia deben saber Regístrese Aquí
Acompañe a la Parkinson’s Foundation para aprender acerca de las causas, los síntomas y el manejo de la enfermedad de Parkinson, así como la participación en investigaciones.
Presentadora
Andrea Fuentes, MD
Profesora adjunta de clínica
Neurología y ciencia neurológica
Stanford Medicine
Explorando terapias complementarias para el Parkinson: los beneficios de la terapia física, del habla y ocupacional Regístrese Aquí
¡Acompáñenos en una charla en línea donde profundizamos en el mundo de las terapias complementarias y su papel fundamental en mejorar la calidad de vida de las personas que viven con la enfermedad de Parkinson!
Esta sesión interactiva se centrará en la importancia de la fisioterapia, la terapia del habla y la terapia ocupacional, brindando una comprensión integral de sus roles y los numerosos beneficios que ofrecen. No se pierda la oportunidad de participar en demostraciones en vivo de ejercicios terapéuticos diseñados específicamente para pacientes con Parkinson.
Presentadoras
Ana Sanchez Junkin, PT, DPT, NCS
Especialista clínica en neurología certificada
Profesora adjunta
MGH Institute of Health Professions
Dora Jasso, MA, CCC-SLP, CBIS
Patóloga del habla y el lenguaje
MountainView Regional Medical Center
Pamela Talero Cabrejo, OTD, BSOT(Col), OTR/L, CPAM, COT
Profesora adjunta
Programa post-profesional de terapia ocupacional
Departamento de terapia ocupacional
Jefferson College of Rehabilitation Sciences
Thomas Jefferson University
Avances en el tratamiento del Parkinson: ¿Qué hay de nuevo? Regístrese Aquí
Existen muchos medicamentos para mejorar la calidad de vida de las personas con la enfermedad de Parkinson (EP). Sin embargo, cada individuo responde de manera diferente a los medicamentos. Lo que funciona para uno no necesariamente funciona para otro.
Conozca los avances en los tratamientos para la enfermedad de Parkinson, tanto para los síntomas motores como no motores y dónde nos encontramos en el camino hacia la medicina personalizada.
Presentador
Ramon Rodriguez, MD, FAAN
Especialista en neurología
Neurology One
EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.
Raise Awareness
11 Goals You Helped Us Accomplish in 2023
In a word, momentum was the theme for the Parkinson’s Foundation in 2023. Thanks to the Parkinson’s community, especially our donors, we worked hard to make life better for people with Parkinson’s disease (PD) through advancing research and prioritizing access to care.
Here are 11 ways you helped us keep the momentum in 2023:
In July 2023, we published a study that found that only 50% of people with Parkinson’s saw a general neurologist. As a result of these findings, we are expanding disease-specific training to neurologists and other healthcare providers, and pursuing ways to improve access to care across all demographic and population groups.
2. Provided Genetic Testing and Counseling to 11,000 people with PD
In 2023, our global genetics study PD GENEration: Mapping The Future of Parkinson’s Disease reached the milestone of providing genetic testing and counseling to 11,000 people with Parkinson’s. PD GENEration test results empower people, help them work alongside their doctor to tailor PD treatment, and can match them to gene-specific clinical trials. Thus far, PD GENEration data shows that 12.7% of people with Parkinson’s have a genetic link to the disease — much higher than the originally believed 5-10%.
To bring specialized Parkinson’s care to more people, we designate medical centers that know how to treat this complicated disease. In 2023, we designated eight new centers as part of our Global Care Network, with the first-ever designations in Wisconsin and Washington, and the country of Japan.
The Parkinson’s Virtual Biotech, a partnership with the Parkinson’s UK, is currently funding 13 potential medications in development that either address PD symptoms or aim to slow, stop, or prevent the disease altogether. This initiative gets us closer to delivering life-changing treatments in years, not decades.
A Parkinson’s breakthrough can happen at any time, in any lab, which is why we directly fund scientists who are conducting innovative studies attacking Parkinson’s from every angle. In 2023, we awarded $2.8 million across 30 promising research grants.
Dr. Wang is exploring a new way to target the cause of PD by using RNA-degrading technology. His lab is working to prevent over-accumulation of alpha-synuclein (a protein) in the brain, hopefully paving the way to halt the development of the disease.
Ensuring diversity and inclusivity in Parkinson’s research is critical to accelerating breakthroughs toward a cure. In 2023, we partnered with Morehouse Healthcare to expand genetic research in the Black community, making Morehouse the first historically Black institution of medicine to become a PD GENEration research site.
We awarded nearly $1 million in community grants to PD programs across 35 states. From non-contact boxing classes to educational events and wellness programs, we have invested more than $10.4 million in 787 community-based programs since 2011.
Even though 90,000 Americans are diagnosed with Parkinson’s every year, most healthcare professionals — including nurses, pharmacists and general practitioners — do not receive in-depth PD care training. We added new accredited online courses to our Education Series for Community Providers, which are designed to improve treatment and outcomes for people with Parkinson’s.
We launched 50 new Spanish pages on Parkinson.org. From symptoms to managing PD, these pages are designed to reach the Spanish-speaking Parkinson’s community and connect them to key information and tools.
10. Raised $3.5 million through Parkinson’s Champions
Parkinson’s Champions are a dedicated group of people in the PD community who fundraise to help us fight Parkinson’s. Parkinson’s Champions do it all, they run in prestigious races, cycle for Parkinson’s Revolution, host Facebook fundraisers, and more. In 2023, Parkinson’s Champions raised $3.5 million to propel us towards a cure.
Photo credit: Tricia Baron
On April 11, the producing team behind the Broadway hit, A Beautiful Noise: The Neil Diamond Musical presented $500,000 to the Parkinson’s Foundation in honor of legendary singer, songwriter and performer Neil Diamond, who is living with Parkinson’s.
Every year, the top neurologists and Parkinson’s experts in the world attend renowned conferences to share new information about PD treatments and research. In 2023, the Parkinson’s Foundation shared numerous research and care findings at two premier conferences.
As much as we accomplished in 2023, we are committed to doing more for the PD community in 2024. Your continued support is the only way we can make that happen. Thank you.
