My PD Story

Kasey Moore
General PD Community

Kasey Moore

In 2020, during the pandemic, my family and I were spending more time together at home, and one night we watched the movie Awakenings. I was deeply moved by the story, the patients’ struggles and the compassion shown by the doctors. I asked my dad about it, and he explained that the condition shown in the film was Parkinson’s disease (PD).

My dad is a neurologist who specializes in movement disorders, so during that time, as he worked from home, I learned more about this work. I was newly aware of how his patients fought every day against this disease, and how much it affected not only them but their families too. Learning that there was no cure broke my heart, but my dad also told me about the Parkinson’s Foundation and the incredible work they do to bring education, research and hope to those affected by PD. 

I was only 10 years old, but I wanted to help. Since I loved music, I decided to create a Facebook fundraiser and perform piano pieces to inspire donations for the Parkinson’s Foundation. Then I thought, why not invite others to join? Soon, friends, family and even professional artists became part of it. That’s how Parkin-SONG was born. To my surprise, our first event in 2020 even featured Gloria Estefan and was mentioned in the local news! 

In 2025, I brought Parkin-SONG back, bigger and stronger, through my nonprofit NeuroEduCares, a youth-led organization I founded to promote understanding, compassion and education about neurological diseases like Parkinson’s disease and Alzheimer’s disease.

With an incredible team of young leaders, we organized Parkin-SONG II as both a global virtual concert and a live event at American Heritage School (Palm Beach Campus). The campus came alive with music, karaoke, live performances and even a student dodgeball tournament, creating a day full of unity and purpose. It’s been amazing to see how something that started as one small online idea became a global and school-wide celebration of hope.

I’m proud to support the Parkinson’s Foundation as a Parkinson’s Champion through Parkin-SONG. To me, being a Parkinson’s Champion means taking action to help others. It means using my voice, my music and my efforts to bring comfort, hope and awareness to the Parkinson’s community.

It’s an incredible feeling to know that something that began from the heart can grow and truly make a difference, supporting the Foundation’s mission and giving strength to people with PD and families who face this disease every day.

The Parkinson’s Foundation brings hope where it’s most needed. The Foundation dedicates time, research and resources to improving the lives of people and families affected by this disease. Supporting the Foundation means helping fund education, care programs and research that could one day lead to a cure.

Through my experience as a Parkinson’s Champion, I’ve learned any idea, big or small, can have a large impact. You don’t need to be an adult or an expert to make an impact; you just need passion and a willingness to act. If you truly believe in your cause and put your heart into it, people will join you.

For more information on becoming a Parkinson’s Champion and creating your own fundraiser to support the Parkinson’s Foundation, visit Parkinson.org/DIY.

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