My PD Story

I was diagnosed with Parkinson’s disease (PD) in 2018. Before my diagnosis, my left arm would not swing, and I shuffled around the house, dragging my left foot. I used to stoop, but now, with the help of exercise and medication, I can swing my arms as I stand tall and walk with big strides. My movement symptoms are under control with exercise and medication, and most of my new acquaintances don’t even realize I have PD.

I have a quiet voice that has become quieter with Parkinson’s, so I make a conscious effort every day to speak with intent. I completed the 10-week Speak Out program with a speech-language pathologist, and now I meet weekly on Zoom to continue working on my voice. It’s more than just speech—it includes reading and cognitive exercises that keep my mind active.

The thought of PD dementia scares me, so I constantly challenge myself with brain puzzles and word games to stay sharp.

Exercise has truly changed my life. I go for a brisk walk every morning because mornings are my best time of day. During the summer, I love swimming in the pool, and throughout the year I work out at the gym with friends. Three times a week I attend Rock Steady Boxing (RSB) for a vigorous, high-energy workout that pushes both my body and mind.

When I joined RSB, I felt like I had already lost some of my strength, my rhythm and even the ability to jump. But boxing gave all of that back to me. I learned the combinations, moved through obstacle courses, jumped rope again and even found myself skipping to the beat of the music. I was hooked — pun intended.

Now I’m a coach for Rock Steady Boxing, and one of my favorite parts of class is leading dance warm-ups. Music and movement bring me joy. I also completed the BIG physical therapy program and still go through it semi-annually. Staying intentional about my routines keeps me independent — I’m grateful to still be able to drive and manage daily life on my own.

I stay involved with the Parkinson’s Foundation through Moving Day Phoenix, where I serve on the volunteer committee. I’ll never forget my first Moving Day walk. I didn’t know what to expect, but seeing so many people gathered together for one purpose was inspiring. It gave me hope, educational opportunities and new ways to adapt. That experience reminded me that Parkinson’s is manageable if you’re intentional about what you do.

A few years ago, I did genetic testing and was relieved to learn I have no known PD markers. It’s comforting to know it may not be passed on directly to my children.

I may have been on the road to somewhere else, but my current place is still beautiful.

I have wonderful friends, workout groups and support systems that keep me grounded. As I often remind others: Parkinson’s isn’t the end — it’s just the beginning of a new normal. And I intend to make this new normal worthwhile.

Exercise is essential for people living with Parkinson’s. Find your nearest Parkinson’s Foundation Chapter or call our Helpline at 1-800-473-4636 to explore exercise PD exercise classes near you.