Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:

– June 11 and June 25, 2024
– July 9 and July 23, 2024
– August 13 and August 27, 2024
– September 10 and September 24, 2024
– October 8 and October 22, 2024
– November 12 and November 26, 2024
– December 10, 2024

There is no charge to attend, but registration is required in order to receive the Zoom link.

Parkinson's Foundation Launches: The PD Solo Network - Living Alone While Living with PD

There are two sessions available: You are welcome to choose one or attend both.
– 1 p.m. to 2:30 p.m. ET
– 7:30 p.m. to 9 p.m. ET

What is the PD Solo Network: 

A virtual network for people living with Parkinson's disease (PD) who live alone, by choice or circumstance. The purpose of this group is to create a community of support for those living without a care partner. People living with PD are the experts about what challenges, changes and accommodations are needed on a daily basis. This network will provide a place to share ideas, concerns, brainstorm strategies, suggestions, resources & to build relationships.

The Parkinson's Foundation is providing the initial funding and support to kick start this network. It will most likely become a very strong network that will operate independently although the Parkinson's Foundation will always be an entity of support & information for the participants.

Upcoming Meeting Dates:

– June 11 and June 25, 2024
– July 9 and July 23, 2024
– August 13 and August 27, 2024
– September 10 and September 24, 2024
– October 8 and October 22, 2024
– November 12 and November 26, 2024
– December 10, 2024

There is no charge to attend, but registration is required in order to receive the Zoom link.

In-person check-in, vendor visits, coffee and community time starts at 10 a.m.

Navigating Parkinson’s disease involves looking ahead, learning and adjusting as symptoms and needs change. This program addresses some of the challenges of advancing PD and explores strategies to prepare for the future, including how to evolve your care plans and treatments throughout progression so you can live your best life with PD now.

Speakers

Jori Fleisher, MD, MSCE, FAAN
Rush University Medical Center, A Parkinson's Foundation Center of Excellence

Sarah Mitchell Chen, LCSW, APHSW-C
Rush University Medical Center, A Parkinson's Foundation Center of Excellence

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

The Parkinson's Foundation is pleased to join the Hawai'i community again this year!

Parkinson's research is important to finding better treatments and improving care. At this program, attendees will learn about what's new in research, how research shapes treatments, and about care strategies for managing Parkinson’s symptoms.

People with Parkinson’s, their loved ones, and health providers are invited to join us for a Resource Fair, exercise demonstrations, table activities, raffles and giveaways, and lunch. This event will also feature PD GENEration, a research study offering genetic testing and counseling for people with a confirmed PD diagnosis.

Registration, parking and meals are provided at no cost to attendees, but registration is required.

SPEAKERS: Michiko Bruno, MD; Web Ross, MD; Fay Gao, MD

Parkinson’s disease can create many challenges to getting a good night’s sleep. This program provides information on how Parkinson's disease affects sleep quality and addresses ways you can get a better night's sleep while living with PD.

This program is open to people with Parkinson's, their family, friends and the community.

Speaker: 
Joyce K. Lee-Iannotti, MD, FAASM, FAAN  Barrow Neurological Institute

Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. Learn about how Parkinson's can impact sleep.

Speakers: 
Zolton Mari, MD, Cleveland Clinic Lou Ruvo Center for Brain Health
Lucille Carriere, PhD, Cleveland Clinic Lou Ruvo Center for Brain Health

 
Living with Parkinson’s can be challenging, but there are many things you can do to maintain and improve your quality of life. This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead. Learn about how Parkinson's can impact thinking and mood.

Speakers: 
Laura Pesántez Pacheco, MD, University of Utah 
Patty Shang, PT, DPT, NCS, Intermountain Health

Participants will learn how research helps shape treatments and identify new care strategies for managing Parkinson’s symptoms. This program will also provide information on current research in Parkinson’s.

*This program may include moderately scientific terms and concepts.

Speaker:
Cynthia S. Reed, MD, Parkinson's Wellness Clinic

Emotional and social health is an important part of living well with Parkinson’s disease. Many symptoms of Parkinson’s can affect emotional and social wellness. Learn how various clinical and creative therapies can support not only symptom management but the overall well-being of the person living with PD.

Speakers

Rebecca Lalchan, DO
NYU Langone Health, a Parkinson's Foundation Center of Excellence

Aleksandra Rayska, Ph.D. 
Supervising Psychologist
Therapists of New York

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends, and the community.

NOTE: Please be aware that filming will be taking place during our educational event for a Parkinson's Foundation volunteer recruitment PSA. You may appear in the video as an attendee at this event. If you have any concerns about being filmed, please let us know upon arrival.
 

Join the Parkinson’s Foundation on Thursday, July 25 via Zoom for a Parkinson’s 101 program highlighting important resources, such as online exercises, hospital safety, our toll-free Helpline, and more.

There is no need to register! Simply click the 'Join Program' button below on Thursday, July 25 at 5 p.m. Mountain Time.
JOIN PROGRAM

This program is open to people with Parkinson's, their family, friends and the community.